Guest guest Posted June 8, 2008 Report Share Posted June 8, 2008 Charlotte! Our very good friend and member, Jayne and her family is somewhere up in Maine. I just can't remember where!! Welcome! Liz Re: HOOOOT 'N HOT!! Hi everyone, I'm Charlotte and I'm new to the board. My son is who is 5 that I wrote about and asked about ABA. We are in Haverhill, MA. Anyone from MA?? It was 94 today and is supposed to be 97 tomorrow. I'm really enjoying reading all the messages.....it makes me feel like I'm not alone in this DS-ASD journey. > > > waaaa waaaa you poor NORTHERNER's.....LOL!!! > > MontyMan and the rest of us are waaaayy down south, southern > > Louisiana.......ya think it's hot? > > Donna, MontyMan's Mom.....who has been Thanking God for the wisdom of man > > who makes air conditioning!!! > > > > **************Get trade secrets for amazing burgers. Watch " Cooking with > > Tyler Florence " on AOL Food. > > (http://food.aol.com/tyler-florence?video=4? & NCID=aolfod00030000000002) > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2008 Report Share Posted June 8, 2008 Oh, what a boob! Don't remember our state abbreviations too well, now, do I???? =) Re: HOOOOT 'N HOT!! Hi everyone, I'm Charlotte and I'm new to the board. My son is who is 5 that I wrote about and asked about ABA. We are in Haverhill, MA. Anyone from MA?? It was 94 today and is supposed to be 97 tomorrow. I'm really enjoying reading all the messages.....it makes me feel like I'm not alone in this DS-ASD journey. > > > waaaa waaaa you poor NORTHERNER's.....LOL!!! > > MontyMan and the rest of us are waaaayy down south, southern > > Louisiana.......ya think it's hot? > > Donna, MontyMan's Mom.....who has been Thanking God for the wisdom of man > > who makes air conditioning!!! > > > > **************Get trade secrets for amazing burgers. Watch " Cooking with > > Tyler Florence " on AOL Food. > > (http://food.aol.com/tyler-florence?video=4? & NCID=aolfod00030000000002) > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2008 Report Share Posted June 8, 2008 Welcome Charlotte and . this list is friends, supporters, and people who have " been there " or will be soon. Tell us more about JAcob and your family if you feel comfortable. Is JAcob an only child? What kind of schooling is he receiving now? My son Elie is 23 in July. He is the youngest of 6 children. My husband anad I retired with Elie from PA to GA 2 years ago. We love where we are and desptie some " issues " regarding services, are finding what we need and people to support us as we age and Elie is aging out of our home. Tuesday we start our new journey- to help Elie find a home of his own. We are meeting with an agency who helps people with disabilities find homes of their own and WORK that they like as well! We are very excited to start this new journey. Will let you know how that pans out. > > Hi everyone, > > I'm Charlotte and I'm new to the board. My son is who is 5 that I > wrote about and asked about ABA. We are in Haverhill, MA. Anyone from > MA?? It was 94 today and is supposed to be 97 tomorrow. I'm really > enjoying reading all the messages.....it makes me feel like I'm not > alone in this DS-ASD journey. > > > > > > > waaaa waaaa you poor NORTHERNER's.....LOL!!! > > > MontyMan and the rest of us are waaaayy down south, southern > > > Louisiana.......ya think it's hot? > > > Donna, MontyMan's Mom.....who has been Thanking God for the wisdom > of man > > > who makes air conditioning!!! > > > > > > **************Get trade secrets for amazing burgers. Watch " Cooking > with > > > Tyler Florence " on AOL Food. > > > > (http://food.aol.com/tyler-florence?video=4? & NCID=aolfod00030000000002) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2008 Report Share Posted June 9, 2008 It was brutally hot in CT too. About 36 school districts closed and sent students home early. Most schools do not have air conditioning in CT. Many of Zeb's classes are in air conditioned rooms so I decided to let him stay. He also has trouble with the heat. I plan on sending him to school tomorrow but will pick him up early. I would keep Kayla home. It's not worth risking her health. Charlyne eckidatri wrote: Blech, it's nearly 100 degrees today. And there was NO air conditioning on Kayla's bus. And she has over a one hour bus ride! She was covered in sweat when we took her off. She has trouble regulating her body temperature and I'm scared that if they keep transporting her in a hot bus she'll get heat stroke, especially during summer school. Ecki Mom to Kayla (DS/ASD, 4/5/04) and Laurie (PDD-NOS, 7/12/01) http://oppositekids.blogspot.