hi

[Guest guest]

3 weeks are not enough. Beg for 4 or 5

In a message dated 5/30/2009 2:33:48 P.M. Eastern Daylight Time,

charmin1350@... writes:

Hi, I was diagnosed this week with lymes disease. About a week ago I had

what I thought was a pimple starting near the top of my belly button. The

next day it looked like a hole with loose skin around it and my belly button

was fiery red. Within a day the circle had grown to about 4 inches in

diameter. In another day I started having excruciating headaches, blurred

vision,

and was wearing a fleece jacket and covered up with a quilt in a 78 degree

house. I called the doctor and went in on Tuesday. They knew as soon as

they seen it. At first it was all red but then by Tueday the inner part of

the circle was lighter. My doctor said the classic bullseye. They think I

will be okay because I went right away and I have three weeks of meds to take.

But the headaches are terrible. My vision is still blurred and last night

I had uncontrolled twitches in my one leg. I am concerned becaue I know

people that have went blind and had terrible neurological problems. I'm hoping

that the meds are the cure as the doctor said. I never seen the tick. I

was only out a bit to week flower beds. I am also currently dealing with my

5th kidney stone and will have knee replacement in July. So I sit on a chair

to week my flower bed.

I live in Central Pa. I have 6 kids ages 15-40. 17 grandchildren and two

greats. My husband died in 96 from agent orange from his three tours in Nam.

I am 58.

I guess I am looking for some reasurrance or else as the old saying goes,

misery loves company.

**************A Good Credit Score is 700 or Above. See yours in just 2 easy

steps!

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MaystepsfooterNO62)

[Guest guest]

Hi -

Sorry to hear you have Lyme. But it's good you got a definite diagnosis

and know for sure you have it. But it sounds like you really got some

bad symptoms. Definitely start the 3 weeks of anti-biotics right away!

But since your symptoms are so bad I would try to convince the doc to go

a lot longer than 3 weeks - and maybe with some stronger anti-biotics.

Myself, and many people on this list didn't get cured with a few weeks -

and now we are seriously, seriously ill with Lyme even after years. So

even if the symptoms disappear after 3 weeks I would still stay on

anti-biotics for at least a couple months - just to be sure you wipe it

out and it doesn't come back.

Don

wrote:

> Hi, I was diagnosed this week with lymes disease. About a week ago I had what

I thought was a pimple starting near the top of my belly button. The next day it

looked like a hole with loose skin around it and my belly button was fiery red.

Within a day the circle had grown to about 4 inches in diameter. In another day

I started having excruciating headaches, blurred vision, and was wearing a

fleece jacket and covered up with a quilt in a 78 degree house. I called the

doctor and went in on Tuesday. They knew as soon as they seen it. At first it

was all red but then by Tueday the inner part of the circle was lighter. My

doctor said the classic bullseye. They think I will be okay because I went right

away and I have three weeks of meds to take. But the headaches are terrible. My

vision is still blurred and last night I had uncontrolled twitches in my one

leg. I am concerned becaue I know people that have went blind and had terrible

neurological problems. I'm hoping that the meds are the

> cure as the doctor said. I never seen the tick. I was only out a bit to week

flower beds. I am also currently dealing with my 5th kidney stone and will have

knee replacement in July. So I sit on a chair to week my flower bed.

> I live in Central Pa. I have 6 kids ages 15-40. 17 grandchildren and two

greats. My husband died in 96 from agent orange from his three tours in Nam. I

am 58.

> I guess I am looking for some reasurrance or else as the old saying goes,

misery loves company.

>

>

>

>

[Guest guest]

Yes, I agree with Don that 3 weeks is too short a period for the

antibiotics. I took 4 weeks of Amoxicillin (was allergic to Doxycycline)

at 500 mg 2 times a day. I felt fine after 4 weeks and for years

after....but then had a major relapse and today I am struggling with

chronic lyme. My LLMD believes I was under treated originally for lyme

and that today a knowledgeable doc would prescribe the antibiotics at a

much higher dose: twice the amount that I got. By the way, I knew I had

been bitten by the tick and started antibiotics after getting symptoms

about 12 days after the tick bite.

