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And where was discharge planning before you left the hospital to arrange for

nursing care to come change his dressing and check the drainage??? You

could still get that doctor to write that you MUST have nursing care at the

minimum for that, but probably should also have 3-4 hours a day to help wtih

his ACL including bath. Want to try???

> Hi, Everyone.....I got an unusual phone call late this afternoon. It was

>

> from a lady who quickly said her name and where she was from. I didn't

> catch

> all of it because I was in a VERY frustrated mood having just gone through

> one of G's 'loops' for the umpteeth time today.

> She asked me if this was the home of Gareth? " Yes............and you can

> have him if you'll take him. " She chuckled and wanted to know how we

> pronounced our last name.......Roof. OK........... " Like the top of your

> house " I

> said. " Who are you, again? "

>

> Turns out she was the case manger for our insurance company and was calling

>

> about G's hospital stay/treatment. " This call may be monitored for quality

> assurance " she added. " Oh, that's just great " I said " now I will have

> Social

> services here tomorrow because I just tried to give my kid away " . She

> laughed at that and said she has in front of her that he is DS/Autistic so

> she

> 'understood' where I was coming from.

>

> She wanted to verify what he had done, how the hospital stay was, and did

> they arrange for any help at home? I laughed at that one!!!

> " Nooooooooooooo "

> " Well, what do you have to do " she wanted to know. I told her I had to

> help with all of his toileting, that he has @50 stitches in his backside

> and

> can't sit, that I have to take care of his drainage tube, change the

> dressings/paddings, help with his showering, dressing, help him transition

> to his

> walker, etc. "

> " Why does he have a walker?!?!? " she asked. " They sent him home with

> bursitis in his left hip " I said. " And you have NO help " she said!!!

> " No.........I am sure I have no help here " I replied. " Oh, my.......... "

>

> " Can you give me a list of his meds? " she asked, " Sure........Risperdal for

>

> SIB: Lexapro for OCD: Plaquenil for UCTD/Scleroderma: Depakote for

> seizures:

> Albuteral for asthma: Lactaid for dairy products: lots of Motrin and

> Tylenol

> for pain. " " And, you have no help?!?!? " she asked again. Then, she said

> " If I didn't live in Pittsburgh, I'd take your kid and help you. "

>

> So, you see............we can do it all.......because we don't have a

> choice.......we ain't got no help!!! And, tomorrow social services will be

> here to

> take my kid away........yeah, right!!!

>

> Take care, Everyone.

> Margaret

>

>

>

>

>

>

> **************Get fantasy football with free live scoring. Sign up for

> FanHouse Fantasy Football today.

> (http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020)

>

>

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In a message dated 7/22/2008 9:56:55 P.M. Eastern Daylight Time,

mfroof@... writes:

So, you see.........So, you see.........<WBR>...we can do it all......

choice......choice......<WBR>.we ain't got no help!!! And, tomorrow social

services

take my kid away........take my kid away

LOLOLOL Margaret!!!!!! That is hysterical!!!!! Duff always jokes when

I say OMG, social services are going to take her away from us if they see

(insert WHATEVER).....he says, " Not a chance in hell " . LOL

HUGS,

Donna

**************Get fantasy football with free live scoring. Sign up for

FanHouse Fantasy Football today.

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Margaret! You are too funny. Without a sense of humor, where would we all be?

Liz

Funny for today

Hi, Everyone.....I got an unusual phone call late this afternoon. It was

from a lady who quickly said her name and where she was from. I didn't catch

all of it because I was in a VERY frustrated mood having just gone through

one of G's 'loops' for the umpteeth time today.

She asked me if this was the home of Gareth? " Yes............and you can

have him if you'll take him. " She chuckled and wanted to know how we

pronounced our last name.......Roof. OK........... " Like the top of your house "

I

said. " Who are you, again? "

Turns out she was the case manger for our insurance company and was calling

about G's hospital stay/treatment. " This call may be monitored for quality

assurance " she added. " Oh, that's just great " I said " now I will have Social

services here tomorrow because I just tried to give my kid away " . She

laughed at that and said she has in front of her that he is DS/Autistic so she

'understood' where I was coming from.