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2008 Report Share Posted June 10, 2008 Now here is a question: Is heat regulation a DS thing an ASD thing or just a brain damage thing?? Elie also had very big problems with heat regulation as a toddler and thur at least Middle School - altho I claimed he had this issue still all thru H/S. But I notice now that isn't a problem. Just wondering!!??! On Mon, Jun 9, 2008 at 10:33 PM, charlyne olko wrote: > It was brutally hot in CT too. About 36 school districts closed and sent > students home early. Most schools do not have air conditioning in CT. Many > of Zeb's classes are in air conditioned rooms so I decided to let him stay. > He also has trouble with the heat. I plan on sending him to school tomorrow > but will pick him up early. I would keep Kayla home. It's not worth risking > her health. > Charlyne > > eckidatri <yulan@... <yulan%40ecki.com>> wrote: Blech, it's nearly > 100 degrees today. And there was NO air conditioning > on Kayla's bus. And she has over a one hour bus ride! She was covered > in sweat when we took her off. She has trouble regulating her body > temperature and I'm scared that if they keep transporting her in a hot > bus she'll get heat stroke, especially during summer school. > > Ecki > Mom to Kayla (DS/ASD, 4/5/04) and Laurie (PDD-NOS, 7/12/01) > http://oppositekids.blogspot.com/ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2008 Report Share Posted June 10, 2008 Under " other accomodation/health issues " , Elie always had temp instability - needs a/c bus and classroom!! His teachers thanked me! > > > > > Is Zeb and Kayla school year round? Why > > would the schools not be air conditioned? > > Kayla's class is air conditioned, but the gym isn't. I remember last > summer it was so stuffy and hot in there. I hope they don't take the > kids outside too much because they are not allowed to put sunscreen on > the kids (I guess because it's considered a medication?) and it doesn't > do any good to put sunscreen on Kayla at 7:30 before she gets on the > bus if they don't go outside until after lunch! I'm pretty sure the bus > was air conditoned last summer. The driver told me that they gave her > an older bus and the AC wasn't working. > > Ecki > Mom to Kayla (DS/ASD, 4/5/04) and Laurie (PDD-NOS, 7/12/01) > http://oppositekids.blogspot.com/ > > > -- Sara - Life is a journey- we choose the path. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2008 Report Share Posted June 10, 2008 Not sure....Tori never did well in the heat...she would get really flushed, and really nasty...Lately, tho, she wants to sit on the patio in 100 degree temps!! Liz Re: Re: HOOOOT 'N HOT!! Now here is a question: Is heat regulation a DS thing an ASD thing or just a brain damage thing?? Elie also had very big problems with heat regulation as a toddler and thur at least Middle School - altho I claimed he had this issue still all thru H/S. But I notice now that isn't a problem. Just wondering!!??! On Mon, Jun 9, 2008 at 10:33 PM, charlyne olko wrote: > It was brutally hot in CT too. About 36 school districts closed and sent > students home early. Most schools do not have air conditioning in CT. Many > of Zeb's classes are in air conditioned rooms so I decided to let him stay. > He also has trouble with the heat. I plan on sending him to school tomorrow > but will pick him up early. I would keep Kayla home. It's not worth risking > her health. > Charlyne > > eckidatri <yulan@... <yulan%40ecki.com>> wrote: Blech, it's nearly > 100 degrees today. And there was NO air conditioning > on Kayla's bus. And she has over a one hour bus ride! She was covered > in sweat when we took her off. She has trouble regulating her body > temperature and I'm scared that if they keep transporting her in a hot > bus she'll get heat stroke, especially during