OPRAH

[Guest guest]

FYI-

The Oprah Show is re-running its episode on Autism tomorrow.

Liz

" Trust your hunches. They're usually based on facts filed away just below the

conscious level. "

- Dr. Joyce Brothers

[Guest guest]

I am watching it now and I have to admit I am getting very emotional.

Holly

OPRAH

Oprah is having a segment on our friend AUTISM today!

" Trust your hunches. They're usually based on facts filed away just below the

conscious level. "

- Dr. Joyce Brothers

[Guest guest]

So what did you all think? I was not expecting much from McCarthy as I'm

sure you guessed:-) but I was pretty impressed with the show. I'm sure Oprah's

gonna take a big hit from the vaccine folks but I thought they kept that part

fairly openminded. I think maybe Ms. McCarthy was forced to grow up a bit and I

was actually impressed by her enthusiasm (even tho she has a zillion dollars and

we all worked just as hard as she did and didn't have the same results).

I'm interested in this:

Were any of you actually influenced for the first time by this show to give the

gfcf diet a try? I do admit to a certain prejudice here as I was happy to hear

it suggested by both JM and Holly R. Peete as one of the first and easiest or

least invasive things to try. For anyone who didn't see it there's supposed to

be an online chat at Oprah's website tonight with both of them.

Sherry

[Guest guest]

Sherry: I think we all have had that hope that simple would make it go away.

Unfortunately, Tori doesn't have a gf/cf intolerance...so here we are. For

those who it works for...God Bless.

Liz

Re: OPRAH

So what did you all think? I was not expecting much from McCarthy as I'm

sure you guessed:-) but I was pretty impressed with the show. I'm sure Oprah's

gonna take a big hit from the vaccine folks but I thought they kept that part

fairly openminded. I think maybe Ms. McCarthy was forced to grow up a bit and I

was actually impressed by her enthusiasm (even tho she has a zillion dollars and

we all worked just as hard as she did and didn't have the same results).

I'm interested in this:

Were any of you actually influenced for the first time by this show to give

the gfcf diet a try? I do admit to a certain prejudice here as I was happy to

hear it suggested by both JM and Holly R. Peete as one of the first and easiest

or least invasive things to try. For anyone who didn't see it there's supposed

to be an online chat at Oprah's website tonight with both of them.

Sherry

[Guest guest]

I meant to say some that simple....sorry!

Re: OPRAH

So what did you all think? I was not expecting much from McCarthy as I'm

sure you guessed:-) but I was pretty impressed with the show. I'm sure Oprah's

gonna take a big hit from the vaccine folks but I thought they kept that part

fairly openminded. I think maybe Ms. McCarthy was forced to grow up a bit and I

was actually impressed by her enthusiasm (even tho she has a zillion dollars and

we all worked just as hard as she did and didn't have the same results).

I'm interested in this:

Were any of you actually influenced for the first time by this show to give

the gfcf diet a try? I do admit to a certain prejudice here as I was happy to

hear it suggested by both JM and Holly R. Peete as one of the first and easiest

or least invasive things to try. For anyone who didn't see it there's supposed

to be an online chat at Oprah's website tonight with both of them.

Sherry

[Guest guest]

<<Sherry: I think we all have had that hope that simple would make it go away.

Unfortunately, Tori doesn't have a gf/cf intolerance...so here we are. For

those who it works for...God Bless. >>

Oh I definitely agree......I just wondered if it inspired anyone who hasn't yet

tried it to do so. I didn't mean to imply that that was the ONLY thing they did

for their kids. And they certainly didn't imply the diet " made it go

away " ....just a first step.Certainly sounds like they did alot....but when

you've got that early a diagnosis and that kind of money and that kind of luck

and that kind of lack of complication with something like DS I think it's like

apples and oranges.

I guess I was just surprised that I didn't actually feel as negatively towards

M as I had planned to. LOL.

So you and a already tried gfcf with your kids and no improvement at all?

That sucks. We really didn't either from straight gfcf...more from eliminating

stuff like apples and corn that she was extremely allergic to. I don't know. I

just don't think the same rules apply with our kids and " regular " kids with

Autism. Just my opinion.

My girlfriend called me up during the show and asked " why can't they talk about

kids who have other dxes like DS too? and I'm thinking....yeah, wouldn't we all

like to know that.

[Guest guest]

It was okay, but I felt just as alone watching that as I do sometimes watching

kids with only DS. I think DS-Autism is way different than just autism or just

DS.

Beth

Re: OPRAH

So what did you all think? I was not expecting much from McCarthy as I'm

sure you guessed:-) but I was pretty impressed with the show. I'm sure Oprah's

gonna take a big hit from the vaccine folks but I thought they kept that part

fairly openminded. I think maybe Ms. McCarthy was forced to grow up a bit and I

was actually impressed by her enthusiasm (even tho she has a zillion dollars and

we all worked just as hard as she did and didn't have the same results).