She wanted to verify what he had done, how the hospital stay was, and did

they arrange for any help at home? I laughed at that one!!! " Nooooooooooooo "

" Well, what do you have to do " she wanted to know. I told her I had to

help with all of his toileting, that he has @50 stitches in his backside and

can't sit, that I have to take care of his drainage tube, change the

dressings/paddings, help with his showering, dressing, help him transition to

his

walker, etc. "

" Why does he have a walker?!?!? " she asked. " They sent him home with

bursitis in his left hip " I said. " And you have NO help " she said!!!

" No.........I am sure I have no help here " I replied. " Oh, my.......... "

" Can you give me a list of his meds? " she asked, " Sure........Risperdal for

SIB: Lexapro for OCD: Plaquenil for UCTD/Scleroderma: Depakote for seizures:

Albuteral for asthma: Lactaid for dairy products: lots of Motrin and Tylenol

for pain. " " And, you have no help?!?!? " she asked again. Then, she said

" If I didn't live in Pittsburgh, I'd take your kid and help you. "

So, you see............we can do it all.......because we don't have a

choice.......we ain't got no help!!! And, tomorrow social services will be

here to

take my kid away........yeah, right!!!

Take care, Everyone.

Margaret

**************Get fantasy football with free live scoring. Sign up for

FanHouse Fantasy Football today.

(http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020)

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I always say that they would bring her back in 2 sec. flat!

Re: Funny for today

In a message dated 7/22/2008 9:56:55 P.M. Eastern Daylight Time,

mfroof@... writes:

So, you see.........So, you see.........<WBR>...we can do it all......

choice......choice......<WBR>.we ain't got no help!!! And, tomorrow social

services

take my kid away........take my kid away

LOLOLOL Margaret!!!!!! That is hysterical!!!!! Duff always jokes when

I say OMG, social services are going to take her away from us if they see

(insert WHATEVER).....he says, " Not a chance in hell " . LOL

HUGS,

Donna

**************Get fantasy football with free live scoring. Sign up for

FanHouse Fantasy Football today.

(http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020)

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And, tomorrow social services will be

here to

take my kid away........yeah, right!!!

You are so right, Margaret.

There had been a rash of social services calls to homeschoolers.? Mostly the

ones who had children with some special need or other and the parent decided to

withdraw their child and homeschool.?? We had recently moved and I remember

thinking , " I hope my new neighbors don't decide that I shouldn't homeschool and

call in on me " .? Well, that did not happen, even though we are surrounded by

teachers in this neighborhood but I had to laugh because I figured just one

day.....just one, sending Birgitta to school would be enough for them to send

all my kids back to me.

?Blessings,

homeschooling Mom to AJ (13), (9), ^l^, (age 6,

Trisomy 18 mosaic AKA 's syndrome) and Birgitta (age 5, adoption finalized

2/1/05 !!, Trisomy 21 AKA Down's Syndrome, Fetal Alcohol Syndrome, Autism, SID)

Funny for today

Hi, Everyone.....I got an unusual phone call late this afternoon. It was

from a lady who quickly said her name and where she was from. I didn't catch

all of it because I was in a VERY frustrated mood having just gone through

one of G's 'loops' for the umpteeth time today.

She asked me if this was the home of Gareth? " Yes............and you can

have him if you'll take him. " She chuckled and wanted to know how we

pronounced our last name.......Roof. OK........... " Like the top of your house "

I

said. " Who are you, again? "

Turns out she was the case manger for our insurance company and was calling

about G's hospital stay/treatment. " This call may be monitored for quality

assurance " she added. " Oh, that's just great " I said " now I will have Social

services here tomorrow because I just tried to give my kid away " . She

laughed at that and said she has in front of her that he is DS/Autistic so she

'understood' where I was coming from.

She wanted to verify what he had done, how the hospital stay was, and did

they arrange for any help at home? I laughed at that one!!! " Nooooooooooooo "

" Well, what do you have to do " she wanted to know. I told her I had to

help with all of his toileting, that he has @50 stitches in his backside and

can't sit, that I have to take care of his drainage tube, change the

dressings/paddings, help with his showering, dressing, help him transition to

his

walker, etc. "

" Why does he have a walker?!?!? " she asked. " They sent him home with

bursitis in his left hip " I said. " And you have NO help " she said!!!

