Guest guest Posted March 24, 2000 Report Share Posted March 24, 2000 Welcome BJ! My name is . I am mom to two girls, Jill, age 12, dx'd PDD-NOS and Laurel, age 9, typical. Jill functions pretty well in daily living skills area, but, her academic skills are way below average. It takes teeth pulling for her teacher to get her to do any work. When she does, it can take just a few minutes one day or 45 minutes the next to complete a worksheet. She is very distracted, especially by auditory distractors. The one-on-one time she has with her teacher is when she learns the most. My husband Jim and I have been married 21 years. We live in Northeast Ohio. I'm glad you are a member of this list! -- Visit our website at onnetmall.com/mall/sistersdiscjockey You can get paid for surfin' the 'net like I do! Visit alladvantage.com and use my I.D. # IME-345 or adsavers.com and use my email address of lmuzic@... as your referral Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2001 Report Share Posted March 30, 2001 Jan, My name is and I live in Arkansas. I am so confused still about this whole website, but I will figure it out in time. I'm not sure where to go so my name will show up. I don't mind it being there, just don't know how to go about it. I'm glad to hear your son is doing better. Mine is on the other end of the spectrum. He was 10 1/2 lbs at birth, 22 1/2 in long, and has always been 95% on the height/weight scale. This made it difficult to get a diagnosis. Was told by the immunologist the first trip that the pediatrician was " wasting the imm. time and my money " , that he could tell by looking at him there was nothing wrong with him, that he was too healthy looking. He had another thing coming when the lab came back! I'll figure all this out in time! Good luck. > >Reply-To: PedPID >To: PedPID >Subject: Re: New Member >Date: Fri, 30 Mar 2001 17:04:21 -0600 > >New Member, > I am sorry, but I don't know your name. I am Jan. I have a 9 yr.old >girl and a 13 yr. old boy. My son has CVID. I believe his IgA is on the >low end of normal, but very low on IgG and IgM. I plan to ask about >the IgA at our next Immuno. appt. He was diagnosed at age 2 1/2 and >began IVIG immediately during that hospital visit. I live in the TX >Panhandle. >My son is doing well. He had surgery and complications last year, but >otherwise did well. He is quite small for his age and no one believes how >old he is. He doesn't like that and is sensitive about it at this age. He >has >digestive problems including a diagnosis of Shwachman's Syndrome. >He does not look ill, just small. I am happy a Mom with a boy of his age is > on this list. He is a 7th grader. Welcome to the list. > Jan > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2001 Report Share Posted March 30, 2001 , Boy does that sound familiar!! I have been told all along that " Well, the kids are growing well, so there can't be anything too bad going on. " I am happy that they are growing well but that is not the be all end all to everything! Drives me nuts!! My son was 30% in weight and height until just recently. Over the last 2 months he has gained 5 lbs! Also grew 3.5 inches. He's now a quite chubby little guy!! BTW, welcome to the group. My name is and I have 2 kids, Grace (3.5) and Caelan (19mos). Both have immune deficiency and right now we are going through all kinds of testing trying to get a diagnosis. They originally both had IgA def (Grace also had IgG def) and now both have normal IgA and Caelan has low IgG and IgM. So I have no idea. Grace has lost most of her hair and they are thinking she has an autoimmune disorder. Time will tell I guess. I hope we can be of help to you!! Grace Caroline 8/14/97 Caelan 8/26/99 > > This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2001 Report Share Posted August 31, 2001 Dear , I received your message on the list. My daughter and son have allergies and asthma. My daughter (no PID) has more problems with these. She takes Singulair, Pulmicort, Flonase and also Albuterol and Claritin as needed. I just called a mom who is hosting a sleepover tonight to talk about taking asthma meds and about washing her hands after touching the dog, etc. is 10 and finds it embarrassing to take meds at sleepovers. I use a web-site that emails pollen counts to us. My children both took allergy shots for 5 years. At that point the allergist recommends stopping. Here is the website if you don't have it. I like getting the email updates. How is your son doing? My son has CVID and is fine. http://www.pollen.com/Pollen.com.asp Jan JMAC011660@... wrote: > Hi Everyone! > I have enjoyed reading some e-mails, and for some reason I have trouble > getting mine through. I have an 8 year old who suffers from asthma,allergies( > dogs, cats, trees, grass, mold, pollen, dustmites and several more) these > illnesses are compounded by Hyper IgE Syndrome. Does anyone have any good > websites or referral information? It is difficult to find people who are > dealing with the same. Sincerely (mom of ) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 Just a little note, I'll often ask a teacher about the directions a few times just because I have to be absolutely positive about what it is we're doing, and if they're too broad and the teacher refuses to give me more specifics I've been known to have sort-of panic attacks(which usually ended up in me accomplishing nothing in class and going home and asking my parents what I should do), which I'm assuming is Asperger-ish. As far as I know I've done that since kindergarten. In the lower grades I just ended up getting bad grades, because it was in-class work so I didn't have the option to ask my parents. Later on though pretty much everything was take- home if you didn't finish it in class. The in-class essays I had to write always turned out quite interesting. > they often have > to tell him several times a set of directions that they gave the > other kids only once. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 Hello. My name is and I have a four year old son who questionably has Asperger's. He has had a long history of health and developmental issues. I would often describe him as being in his own little world. He also has days where he talks non stop all day long. Sometimes he will wake up in the middle of the night and just start talking away. He was a really early talker, but his articulation has gotten so bad the older he gets. He has quite a memory for details, but doesn't comprehend the big picture very well. At school he is very good for his teachers. They only complain that they aren't sure which they are going to get that day and that they often have to tell him several times a set of directions that they gave the other kids only once. I am starting to get a little nervous as kindergarten is coming up and I have no idea what type of setting will best meet his needs and allow him to excel in his stengths. I wish there was a half day school where he could hit the main subjects then come home and work on things he is good at. Many people don't even notice there is anything different about him, so I really think his issues maybe are slight compared to some. Hi ; welcome to the group. You have mentioned a number of areas that sound like my son who is Aspergers. I am going to pick out a few points you mentioned to address. First, my son has had a number of health issues, like catching every virus that goes around twice as bad as other kids, ear infections and bad teeth. To the teachers my son just seemed smart; he was well behaved but 'cried' a lot, which no one ever told us... Yet, directions had to be repeated to him directly or he wouldn't get it. Also, the new methods of teaching math never worked for him, too abstract. It seemed to us that someone who could open an adults History book, and find a sentence, but couldn't tell you what 3+4 was if asked 'on the spot', something wasn't right. We asked for testing, which I think you should do now through the school. Tell them your concerns. After testing, you might think about requesting 1/2 days for next year, there is no reason the school can't do this, we did this in fifth grade till Jan. My son is now Home Schooled as no " appropriate " environment could be provided, that is another story. In your case I would ask for testing and go from there. It's hard to know what direction to take but I would recommend step by step with lots of patience. We always went with 's many interests. We have learned and had fun at the same time. Also, don't feel like you need to run out and get him every therapy around, this is usually a first response, pick an area which would help your son's overall life. The best 'therapies' for my son have been Horse back riding, Trombone lessons, a small reading discussion group, swimming and a buddy over on the weekend. Well that's my two sense, others may have other suggestions. Do ask any questions you have...Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 Hi . Welcome! My first thought is that you sound like such a good mom! You really sound on top of it all even if it may not feel that way to you. I can’t comment on the medical issues with your son, but the other things you described do sound very much like aspergers. The head banging, obsessions, narrow interests, moodiness, repeating what he’s heard, not being attentive to directions in school, but still kind of fitting in at the kindergarten level….all those things sound like my daughter at that age except the head banging (she was a bedtime rocker). I do think you’re on the right path. Unfortunately, we don’t get all the answers at once when it comes to our kids. Our psychiatrist won’t diagnose our 15 dd (as, social anxiety) with other things until she gets older…we have to see what happens as she matures. They don’t stay the same as the months and years go by…often there are other dx’s. Hang in there…you’re doing great! maralee New Member Hello. My name is and I have a four year old son who questionably has Asperger's. He has had a long history of health and developmental issues. No one thing has been truely remarkable, but combined we know there is a problem. We saw a developmental pediatrician last week who thinks he might have Asperger's. She directed me to the OASIS website. I have searched the web for information to try to get an understanding of Asperger's. I am still not 100% sure the diagnosis fits my son. As far as medically, my son has a history of food allergy and intolerance, reflux, dysphagia, oral motor weakness, aspiration, cleft larnyx, recurrent pneumonias, FTT, asthma, tooth decay ... I could go on and on. We had his development evaluated at 20 months and no delays were noted (only aspiration) although WE noticed that he was very clumsy, didn't walk or run as well as other kids, and had some strange behaviors. When he was just over one year old he did a lot of head banging. By the age of 18 months