LAurie

[Guest guest]

Knowing how my DH would respond (he refused to watch the show at all) I

would think that your husband was possibly upset in that he could do

Nothing. My dh said later that he didn't want to see how miserable our life

was and find more people as miserable as we can be.

Of course that may have something to do with the fact that our child care

person for Friday nite just flaked out on us when we have my sister coming

to visit and a whole w/e of fun that Elie will hate. However, I did get

Elie's college mentor to stay with him most of the day Saturday.

Sara - Choose to make lemonade, not complain about the lemons.

>

>Reply-To:

>To: < >

>Subject: Re: oprah an autism

>Date: Thu, 5 Apr 2007 19:47:27 -0400

>

>I say---Let's do it! Let's flood her email box with requests!!

> oprah an autism

>

>

> we should all e-mail the show an tell her that was great an now she

> needs to do the other side of autisum with the dual dignosis so us mom

> can see how others cope just a thought i am going to e-mail the show

> to just get us started we will see. laurie i am sorry you dh was not

> as moved by what he saw but men dont cope like us they just bottle it

> up till it comes out in anger at us mostly but hang on honey he will

> understand soon i will pray for that for you, All in my thought shaunna

>

>

>

>

>

>

[Guest guest]

> Irma you are always thinking and are so creative and full of

knowledge what great ideas ya know what Mic does with the hamper he

empties it and drags the dirty clothes all over the house and I know

hes looking for socks to chew on he usually gets one. Now I keep the

hamper in the closet Mic cant open just wish I could get steve to put

his clothes in there now instead of on the bathroom floor hA!! Laurie

>

See how you became creative too Laurie, ways on finding how to keep

the hamper away from Mic. Bless his little heart, must be rough for

him with those socks he craves for to chew. I did this too with

with other things, lock it up in the garage, had to think like

a drill seargent.

My dh and my other 2 sons and of course Master are excellent

when it comes to placing their dirty clothes in their very own

clothes hamper. Dishes to not have legs, so they clean up after

themselves. Even when it comes to the toilet lid, living in a house

full of guys had to be creative. They even make sure to write on the

grocery list when something is running on low.

Remember that saying if " mama is not happy then no one is happy " . It

took some work, being consistent and if they did not like something

or write something they needed, they snooze they lose until my next

trip.

I would reward them with whatever they wanted. The boys when they

were younger, look forward to games, money, play with friends, or go

out where ever they wanted, you name it spoil them with lots of love

and in return they saw how I was happy just for following a routine,

once you get up in the morning follow the drill, before or after

restroom routine, make-up your bed, clothes in dirty hamper. I even

made it exciting like shooting in a basketball hamper.

They were young, but they did not really look forward to cleaning, so

this is where to work it with the toilet seat, kinda of like " if you

leave it open, you have to clean the toilet. "

Then of course as they got older, told them it was one of those

Chinese thing, " Bad luck if left open " . ; )

With hubby well if you want women or a nice dinner or TV time,

meaning watching his sports without me getting on his face thing.

Its kinda of like FIRST & THEN.

Glad I did as they are older now. Especially now that I have to focus

on 's needs rebuilding some skills he regressed on. He is

coming along once again where I am once again on the mission of

implementing ABA/VB. Plus working with my grandson and do not forget

about my 3 Great-neices (9,7,4 y/o), also possible ADHD & FASD, none

of them are diagnosed but they are coming along as long as my sis

continues to implement on what is needed.

I do not have them anymore they live with their grandma/one of my sis

but I have them also on a routine and they are still doing well.

Sometimes someone will break the mold, like give in and allow them to

escape from wanting to do something and then this is when my sister,

their grandma calls me. They are 150 miles away from me, but they

know if I hear a good report I end up taking them something special.

Especially with all the Disney hoopla teeny boppers they love. Yes, I

too have to regress to this mold, to have this connection. : )

Alright heading out to Austin which is 2 hrs. away, is

undergoing his IV Chelation and this is helping him.

Take care, give Mic a huge hug. That cutie little one of yours who

knows how to work it.