" No.........I am sure I have no help here " I replied. " Oh, my.......... "

" Can you give me a list of his meds? " she asked, " Sure........Risperdal for

SIB: Lexapro for OCD: Plaquenil for UCTD/Scleroderma: Depakote for seizures:

Albuteral for asthma: Lactaid for dairy products: lots of Motrin and Tylenol

for pain. " " And, you have no help?!?!? " she asked again. Then, she said

" If I didn't live in Pittsburgh, I'd take your kid and help you. "

So, you see............we can do it all.......because we don't have a

choice.......we ain't got no help!!! And, tomorrow social services will be

here to

take my kid away........yeah, right!!!

Take care, Everyone.

Margaret

**************Get fantasy football with free live scoring. Sign up for

FanHouse Fantasy Football today.

(http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020)

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Have a little check in time with y'all this mid-morning.

Staying out here in Elkhart now with one of my brother-in-law and his

wife.

First time to check out an Amish community out in some shipawana,

something like this, close enough.

Hubby has to head back to work and this will be his first

International flights since the 911 attack, so he will be taking his

laptop with him.

His sister is still at the Hospice and they gave every family member a

book called Gone From My Sight, The Dying Experience, it has helped

understand these stages. Just keeps getting weaker each day.

Some of the Canfield family members were able to all meet at a

restaurant for 's birthday yesterday evening, so he was able to

have an enjoyable one.

My goodness, reading this post, it is true, if anyone walked in your

shoes right now Margaret, they will know that their problems is

nothing compared to what you have on your plate.

Hope this person has access on seeking some supported services your

way now that you have filled in just what you are having to do nursing

your son's health back to some comfort zone, if it would help.

This does not even include the daily challenges & unexpected issues.

Yep, always something & unusual.

Irma,20,DS/ASD

>

> Hi, Everyone.....I got an unusual phone call late this afternoon.

It was

> from a lady who quickly said her name and where she was from. I

didn't catch

> all of it because I was in a VERY frustrated mood having just gone

through

> one of G's 'loops' for the umpteeth time today.

> She asked me if this was the home of Gareth? " Yes............and

you can

> have him if you'll take him. " She chuckled and wanted to know how we

> pronounced our last name.......Roof. OK........... " Like the top of

your house " I

> said. " Who are you, again? "

>

> Turns out she was the case manger for our insurance company and was

calling

> about G's hospital stay/treatment. " This call may be monitored for

quality

> assurance " she added. " Oh, that's just great " I said " now I will

have Social

> services here tomorrow because I just tried to give my kid away " . She

> laughed at that and said she has in front of her that he is

DS/Autistic so she

> 'understood' where I was coming from.

>

> She wanted to verify what he had done, how the hospital stay was,

and did

> they arrange for any help at home? I laughed at that one!!!

" Nooooooooooooo "

> " Well, what do you have to do " she wanted to know. I told her I

had to

> help with all of his toileting, that he has @50 stitches in his

backside and

> can't sit, that I have to take care of his drainage tube, change the

> dressings/paddings, help with his showering, dressing, help him

transition to his

> walker, etc. "

> " Why does he have a walker?!?!? " she asked. " They sent him home with

> bursitis in his left hip " I said. " And you have NO help " she said!!!

> " No.........I am sure I have no help here " I replied. " Oh, my.......... "

>

> " Can you give me a list of his meds? " she asked,

" Sure........Risperdal for

> SIB: Lexapro for OCD: Plaquenil for UCTD/Scleroderma: Depakote for

seizures:

> Albuteral for asthma: Lactaid for dairy products: lots of Motrin

and Tylenol

> for pain. " " And, you have no help?!?!? " she asked again. Then,

she said

> " If I didn't live in Pittsburgh, I'd take your kid and help you. "

>

> So, you see............we can do it all.......because we don't have a

> choice.......we ain't got no help!!! And, tomorrow social services

will be here to

> take my kid away........yeah, right!!!