he had this horrible behavior that would have me crying almost daily between his feeding problems and his tantrums where his eyes would glaze over and he would repeat the same words and phrases over and over and cry inconsolably and never ever tire out. By the age of 2 1/2 the behavior subsided almost completely when we took all gluten out of his diet (the poor kid wasn't left with much). Basically he reacts to everything: foods, dyes, additives, preservatives but only tests allergic to a few foods. He eats mostly fruits, veggies, meats, fish and oils. He also has dairy back in his diet as he has outgrown his true allergy to it and the behavior is minimal with it now. Anyway, I am wondering if any of you have similar stories? I feel so alone in all of this. Physicians in general have not been much help to us and it has been a long road to age four! We had his development re-evaluated at age 3 1/2 and significant delays were noted in gross motor, fine motor, and articulation. He tends to be obsessive with certain things like hocky, super heroes and Buzz Lightyear. Carrying a conversation with him can be difficult, but it isn't impossible. He is inflexible in his thoughts a lot of times where he gets stuck on something and you can't get him off the topic and he completely ignores what is going on around him. He is easily frustrated and lately we are seeing a lot of Dr. Jekyl and Mr. Hyde type behavior. He will do something bad on purpose and then ask if it broke my heart, etc. just to see what my response will be. I would often describe him as being in his own little world. He also has days where he talks non stop all day long. Sometimes he will wake up in the middle of the night and just start talking away. He was a really early talker, but his articulation has gotten so bad the older he gets. He has quite a memory for details, but doesn't comprehend the big picture very well. On the positive side he is very quick at learning if it is something that has his interest and he is a very empathetic little boy (always tells me who got hurt or wasn't at school). At school he is very good for his teachers. They only complain that they aren't sure which they are going to get that day and that they often have to tell him several times a set of directions that they gave the other kids only once. I am starting to get a little nervous as kindergarten is coming up and I have no idea what type of setting will best meet his needs and allow him to excel in his stengths. I wish there was a half day school where he could hit the main subjects then come home and work on things he is good at. Many people don't even notice there is anything different about him, so I really think his issues maybe are slight compared to some. So, again, I am wondering if any of you have any feedback for me? Do you think we are on the right path? Are there any types of therapies to help him develop to his potential? Are there any dietary supplements that are supposed to be good? Our dev. ped. recommended fish oil but I am a bit reluctant to try it with his food allergies. Any thoughts on that? Do any of you have kids with the alleries and or swallowing problems? Thank you in advance for any info you can give me to help me get started in learning about this syndrome. With all of his medical stuff going on (just this month he is having surgery to repair the cleft larynx and patch testing for delayed allergic responses) I am afraid I may fail to neglect, or maybe often I do neglect, his behavioral and emotional needs. Any insight you can give me would be most helpful. K. in NC Yahoo! Groups Links · To visit your group on the web, go to: http://groups.yahoo.com/group/autism-aspergers/ · Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 Hi , I am new to group as of today, but participate in other groups as well. I agree with the other posts in response to the areas you addressed. I believe your son shows signs of AS. My AS son Zane was only recently diagnosed (last month), but as a parent I have known for some time. Zane choked at age 3 and stopped eating all solid foods. He was monitored by our doctor during this time for weight loss only, most doctors (including my two cousins stated that a child would eat when they were hungry)- they were wrong obviously because it took my son 6 months, medications and eating therapy, to learn to re-eat. We tied everything to the " childhood trauma " , the ADD, Panic/Anxiety, Tics, but eventually it just didn't pan out and I started researching for myself. That's why we were so late on the offical diagnoses. Fortunately all meds used for the above issues are the same as with AS, so we didn't loose any ground there. When I read the books on AS I knew I was on the right track b/c I could have written them myself. I think the school is the best place to start, you can be sent in circles within the professionals at least the school works with everyone for you. Age 4 is a great time to learn all you can. I made many mistakes out of ignorance, thankfully my son wakes up in a new world everyday and forgives my craziness in those unknown years. I'm a much better parent for knowing. I believe the social aspect is the most critical for our children, so that's where I would start. Honestly most AS children are extremely intellegent, but that social interaction is all but lost- and in the real world social relationships are imperative. Good luck on you journey. Joan Mom to Zane > Hello. My name is