Maureen

[Guest guest]

Well i cannot tell you how glad I am you came to this group, because you have

visited the right one! So many people here will help you through this and

educate you on this disease. Sadly to say the newer research even though your MD

was willing to treat you due to the classic symptoms and rash, show that in

order to kill all the bacteria and the co infections(new and other infections

passed with lyme Disease from the tick) you MUST be on medicine for at least 6

weeks. It is important to know that the little bacteria can multiply quickly and

be harder to treat as time goes on, so you must demand the 6 weeks of medicine.

This way you can make sure the life cycle of the bacteria is done with and it is

all eliminated! Good luck with this, and thank the lord it is not in Chronic

stages for you!

Thanks so much, and understand we are not MD's but instead sharing personal

advice because we care and this is what we've been faced with in our own

challenges!

love, <3

Elaina

From: <charmin1350@...>

Subject: [ ] Hi

Date: Friday, May 29, 2009, 8:18 PM

Hi, I was diagnosed this week with lymes disease. About a week ago I had

what I thought was a pimple starting near the top of my belly button. The next

day it looked like a hole with loose skin around it and my belly button was

fiery red. Within a day the circle had grown to about 4 inches in diameter. In

another day I started having excruciating headaches, blurred vision, and was

wearing a fleece jacket and covered up with a quilt in a 78 degree house. I

called the doctor and went in on Tuesday. They knew as soon as they seen it. At

first it was all red but then by Tueday the inner part of the circle was

lighter. My doctor said the classic bullseye. They think I will be okay because

I went right away and I have three weeks of meds to take. But the headaches are

terrible. My vision is still blurred and last night I had uncontrolled twitches

in my one leg. I am concerned becaue I know people that have went blind and had

terrible neurological

problems. I'm hoping that the meds are the cure as the doctor said. I never

seen the tick. I was only out a bit to week flower beds. I am also currently

dealing with my 5th kidney stone and will have knee replacement in July. So I

sit on a chair to week my flower bed.

I live in Central Pa. I have 6 kids ages 15-40. 17 grandchildren and two greats.

My husband died in 96 from agent orange from his three tours in Nam. I am 58.

I guess I am looking for some reasurrance or else as the old saying goes, misery

loves company.

[Guest guest]

Elaina,

I think my Lyme Disease is in late stage? What are my chances? My doctor put me

on second month of antibiotic becuase my neuropathy in my hands hasnt change, my

vision is also blurry and i have a lot of dizziness. My hand i worry becuase i

wake in the morning i cant barely move it, but it will start getting a little

circulation in time.I worry now becuase before i found out that i have Lyme i

been having arms numbness like your having a heart attack or stroke, i went to

see acardiologist and said my heart is fine, and also im having anxiety attacks

where my right arm gets numb and sometimes it happens when im driving, sometimes

i have to pull over to let it passed.I lost a lot of weight and im afraid i will

lost my job . My work know i have Lyme disease.Please ,your advise helps me a

lot to get through this. I have a friend that he also thinks he was bitten and

he will get check monday for Lyme. I wish my doctor diagnos me earlier. What are

my chances if

its late stage ? Treatment i can pursue, my doctor also said if i dont get

better he might send me to pennsylvania. I dont wanna be paralysed or start

using wheelchair ,im young and i want to be able to take care of my family...im

a single mom, most of the time minor chores i cannot even do, becuase i cant

grip things or carry things heavy.Im all worried.Please any suggestions?

Lonera

________________________________

From: Elaina <nhgirlloveshorses@...>

Sent: Saturday, May 30, 2009 6:49:47 PM

Subject: Re: [ ] Hi

Well i cannot tell you how glad I am you came to this group, because you have

visited the right one! So many people here will help you through this and

educate you on this disease. Sadly to say the newer research even though your MD

was willing to treat you due to the classic symptoms and rash, show that in

order to kill all the bacteria and the co infections(new and other infections

passed with lyme Disease from the tick) you MUST be on medicine for at least 6

weeks. It is important to know that the little bacteria can multiply quickly and

be harder to treat as time goes on, so you must demand the 6 weeks of medicine.