>

> Take care, Everyone.

> Margaret

>

>

>

>

>

>

>

>

> **************Get fantasy football with free live scoring. Sign up for

> FanHouse Fantasy Football today.

> (http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020)

>

>

>

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So sorry for your sad time. But happy that got his birthday after

all.

If you have time - check out what the Amish community does to educate/tecah

their children with cognitive disabilities - they had a separate school in

PA where I lived. And were able to teach most of their community to do SOME

useful work. Very interesting.

> Have a little check in time with y'all this mid-morning.

> Staying out here in Elkhart now with one of my brother-in-law and his

> wife.

> First time to check out an Amish community out in some shipawana,

> something like this, close enough.

> Hubby has to head back to work and this will be his first

> International flights since the 911 attack, so he will be taking his

> laptop with him.

> His sister is still at the Hospice and they gave every family member a

> book called Gone From My Sight, The Dying Experience, it has helped

> understand these stages. Just keeps getting weaker each day.

> Some of the Canfield family members were able to all meet at a

> restaurant for 's birthday yesterday evening, so he was able to

> have an enjoyable one.

>

> My goodness, reading this post, it is true, if anyone walked in your

> shoes right now Margaret, they will know that their problems is

> nothing compared to what you have on your plate.

> Hope this person has access on seeking some supported services your

> way now that you have filled in just what you are having to do nursing

> your son's health back to some comfort zone, if it would help.

> This does not even include the daily challenges & unexpected issues.

> Yep, always something & unusual.

>

> Irma,20,DS/ASD

>

>

> >

> > Hi, Everyone.....I got an unusual phone call late this afternoon.

> It was

> > from a lady who quickly said her name and where she was from. I

> didn't catch

> > all of it because I was in a VERY frustrated mood having just gone

> through

> > one of G's 'loops' for the umpteeth time today.

> > She asked me if this was the home of Gareth? " Yes............and

> you can

> > have him if you'll take him. " She chuckled and wanted to know how we

> > pronounced our last name.......Roof. OK........... " Like the top of

> your house " I

> > said. " Who are you, again? "

> >

> > Turns out she was the case manger for our insurance company and was

> calling

> > about G's hospital stay/treatment. " This call may be monitored for

> quality

> > assurance " she added. " Oh, that's just great " I said " now I will

> have Social

> > services here tomorrow because I just tried to give my kid away " . She

> > laughed at that and said she has in front of her that he is

> DS/Autistic so she

> > 'understood' where I was coming from.

> >

> > She wanted to verify what he had done, how the hospital stay was,

> and did

> > they arrange for any help at home? I laughed at that one!!!

> " Nooooooooooooo "

> > " Well, what do you have to do " she wanted to know. I told her I

> had to

> > help with all of his toileting, that he has @50 stitches in his

> backside and

> > can't sit, that I have to take care of his drainage tube, change the

> > dressings/paddings, help with his showering, dressing, help him

> transition to his

> > walker, etc. "

> > " Why does he have a walker?!?!? " she asked. " They sent him home with

> > bursitis in his left hip " I said. " And you have NO help " she said!!!

> > " No.........I am sure I have no help here " I replied. " Oh, my.......... "

> >

> > " Can you give me a list of his meds? " she asked,

> " Sure........Risperdal for

> > SIB: Lexapro for OCD: Plaquenil for UCTD/Scleroderma: Depakote for

> seizures:

> > Albuteral for asthma: Lactaid for dairy products: lots of Motrin

> and Tylenol

> > for pain. " " And, you have no help?!?!? " she asked again. Then,

> she said

> > " If I didn't live in Pittsburgh, I'd take your kid and help you. "

> >

> > So, you see............we can do it all.......because we don't have a

> > choice.......we ain't got no help!!! And, tomorrow social services

> will be here to

> > take my kid away........yeah, right!!!

> >

> > Take care, Everyone.

> > Margaret

> >

> >

> >

> >

> >

> >

> >

> >

> > **************Get fantasy football with free live scoring. Sign up for

> > FanHouse Fantasy Football today.

