Guest guest Posted March 3, 2004 Report Share Posted March 3, 2004 Hello , Just wanted to let you know that our clinic has a parent who sells GFCF diets. In addition, I have another parent, who's willing to talk or exchange recipes (free of charge). Please let me know if I can help. Yours truly, Minevich, B.Sc. (OTR/L), M.A. (Psyc.)Occupational Therapistwww.childrehab.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2004 Report Share Posted March 3, 2004 This is pretty much the letter I used….. Sample letter: (name child) has Autism Spectrum Disorder. (name child) has an immune system dysfunction (if applicable) Because of (name child)’s Autism, certain foods affect his developing brain and thus cause autistic behaviors. Thus, (name child) is unable to properly break down certain proteins When (name child) gets these proteins it produces an opiate activity which affects his brain function. The two main offenders are gluten (the protein in wheat, oats, rye and barley) and casein (milk protein.). Thus (name child) needs to be on a Gluten/Casein Free diet. Casein All dairy: Milk, butter, cheese, cream cheese, sour cream, etc. It also includes product ingredients such as " casein " and " whey, " or even words containing the word " casein. " Read labels - items like bread and tuna fish often contain milk products. Even soy cheese usually contains caseinate. Gluten Wheat, oats, rye, barley, kamut, spelt, semolina, malt, food starch, grain alcohol, and most packaged foods - even those that do not label as such. (Name child) is okay with chicken, lamb, pork, fish, potato, rice, and eggs. Parsnips, tapioca, arrowroot, honey, maple syrup and French fries. However you need to read the labels. Macadamia and hazelnuts are also tolerated. Others kids may be okay with white corn, bacon, fruits such as white grapes or pears, beans, sesame seeds, or grains such as amaranth and teff (available at natural foods stores.) GFCF lunches in public schools Today was my son's first day at Pre-K in Gwinnett County. I know that Gluten-free, Casein-free lunches are supposed to be available in the schools, and his teacher was checking on this for me. She just e- mailed me that I will need to supply the following in order for my son to be able to get this special diet lunch. Has anyone else had experience with this? If I contact his pediatrician, he is just going to ask me to write the letter myself and have him sign it. If anyone has done this before and has a copy of a letter that I could use as a guide, I would really appreciate it. I need a note from you from a physician identifying the following: * child's disability * an explanation of why the disability restricts the diet * the major life activity affected by the disability * the food or foods to be omitted from the child's diet, and the food or choice of foods that must be substituted. (That last one is going to be almost impossible) Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2004 Report Share Posted March 3, 2004 I just had to reply to this. My daughter goes to a private school. We spoke with the cook and also would tell her everything that Hannah could not have. I had a new therapist and Hannah was getting biscuits from the cook. I knew that she was not cooking something special. Turns out that she said, “but its white flour, not wheat.” Re: GFCF lunches in public schools This is the letter from our doc, and that is all I needed here. I physically met with the head of dietary, and went through her foods, lists, suppliers, etc. and made up menus for breakfast. I pack lunches and snacks. He rarely eats breakfast in the Cafeteria- I used to pack his breakfast also- until a particularly nasty VP decided my kids could not sit together at breakfast because they are in different grades, etc. and I was a bit hot. The Pediatric and Adolescent Ability Center 7229 Forest Avenue, Suite 211 Richmond, VA 23226 PRESCRIPTION OF MEDICAL NECESSITY April 4, 2003 Re: DOB: To Whom It May Concern: The above named child is a patient of mine. The diagnosis for this patient includes a genetic defect in Gi2 alpha protein, causing blocked pathways in the brain, pragmatic/semantic language disorder, gluten/wheat intolerance and casein/milk intolerance. It is medically necessary for ___ to receive a diet that is free of gluten/wheat products and casein/milk products. Continuation on a diet that contains these products in a person who has an IgG reaction or intolerance will have a negative impact on his behavior and intestinal well being. It may also potentially lead to further colon disorders such as celiac disease and/or a possibility of colon cancer. This would in turn have a detrimental affect on ____’s health; therefore the diet needs to be adhered to. ____ should also not be exposed to food dyes or preservatives or foods containing vitamin A palmitate. I, the undersigned, certify that the above-prescribed procedure/treatment/therapy are medically necessary for this patient’s well being. In my professional opinion, the procedure/treatment/therapy is both responsible and necessary in reference to the accepted standards of medical practice and treatment of this patient’s condition. Sincerely, N. Megson, M.D., F.A.A.P. Developmental Pediatrician Fellow, American Academy of Pediatrics MNM/cps GFCF lunches in public schools Today was my son's first day at Pre-K in Gwinnett County. I know that Gluten-free, Casein-free lunches are supposed to be available in the schools, and his teacher was checking on this for me. She just e- mailed me that I will need to supply the following in order for my son to be able to get this special diet lunch. Has anyone else had experience with this? If I contact his pediatrician, he is just going to ask me to write the letter myself and have him sign it. If anyone has done this before and has a copy of a letter that I could use as a guide, I would really appreciate it. I need a note from you from a physician identifying the following: * child's disability * an explanation of why the disability restricts the diet * the major life activity affected by the disability * the food or foods to be omitted from the child's diet, and the food or choice of foods that must be substituted. (That last one is going to be almost impossible) Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2004 Report Share Posted March 3, 2004 My son will be 12 next week- he has no problem telling if it is GFCF allowed or not, and he also helps his younger brothers get their food. Also they have plenty of GFCF bagels and bread on hand- a running order with Kinnikinnick. The county has gone out of its way, and has dramatically changed what brands, types of foods, etc. they serve in general, and added GFCF, soy and rice milk, etc. My kids eat fruit, eggs, sausage and sometimes a GFCF bagel or peanut butter toast in the morning- they are not picky. RE: GFCF lunches in public schools I just had to reply to this. My daughter goes to a private school. We spoke with the cook and also would tell her everything that Hannah could not have. I had a new therapist and Hannah was getting biscuits from the cook. I knew that she was not cooking something special. Turns out that she said, “but its white flour, not wheat.” Quote Link to comment Share on other sites More sharing options...
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