This way you can make sure the life cycle of the bacteria is done with and it is

all eliminated! Good luck with this, and thank the lord it is not in Chronic

stages for you!

Thanks so much, and understand we are not MD's but instead sharing personal

advice because we care and this is what we've been faced with in our own

challenges!

love, <3

Elaina

From: <charmin1350>

Subject: [ ] Hi

@group s.com

Date: Friday, May 29, 2009, 8:18 PM

Hi, I was diagnosed this week with lymes disease. About a week ago I had what I

thought was a pimple starting near the top of my belly button. The next day it

looked like a hole with loose skin around it and my belly button was fiery red.

Within a day the circle had grown to about 4 inches in diameter. In another day

I started having excruciating headaches, blurred vision, and was wearing a

fleece jacket and covered up with a quilt in a 78 degree house. I called the

doctor and went in on Tuesday. They knew as soon as they seen it. At first it

was all red but then by Tueday the inner part of the circle was lighter. My

doctor said the classic bullseye. They think I will be okay because I went right

away and I have three weeks of meds to take. But the headaches are terrible. My

vision is still blurred and last night I had uncontrolled twitches in my one

leg. I am concerned becaue I know people that have went blind and had terrible

neurological

problems. I'm hoping that the meds are the cure as the doctor said. I never seen

the tick. I was only out a bit to week flower beds. I am also currently dealing

with my 5th kidney stone and will have knee replacement in July. So I sit on a

chair to week my flower bed.

I live in Central Pa. I have 6 kids ages 15-40. 17 grandchildren and two greats.

My husband died in 96 from agent orange from his three tours in Nam. I am 58.

I guess I am looking for some reasurrance or else as the old saying goes, misery

loves company.

[Guest guest]

Just want to echo what everyone above said...I would definately not stop at 3

weeks of antibiotics - a couple of months would be better. I WOULD INSIST ON IT

and take in some research to show the Dr. - find a LLMD if you can - NOW. Also,

smilax (sarasparilla) for your headaches would probably help. I posted on it

just a few minutes ago...best wishes.

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Lonera,

I can say that he chances oof having Late stage Lyme are higher than MDs

suggest. Some think Chronic Lyme doesn't even exist!

Anyway, you should definitely check out the movie Under Our Skin by open eye

productions soon if you havn't it is the best, most detailed, most eye opening

and thrilling documentary about a diesease I have ever whatched, and it will be

in theatres soon so you will not be able to order it any longer. It is 35$ not

including shipping ajnd you can find it online too, maybe even e-bay, idk.

It sounds like you have late stage to me. Usually by what i have heard it gets

late maybe after 6 months of undiagnosis, but thats an assumption! If it is not

treated right away with 6 weeks abx then u are in trouble, because it multiplies

faster then MD prescribed ABX will fix! That us why most of us have to see a

Lyme Literate MD that will carefuklly treat us with long term protocols until we

are better, and they have to whatch for insurance companis not to catch them

either because they believe its bad for you.I dont think its bad if you have a

chronic infection though!

if you can, take a look at my blog:

www.elainaslymediseasestory.blogspot.com

there you can get some info i cannot or would rather not give through the group.

I really hope everyhting works out and I would caution your friend to whatch out

because not all MDs (very little in fact) will listen, test CORRECTLY, read the

results accurately and with an open mind, and treat effective enough! For late

stage it can take LONG whiles to get better, for a bite within months maybe up

to 6 weeks at least of treatment to kill the coinfections and Lyme's bacterias

life cycle. This way they are all gone and dont multiply....

sorry for the long email. feel free to email me for other questions at my more

recently checked email address:

horsegirl@...

good luck to you and your friend, and hope to talk to you soon!

Elaina

From: <charmin1350>

Subject: [ ] Hi

@group s.com

Date: Friday, May 29, 2009, 8:18 PM

Hi, I was diagnosed this week with lymes disease. About a week ago I had what I

thought was a pimple starting near the top of my belly button. The next day it

looked like a hole with loose skin around it and my belly button was fiery red.

