not sleeping through the night

July 23, 2007

In a message dated 7/23/2007 12:20:34 P.M. Eastern Daylight Time,

christine1223@... writes:

We have Tri Care Ins. so there is no

other Neurologist in case you are wondering why go back to him and Hes

an hour away.

Try calling the insurance company. Explain that this guy is one hour away

and it is not conducive to your daughters health and well being to travel that

long, especially if you need to see him regularly.

Perhaps they will give you a waiver to see someone out of network if you can

find someone willing to take what the insurance will pay. Or perhaps you

could make up the difference.

I did this with Birgitta's dentist and with the group who makes her

orthodics. The only dentist on her plan was 1 1/2 hour away. There was one

closer,

we tried him and he was horrible. I called the insurance company and

complained that I should be able to have a choice of at last two to choose

from. I

told them we had a bad experience with the first and the only other one was

too far for her to travel to.

It is one thing if she only needs to see a specialist once or twice a year

but if you need to go monthly or whatever the doctor should be closer.

I had to go up the chain of command and kept asking each person I spoke with

to get me their supervisor until I was able to speak to someone who had the

authority to make a decision.

It may not happen but it is worth a try.

Good luck. Birgitta never seeps longer than 2 hours at first and than it is

every hour after that. She bangs, rolls around and I guess I have just

gotten used to lack of sleep.

Blessings, W

homeschooling Mom to AJ (12), (9), ^l^, (5,

Trisomy 18 mosaic AKA 's syndrome) and Birgitta (age 4, adoption

finalized 2/1/05 !!, Trisomy 21 AKA Down's Syndrome, Fetal Alcohol Syndrome,

Autism, SID)

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July 23, 2007

My daughter is not sleeping through the night. Some of you remember me

asking you all about this a while ago and we've been doing the Melatonin

and Benadryl. It seems like theres just no luck really. There are some

nights where she sleeps ok, meaning she will at least sleep until 5:30am

and theres the nights where she is up at 2am! We took her to the

Endocrinologist this morning for a routine follow up (her

hypothyroidism) and she said we should see a Neurologist. My question

is do you think they can help? what do you think they will try? We used

to see a Neurologist a couple of years ago for her partial complex

seizures which she no longer has but during that time they prescribed

Tenex to help with sleeping but did not help, thats when i started using

the Melatonin and Benadryl. Her tonsils and andenoids are out and she

does not snore or wake up like shes trying to catch her breath, she

actually wakes up pretty happy. Any suggestions? Maybe I should make

an appt. with the Pediatrician. My Pediatrician has no clue what do to

but he should direct me in the right area im hoping. Im also reluctant

to make an appt. with our past Neurologist because on my own I decided I

no longer needed their help because I felt like they couldnt help, lets

just say I was a constant caller to their office and I may have been

kind of rude :-! and now i look like an ass calling them back for help

but you know what it doesnt matter this is my kid im talking about and i

need to suck it up, right??? We have Tri Care Ins. so there is no

other Neurologist in case you are wondering why go back to him and Hes

an hour away.

July 23, 2007

was the same way. It was terrible. We just do the melatonin 3mg

routinely each night. Some nights, she'll fall asleep within 15 mins,

others not for hours. Sometimes she sleeps till 8am other times, up at

2. So, we just make sure we have her room dark and her Wiggles

Lullabye music on and keep it cool for her. We have a gate up to keep

her in, a tall gate. And just let her be. She is very content to just

play with her toys all night. Even if I tried to hold her to calm her

back to sleep, I could not. She's 4, and stronger than I am. So, I

guess my reply wasn't very helpful! I am sorry. I just wanted you to

know I can relate!!!

July 23, 2007

Tori was a terrible sleeper until we found melatonin. We went for over 6 months

without sleep. Since she started on all her meds, she passes out between 6 & 8

p.m. (typically around 7-7:15) but does not sleep through. She goes to sleep

in her room, but we can't really close the door because she wakes (between 2

a.m. & 5 a.m.) and will bang and slam until one of us goes to her. (we live in

an apt. complex-so we don't want her waking neighbors) Then we have to lay down

with her. It usually winds up being me because dh has to get up at 5:30 for

work. Don't have too much of a choice in our situation...unfortunately. We are

actually trying to get a homeaid to help so they can be with her when she wakes

so I can get a full night's sleep. I can't even remember what that is like.

Liz

Re:not sleeping through the night