Guest guest Posted June 12, 2008 Report Share Posted June 12, 2008 Eye surgery is one of the wonders of modern medicine. IS this doc doing the surgery or will he refer you? I am assuming that the surgery he is suggesting is caused by a " crossed " eye? Amblyopia? That is definately correctible and (in my experience, including myself) much better than patching which is so continually annoying. Recovery in children is generally really quick - maybe a day or two as to feeling find. There may be bruising that looks pretty gross, but no pain and the kid doesn't know he/she is bruised!! And then learning to use the weak eye properly - wonder how that happens???? The brain needs to re-learn to use the weak eye. I would want this to be explained. > Have any of your kids had eye surgery to correct a head tilt? Kayla saw > a wonderful pediatric ophthalmologist today. He spent a good 30 - 45 > minutes observing her vision. He thinks her head tilt is caused by her > vision (compensating for a weak left eye) and thinks she will need > surgery to correct it. He doesn't think that it could be corrected by > vision therapy or patching. > > Just wondering if this will help her fine motor and climbing skills > which are very poor. How long was the surgery and recovery? Any other > helpful info would be appreciated! > > Ecki > Mom to Kayla (DS/ASD, 4/5/04) and Laurie (PDD-NOS, 7/12/01) > http://oppositekids.blogspot.com/ > > > -- Sara - Life is a journey- we choose the path. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2008 Report Share Posted June 12, 2008 Hi Ecki, Perhaps you could try the patching first? My son had similar problem to what you describe. In his case, we were told that without treatment he would lose visual function in the affected eye. Which then put the good eye at major risk. He was also older than your child when diagnosed. My understanding is that the earlier treatment begins, success is optimized. So we had a much narrower window of opportunity than you do. During the time that we began patching, my son had alot of fears as well as sensory issues involving facial touch. I actually put a patch on my eye before I patched his eye. And wore it for the while, the first day. This helped, along with our silliness and consistency. Long story short, it worked. NOT 100% but this is only due to his age when we started. So no surgery was needed or further heart failure on my part. Understand that when patching, it starts out in time increments until the patch is worn EVERY WAKING HOUR. I think DJ was patched for about three school years-sorry I can't remember the exact timeframe right now. In the beginning, it also required going to ped ophthal every 4- 6 weeks for progress checks. The patching is of the GOOD eye. So initially, kids try to cheat in many ways unless you are diligent about checking the patch & their affect (head tilt is a dead give away that they've found an opening in the patch to use...) There was no way that I wanted him to go blind as well as having his other issues, so I actually even had it in the IEP & personally scared the teachers enough about the blindness part that they were diligent also about making sure the patch went on and off and later stayed on 100% during school. Initially it requires diligence, but surprisingly soon becomes just another part of the routine (like meds). My child actually got to the point that he reminded us if we appeared to have forgotten by getting the patch & pointing to his eye. Whatever you decide to do, please remember to inform all those who work with your child about this visual problem. It impacts EVERY area of development if only one eye is sending visual messages to the brain. If informed, modifications and presentations can be put into place:) Hope this helps some. Peace. Kris > > Have any of your kids had eye surgery to correct a head tilt? Kayla saw > a wonderful pediatric ophthalmologist today. He spent a good 30 - 45 > minutes observing her vision. He thinks her head tilt is caused by her > vision (compensating for a weak left eye) and thinks she will need > surgery to correct it. He doesn't think that it could be corrected by > vision therapy or patching. > > Just wondering if this will help her fine motor and climbing skills > which are very poor. How long was the surgery and recovery? Any other > helpful info would be appreciated! > > Ecki > Mom to Kayla (DS/ASD, 4/5/04) and Laurie (PDD-NOS, 7/12/01) > http://oppositekids.blogspot.com/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2008 Report Share Posted June 13, 2008 Thanks everyone for your input. I just realized that Kayla's ABA teacher is also a Vision Therapist (she's multi-talented, LOL), so I will see what she has to say. Her left eye tends to drift inwards, but not all the time, just on occasion, so I don't know how serious it is. She also doesn't tilt her head all the time, maybe just 50 - 60% of the time. A friend thought that maybe because of her autism she doesn't feel the need to focus on the outside world, so she only tilts her head when she has to deal with others. When she is in her own world she doesn't really tilt her head. Interesting. Ecki Mom to Kayla (DS/ASD, 4/5/04) and Laurie (PDD-NOS, 7/12/01) http://oppositekids.blogspot.