summer school. > > Ecki > Mom to Kayla (DS/ASD, 4/5/04) and Laurie (PDD-NOS, 7/12/01) > http://oppositekids.blogspot.com/ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2008 Report Share Posted June 10, 2008 You know my daughter gets red and larthgic and does not sweat much. I think we have to be especially careful of our kids. I wonder if it is a DS thing? I have heard of at least two kids(DS) who had heat related death. I always tell the teachers to be especially watchful of her in the heat and to make sure she gets plenty to drink. I send in extra juice and water and they are careful with her as well. Her class has been having p.e./recess inside and only going out for about 10 minutes when they first arrive to school when the weather is less than 100 degrees. You know when you have thyroid issues, you are more susceptable to heat exhaustion as well. Speaking from experience. **************Vote for your city's best dining and nightlife. City's Best 2008. (http://citysbest.aol.com?ncid=aolacg00050000000102) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2008 Report Share Posted June 10, 2008 Our son turns red and all splotchy in the high heat. He also does not seem to sweat much??? It look freaky when it happens I always get calls from school about the splochiness. mary > > > > Not sure....Tori never did well in the heat...she would get really flushed, > and really nasty...Lately, tho, she wants to sit on the patio in 100 degree > temps!! > > Liz > Re: Re: HOOOOT 'N HOT!! > > Now here is a question: Is heat regulation a DS thing an ASD thing or just a > brain damage thing?? > > Elie also had very big problems with heat regulation as a toddler and thur > at least Middle School - altho I claimed he had this issue still all thru > H/S. But I notice now that isn't a problem. > > Just wondering!!??! > > On Mon, Jun 9, 2008 at 10:33 PM, charlyne olko <charlyne1121@... > <mailto:charlyne1121%40sbcglobal.net> > > wrote: > >> > It was brutally hot in CT too. About 36 school districts closed and sent >> > students home early. Most schools do not have air conditioning in CT. Many >> > of Zeb's classes are in air conditioned rooms so I decided to let him >> stay. >> > He also has trouble with the heat. I plan on sending him to school >> tomorrow >> > but will pick him up early. I would keep Kayla home. It's not worth >> risking >> > her health. >> > Charlyne >> > >> > eckidatri <yulan@... <mailto:yulan%40ecki.com> <yulan%40ecki.com>> >> wrote: Blech, it's nearly >> > 100 degrees today. And there was NO air conditioning >> > on Kayla's bus. And she has over a one hour bus ride! She was covered >> > in sweat when we took her off. She has trouble regulating her body >> > temperature and I'm scared that if they keep transporting her in a hot >> > bus she'll get heat stroke, especially during summer school. >> > >> > Ecki >> > Mom to Kayla (DS/ASD, 4/5/04) and Laurie (PDD-NOS, 7/12/01) >> > http://oppositekids.blogspot.com/ >> > >> > >> > >> > >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2008 Report Share Posted June 10, 2008 Zeb's school does not have air conditioning. There are a few inner core rooms that do have air. Zeb's school had early release today along with most of the other school in the state.Most Ct schools do not have air. School is usually out for the summer when the high heat starts. They put in window air conditioners for summer school in some of the rooms. I picked him up a few minutes early rather than have him ride the bus without any air. Charlyne eckidatri wrote: > > Is Zeb and Kayla school year round? Why > would the schools not be air conditioned? Kayla's class is air conditioned, but the gym isn't. I remember last summer it was so stuffy and hot in there. I hope they don't take the kids outside too much because they are not allowed to put sunscreen on the kids (I guess because it's considered a medication?) and it doesn't do any good to put sunscreen on Kayla at 7:30 before she gets on the bus if they don't go outside until after lunch! I'm pretty sure the bus was air conditoned last summer. The driver told me that they gave her an older bus and the AC wasn't working. Ecki Mom to Kayla (DS/ASD, 4/5/04) and Laurie (PDD-NOS, 7/12/01) http://oppositekids.blogspot.