Within a day the circle had grown to about 4 inches in diameter. In another day

I started having excruciating headaches, blurred vision, and was wearing a

fleece jacket and covered up with a quilt in a 78 degree house. I called the

doctor and went in on Tuesday. They knew as soon as they seen it. At first it

was all red but then by Tueday the inner part of the circle was lighter. My

doctor said the classic bullseye. They think I will be okay because I went right

away and I have three weeks of meds to take. But the headaches are terrible. My

vision is still blurred and last night I had uncontrolled twitches in my one

leg. I am concerned becaue I know people that have went blind and had terrible

neurological

problems. I'm hoping that the meds are the cure as the doctor said. I never seen

the tick. I was only out a bit to week flower beds. I am also currently dealing

with my 5th kidney stone and will have knee replacement in July. So I sit on a

chair to week my flower bed.

I live in Central Pa. I have 6 kids ages 15-40. 17 grandchildren and two greats.

My husband died in 96 from agent orange from his three tours in Nam. I am 58.

I guess I am looking for some reasurrance or else as the old saying goes, misery

loves company.

[Guest guest]

Well, not that you're in trouble as much as the fact that it is important to

start right away. I am so proud that you are now in a state of mind that you

know what is wrong, and with medicine you should do fine and get well! I am

about in it the same amount, except I have been on treatment for 1/2 year, or 8

months.  It is a good thing to be on a treatment, even though it is a bad thing

that you have Lyme and it may get worse.....

I really hope you get what you need from here, it is the best! :-)

lots of love,

elaina

From: heidy mahady <mactan_girl@...>

Subject: Re: [ ] Hi

Date: Sunday, May 31, 2009, 5:51 PM

Elaina,

I have the bite 2 years ago, but the Dr didnt diagnos me with Lyme,we thought it

was just a spider bite. I know im in trouble.Thank you.

Lonera

____________ _________ _________ __

From: Elaina <nhgirlloveshorses>

@group s.com

Sent: Sunday, May 31, 2009 5:07:15 PM

Subject: Re: [ ] Hi

Lonera,

I can say that he chances oof having Late stage Lyme are higher than MDs

suggest. Some think Chronic Lyme doesn't even exist!

Anyway, you should definitely check out the movie Under Our Skin by open eye

productions soon if you havn't it is the best, most detailed, most eye opening

and thrilling documentary about a diesease I have ever whatched, and it will be

in theatres soon so you will not be able to order it any longer. It is 35$ not

including shipping ajnd you can find it online too, maybe even e-bay, idk.

It sounds like you have late stage to me. Usually by what i have heard it gets

late maybe after 6 months of undiagnosis, but thats an assumption! If it is not

treated right away with 6 weeks abx then u are in trouble, because it multiplies

faster then MD prescribed ABX will fix! That us why most of us have to see a

Lyme Literate MD that will carefuklly treat us with long term protocols until we

are better, and they have to whatch for insurance companis not to catch them

either because they believe its bad for you.I dont think its bad if you have a

chronic infection though!

if you can, take a look at my blog:

www.elainaslymedise asestory. blogspot. com

there you can get some info i cannot or would rather not give through the group.

I really hope everyhting works out and I would caution your friend to whatch out

because not all MDs (very little in fact) will listen, test CORRECTLY, read the

results accurately and with an open mind, and treat effective enough! For late

stage it can take LONG whiles to get better, for a bite within months maybe up

to 6 weeks at least of treatment to kill the coinfections and Lyme's bacterias

life cycle. This way they are all gone and dont multiply....

sorry for the long email. feel free to email me for other questions at my more

recently checked email address:

horsegirl@metrocast .net

good luck to you and your friend, and hope to talk to you soon!

Elaina

[Guest guest]

Thank you Sara,

I will mention it to my orthopedic doctor. I already have fibromyalgia and

arthritist and pain all of the time so I wouldn't know if some of the symptoms

are what I already have or from the Lymes.

I will be watching this closely, for sure. If anything occurs after this

treatment I'm going to be very vocal with my doctor. It is very hard to know

that you are doing the right thing and wondering whether they know what the

right thing is.

