hi

[Guest guest]

cardiology appt tomorrow finally. will take a short break from the board. take

care all.

peace and healing,

Ebony

---------------------------------

Stay in the know. Pulse on the new .com. Check it out.

[Guest guest]

>

Welcome , I am Janet and I too have RA,Fribo and OA and yes I have

the numbness in my hand Dr. said it was carptal tunnel.. and I wore

splints on both hands for about two weeks, and Now I have very little

problems with them going to sleep and yes you are right it wakes you

up and it hurts like h*ll let me tell you. so try some splints for

carpel tunnel and see how that works if not talk to you dr. about it..

good luck and again welcome to the group.

Janet IN IL

> hi every one,

> I am new to the group.

> my name is mary w.

> I have had fibromyalgia for atleast 25 years or more.

> lately I have been waken by cold numbness in my fingers. so cold &

numb

> that it actualy hurts.

> has any one had this problem, if so have you found a way to combat

the

> problem.

> love light,

> mary w.

>

[Guest guest]

Thank you and welcome to the group! Would you like to share your

story with us?

Natasha

Atlanta

>

> Hi im new here I just looked at all the pictures you all have

> wounderful babies they are so precious

> hope everyone has a nice day thank you

> -

>

[Guest guest]

way to go and congratulations- charlotte henry

[Guest guest]

Hang in there . Where all here for you. I'm sure things will turn around. We will be keeping you in our prayers. Terry <ralexanthegreat@...> wrote: Hello everyoneI write this to let all of you know how I have been doing. I went to the V.A. hepatology clinic last Tues. hoping to start a 5TH round of treatment only to be denied at least for now. Dr. said maybe in Jan. She wanted to let my body rest from the effects of almost 6 years of continuous treatment. Last time

treatment had to be discontinued because my platelets were too low. I have been suffering from severe depression for the last couple of years, and recently has been getting worse. I have gotten to the point that I pretty much stay in my room to myself all day. On top of my liver problems Things are falling apart with my relationship with my family. My late wifes daughter and her family gave up everything in Indiana to move to Texas and help me out since I'm unable to work. After a year and a half tension has gotten to the point that they were going to kick me out on the street a week or two ago. I talked them in to letting me stay at least until I find out how my social security disability claim turns out. I'm now waiting for a hearing. I went to see the V.A. social worker and they are trying to get me enrolled in a domiciliary program where I will be able to receive treatment for my hep and for my depression. I have some fears about this, but it seems to be

my only option at this time. I do see it as a chance to make a fresh start with my life.Well I guess I better go for now. Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

[Guest guest]

way to go and congratulations- charlotte henry

[Guest guest]

Good news that you passed. Bad news that they didn't ask any questions about

apraxia. Almost like they don't think it matters.

Lorraine

Mom to 15 dypraxia and language disabilities, and 13 dyspraxia,

language disabilities, dyslexia, SID, visual processing and auditory processing

disorders

-------------- Original message --------------

From: " tonya_lemanski " <tonya_lemanski@...>

Thank you to everyone who gave me input for my state test. I just

wanted to let you know that I PASSED!!! There was not one question

about apraxia....

Thanks for all of your help!

Tonya

[Guest guest]

Good news that you passed. Bad news that they didn't ask any questions about

apraxia. Almost like they don't think it matters.

Lorraine

Mom to 15 dypraxia and language disabilities, and 13 dyspraxia,

language disabilities, dyslexia, SID, visual processing and auditory processing

disorders

-------------- Original message --------------

From: " tonya_lemanski " <tonya_lemanski@...>

Thank you to everyone who gave me input for my state test. I just

wanted to let you know that I PASSED!!! There was not one question

about apraxia....

Thanks for all of your help!