I'm interested in this:

Were any of you actually influenced for the first time by this show to give

the gfcf diet a try? I do admit to a certain prejudice here as I was happy to

hear it suggested by both JM and Holly R. Peete as one of the first and easiest

or least invasive things to try. For anyone who didn't see it there's supposed

to be an online chat at Oprah's website tonight with both of them.

Sherry

[Guest guest]

In a message dated 9/18/2007 8:47:39 P.M. Eastern Daylight Time,

gldcst@... writes:

So what did you all think? I was not expecting much from McCarthy

Sherry, I didn't get to watch it until 4:30, right before Holly

Pete came on. I DID like when McCarthy said to the audience, " If you

want to know how you can help, BABYSIT.....and I'm not talking just for a

couple hours; I mean OVERNIGHT " . The only thing I didn't like came from

Holly,

when she said something about these kids being labeled retarded wrongly.

That's a misconception. I believe the stats are that 75 percent of

individuals dx'd with autism DO have MR. Other than that, I thought it was

honest and I am grateful to see some celebs out there talking about it. I

know

Sylvester Stallone has a son with autism, and not much was ever said about

it. I wonder how many more are out there, that don't put it in the

limelight.

Donna

************************************** See what's new at http://www.aol.com

[Guest guest]

Beth,

I totally agree with you- we're still an elite group. I think the program was

too general anyway, not discussing in any detail what the treatments are or

where families should go for resources. -

To: @...: bdehoff@...: Wed, 19 Sep 2007

00:20:24 -0400Subject: Re: OPRAH

It was okay, but I felt just as alone watching that as I do sometimes watching

kids with only DS. I think DS-Autism is way different than just autism or just

DS. Beth Re: OPRAHSo what

did you all think? I was not expecting much from McCarthy as I'm sure you

guessed:-) but I was pretty impressed with the show. I'm sure Oprah's gonna take

a big hit from the vaccine folks but I thought they kept that part fairly

openminded. I think maybe Ms. McCarthy was forced to grow up a bit and I was

actually impressed by her enthusiasm (even tho she has a zillion dollars and we

all worked just as hard as she did and didn't have the same results).I'm

interested in this:Were any of you actually influenced for the first time by

this show to give the gfcf diet a try? I do admit to a certain prejudice here as

I was happy to hear it suggested by both JM and Holly R. Peete as one of the

first and easiest or least invasive things to try. For anyone who didn't see it

there's supposed to be an online chat at Oprah's website tonight with both of

them.Sherry

[Guest guest]

<<It was okay, but I felt just as alone watching that as I do sometimes watching

kids with only DS. I think DS-Autism is way different than just autism or just

DS. Beth----- Original >>

Well, I hate to be so wishy washy but after thinking about it some more I have

to concede that the only thing that REALLY impressed me was that McCarthy

was not the complete ditz I had expectations of her being. You guys are

absolutely right.... " our " kind of autism doesn't even fit into the regular

autism slot. I think eventually science and genetics will prove this out but for

now we are left with the " A " word applied to our kids as well.. This makes me

realize how totally prejudiced I was against M (I still don't consider

myself a fan by any means) but I'm relieved she may not do quite as much damage

to the autism community as I had anticipated. Just me being overly prejudiced

ahead of time.

Sherry

[Guest guest]

nathan doesn't either, hes been tested several times and no gluten or casein

allergy or reactions ever found.shawna

************************************** See what's new at http://www.aol.com

[Guest guest]

What kinds of testing did you do for gluten sensitivity? Hardly anyone who has

done the gfcf diet has a child who tests allergic or sensitive to gluten. I'm

not pushing the diet...please believe me....just the info that traditional

allergy testing is inconclusive and even the more expensive and involved OAT and

peptide tests are not all that reliable. The only true test is a trial of the

diet. Even M is talking about how her son did not test positive. I think

it's one of the reasons it's so hard to make the decision to do the diet because

there's no clear cut diagnosis...like celiac for instance....that can give us

the energy and assurance to try one more difficult thing. Just my understanding.

Please don't yell at me:-)

Sherry

[Guest guest]

I just saw " Autism: The Musical " (a great documentary, by the way) and

Stills' son has Aspbergers. (Stills of Crosby, Stills and Nash)

Beth

Re: OPRAH

In a message dated 9/18/2007 8:47:39 P.M. Eastern Daylight Time,

gldcst@... writes:

So what did you all think? I was not expecting much from McCarthy

Sherry, I didn't get to watch it until 4:30, right before Holly

Pete came on. I DID like when McCarthy said to the audience, " If you

want to know how you can help, BABYSIT.....and I'm not talking just for a

couple hours; I mean OVERNIGHT " . The only thing I didn't like came from Holly,

when she said something about these kids being labeled retarded wrongly.

That's a misconception. I believe the stats are that 75 percent of

individuals dx'd with autism DO have MR. Other than that, I thought it was

honest and I am grateful to see some celebs out there talking about it. I know

Sylvester Stallone has a son with autism, and not much was ever said about

it. I wonder how many more are out there, that don't put it in the

limelight.

Donna

************************************** See what's new at http://www.aol.com