> > (http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020)

> >

> >

> >

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Hi Sara,

I does sound pretty interesting, thank you for sharing this.

One of the reason why this was suggested to visit out at the Shipawana

(?) community because of 's special diet and boy you could say

it was such a Blessing to purchase actual food items that he could eat.

When we first arrived, I did give in on allowing him to eat whatever

given to him and of course faced the consequences, sure enough he did

have some set backs and the paternal side of the family were just

surprised to see how much it affected him.

Since finally making sure he eats what he should, this morning he

awoke on his own, doing things independently, not showing any

aggressiveness, etc.

It's been emotionally draining and of course working around him, has

been stressful.

My hubby called in, not flying out anymore due to his sister's update,

unpredictable not knowing but yesterday did not look good at all.

Today will be meeting with the counselor and discussing about the

funeral arrangements among the family. She has requested for cremation

and this will also take some process around it, learning with the flow

here as this is new to me. No telling when we head back to Texas and

it is nice to have back on track, really learning how to improvise.

Will definitely look into more of the Amish living, thanks!

Well, hubby of course tells me need to move out here.

I know I will not be able to manage during the winter time, visiting

is fine for me.

Irma,20,DS/ASD

> > >

> > > Hi, Everyone.....I got an unusual phone call late this afternoon.

> > It was

> > > from a lady who quickly said her name and where she was from. I

> > didn't catch

> > > all of it because I was in a VERY frustrated mood having just gone

> > through

> > > one of G's 'loops' for the umpteeth time today.

> > > She asked me if this was the home of Gareth? " Yes............and

> > you can

> > > have him if you'll take him. " She chuckled and wanted to know how we

> > > pronounced our last name.......Roof. OK........... " Like the top of

> > your house " I

> > > said. " Who are you, again? "

> > >

> > > Turns out she was the case manger for our insurance company and was

> > calling

> > > about G's hospital stay/treatment. " This call may be monitored for

> > quality

> > > assurance " she added. " Oh, that's just great " I said " now I will

> > have Social

> > > services here tomorrow because I just tried to give my kid

away " . She

> > > laughed at that and said she has in front of her that he is

> > DS/Autistic so she

> > > 'understood' where I was coming from.

> > >

> > > She wanted to verify what he had done, how the hospital stay was,

> > and did

> > > they arrange for any help at home? I laughed at that one!!!

> > " Nooooooooooooo "

> > > " Well, what do you have to do " she wanted to know. I told her I

> > had to

> > > help with all of his toileting, that he has @50 stitches in his

> > backside and

> > > can't sit, that I have to take care of his drainage tube, change the

> > > dressings/paddings, help with his showering, dressing, help him

> > transition to his

> > > walker, etc. "

> > > " Why does he have a walker?!?!? " she asked. " They sent him home with

> > > bursitis in his left hip " I said. " And you have NO help " she said!!!

> > > " No.........I am sure I have no help here " I replied. " Oh,

my.......... "

> > >

> > > " Can you give me a list of his meds? " she asked,

> > " Sure........Risperdal for

> > > SIB: Lexapro for OCD: Plaquenil for UCTD/Scleroderma: Depakote for

> > seizures:

> > > Albuteral for asthma: Lactaid for dairy products: lots of Motrin

> > and Tylenol

> > > for pain. " " And, you have no help?!?!? " she asked again. Then,

> > she said

> > > " If I didn't live in Pittsburgh, I'd take your kid and help you. "

> > >

> > > So, you see............we can do it all.......because we don't

have a

> > > choice.......we ain't got no help!!! And, tomorrow social services

> > will be here to

> > > take my kid away........yeah, right!!!

> > >

> > > Take care, Everyone.

> > > Margaret

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > **************Get fantasy football with free live scoring. Sign

up for

> > > FanHouse Fantasy Football today.

> > > (http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020)

> > >

> > >

> > >

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INDIANA in the WINTER???? Not - not - not!!

But there are some Amish communities in more pleasant climates. We of

course are familiar with the Lancaster, PA (MUCH better than Indiana.)

There are also at least 2 colonies in Ohio.