Tonya

[Guest guest]

Thanks Terry.I know that things will work out in the end. Sometimes getting to the end seems such a chore, but I will make it through as I have in the past. Even though I was told it could take 10 weeks to get max. bebefit from the antidepressant I'm already feeling some relief after 3 day. Well I better go for now and get ready for church.Terry Long <pawpawto3@...> wrote: Hang in there . Where all here for you. I'm sure things will turn around. We will be keeping you in our

prayers. Terry <ralexanthegreat > wrote: Hello everyoneI write this to let all of you know how I have been doing. I went to the V.A. hepatology clinic last Tues. hoping to start a 5TH round of treatment only to be denied at least for now. Dr. said maybe in Jan. She wanted to let my body rest from the effects of almost 6 years of continuous treatment. Last time treatment had to be discontinued because my platelets were too low. I have been suffering from severe depression for the last couple of years, and recently has been getting worse. I have gotten to the point that I pretty much stay in my room to myself all day. On top of my liver problems Things are falling apart with my relationship with my family. My late wifes daughter and her family gave

up everything in Indiana to move to Texas and help me out since I'm unable to work. After a year and a half tension has gotten to the point that they were going to kick me out on the street a week or two ago. I talked them in to letting me stay at least until I find out how my social security disability claim turns out. I'm now waiting for a hearing. I went to see the V.A. social worker and they are trying to get me enrolled in a domiciliary program where I will be able to receive treatment for my hep and for my depression. I have some fears about this, but it seems to be my only option at this time. I do see it as a chance to make a fresh start with my life.Well I guess I better go for now. Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min.

[Guest guest]

Congratulations Tonya!!!!

I see what Lorraine is saying -but I have another way of looking at

this. Tonya your teacher or someone told you something that made

you 'think' much of the test would have questions about apraxia.

Good for them and all of you! (who told you?)

From your original message here:

" Fri Jul 7, 2006 4:50 pm

tonya_lemanski " <tonya_lemanski@...>

state test help!!!

Hello to All,

I am taking my state test tomorrow (Saturday) and there alot of

questions about apraxia. It is my understanding that there are two

types of apraxia...verbal and lima(?). From my professor, the oral is

when you want the child to reproduce something on command. The child

will eventually come up with the reproduction when they are ready.

They can make the motions but are unable to supply the sound. The

lima (?) I have no clue. My specialty is LD for now....winter 2007

autism. Any and all help is GREATLY appreciated!

Tonya "

Whomever made you believe " alot " of the test was about apraxia got you

and others out there studying it. Who knows why it wasn't on the

test -I wouldn't be surprised if it's once again due to the other

group vs. this groups opposing way of looking at apraxia -and until

there are facts, who is 100% comfortable to put in writing the cruel

diagnosis name once a child is past a certain age " childhood apraxia

of speech " I just got in the mail the directory for The National

Institute on Deafness and Other Communication Disorders where they

don't call it just apraxia in children, nor " childhood " apraxia -but

they still call it the old " developmental " apraxia of

speech...nobody can even decide on the right name for it...and as

one member just posted -shouldn't it be dyspraxia and not apraxia

(no -but I'll post that archive after to explain why)

So as has learned -there is much to study about apraxia -but

not yet much to be tested on. What are the " right " answers? But

what this university did do is get their students to look into

something that they may not have ever looked into. will be an

awesome SLP with much more understanding that there are

reasons 'outside' of autism why a child may be non-verbal.

Rome wasn't built in a day. Maybe a year or two from now there

really will be 'a' question about apraxia? Baby steps I guess!

=====

[Guest guest]

Congratulations Tonya!!!!

I see what Lorraine is saying -but I have another way of looking at

this. Tonya your teacher or someone told you something that made

you 'think' much of the test would have questions about apraxia.

Good for them and all of you! (who told you?)

From your original message here:

" Fri Jul 7, 2006 4:50 pm

tonya_lemanski " <tonya_lemanski@...>

state test help!!!

Hello to All,

I am taking my state test tomorrow (Saturday) and there alot of

questions about apraxia. It is my understanding that there are two

types of apraxia...verbal and lima(?). From my professor, the oral is

when you want the child to reproduce something on command. The child

will eventually come up with the reproduction when they are ready.

They can make the motions but are unable to supply the sound. The

lima (?) I have no clue. My specialty is LD for now....winter 2007

autism. Any and all help is GREATLY appreciated!