Irma,18,DS/ASD

[Guest guest]

IRMA: I have just printed out about a year's worth of your suggestions to

take to the local children's home meeting. . They have just converted from

all age children shelter to a teenage girl long term shelter. And they are

begging for help to implement a regime. So many of your ideas are jusst

good strong parenting - setting goals, making routines, having expectations,

rewarding the good, trying to ignor the bad, etc I believe that these notes

will be helpful in creating a good and nurturing , growth envrionment fo

rthese girls.

Thanks for your never ending ideas.

>

>

>

> > Irma you are always thinking and are so creative and full of

> knowledge what great ideas ya know what Mic does with the hamper he

> empties it and drags the dirty clothes all over the house and I know

> hes looking for socks to chew on he usually gets one. Now I keep the

> hamper in the closet Mic cant open just wish I could get steve to put

> his clothes in there now instead of on the bathroom floor hA!! Laurie

> >

> See how you became creative too Laurie, ways on finding how to keep

> the hamper away from Mic. Bless his little heart, must be rough for

> him with those socks he craves for to chew. I did this too with

> with other things, lock it up in the garage, had to think like

> a drill seargent.

> My dh and my other 2 sons and of course Master are excellent

> when it comes to placing their dirty clothes in their very own

> clothes hamper. Dishes to not have legs, so they clean up after

> themselves. Even when it comes to the toilet lid, living in a house

> full of guys had to be creative. They even make sure to write on the

> grocery list when something is running on low.

> Remember that saying if " mama is not happy then no one is happy " . It

> took some work, being consistent and if they did not like something

> or write something they needed, they snooze they lose until my next

> trip.

> I would reward them with whatever they wanted. The boys when they

> were younger, look forward to games, money, play with friends, or go

> out where ever they wanted, you name it spoil them with lots of love

> and in return they saw how I was happy just for following a routine,

> once you get up in the morning follow the drill, before or after

> restroom routine, make-up your bed, clothes in dirty hamper. I even

> made it exciting like shooting in a basketball hamper.

> They were young, but they did not really look forward to cleaning, so

> this is where to work it with the toilet seat, kinda of like " if you

> leave it open, you have to clean the toilet. "

> Then of course as they got older, told them it was one of those

> Chinese thing, " Bad luck if left open " . ; )

> With hubby well if you want women or a nice dinner or TV time,

> meaning watching his sports without me getting on his face thing.

> Its kinda of like FIRST & THEN.

> Glad I did as they are older now. Especially now that I have to focus

> on 's needs rebuilding some skills he regressed on. He is

> coming along once again where I am once again on the mission of

> implementing ABA/VB. Plus working with my grandson and do not forget

> about my 3 Great-neices (9,7,4 y/o), also possible ADHD & FASD, none

> of them are diagnosed but they are coming along as long as my sis

> continues to implement on what is needed.

> I do not have them anymore they live with their grandma/one of my sis

> but I have them also on a routine and they are still doing well.

> Sometimes someone will break the mold, like give in and allow them to

> escape from wanting to do something and then this is when my sister,

> their grandma calls me. They are 150 miles away from me, but they

> know if I hear a good report I end up taking them something special.

> Especially with all the Disney hoopla teeny boppers they love. Yes, I

> too have to regress to this mold, to have this connection. : )

>

> Alright heading out to Austin which is 2 hrs. away, is

> undergoing his IV Chelation and this is helping him.

>

> Take care, give Mic a huge hug. That cutie little one of yours who

> knows how to work it.

>

> Irma,18,DS/ASD

>

>

>

[Guest guest]

Laurie,I had to reply to your message. Mic sound just like my 10 year old

. He not only eats his socks but also shoes. My neighbors are always

making comments about his bare feet, but I have learned to ignore them.