and I have a four year old son who > questionably has Asperger's. He has had a long history of health > and developmental issues. No one thing has been truely remarkable, > but combined we know there is a problem. We saw a developmental > pediatrician last week who thinks he might have Asperger's. She > directed me to the OASIS website. I have searched the web for > information to try to get an understanding of Asperger's. I am > still not 100% sure the diagnosis fits my son. > > As far as medically, my son has a history of food allergy and > intolerance, reflux, dysphagia, oral motor weakness, aspiration, > cleft larnyx, recurrent pneumonias, FTT, asthma, tooth decay ... I > could go on and on. We had his development evaluated at 20 months > and no delays were noted (only aspiration) although WE noticed that > he was very clumsy, didn't walk or run as well as other kids, and > had some strange behaviors. When he was just over one year old he > did a lot of head banging. By the age of 18 months he had this > horrible behavior that would have me crying almost daily between his > feeding problems and his tantrums where his eyes would glaze over > and he would repeat the same words and phrases over and over and cry > inconsolably and never ever tire out. By the age of 2 1/2 the > behavior subsided almost completely when we took all gluten out of > his diet (the poor kid wasn't left with much). Basically he reacts > to everything: foods, dyes, additives, preservatives but only tests > allergic to a few foods. He eats mostly fruits, veggies, meats, > fish and oils. He also has dairy back in his diet as he has > outgrown his true allergy to it and the behavior is minimal with it > now. Anyway, I am wondering if any of you have similar stories? I > feel so alone in all of this. Physicians in general have not been > much help to us and it has been a long road to age four! > > We had his development re-evaluated at age 3 1/2 and significant > delays were noted in gross motor, fine motor, and articulation. He > tends to be obsessive with certain things like hocky, super heroes > and Buzz Lightyear. Carrying a conversation with him can be > difficult, but it isn't impossible. He is inflexible in his > thoughts a lot of times where he gets stuck on something and you > can't get him off the topic and he completely ignores what is going > on around him. He is easily frustrated and lately we are seeing a > lot of Dr. Jekyl and Mr. Hyde type behavior. He will do something > bad on purpose and then ask if it broke my heart, etc. just to see > what my response will be. I would often describe him as being in > his own little world. He also has days where he talks non stop all > day long. Sometimes he will wake up in the middle of the night and > just start talking away. He was a really early talker, but his > articulation has gotten so bad the older he gets. He has quite a > memory for details, but doesn't comprehend the big picture very > well. > > On the positive side he is very quick at learning if it is something > that has his interest and he is a very empathetic little boy (always > tells me who got hurt or wasn't at school). At school he is very > good for his teachers. They only complain that they aren't sure > which they are going to get that day and that they often have > to tell him several times a set of directions that they gave the > other kids only once. I am starting to get a little nervous as > kindergarten is coming up and I have no idea what type of setting > will best meet his needs and allow him to excel in his stengths. I > wish there was a half day school where he could hit the main > subjects then come home and work on things he is good at. Many > people don't even notice there is anything different about him, so I > really think his issues maybe are slight compared to some. > > So, again, I am wondering if any of you have any feedback for me? > Do you think we are on the right path? Are there any types of > therapies to help him develop to his potential? Are there any > dietary supplements that are supposed to be good? Our dev. ped. > recommended fish oil but I am a bit reluctant to try it with his > food allergies. Any thoughts on that? Do any of you have kids with > the alleries and or swallowing problems? Thank you in advance for > any info you can give me to help me get started in learning about > this syndrome. With all of his medical stuff going on (just this > month he is having surgery to repair the cleft larynx and patch > testing for delayed allergic responses) I am afraid I may fail to > neglect, or maybe often I do neglect, his behavioral and emotional > needs. Any insight you can give me would be most helpful. > > K. in NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2004 Report Share Posted January 18, 2004 Hi , I have a 9 yr old with Aspergers and you are lucky to have a good teacher on your side. If they are working on an IEP for your son, there are alot of things to consider. Of course each child is different but they usually have sensory issues, motorskill issues, and sometimes eye issues. They need to address all of those things together so that your child doesn't get frustrated. Aspie kids usually get real frustrated if they can't do something right and they just shut down instead of trying again. Make sure they address everything that you think your son needs to succeed. They say to take someone with you to the IEP meetings so you have someone on