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2008 Report Share Posted June 13, 2008 nathan has, when he was a toddler he use to always have his chin down on his chest, the pediatric eye doc explained he had a perfect " V " pattern, put his chin down and his eyes are perfectly aligned and when he lifted his chin they would come down and in,but at least they didnt cross. they even took pictures for their text book. they did two different surgeries, one to fix the " V " pattern and then a year later to realign the muscles in the left eye, drifting to the left, and then we patched for several years to strengthen this lazy eye. All i really have to say about the surgery was it was way better than when they fixed his drooping flipping out eyelids, no bruising or anything like that one. It was so long ago I dont even remember if he had eye drops or anything after. I dont think he did, just ice pack if tolerated, lol like that works. Anyways he has beautiful blue eyes and they are aligned etc, just a little bit far sighted doesnt need to wear glasses or anything, just gets his check up with our family eye doc now every year. Dont ask me how we got him to do that, I schedule at the same time as mine and he watches me and then jumps up in the chair just like how we taught him for his hair cuts, except with dad and brother, lol, and does great. shawna To: @...: yulan@...: Thu, 12 Jun 2008 23:13:55 +0000Subject: Eye Surgery? Have any of your kids had eye surgery to correct a head tilt? Kayla saw a wonderful pediatric ophthalmologist today. He spent a good 30 - 45 minutes observing her vision. He thinks her head tilt is caused by her vision (compensating for a weak left eye) and thinks she will need surgery to correct it. He doesn't think that it could be corrected by vision therapy or patching.Just wondering if this will help her fine motor and climbing skills which are very poor. How long was the surgery and recovery? Any other helpful info would be appreciated!EckiMom to Kayla (DS/ASD, 4/5/04) and Laurie (PDD-NOS, 7/12/01)http://oppositekids.blogspot.com/ _________________________________________________________________ Search that pays you back! Introducing Live Search cashback. http://search.live.com/cashback/? & pkw=form=MIJAAF/publ=HMTGL/crea=srchpaysyoubac\ k Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2008 Report Share Posted June 13, 2008 My Daivd is 19 years old. He tilts his head when looking at photos and other close work. His vision was not adequately addressed in his early years due to birth parents failing to follow through on medical issues and a variety of other things. Anyway, we believe that has not developed much if any binocular vision but he does an awesome job with climbing. He hates fine motor which is understandable with his level of vision issues. is very athletic but if I could go back and do things over I'd do as much as possible to get his vision corrected. He has many avoidance behaviors associated with fine motor tasks and I think that he would actually be a true reader and writer if he didn't struggle so with vision. BTW, he is a great climber but I think he does it most by feel not vision. Karyn > > Have any of your kids had eye surgery to correct a head tilt? Kayla saw > a wonderful pediatric ophthalmologist today. He spent a good 30 - 45 > minutes observing her vision. He thinks her head tilt is caused by her > vision (compensating for a weak left eye) and thinks she will need > surgery to correct it. He doesn't think that it could be corrected by > vision therapy or patching. > > Just wondering if this will help her fine motor and climbing skills > which are very poor. How long was the surgery and recovery? Any other > helpful info would be appreciated! > > Ecki > Mom to Kayla (DS/ASD, 4/5/04) and Laurie (PDD-NOS, 7/12/01) > http://oppositekids.blogspot.com/ > Quote Link to comment Share on other sites More sharing options...
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