Bob got his idea for the bread making from some Amish neighbors of ours who

are always experimenting with natural foods.

Oh your dh meant because of family???? Different altogether.

> Hi Sara,

>

> I does sound pretty interesting, thank you for sharing this.

> One of the reason why this was suggested to visit out at the Shipawana

> (?) community because of 's special diet and boy you could say

> it was such a Blessing to purchase actual food items that he could eat.

> When we first arrived, I did give in on allowing him to eat whatever

> given to him and of course faced the consequences, sure enough he did

> have some set backs and the paternal side of the family were just

> surprised to see how much it affected him.

> Since finally making sure he eats what he should, this morning he

> awoke on his own, doing things independently, not showing any

> aggressiveness, etc.

> It's been emotionally draining and of course working around him, has

> been stressful.

> My hubby called in, not flying out anymore due to his sister's update,

> unpredictable not knowing but yesterday did not look good at all.

> Today will be meeting with the counselor and discussing about the

> funeral arrangements among the family. She has requested for cremation

> and this will also take some process around it, learning with the flow

> here as this is new to me. No telling when we head back to Texas and

> it is nice to have back on track, really learning how to improvise.

> Will definitely look into more of the Amish living, thanks!

> Well, hubby of course tells me need to move out here.

> I know I will not be able to manage during the winter time, visiting

> is fine for me.

>

> Irma,20,DS/ASD

>

>

> > > >

> > > > Hi, Everyone.....I got an unusual phone call late this afternoon.

> > > It was

> > > > from a lady who quickly said her name and where she was from. I

> > > didn't catch

> > > > all of it because I was in a VERY frustrated mood having just gone

> > > through

> > > > one of G's 'loops' for the umpteeth time today.

> > > > She asked me if this was the home of Gareth? " Yes............and

> > > you can

> > > > have him if you'll take him. " She chuckled and wanted to know how we

> > > > pronounced our last name.......Roof. OK........... " Like the top of

> > > your house " I

> > > > said. " Who are you, again? "

> > > >

> > > > Turns out she was the case manger for our insurance company and was

> > > calling

> > > > about G's hospital stay/treatment. " This call may be monitored for

> > > quality

> > > > assurance " she added. " Oh, that's just great " I said " now I will

> > > have Social

> > > > services here tomorrow because I just tried to give my kid

> away " . She

> > > > laughed at that and said she has in front of her that he is

> > > DS/Autistic so she

> > > > 'understood' where I was coming from.

> > > >

> > > > She wanted to verify what he had done, how the hospital stay was,

> > > and did

> > > > they arrange for any help at home? I laughed at that one!!!

> > > " Nooooooooooooo "

> > > > " Well, what do you have to do " she wanted to know. I told her I

> > > had to

> > > > help with all of his toileting, that he has @50 stitches in his

> > > backside and

> > > > can't sit, that I have to take care of his drainage tube, change the

> > > > dressings/paddings, help with his showering, dressing, help him

> > > transition to his

> > > > walker, etc. "

> > > > " Why does he have a walker?!?!? " she asked. " They sent him home with

> > > > bursitis in his left hip " I said. " And you have NO help " she said!!!

> > > > " No.........I am sure I have no help here " I replied. " Oh,

> my.......... "

> > > >

> > > > " Can you give me a list of his meds? " she asked,

> > > " Sure........Risperdal for

> > > > SIB: Lexapro for OCD: Plaquenil for UCTD/Scleroderma: Depakote for

> > > seizures:

> > > > Albuteral for asthma: Lactaid for dairy products: lots of Motrin

> > > and Tylenol

> > > > for pain. " " And, you have no help?!?!? " she asked again. Then,

> > > she said

> > > > " If I didn't live in Pittsburgh, I'd take your kid and help you. "

> > > >

> > > > So, you see............we can do it all.......because we don't

> have a

> > > > choice.......we ain't got no help!!! And, tomorrow social services

> > > will be here to

> > > > take my kid away........yeah, right!!!

> > > >

> > > > Take care, Everyone.

> > > > Margaret

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > **************Get fantasy football with free live scoring. Sign

> up for

> > > > FanHouse Fantasy Football today.