your side of the table for support. If you live in the US, most states have services for special needs kids and you can get medical cards for him because of his special needs. they don't go by your salaries. This group can lead you in the right direction and there are all kinds of web sites that you can look up info on.Just do a search for Aspergers and you will get a whole list. Good Luck, Sally in PA New Member Hi all, I am new here. I am , 27, married 7 years July, and just found out my only child (6 in May), has anxiety and has aspergers almost a week ago. In March we find out the final results of I.Q. testing and language development testing. Then they tell us what is in store for education. I am so overwhelmed and so nervous and unsure of my ability to handle this. I want to scream, cry, kill his pediatrician for not telling me, hug his teacher for being fabulous, and just crawl in a hole because I feel lost. I hope to gain something from finding this group. I am getting nowhere on my own. I read the manual they gave me on children with disabilities rights and feel more confused now than ever.Anyway, I will go since I am rambling. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2004 Report Share Posted January 19, 2004 Hi , When I read your other post to Gail, the book that comes to my mind is The Out Of Sync Child. and right now I can't remember the Author. I read it shortly after my son was DXed and it really helped me put everything into perspective. It sounds like you are on the right track and the school is helping you, that means alot. Take Care, Sally Re: New Member Hi Sally,What you said is my son to a tee. He gets so upset when he can not do something and just shuts sown completely. If you try to tell him not to run in the house he asks if you still love him after barely getting on to him.I am very lucky to have his K teacher on my side. She is constantly trying to help him and keeps my hubby and I updated all the time. Now I just gotta start my searches and figuring out what all these long terms mean since I am dislexic it is harder to understand some words. (They run together on me.)Nice to meet you,Hi ,I have a 9 yr old with Aspergers and you are lucky to have a good teacher on your side.If they are working on an IEP for your son, there are alot of things to consider. Of course each child is different but they usually have sensory issues, motorskill issues, and sometimes eye issues. They need to address all of those things together so that your child doesn't get frustrated. Aspie kids usually get real frustrated if they can't do something right and they just shut down instead of trying again. Make sure they address everything that you think your son needs to succeed. They say to take someone with you to the IEP meetings so you have someone on your side of the table for support.If you live in the US, most states have services for special needs kids and you can get medical cards for him because of his special needs. they don't go by your salaries.This group can lead you in the right direction and there are all kinds of web sites that you can look up info on.Just do a search for Aspergers and you will get a whole list.Good Luck,Sally in PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2004 Report Share Posted January 19, 2004 > Hi , > When I read your other post to Gail, the book that comes to my mind is The Out Of Sync Child. and right now I can't remember the Author. The author is Carol Stock Kranovitz. The book is excellent and a very good choice for someone just starting down this road of Aspergers! It deals mostly with sensory integration disfunction which is very common with Aspie kids. Another good choice is Asperger Syndrome by Tony Attwood. Attwood is the guru when it comes to Aspergers. Also, I agree with the other person who suggested looking in to smaller classes for your son. We tried putting my son in regular classes (inclusion) at first. It was a nightmare. Then we moved him to special ed classes, another nightmare. Although the class was smaller, the pace of the class was very slow and he fell far behind his typical peers. Also, he would get bored and act out. Now he is in a private school for children with autistic spectrum disorders and is thriving. By the way, welcome. My name is Debi and my son is 7 with AS, ADHD, and sensory integration disfuntion. He is in second grade. Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2004 Report Share Posted January 19, 2004 Welcome to the group First off.. take a deep breath and sit on the manual! LOL Reason I say that, I think those things confuse me more than help. Why is it going to take until March to get IQ tests results back? Did your school give you an anxiety and Aspergers Dx? gee.. didn't know schools gave those things out! *said thick with sarcasm* Sorry.. just sounds as if you got handed alot and sent on your way with no support or information. Unfortunately quite common. Do you have your son with a Psychologist on the outside? Testing done there? My Pediatrician is good at the medical stuff.. but not much help with the rest of the psychological things. Have who ever gave you the Dx some printed info to hand to him maybe. Either way... you're in the right place and amongst friends now DES Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2004 Report Share Posted January 19, 2004 Don't mind me ! I apologize if I seem harsh with the comments... like I said.. just wish they would hand