Well I pray a lot.

Well its been a long day at the VA medical center again so I am going to get

some rest.

Hugs,

Don't worry, . You caught it early. It sounds like you're in the

care of some smart doctors. It's very normal for your symptoms to get

worse for a while after you start taking the meds -- the bugs dying

off in your body cause a bit of a toxic reaction, creating the

headaches and muscle twitches and whole lot of other stuff. It's a

good sign: it means the drugs are doing their job.

You may want to ask your orthopedist if s/he still wants to go ahead

with the knee replacement, or consider putting it off for a few

months. Lyme often attacks the knees first, and there may be

complications. Or not. I'm not an orthopedist, so I don't know, but it

seems like the kind of question you might bring to a doctor's attention.

Also: Three weeks of antibiotics usually do the trick when you catch

it as early as you did. BUT -- if you come up with a recurrence of

symptoms (or the eruption of other Lyme symptoms) over the next 2-3

months, please hurry yourself right straight back to the doctor and

insist on a second, four-week course of antibiotics. (Most docs will

be open to doing this -- if yours isn't, find one who is.) Once you've

had it for more than three or four months, that's when the long-term

stuff a lot of us are dealing with begins to set in. If this first

round doesn't get it all, you don't want to wait around for that.

Best,

Sara

[Guest guest]

Welcome ,

Just a little welcome, look forward to getting to know you. I'm sure someone

can answer your question. I don't really have problems with my lymph nodes.

Have a great day!

Tawny

>

> Hi there. My name is and I am a new group member. I have a

question for all of you.... Does anyone else out there get painful lymph nodes

from time to time? This happens to me, and when I go to the doctors, they can't

find anything wrong with me so they think that i am just crazy.. I'm thinking

that maybe they get inflamed just like my joints??? Any imput would be

appreciated! Thanks

>

[Guest guest]

Lymphitis is swelling of the lymph gland. Most commonly, it is thought of as

something that comes with the mumps, but you can get swelling in any part of the

body. It's different from lympnodema, which is when the lymph tissue is

overwhelmed with fluids. You aren't crazy. It is painful. I have many fibro

clients who also seem to get lymphitis when they are fighting a cold or

something. It wouldn't surprise me to learn that it is another autoimmune

disease of the tissue layer. Heat (like standing in a shower for a few

minutes-NOT A HEAT PAD) and self lyphatic drainage techniques seem to help them.

Find yourself a massage therapist who can teach self techniques to use at home

or search through lymphatic drainage massage videos on youtube.

Be well,

[ ] hi

Hi there. My name is and I am a new group member. I have a question

for all of you.... Does anyone else out there get painful lymph nodes from time

to time? This happens to me, and when I go to the doctors, they can't find

anything wrong with me so they think that i am just crazy.. I'm thinking that

maybe they get inflamed just like my joints??? Any imput would be appreciated!

Thanks

------------------------------------------------------------------------------

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05:53:00

[Guest guest]

Hi ! Welcome to the group! I get swollen and painful lymph glands when

I am having a flare. My Rheumys have always said it can come along with the

inflammation. So no your not crazy, lol.

April Snow

> [ ] hi

>> Hi there. My name is and I am a new group member. I have a

question for all of you.... Does anyone else out there get painful lymph nodes

from time to time? This happens to me, and when I go to the doctors, they can't

find anything wrong with me so they think that i am just crazy.. I'm thinking

that maybe they get inflamed just like my joints??? Any imput would be

appreciated! Thanks

[Guest guest]

I've learned to use it has a forecast, when my throat starts to swell I know I

am in for a bad flare within the next eight to sixteen hours.

Stan

Sent: Monday, June 8, 2009 2:12:55 PM GMT -08:00 US/Canada Pacific

Subject: [ ] Re: hi

Hi ! Welcome to the group! I get swollen and painful lymph glands when

I am having a flare. My Rheumys have always said it can come along with the

inflammation. So no your not crazy, lol.

