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- how is feeling today? Any better? Have they ever mentioned

using Phenergan suppositories for the vomitting? It helps control it and

also helps the child relax so they can get some sleep.

Ursula Holleman

Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD, kidney

reflux, Sensory Integration Disorder, Diabetes Insipidus)

http://home.att.net/~maceyh/

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  • 8 years later...

Good point, I agree with you melissa. Joanmom to Hayden 2 1/233 degrees1st cast down from 62 degrees Treated at ish Rite Hospital Dallas, TX

To: infantile_scoliosis Sent: Thu, October 15, 2009 2:06:24 PMSubject: Re: Update

Melinda,

Yes we drove but we broke the trip up into 2 days so it wasnt as bad.

Im sure you told us before but why did they brace your dtr instead of casting her? Are they going to cast her soon? I would just be afraid of waiting as the brace cannot do for her curve as the cast can. Just wondering...

From: melindalee95 <mindylee1verizon (DOT) net>Subject: [infantile_scoliosi s] UpdateTo: infantile_scoliosis @yahoogroups. comDate: Wednesday, October 14, 2009, 8:02 PM

Hi all, So, Marlycia was at Shriners last Fri 10/2 to get her brace and has been wearing it 23 hrs a day. They took an xray but no one went over anything with me at the time b/c the phys asst was out and drs were busy. Anyways, I spoke with Janet today and she gave me some numbers. Her sitting xray before she got her brace was at a 54 degree curve, in brace it went down to 21 degrees, so thats great news! We are going to keep her in it until early Jan, then go back for xrays and see where we're at. The appt is with the casting dr so we will decide whether or not to cast her then. I'm kind of happy she doesnt have to go right into casting b/c the brace has been so difficult for her!! But good news is her curve looked better in the brace, lets hope it stays that way.MelindaMommy of Marlycia 9 mnths, Natalya 23 mnths Scranton,

PA

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,

Thats good.

They actually didnt give us a reason other than, there is still time. I told them I didnt want to wait too long. But then they gave me hope when they told me what her curve was in the brace. I wonder can her IS actually be healed by the brace alone? I know everyone says casting is the only way to go so I'm sure we will be on that road shortly.

Melinda

[infantile_scoliosi s] UpdateTo: infantile_scoliosis @yahoogroups. comDate: Wednesday, October 14, 2009, 8:02 PM

Hi all, So, Marlycia was at Shriners last Fri 10/2 to get her brace and has been wearing it 23 hrs a day. They took an xray but no one went over anything with me at the time b/c the phys asst was out and drs were busy. Anyways, I spoke with Janet today and she gave me some numbers. Her sitting xray before she got her brace was at a 54 degree curve, in brace it went down to 21 degrees, so thats great news! We are going to keep her in it until early Jan, then go back for xrays and see where we're at. The appt is with the casting dr so we will decide whether or not to cast her then. I'm kind of happy she doesnt have to go right into casting b/c the brace has been so difficult for her!! But good news is her curve looked better in the brace, lets hope it stays that way.MelindaMommy of Marlycia 9 mnths, Natalya 23 mnths Scranton, PA

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,

I was assuming that was the reason, her age and the anesthesia. I'll have to read that article and see who the docs are. I really do hope all she needs is the brace.

Thanks

Melinda

[infantile_scoliosi s] UpdateTo: infantile_scoliosis @yahoogroups. comDate: Wednesday, October 14, 2009, 8:02 PM

Hi all, So, Marlycia was at Shriners last Fri 10/2 to get her brace and has been wearing it 23 hrs a day. They took an xray but no one went over anything with me at the time b/c the phys asst was out and drs were busy. Anyways, I spoke with Janet today and she gave me some numbers. Her sitting xray before she got her brace was at a 54 degree curve, in brace it went down to 21 degrees, so thats great news! We are going to keep her in it until early Jan, then go back for xrays and see where we're at. The appt is with the casting dr so we will decide whether or not to cast her then. I'm kind of happy she doesnt have to go right into casting b/c the brace has been so difficult for her!! But good news is her curve looked better in the brace, lets hope it stays that way.MelindaMommy of Marlycia 9 mnths, Natalya 23 mnths Scranton, PA

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