Re: tatijana, pregnancy info

[Guest guest]

hi jennifer,

thank you very much for the information.

as far as my case is conerned, yes i did loose the

baby in my 9th week during the onset of ADS. i have

been able to reduce the cortisone which is great. i am

now on 5 mg and the doctor said that is ok and save

for a possible pregnancy (prednisolone H). however,

having endless or no cycles really reduces my chances

of even getting pregnant. so i just hope and pray that

i am not hurting myself for taking the cortisone and

not the mtx. since i handle the cortisone well i think

it is ok for now to stay on it. at least the doctor

never suggested anything else for me. i did ask about

the testing at my gyn's office. they will not do it

because this has been my first miscarriage which to

them is not a big deal (they make it sound like it is

the easiest thing to deal with). i think that the baby

left me because of the untreated high fevers for over

10 days and the injected high/dosage cortisone back

then. i always had problems with my cycles and have no

clue how to get it all back into place now along with

all the other physical and psychological impacts of

what has happened. anyway, thank you for all the info

and good luck to you. tatjana

--- Jay wrote:

> Here is the link about the Antiphospholipid antibody

> syndrome

>

http://members.tripod.com/stillsfoundation/antiphospholipid_antibody_syndrom

> e.htm

>

> there is also a doctor who is experimenting using

> enbrel to help infertility

> that is caused by elevated TNF cells in the uterus,

> same as we have too many

> in our joints, and the tnf cells are attacking the

> embryo before it can

> implant, so basically conception takes place but

> never implants so you never

> become pregnant, anyway the enbrel " mops up " the

> extra tnf in the uterus

> just like it does for our joints and the women are

> now able to get pregnant

> and carry to term. It works, I do know of over 200

> babies now born where

> the mother took enbrel through most of the pregnancy

> and so far they are all

> healthy, of course we wont know if there are any

> long term effects on

> learning etc. until a few years from now. I feel

> that in 10 years enbrel

> will be just as safe to use during pregnancy as

> prednisone is now. Or at

> least that is my hope. You can also use IVIG in

> pregnancy and some are

> experimenting with remicade treatments during

> pregnancy. All this is

> stricly off label and Immunex, the makers of enbrel

> absolutly dont want

> anything to do with this doctor and his studies,

> they wont touch it for fear

> of possible lawsuits etc. But we all know that

> some doctor has to take a

> risk and try things.

>

>

>

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