out MORE information than just a disability manual. I've got several books that I found useful and I also agree on the Books by Tony Attwood (don't own any but have read alot of his). " Asperger Syndrome and Sensory Issues Practical Solutions for Making Sense of the World " by Myles *and several other ppl* " Asperger Syndrome and Difficult Moments " by Myles and Jack Southwick and for Educational info... " Teaching the Tiger " by Marilyn P. Dornbush, PhD. Sheryl K Pruitt, M.Ed. There are also alot of resources available on the Internet. Depends specifically on what you are looking for.. ie. IEP solutions, Aspergers info itself, dealing with Anxiety etc. good luck DES Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2004 Report Share Posted January 19, 2004 Hi Welcome to the group!! I was where you were a year ago come February so I completely understand how your feel. I still to this day have some of those feelings. First of all I would try and get a copy of Tony Attwoods book regarding Autism. another good book that helped me was called " The Spirited Child. " can't remember the author off hand right now. I would also try to join your local Austism Society as they are a wonderful source of information and support. But first and foremost you need to come to the realization that this wasn't your fault, that you are a terrific mom and that sometimes life throws us a curve ball or two. You will slowly but surely begin to understand your child better and find what works for you. Just try everything and anything offered for your son because its a lot of trial and error. We are always here to talk and to help so ask any questions that you may have or if you are having a bad day we make a great sounding board. Once again welcome to the group and I hope that we can be of some help and comfort for you. in Ajax Mom to Logan (5 soon to be 6) HFA, PDD-Nos And a new little one on the way >From: ButterflyMom1976@... >Reply-To: autism-aspergers >To: autism-aspergers (autism-aspergers) >Subject: New Member >Date: Sun, 18 Jan 2004 15:37:25 +0000 > >Hi all, I am new here. I am , 27, married 7 years July, and just >found out my only child (6 in May), has anxiety and has aspergers almost a >week ago. In March we find out the final results of I.Q. testing and >language development testing. Then they tell us what is in store for >education. I am so overwhelmed and so nervous and unsure of my ability to >handle this. I want to scream, cry, kill his pediatrician for not telling >me, hug his teacher for being fabulous, and just crawl in a hole because I >feel lost. I hope to gain something from finding this group. I am getting >nowhere on my own. I read the manual they gave me on children with >disabilities rights and feel more confused now than ever. >Anyway, I will go since I am rambling. > _________________________________________________________________ Tired of spam? Get advanced junk mail protection with MSN 8. http://join.msn.com/?page=dept/bcomm & pgmarket=en-ca & RU=http%3a%2f%2fjoin.msn.com\ %2f%3fpage%3dmisc%2fspecialoffers%26pgmarket%3den-ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2004 Report Share Posted January 19, 2004 Thanks for the welcome Debi. And thanks for the suthor of that book and more titles. I plan on reading as much as possible and geting this thing figured. The author is Carol Stock Kranovitz. The book is excellent and a very good choice for someone just starting down this road of Aspergers! It deals mostly with sensory integration disfunction which is very common with Aspie kids. Another good choice is Asperger Syndrome by Tony Attwood. Attwood is the guru when it comes to Aspergers. Also, I agree with the other person who suggested looking in to smaller classes for your son. We tried putting my son in regular classes (inclusion) at first. It was a nightmare. Then we moved him to special ed classes, another nightmare. Although the class was smaller, the pace of the class was very slow and he fell far behind his typical peers. Also, he would get bored and act out. Now he is in a private school for children with autistic spectrum disorders and is thriving. By the way, welcome. My name is Debi and my son is 7 with AS, ADHD, and sensory integration disfuntion. He is in second grade. Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2004 Report Share Posted May 22, 2004 Marcie, welcome to our group. You will find this is a very supportive group. By the way, you do not sound awful at all for wanting your child to go to camp and learn new skills or for wanting and needing a break. I think guilt is all a part of the way we all feel sometimes. I know, being the mom of 4 special needs boys, there are times I can't wait to just get away from it all, and then I feel guilty. As mothers of special needs kids, it's o.k. to want a little normal and o.k. to want a little break. Well I think I am rambling now, but you all know what I mean, I am sure. Anyway welcome to you and look forward to more of your posts. Please feel free to email me privately any time. Also would like to take the time to welcome any other new members, and look forward to getting to know you. As for everyone else, hope you all are well and enjoy all your posts. You are each and every one an inspiration. God bless Sharon(moderator) www.fightautismnow.com www.fightautismnow.com/autismkids Quote Link to comment Share on other sites More sharing options...
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