Re: Re: Irma/ preparing for adulthood

[Guest guest]

Hi Irma,

I am very nervous with Zeb's transition to adult life. He has matured so much

this past year that I am not certain what needs he will have four years from

now. I can't totally prepare. My state changes programs with budget cuts yearly.

My goal is to get as much education for Zeb as I can in the next six years. The

past two years at middle school were blanks with academics. I have requested

compensatory services at Zeb's IEP meeting in June. I needed the request on

record. I think the district was hoping I would move on to a parent friendly

high school and be grateful. I am hoping to recoup hours of tutoring. I can't

plan adult life if Zeb does not have the needed skills to persue his life

choices. I wish he had a few other than TV critic. I already know that I will

not file for guardianship, thanks Sara. I read and learn from others

experiences.

Charlyne

Mom to Zeb 14 DS/OCD/ASD?

mum592001 wrote:

Thank you Charlyne for 's birthday wishes.

Always a great comfort on your reply. It does get tiring dealing with

this and that with the school districts but now

I am seeing the battle is actually once they age out of the school

system with the do's & don'ts of knowing the loop holes on how to work

around the system here in Texas when they become adults. Just learning

the process here is overwhelming but I have seen it is a national

dilemma. Texas is on the bottom of the list when it comes to services

and funds. You are certainly correct about Texas still with this attitude.

Sad part about it is the parents who traveled before this journey whom

I know, do not help much on educating us parents well, as they are

pretty stressed /worned out just dealing with so much still going on.

Recently there is a meeting going out in Austin in regards to a

program that the Texas ARC are promoting called

" Real Life " ,Microboard. 2 of the women with adults who are very

interesting have invited my friend & I to attend with them, we were

already invited but we will not be able to attend and would love to

seek other options on this road but we will invite the director of

this program so that she could have her meeting here with us in SA.

I am seeing that when the parents with the older ones that are living

under housing/Section 8, group homes, even at home due to being kicked

out from various places they would like us to help them.

It really should not be like this, us parents should be learning from

them so this is why the adult support group has been helping out

when

we meet to help support and give them some strength to become a team

player or they will expect us to do the work for them and we already

have so much on our plate to deal with.

Here on this list we are fortunate to have like Sara & Louise and I

know I am forgetting others but a huge thank you for always

enlightening here on what to expect or work around based on

experiences. There is a difference here with most parents with adults

whom I know, just do not share these type of inputs. Can not blame

though, it is changing attitudes.

Yesterday as was undergoing his IV Chelation there was a parent

sharing about her son who is 21 y/o and the deck of cards she had to

deal with. I so admire her just like you do for Zeb with the

challenges of the school, by the way Zeb in the process of attending

HS, my times flies.

I just pray that I could do the same for when dealing with all

of this reality adult stuff and actually succeed just to receive the

services needed if you know what I mean? Yes, have managed this and

that with various interventions but would like to see actual results

with the services needed as he gets older. I guess just knowing the

right powerful questions to ask.

Sorry, too overwhelming so work in progress here but definitely do not

want this for on the old settling ways, time for changes indeed.

Tomorrow the big day.

Irma,18,DS/ASD

>

> Hi Irma,

> You did nothing wrong by saying what was on your mind after the

IEP meeting. It would not have mattered unless you were going to ask

for compensatory services for failing to provide with FAPE.

Your intent was to tell them how you felt and not persue a complaint.

It was good that you were able to tell them how you see it. I am not

certain how your state delivers adult services but after reading this

article and seeing the video I will gladly stay put in Ct and pay

those high taxes. We do have an institution in this state. It was

under federal oversight for years. ARC persued a class action suit to

close the facility. Many of the residents have finally been placed in

group homes and have jobs out in the community. It's certainly a

better way of life than living in an institution. It was featured on

60 minutes about 5 yrs ago. Many of the residents had lived in this

facility their entire lives. They were children of many prominent

people back them. They were placed in

> the institution and hid. The few wealthy parents that are still

alive are hell bent on keeping the facility open. The old attitudes

still exist. Texas seems to have not let go of these attitudes. Your

always better in numbers to make change. The more parents that

complain the faster you will see change. Please wish Master a

happy birthday. It was so nice of you to combine birthdays. I hpe the

party is a success. Send an update.

> Charlyne

> Mom to Zeb 14 DS/OCD/ASD?

[Guest guest]

<<I already know that I will not file for guardianship, thanks Sara. I read and

learn from others experiences. >>

Wait, what did I miss? Why do you advise against filing for guardianship Sara?

Thanks, Sherry