April Snow

[Guest guest]

So many questions and I am finding out that I have to make it simpler for those that are interested.I just uploaded a new support group about the fasting and cleansing protocols downloaded 17 files for the ones that are interested in joining and even if you would like to just lurk so you can learn at your own convenience, look forward to you joining at HerbalisticDetox/P.S: Day-to-Day PowerHouse Fast starts tomorrow! Have a Happy and Healthy Day, Kopera

M.H.© Copyright 2007 www.sCorner.com . All rights reserved | Privacy Policy WARNING: None of the above statements have been evaluated or approved by the Food and Drug Administration or the American Medical Association. The information provided on this site is intended for your general knowledge only and is not a substitute for professional medical advice or treatment for specific medical conditions. Always seek the advice of your physician or other qualified health care provider before using any herbal products.

[Guest guest]

Hi Dan: Nice to meet you. Sorry you have RA.......me too.

Glad you found this wonderful group of caring people. Talk to you soon.

Wishing you pain free days ahead.

Hugs,

Barbara

>

> Just wanted to say " hi " ...39 years old, male, Arizona...RA since July

'08...Dan

>

[Guest guest]

Hi...Great, living in Arizona, do you think that has some benefits to to your

condition. I've seriously considered moving back there since I live in Tucson

for two years?

Stan

Sent: Tuesday, July 21, 2009 9:36:55 PM GMT -08:00 US/Canada Pacific

Subject: [ ] Hi

Just wanted to say " hi " ...39 years old, male, Arizona...RA since July '08...Dan

[Guest guest]

Welcome Dan,

Glad your here with us, hope you enjoy this group. Its amazing, so just

give it a chance. I look forwarding to knowing more about you. I am

46, diagnosed with RA in 01. I also have fibro, sjogren's, and many

other health problems. I live in OK,.................

Take care,

Tawny

>

> Just wanted to say " hi " ...39 years old, male, Arizona...RA since July

'08...Dan

>

[Guest guest]

Hi Dan - welcome to the group. Sorry that RA has brought us all together, but

here we are. I would love to hear more about you. Is your RA under control? What

meds are you taking? Hope to hear more from you. This is a terrific group of

people and we're always happy to share with each other.....Doreen

Just wanted to say " hi " ...39 years old, male, Arizona...RA since July '08...Dan

[Guest guest]

We have had tremendous luck with Rescue Remedy for kids. My daughter has PANDAS

and it really helps her anxiety quickly. We tried it once on my son, and he

calmed down a little, so I'll call it success!

Susi

>

> Has anyone ever used ADDED ATTENTION by Buried Treasure or RESCUE REMEDY by

Bach? If so any luck?

>

>

[Guest guest]

Hi Susi, Thanks for the info. It is so hard to know what to try. Really

appreciate it. Kim

Re: hi

We have had tremendous luck with Rescue Remedy for kids. My daughter has

PANDAS and it really helps her anxiety quickly. We tried it once on my son, and

he calmed down a little, so I'll call it success!

Susi

>

> Has anyone ever used ADDED ATTENTION by Buried Treasure or RESCUE REMEDY by

Bach? If so any luck?

>

>

[Guest guest]

part of the answer is to take out your diet the food that causes allergy.it is

best to begin with no gluten no milk and no soy.for the rest there are tests or

you keep a diary and see which food causes the allergies.

>

> Dear group members . I am bothering you with a new problem i developed

recently . I have developed tingling numbness at right peri orbital region

since around a month . My neuro had given me tab methycobal and cap vit E which

i stopped last month . I was also taking beclate inhaler for allergic rhinitis .

I stopped these medicines 15 days back but the problem is persisting . Any

suggestions please ? Regards Amit

>

[Guest guest]

Just a suggestion--I wonder if you're getting withdrawal symptoms from the meds

you stopped? I'm not familiar with them, but perhaps this is a possibility?

Annette

>

> Dear group members . I am bothering you with a new problem i developed

recently . I have developed tingling numbness at right peri orbital region

since around a month . My neuro had given me tab methycobal and cap vit E which

i stopped last month . I was also taking beclate inhaler for allergic rhinitis .