Tonya "

Whomever made you believe " alot " of the test was about apraxia got you

and others out there studying it. Who knows why it wasn't on the

test -I wouldn't be surprised if it's once again due to the other

group vs. this groups opposing way of looking at apraxia -and until

there are facts, who is 100% comfortable to put in writing the cruel

diagnosis name once a child is past a certain age " childhood apraxia

of speech " I just got in the mail the directory for The National

Institute on Deafness and Other Communication Disorders where they

don't call it just apraxia in children, nor " childhood " apraxia -but

they still call it the old " developmental " apraxia of

speech...nobody can even decide on the right name for it...and as

one member just posted -shouldn't it be dyspraxia and not apraxia

(no -but I'll post that archive after to explain why)

So as has learned -there is much to study about apraxia -but

not yet much to be tested on. What are the " right " answers? But

what this university did do is get their students to look into

something that they may not have ever looked into. will be an

awesome SLP with much more understanding that there are

reasons 'outside' of autism why a child may be non-verbal.

Rome wasn't built in a day. Maybe a year or two from now there

really will be 'a' question about apraxia? Baby steps I guess!

=====

[Guest guest]

Hi Rogene,

So good to hear from you, glad all is well even if you are very busy.

Love Sue.

[Guest guest]

Rogene, great to hear from you! I'm still up at the computer...lately

I've had a lot of creative tension...designing my new workshop,

enjoying researching...hope you are having a blast! Everything is

going well here.

Love, love and more love,

Sunny

>

> Just checking in . . . still terribly busy, but thinking of everyone

constantly.

>

> Love,

>

> Rogene

>

[Guest guest]

Hey Lynne....ask your Rheumy if you can use the injectible

Methotrexate. I hear that it is a tiny needle you stick in your arm and

it's no big deal....and if you inject it, it does not hit your stomach

and make you sick. I'm probably going to be starting on it soon and I

can tell you, after all I've heard about the oral MTX, I'm going with

the injectible right off the bat. -Betz

>

> Hi all it's been a while since i lasted posted not been doing to good

> to be honest. I have been under what i can only describe as a heavy

> black cloud called depression but it seems o be lifting again. I am

> having trouble keeping my methotrexate down but i have the hospial

> again next month so i can tell them about it. Does anyone ever have

> trouble with their arms? Last week i got aloy oif pain in my shoulder

> and elbow then my arm went dead and felt so heavy i couldn't move it

> without being in so much pain. First time that has ever happened but

> my leg also keeps giving way under me. i know the weight i have put

> on recently won't help but it feels strange. Love to all lynn

>

[Guest guest]

well i will agree with you . I've been on both the pills and the injectable

.. But I will tell you what my doctor told me . when you take the injectable

then you have a higher risk of liver damage . It goes directly in to your

bloodstream and unlike the pills which go all through your gastrointestinal

system and is absorbed in as slower manner and is not going directly to your

liver from your bloodstream and therefore does not cause the damage that the

injectable does . I do have an enlarged liver but that is just me . well it is

easier ta take the injectable . [ less side effects ] . also would like to add

that if you take pepcid ac before you take methotrexate [about an hour

before ] you probably will not experience the nausea. anyway I found this to be

the case . pepcid ac stops the production of acid and does not work like tums

or other antacids do . It also workds for 12 hours and can be bought over the

counter . cathy from ma

[Guest guest]

...you may have just changed my mind. I think I will at least TRY

the Pepcid then oral MTX. Thank you for sharing that with me. -Betz

[Guest guest]

Hi Betz the only problem with injectable is that i am absolutly petrified of

needles I know it sounds silly but i have a big phobia of needles even really

small ones. But as i say I have the hospital next month so i have a lot to tell

them as i have been sick again thelast two nights. Thanks or your kind thoughts

Lynn

---------------------------------

The all-new goes wherever you go - free your email address from

your Internet provider.

[Guest guest]

Lynne said:

I know it sounds silly but i have a big phobia of needles even really

small ones.

>

Lynne...I was the only kid in my whole 10th grade class that refused

to let them blood type me for a grade. I took the F. And look at me

now! I was diagnosed with a heriditary metabolic disorder in 1998. My

daughter was only 5. If I did not have weekly phlebotomies and

bloodwork until it was under control, I might live 20 more years but it

would be a rough road filled with early heart disease, liver disease,

and more than likely cancers. I wanted to be there for my daughter so I

did it. And that broke me in. Then I said no more but alas I learned I

had a chance to walk rather than scoot if I took Enbrel, so I did it.