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2008 Report Share Posted June 10, 2008 Elie has NO health issues now . He is heart healthy, no thyroid problems, but he does not perspire much. He gets fire red in the face wehen he gets too hot or dry. But now that he is an adult, we do not see as much of a problem as we saw in schoo. OF course, he NEVEr rides in an una/c vehicle now that he is out of school and he doesn't live or work without a/c in the summer - but our school kids are expected to. > You know my daughter gets red and larthgic and does not sweat much. I > think > we have to be especially careful of our kids. I wonder if it is a DS thing? > > I have heard of at least two kids(DS) who had heat related death. > I always tell the teachers to be especially watchful of her in the heat and > > to make sure she gets plenty to drink. I send in extra juice and water and > they are careful with her as well. Her class has been having p.e./recess > inside and only going out for about 10 minutes when they first arrive to > school > when the weather is less than 100 degrees. You know when you have thyroid > issues, you are more susceptable to heat exhaustion as well. Speaking from > experience. > > **************Vote for your city's best dining and nightlife. City's Best > 2008. (http://citysbest.aol.com?ncid=aolacg00050000000102<http://citysbest.aol.com/?nc\ id=aolacg00050000000102> > ) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2008 Report Share Posted June 10, 2008 If I remember correctly, it is related to the DS. Liz Re: Re: HOOOOT 'N HOT!! You know my daughter gets red and larthgic and does not sweat much. I think we have to be especially careful of our kids. I wonder if it is a DS thing? I have heard of at least two kids(DS) who had heat related death. I always tell the teachers to be especially watchful of her in the heat and to make sure she gets plenty to drink. I send in extra juice and water and they are careful with her as well. Her class has been having p.e./recess inside and only going out for about 10 minutes when they first arrive to school when the weather is less than 100 degrees. You know when you have thyroid issues, you are more susceptable to heat exhaustion as well. Speaking from experience. **************Vote for your city's best dining and nightlife. City's Best 2008. (http://citysbest.aol.com?ncid=aolacg00050000000102) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2008 Report Share Posted June 10, 2008 Cyndi, if I asked the school to keep him in air only room with a dr's note they would. It is documented that he has heat issues already so they do their best in a school with 1200 other students. Everyone's feeling the heat. Charlyne wrote: Poor Zeb. Charlyne do they not have to accomdate with health issues? Do you all have year round school? Cyndi B > > Zeb's school does not have air conditioning. There are a few inner core rooms that do have air. Zeb's school had early release today along with most of the other school in the state.Most Ct schools do not have air. School is usually out for the summer when the high heat starts. They put in window air conditioners for summer school in some of the rooms. I picked him up a few minutes early rather than have him ride the bus without any air. > Charlyne > > eckidatri wrote: > > > > Is Zeb and Kayla school year round? Why > > would the schools not be air conditioned? > > Kayla's class is air conditioned, but the gym isn't. I remember last > summer it was so stuffy and hot in there. I hope they don't take the > kids outside too much because they are not allowed to put sunscreen on > the kids (I guess because it's considered a medication?) and it doesn't > do any good to put sunscreen on Kayla at 7:30 before she gets on the > bus if they don't go outside until after lunch! I'm pretty sure the bus > was air conditoned last summer. The driver told me that they gave her > an older bus and the AC wasn't working. > > Ecki > Mom to Kayla (DS/ASD, 4/5/04) and Laurie (PDD-NOS, 7/12/01) > http://oppositekids.blogspot.com/ > > > > > > > Quote Link to comment Share on other sites More sharing options...
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