I stopped these medicines 15 days back but the problem is persisting . Any

suggestions please ? Regards Amit

>

[Guest guest]

Hi Daddies, good to hear from you and glad you are getting good results. I too deal with some FM and OA and that's why I'm on LDN, very low right now, .75mg. I've had some results too in the short time I'm on it, less than a month.

Do you mind sharing some of your successes as I have a lot of people I know who have FM and I'd like to let them hear some more even thou I'm sharing my success with them. thanks very much. joyce

[low dose naltrexone] HI

I HAVE TO SAY THAT I REALLY ENJOY THE POST AND THE INFORMATION I RECIEVE READING HERE.EACH TIME, I LEARN MORE ABOUT LDN . I READ AND DO SO MUCH OF RESEARCHING OF LDN , I DIDN'T THINK THAT I MISSED ANYTHING BUT THIS GROUP HAS ALLOWED ME TO LEARN SO MUCH.I REALLY HOPE YOU DON'T MINE ME HELPING OTHERS , I WILL NEVER POST ANYTHING PERSONAL BUT LDN NEEDS TO BE SHARED IN ORDER FOR US TO HELP OURSELVES AND OTHERS.AS FOR MYSELF, I AM TAKING IT FOR NEUROLOGICAL PROBLEMS AND FMS. I HAVE FOUND WHILE ON IT , IT HAS DONE SO MUCH FOR ME AND I ADVICE ALL TO GO ON IT. I TRULY BELIEVE IT BUT I NEVER HAD THE INFORMATION THAT THEY ASK THAT IS INCLUSIVE. SO IT LIMITS ME. SAYING THAT A PERSON HAS HAD SOME INFORMATION PERTAINING TO IT , HELPS DEEPLY.THANK YOU AND MAY YOU CONTINUE TO FIND HEALTH .DADDIES

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[Guest guest]

Hi Amy, I'm kinda new too. But I can completely understand where you are. My son is 10. He was diagnosed Autistic, ADHD, OCD, Developmentaly Delayed. I also felt completely stunned, confused, lost ect. But that was 4 yrs ago. Today I do still feel confused when it comes to the diagnoses and how smart he is. He talks, reads, draws, and can get so inthrolled in a subject that he could teach a class! And yet the same as you, he does not have any social skills, or have a best friend, play video games, or understand daily skills ect. So I started researching, reading, counseling with others, anything about these subjects. Nobody in my family would believe or yet alone accept the diagnoses. It took doctors, teachers, counselors, and prayers for them all to be on the same page.

He is on meds, not by choice, but he had several really bad episodes, and meltdowns at school and in public. Today he can function normally in our family and home, participate in all activities that work for him, do chores, take care of his needs but with constant supervision. But what I can tell you is don't give up, there is hope, research, get other support, and this group is very helpful. Sorry for talking so much. I am just happy to help.

From: Amy <amym321@...> Sent: Mon, March 29, 2010 10:32:56 PMSubject: ( ) hi

Hi there! I have been reading these posts for some time now, but never replied.

Today we received the report from the neuropsychologist in regards to our son's Cognitive issues. He is 5 and also has CSWS, ADHD, OCD and then they are on the fence whether or not he is PDD-NOS or Aspergers. It was really difficult today to hear that he is so bright, but his ADHD gets in the way that he can't grasp any from of complexity. It is really strange how he can play the Nintendo DS so well, but not grasp some very common things. Does this sound familiar to anyone else?

Thanks for any help you can provide...

Amy

[Guest guest]

Exactly! did the exact thing. He could not tie his shoes till he was 9, but struggles, so we buy him shoes with velcro. only black! and two pairs, one to play and one to wear out nice. his choice. He is so much a bird expert and can draw like an architect, but does not understand stuff his age! go figure.

From: Amber <evans.amber77@...> Sent: Tue, March 30, 2010 12:10:49 AMSubject: ( ) hi

Thats was pretty much zach at that age. Video games that adults cannot figure out he finished in an hour! Now when it came to doing things that a simple for other kids, he had no clue. he could not tie his shoes untill he was 9 and even now at 10 we just buy slip ons for him, he stresses out about the laces coming undone. good luck!