> > > > (http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020)

> > > >

> > > >

> > > >

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Sara, so this is why Bob is good in making bread, how authentic.

I at least know that they are made from scratch and are delicious.

Did find a store here called something like Down Under, so I was able

to get some Gluten Free/Casein food items.

I am already debating to leave tomorrow back home as I would like to

be back in my comfort zone depending how does, had some blasted

poop city, bummer.

If I hung around was going to try to head out to Chicago to visit my

niece or nephew on Monday, still with an IF depending how things are

going here.

My BIL who we are staying with told my hubby that he would be pulling

his hair out by now for what he has witnessed what we go through and

this is really minor compared to the challenges we all go through.

It does make a difference when others get to see the other side of our

life not be boring and why we do what we can

Sounds pretty huge up North with the Amish community scattered among

these states sounds like.

Irma,20,DS/ASD

>

> INDIANA in the WINTER???? Not - not - not!!

>

> But there are some Amish communities in more pleasant climates. We of

> course are familiar with the Lancaster, PA (MUCH better than Indiana.)

> There are also at least 2 colonies in Ohio.

>

> Bob got his idea for the bread making from some Amish neighbors of

ours who

> are always experimenting with natural foods.

>

> Oh your dh meant because of family???? Different altogether.

>

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There are other AMish communities or Old order MEnnonites. One of my

favorite communitiies is outside Waterloo, Ontario in CAnada. They mostly

drive, but very plain cars with blacked out chrome. Let's be clear tho -

many Amish have miserable diets heavy on carbs and fried. But then there

are others who are aware and interested in more healthy eating - and they

grow the stuff to prepare healthy food.

> Sara, so this is why Bob is good in making bread, how authentic.

> I at least know that they are made from scratch and are delicious.

> Did find a store here called something like Down Under, so I was able

> to get some Gluten Free/Casein food items.

> I am already debating to leave tomorrow back home as I would like to

> be back in my comfort zone depending how does, had some blasted

> poop city, bummer.

> If I hung around was going to try to head out to Chicago to visit my

> niece or nephew on Monday, still with an IF depending how things are

> going here.

> My BIL who we are staying with told my hubby that he would be pulling

> his hair out by now for what he has witnessed what we go through and

> this is really minor compared to the challenges we all go through.

> It does make a difference when others get to see the other side of our

> life not be boring and why we do what we can

>

> Sounds pretty huge up North with the Amish community scattered among

> these states sounds like.

>

> Irma,20,DS/ASD

>

>

> >

> > INDIANA in the WINTER???? Not - not - not!!

> >

> > But there are some Amish communities in more pleasant climates. We of

> > course are familiar with the Lancaster, PA (MUCH better than Indiana.)

> > There are also at least 2 colonies in Ohio.

> >

> > Bob got his idea for the bread making from some Amish neighbors of

> ours who

> > are always experimenting with natural foods.

> >

> > Oh your dh meant because of family???? Different altogether.

> >

>

>

>

--

Sara - Life is a journey- we choose the path.

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These Amish community grow their own food out here.

No way can I live like them, too spoiled with society's living versus

the life they live.

We had stopped at some restaurant and my BIL's wife was mentioning

different type of Amish community compared to others like they are a

little more liberal.

I guess depending if cooked from scratch like if cage-free chickens,

grass-fed animals and heavy on carbs or fried depends back to portion

side. My grandma was not Amish but reminds me of the homecook meals

from scratch indeed.

All I know the world is pretty unpredictable just never know,

interesting though how others live. Here you had a taste of it.

There is some Amish craft fair going on next week but may end up

missing it, something big which I have heard.

Irma

>

> There are other AMish communities or Old order MEnnonites. One of my

> favorite communitiies is outside Waterloo, Ontario in CAnada. They

mostly

> drive, but very plain cars with blacked out chrome. Let's be clear

tho -

> many Amish have miserable diets heavy on carbs and fried. But then

there

> are others who are aware and interested in more healthy eating - and

they

> grow the stuff to prepare healthy food.

>

>

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Irma,

You and your family are in my prayers during this very sad/difficult time.

