Amber

[Guest guest]

We have been working on the sever pronation for many years with Elie. Now,

at age 21, we went for a new evaluation (we have done that every 2 years ).

This year the PT who evaluated him suggested that because, due to the

proantion, he has shortened the tendons and was causing him pain or at the

very least discomfort. We had several different 'grams made - finally an

MRI of his lower legs. So after all that, he ius now fitted for plastic

articulated leg braces. HE wears them without complaint during school hours

and days. The fact that he never has objected to them tells me that they

make him more comfortable. HE is also walking (willingly) on a track with

his college age, lovely mentor. HE is walking upt to a mile at a time now!

We finally gave up on strollers and gave his Baby Jogger to another familly.

HE has a wheel chair that I bought at a flea market. Simple manual w/c

are easy to find either thru the newspaper, at resale shops, flea markets,

etc. My dh put large wheels (from a lawnmower ) on the front to make

wheeling on gravel and mulch easier. We only use it these days when we go

to festivals and there are large crowds.

Sara - Choose to make lemonade, not complain about the lemons.

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>Reply-To:

>To:

>Subject: Re: Family Driven Funds

>Date: Tue, 3 Apr 2007 18:14:20 -0700 (PDT)

>

>Amber what state are you in? Im sorry I have been so out of touch with

>group maybe I can find some solutions.It really makes a difference what

>state your in and how to get help. Laurie, Mom to Mic

>

>sullhomeorg wrote: We are applying for

>Family Driven Funds this time around, I talked to

>our MHMR caseworker today and she will be making a home visit to

>update our info etc. We are in the system but never actually used the

>service. One of the things I am trying for is get them to help pay

>for a stroller. I seen all the talk about them the last few days and

>I think a good quality stroller would be a great benefit to me...if I

>could find one with a super sized shopping cart attached to it I would

>be SET, lol. None the less I'm not sure what all sorts of things they

>will pay for/help with? One thing I would really like to get for my

>daughter is a trampoline. Her ability to walk is normal but she has

>pronation in her feet and she doesn't understand the different

>directions her body can move, but one thing the girl can do is JUMP!

>Currently she is using my bed for such activity. Also she loves

>massages and such, didn't know if there was any products suggestions

>for this. I don't want to go all out crazy, if it is something that I

>can pay for out of my own pocket I'm willing, we've been doing it this

>long...but there are some things it would just be nice to have help with.

>

>Thanks for any suggestions.

>**Amber

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