Introduction

December 10, 2007

Hello everyone,

I'm , husband is Ray, and our daughter is Anne. She's 10 years

and the school pysch evaluator tested her as being high on the

autistic/asperger's domains. What ever THAT means!

It was brought up to us a while ago that she might be autistic as

well as having DS, but we just thought it was Annie being Annie. I

read the Disability Solutions newsletter about DS and autism, and

realized the school is right.(don't tell them I said that!) She loves

to just feel one of her soft rag dolls feet over and over, she does

the hand flapping, and even though she makes eye contact and can be

very loving at times, she often doesn't respond to questions (unless

you repeat it 5 times), and would much rather be alone, watching

videos. When she does talk, it's just movie scripts, and usually the

same 5 or 6 lines over and over. I guess I should be glad for the

diagnosis, I've been blaming myself because she's an only child (had 3

miscarriages before I had her, no pregnancies since) and I don't get

her out and around other people enough. But it still hurts, and at

first I couldn't stop crying. I think I never really dealt w/ the dx

of DS, so this has shoved reality in my face and made me look.

Well, enough of the pity-party. I just wanted to introduce us and

let you all know I've been lurking. It's nice to find a place where

others are dealing with the same stuff.

March 10, 2008

Hi Liz, Welcome to the group. One of the first things I found helpful can

be found on the Creating Solutions website: HYPERLINK

" http://www.disabilitysolutions.org/ " http://www.disabilitysolutions.org/

the Disability Solutions Newsletter the Sept/Oct 1999 issue Special Edition:

Down Syndrome & Autistic Spectrum Disorder More than Down Syndrome: A

Parent's View by Joan Gutherie Medlen, RD, LD Found at HYPERLINK

" http://www.disabilitysolutions.org/newsletters/volume3.html " http://www.disa

bilitysolutions.org/newsletters/volume3.html

Search around the past issues of Disability Solutions and you will find

things relating to school etc.

I also like Barbara Doyle’s two websites for Info on Autism that you can

download: HYPERLINK

" http://www.asdatoz.com/info.html " http://www.asdatoz.com/info.html and

Helpful Handouts at: HYPERLINK

" http://www.barbaradoyle.com/handouts.asp " http://www.barbaradoyle.com/handou

ts.asp

Louise in IL Mom to 45 DS, Deaf, ASD

HYPERLINK

" http://groups.yahoo.com/group//message/79445;_ylc=X3oDMTJxdHY5NmRl

BF9TAzk3MzU5NzE1BGdycElkAzQxMDMwNQRncnBzcElkAzE3MDUwMTM0ODEEbXNnSWQDNzk0NDUE

c2VjA2Rtc2cEc2xrA3Ztc2cEc3RpbWUDMTIwNTE2MTM1Mg-- " Introduction

Posted by: " clark0925 " HYPERLINK

" mailto:clark0925@...?Subject=%20Re%3AIntroduction " clark0925@...

HYPERLINK " http://profiles.yahoo.com/clark0925 " clark0925

Sun Mar 9, 2008 2:59 pm (PDT)

Hi Everyone!

My name is Liz and I have two sons, age 7 and Aidan

age 5. Aidan has down syndrome and was just official diagnosed with

autism about 2 weeks ago. I was lucky enough to find another mom

through my son's therapist who also has a child with DS and ASD.

She told me about your wonderful group. At this point in time my

husband and I don't know what to do next. I know we need to set up

an IEP meeting with the school. Aidan's preschool teacher is

working on that. Here is some info about my little guy, Aidan.

Aidan loves mouthing on everything, grinding his teeth, shaking

stuffed animals that have long arms and legs, playing with

shoelaces, plastic tubing, belts, occasionally spins around, and

loves watching the Wiggles over and over again. There's more but

that's all that comes to mind right now. I guess my problem now is

that I don't know where to begin. The pyschologist we saw did

include several books and websites but they are all just for kids

with autism not the dual diagnosis. I am hoping you all will have

some suggestions. Oh, and Aidan was tested for celiac disease a few

years ago and doesn't have it.

Looking forward to hearing from you all!

Liz

Nashville, Tennessee

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11:07 AM

March 10, 2008

Louise & Andy-

Thanks for the websites. I'll check them out!

Liz (Aidan's Mom)

Re:Introduction