{Disarmed} RE: {Disarmed} Re:introduction

[Guest guest]

Beth,

Mostly Columbus to Children's Hospital.

The therapy that we attended Friday was set up by the school psychologist at

a hospital in Marietta, Ohio with a OT trained in sensory integration

therapy. She was really good and kept saying she wished Ely was in was in

her school district, so I don't think we will be doing therapy with her on a

regular basis. She basically did an evaluation and some testing through

play. She then taught us brushing and joint compression. She suggested some

things to give him food wise (nugget pretzels, starbursts, carrot slices) to

get him to not chew on his clothes She is going to write up an OT/sensory

therapy to be used by the school. Ely has trouble socializing and would

rather play by himself and self stim (dangling stuff and twirling beads) so

I guess the brushing will help with this.

Janet

{Disarmed} Re:introduction

Hi Janet!

We are practically neighbors- well, you're only about an hour away

from me- I live in Westerville which is at 1:00 on the Columbus

outerbelt.

Where have you gone for services for Ely? Do you usually end up in

Lancaster or Columbus? And what kind of therapy will Ely be getting?

Wow, alopecia, too? Pete has it, too. He is pretty bald with the

back of his head needing to be buzzed off each week. His eyebrows

got lighter and thinner as he got older. He was completely bald at

age eight and by 10 it all grew back in and then at 13 it was gone

again. He is very obsessed with everyone else's hair, even though

he'll stroke his bald top and say, " I have no hair! Smooth head! "

Then he might go up to a complete stranger and try to stroke their

hair and say, " Nice hair " . Or he might try and yank it. A little

off-putting.

Pete is going to a camp called Recreation Unlimited that is north of

Delaware Ohio. He is in day camp there for five weeks but we will be

exploring their respite weekends for later on in the year.

Pete is my only child also- he'll be 17 tomorrow!

Glad to have you on board, as well as all the new members-

Beth

At 12:15 AM +0000 7/20/07, wrote:

>Hello! My name is Janet Buttrick. I have a 12 year old son with Down

>syndrome and autistic spectrum disorder. He is my only child. My husband

and

>I have been married for 22 years and live in Logan, Oh.

[Guest guest]

We used the Wilbarger Protocol in brushing for our son ELIE! for about 2

years. We found it lessened aggression, increased concentration. It

didn't help with the shaking, dangling stuff. It didn't make him more

social except that he did his think closer to other people.

We also used a trampoline, hitting soft playground balls up on the roof and

catching them, basketball hoops shooting, swinging. All help somewhat for

SOME people.

>

> Beth,

>

> Mostly Columbus to Children's Hospital.

> The therapy that we attended Friday was set up by the school psychologist

> at

> a hospital in Marietta, Ohio with a OT trained in sensory integration

> therapy. She was really good and kept saying she wished Ely was in was in

> her school district, so I don't think we will be doing therapy with her on

> a

> regular basis. She basically did an evaluation and some testing through

> play. She then taught us brushing and joint compression. She suggested

> some

> things to give him food wise (nugget pretzels, starbursts, carrot slices)

> to

> get him to not chew on his clothes She is going to write up an OT/sensory

> therapy to be used by the school. Ely has trouble socializing and would

> rather play by himself and self stim (dangling stuff and twirling beads)

> so

> I guess the brushing will help with this.

>

> Janet

>

> {Disarmed} Re:introduction

>

> Hi Janet!

>

> We are practically neighbors- well, you're only about an hour away

> from me- I live in Westerville which is at 1:00 on the Columbus

> outerbelt.

>

> Where have you gone for services for Ely? Do you usually end up in

> Lancaster or Columbus? And what kind of therapy will Ely be getting?

>

> Wow, alopecia, too? Pete has it, too. He is pretty bald with the

> back of his head needing to be buzzed off each week. His eyebrows

> got lighter and thinner as he got older. He was completely bald at

> age eight and by 10 it all grew back in and then at 13 it was gone

> again. He is very obsessed with everyone else's hair, even though

> he'll stroke his bald top and say, " I have no hair! Smooth head! "

> Then he might go up to a complete stranger and try to stroke their

> hair and say, " Nice hair " . Or he might try and yank it. A little

> off-putting.

>

> Pete is going to a camp called Recreation Unlimited that is north of

> Delaware Ohio. He is in day camp there for five weeks but we will be

> exploring their respite weekends for later on in the year.

>

> Pete is my only child also- he'll be 17 tomorrow!

>

> Glad to have you on board, as well as all the new members-

>

> Beth

>

> At 12:15 AM +0000 7/20/07,

<%40yahoogroups.com>wrote:

> >Hello! My name is Janet Buttrick. I have a 12 year old son with Down

> >syndrome and autistic spectrum disorder. He is my only child. My husband

> and

> >I have been married for 22 years and live in Logan, Oh.

>

>

[Guest guest]

i agree we used sensory integregation for years, brushing, wieghted vest and

blankets, oral things, special rugs that big ball, scooters etc, it helps

nathan relax or calm down, but does not stop the self stim that is another

type of relaxing or calmin behavior to the child, one can teach their child to

do at certain times, nathan keeps pretty shoe strings in his pocket, and when

gets a break at school or if we are somewhere he will sign or ask " sing " and

we will let him know if ok when out, at home he is pretty much free range, we

use to limit it at home but found he usually just does it awhile right after

school then he is into his muppets or " eat " lol. One place i have found hard

to keep put away for him is the pool nathan insists on having his strings or

his woody or monkey in the pool, he plays with them well and swims like a

fish in water, but often ignores most of the other kids. I assume because there

are so many at the pool, i let it be because at least he is in the pool and

swimming having fun, and he will interact some with the kids that know him.

shawna

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