If I can over come it, anyone can...if you are hurting badly enough. I

understand the fear. I had it. -Betz

[Guest guest]

I guess so Bets thanks a gain for your input it is greatly appreciated. Got

sent home from work today as to sore and tired after being sick the last couple

of days. They would rather i rest and get over it s they put it. I am glad just

to be able to relax and sleep as i am so tired right now. Thanks again betz.

Lynn

---------------------------------

Win a BlackBerry device from O2 with . Enter now.

[Guest guest]

Oh Lynn....I'm in that club. I got sent home last week too! I feel

like a kid in school. I found out mine was due to on of the eye

drops I was on...it can exhaust you. Go figure. So I'm off of it and

starting to feel human again....or at least human for me. Rest up

and feel better. -Betz

>

> I guess so Bets thanks a gain for your input it is greatly

appreciated. Got sent home from work today as to sore and tired

after being sick the last couple of days. They would rather i rest

and get over it s they put it. I am glad just to be able to relax

and sleep as i am so tired right now. Thanks again betz. Lynn

>

>

> ---------------------------------

> Win a BlackBerry device from O2 with . Enter now.

>

>

[Guest guest]

Hi betz i know what you mean as human as we can possibly feel lol. Well i have

had it confirmed by the doc i have not one but two infections so woohoo more

tablets and i have been ordered to stay at home to rest lol at least my doc

knows what i am like. how are you feeling just now?

---------------------------------

Try the all-new . " The New Version is radically easier to use " –

The Wall Street Journal

[Guest guest]

Gee Lynn...no wonder you feel poorly! And having infections running

through your body could very well make you feel depressed too. Not

only could it make you feel " blue " but it can make your PA flare

like mad. This is good news that the doc FOUND this. Now after some

more " pills " , in a few days you might start feeling alot better!

Sometimes it's something so simple, isn't it? I have an appt with my

eye doctor in a few hours. I have one a week lately because my type

of PA is effecting my eyes. My optic nerves are inflamed. Not sure

if you knew about this. I have some questions for him today about my

vision. It has decreased noticeably in the past few weeks and I'm a

scared to say the least. Right now, I have my regular glasses on and

some large reading glasses on top of them just to see the computer

screen! I look like a double nerd. If I take my regular glasses off,

my face has to be 4 inches from the screen to see anything. They

can't change my glasses when it's getting worse so quickly. I want

to ask him if it's the medication (I hope) or is this vision loss

permanant. Today may be the day we find out about the availabilty of

a specialist in Boston which is only 3 hours from me. I'm doing alot

of praying. I'm also VERY tired. We took me off of one of the four

eyedrops I was on because my eye doc said that it could cause

extreme fatigue. It was worse than what I experience with flares and

I was dizzy on top of being tired. I've missed alot of work just

from not being able to drive. I told them I'd be back tomorrow and

see how it goes. PA stinks. But life is still a gift and I try to

focus on the beautiful things. I'm looking forward to hearing that

you are feeling better soon.... -Betz

[Guest guest]

Hi Betz hopefully your eyesight is just due to the meds my fingers are crossed

for you. I did know about problems with eyesight but only because my optician

told me about it. I hope i feel better soon to as i have had to takethis week

off work and am worried about what they will say when i am back next week. My

mum says they can't say anything about it but i just worry about these things.

am going to go now as i am getting grogy but thanks again for listening. Lynn

---------------------------------

All new " The new Interface is stunning in its simplicity and ease

of use. " - PC Magazine

[Guest guest]

Lynn...thanks for your kind words and well wishes. I'm going into the

hospital Monday for testing to figure out why I feel so bad and am so

dizzy. I hope you are feeling better and not missing too much work.

You're Mum is right by the way...hang in there. -Betz

[Guest guest]

Betsy - keeping my fingers crossed that you feel better soon. -

>

> Lynn...thanks for your kind words and well wishes. I'm going into the

> hospital Monday for testing to figure out why I feel so bad and am so

> dizzy. I hope you are feeling better and not missing too much work.

> You're Mum is right by the way...hang in there. -Betz

>