Guest guest Posted March 17, 2001 Report Share Posted March 17, 2001 Oh ! I am so sorry that you had to go through that! I have been there, but it was before Kody's diagnosis and I had brought him in for the third time in one week for different things (ear infection, weird rash, and then his eyes glued shut with pus) and my family doctor actually told me that I was over reacting and that " you are not a first time mother you know " ! At that point Kody was so sick ALL the time and I was so FURIOUS with her that I walked out and never went back there again. I decided I needed a regular pediatrician, called one that I had seen at an asthma convention in town and made an appointment. A decision that I will never ever regret doing. My pediatrician's office is so awesome and understanding, that recently my husband was offered a promotion out of town so we would have to move, and he told them no without even talking to me....his reason to them was because there was no way we would take Kody away from the doctors he has here! Luckily he has an understanding boss and is now promoted locally instead! My advice is to first talk to your ped. about what happened, but if you continue to feel so frustrated there, change doctors until you find one that you are comfortable with. In the meantime, hang in there! Sometimes it takes a while to build up a relationship with your doctor, but there was no excuse for the way he treated you. Hugs to you my friend! Diane, Mom to Kody age 5, IgG sub. class def., epilepsy,asthma,GERD, sinus disease and , age 15, age 14, Arika age 13, Kaila age 9, and age 7...all healthy! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2001 Report Share Posted March 17, 2001 SOOOO SORRY , Being that it happened to us this week too.. I can empathize with you. I think for me I have had to remember why I have the fight so hard for my kids. It is like the mother Lioness with her cubs. If we do not take care of them no one else will. I feel so sad when I read some of the postings on other health sites and realize how alone people feel with our health care system. The 92,000 people who died last year because of medical error makes me super vigilant with my kids. Even if they will not listen to me at first then eventually someone does. I know my kid better than anyone else and know when things are not right. You do too. If you are concerned find your ped or go to the ER at a Childrens Hospital. Immunologists have a very different perspective than pediatricians or family practice docs. I remember when we were sent to the Childrens Hospital in another town and we were admitted after Lucas had had 9 courses of antx in 3 months became allergic to 3 and had pansinusitis, a persistent ear infection that his eardrum had burst and was so lethargic that he could not standup. His temp was 104 for 10 days we were one step from meningitis or worse. He had also lost 5 lbs. Our initial diagnosis was only Selective IgA def. no big deal. The immunologist was out of town and the ENT was going to send us home ( still with a temp of 104) because we could come back and take his adenoids out and put tubes in. The immunologist came back that afternoon and I insisted I would not leave until I saw him. We were in surgery in 2 hours. They put a picc line in and the ENT said prior to surgery that they would not find anything in his sinuses because he was too little. He was amazed because he said he was absolutely full of strep. He then wanted to do 10 days of IV antx. but the immuno said no way because it can get into the bones and he wanted to do 6 weeks.I get really angry at the pompous physicians who know it all. The more I learn professionally and personally the more I realize how little I know of the big picture and how little right I have to tell other people what to do. There are excellent physicians out there but you really do have to look for them. Now that I have gone on and on. Hope Caelan is feeling better soon. BARBIE Lucas 5 PID, ???? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2001 Report Share Posted March 17, 2001 In a message dated 3/17/2001 9:07:59 PM Eastern Standard Time, kherzberg3@... writes: > He must of flunked the course--probably why he's not specializing in it. I'll bet he also flunked Bed Side Manners 101 too. At any rate, I hope Caelan is feeling better soon. Quote Link to comment Share on other sites More sharing options...
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