Kuddos to for making adaptations, despite the change in environment and

routine!

Best,

Mom to , 4.5 yrs old

DS/PDD-NOS

To: @...: itcanfield@...: Thu, 24 Jul 2008

16:01:45 +0000Subject: Re: Funny for today

Hi Sara,I does sound pretty interesting, thank you for sharing this.One of the

reason why this was suggested to visit out at the Shipawana(?) community because

of 's special diet and boy you could sayit was such a Blessing to purchase

actual food items that he could eat. When we first arrived, I did give in on

allowing him to eat whatevergiven to him and of course faced the consequences,

sure enough he didhave some set backs and the paternal side of the family were

justsurprised to see how much it affected him. Since finally making sure he eats

what he should, this morning heawoke on his own, doing things independently, not

showing anyaggressiveness, etc.It's been emotionally draining and of course

working around him, hasbeen stressful.My hubby called in, not flying out anymore

due to his sister's update,unpredictable not knowing but yesterday did not look

good at all. Today will be meeting with the counselor and discussing about

thefuneral arrangements among the family. She has requested for cremationand

this will also take some process around it, learning with the flowhere as this

is new to me. No telling when we head back to Texas andit is nice to have

back on track, really learning how to improvise.Will definitely look into more

of the Amish living, thanks!Well, hubby of course tells me need to move out

here.I know I will not be able to manage during the winter time, visitingis fine

for me.Irma,20,DS/ASD> > >> > > Hi, Everyone.....I got

an unusual phone call late this afternoon.> > It was> > > from a lady who

quickly said her name and where she was from. I> > didn't catch> > > all of it

because I was in a VERY frustrated mood having just gone> > through> > > one of

G's 'loops' for the umpteeth time today.> > > She asked me if this was the home

of Gareth? " Yes............and> > you can> > > have him if you'll take him. " She

chuckled and wanted to know how we> > > pronounced our last name.......Roof.

OK........... " Like the top of> > your house " I> > > said. " Who are you, again? " >

> >> > > Turns out she was the case manger for our insurance company and was> >

calling> > > about G's hospital stay/treatment. " This call may be monitored for>

> quality> > > assurance " she added. " Oh, that's just great " I said " now I will>

> have Social> > > services here tomorrow because I just tried to give my

kidaway " . She> > > laughed at that and said she has in front of her that he is>

> DS/Autistic so she> > > 'understood' where I was coming from.> > >> > > She

wanted to verify what he had done, how the hospital stay was,> > and did> > >

they arrange for any help at home? I laughed at that one!!!> > " Nooooooooooooo " >

> > " Well, what do you have to do " she wanted to know. I told her I> > had to> >

> help with all of his toileting, that he has @50 stitches in his> > backside

and> > > can't sit, that I have to take care of his drainage tube, change the> >

> dressings/paddings, help with his showering, dressing, help him> > transition

to his> > > walker, etc. " > > > " Why does he have a walker?!?!? " she asked. " They

sent him home with> > > bursitis in his left hip " I said. " And you have NO help "

she said!!!> > > " No.........I am sure I have no help here " I replied.

" Oh,my.......... " > > >> > > " Can you give me a list of his meds? " she asked,> >

" Sure........Risperdal for> > > SIB: Lexapro for OCD: Plaquenil for

UCTD/Scleroderma: Depakote for> > seizures:> > > Albuteral for asthma: Lactaid

for dairy products: lots of Motrin> > and Tylenol> > > for pain. " " And, you have

no help?!?!? " she asked again. Then,> > she said> > > " If I didn't live in

Pittsburgh, I'd take your kid and help you. " > > >> > > So, you see............we

can do it all.......because we don'thave a> > > choice.......we ain't got no

help!!! And, tomorrow social services> > will be here to> > > take my kid

away........yeah, right!!!> > >> > > Take care, Everyone.> > > Margaret> > >> >

>> > >> > >> > >> > >> > >> > >> > > **************Get fantasy football with

free live scoring. Signup for> > > FanHouse Fantasy Football today.> > >

(http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020)> > >> > >> > >

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