is also a stay up all night kind of kid. It started when he was 5. Sometimes he

gets wilder as the night goes on and he won't go to sleep until 4am. My

neighbors have commented about this also. They are always full of advice but

they just don't really understand.I also read your other post about Mic pulling

down the drapes. Same here. I went through several curtain rods before I finally

found that he can't break (so far) the heavy wooden decorative rods that are

molly screwed to the wall and I hung tab top drapes. He pulls all he wants and

they stay up.I love reading all the posts here because so many people are

dealing with the same thing, but Mic just sounds the closest to in

behavior. Imagine if they could get together, they would probably love each

other! Terry LizTo: > > No

melatonin I have tried it along time ago it just seems to > make him dopey all

the next day he even eye crosses when I drug > him with anything.He only does

this about once a month and I was > thinking well its been raining all week up

here in upstate NY > and I havent been able to get him outside and run him or in

the > pool to get the escess energy out plus his Dad put him to sleep > at 8 and

thats way to early for Mic.I was gonna take him outside > and play in the rain

since there was no thunder or lightening > and he loves it but my neighbor

warned me that the other > neighbor threatened to call cps on us for abusing Mic

by doing > some of the things we do with him.I got on the phone with Mics >

Service coordinator and Mics school in case these neighbors do > call cps and I

have my butt covered. I was so mad. These people > have no clue what its like to

raise an asd child and mind > everyone elses business but their own. Luckily the

other > neighbors love us and warn me what they are saying behind my > back for

instance Mic takes off his socks and chews on his dirty > socks well so what its

not hurting him.These neighbors thinks > thats abusive to allow this.Im so glad

the privacy fence is > up.IM not to worried I have my butt covered I have been

thru > this before. somedays I have to drag Mic out to get on the bus > well the

neighbors are making remarks about that too. Im sure if > cps is called we will

be fine. Thanks venting again Laurie>

_________________________________________________________________> Don't get

caught with egg on your face. Play Chicktionary!  >

http://club.live.com/chicktionary.aspx?icid=chick_wlmailtextlink> > [Non-text

portions of this message have been removed]> >

[Guest guest]

Hi Laurie,

It's all too sad. What about the office of protection and advocacy? They have

attorney's that would represent his best interest. Would the NY system pay her

to care for him? She would be able to quit one job. I do think there are ways.

She could also ask an attorney to help her pro bono or go to legal aid. You

could also go to court with her as a witness to his eating. I am packing to

leave for another event.I will be back Monday. I apologize for forgetting to

wish Mic a happy 7th birthday.

Charlyne

Mom to Zeb 14 DS/OCD/ASD?

laurie drago wrote:

They have been fighting her for 2 years now over this g tube stuff after the

aide broke his femur he got pneumonia from his hospital stay I guess they say he

is aspirating well I had him alot for several years and hes not aspirating they

are feeding him to fast. So they say its a G-tube or they call cps.The doctors

who work in the home are also recomending a g-tube of course. Its all about

taking the time and patience to feed him.Shes a single parent with other kids

and works 2 jobs and no money for a lawyer I can just see and feel her distress

I told her reques a second opinion from a doctor not affliated with the

home.Maybe that will help. Nothing was ever done avout the aide who forced his

legs apaty yo diaper and broke his femur either she thought she had him in such

a great place it came highly recommended they gave her 1 weeks notice they were

taking her to court. Shes gonna lose she thinks I told her at least ask for a

mik-key button and they say they will keep

feeding but she knows they wont her biggest fear is they will leave him in his

room and he will have very little human contact once they start feeding him thru

a tube.

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[Guest guest]

Congrats on Mic's good progress report.

I know I don't post often but I just wanted to butt in on the marriage

situation.

My husband and I actually got to the point of separating several years ago.

I was way wrapped up in stuff and keeping in one piece was about

my only focus. I couldn't talk to other grown ups without it being all about

.

What kept us together? I don't doubt that part of it was when he learned

that I would have half of " his " company. That was a catalyst that pushed him to

stay to work it out. I learned to separate a bit from 's issues, not so

much that I couldn't help him and advocate but enough so I could think about

other things. And he changed some things that he was doing that hurt out

relationship.

So, we didn't " stay together " with a bad relationship, we decided to work

it out so we could live together happily. I think now, several years later

that we are both happy we did. Our kids have two parents in their home and a

happy home at that.

Note- it takes two to do this. It can't be done if one person is unwilling

to do counseling or make changes.

Karyn

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[Guest guest]

Laurie,

Trust me there are many days I dont think I have the strength or fortitude to

go on another day or tackle anything else....my job has gotten extremely

stressful at work and the juggling of it all is to much at times......but you do

what you have to do......... I am sorry your having a rough time, although it

seems to be we all have rough times just of different natures.....thank goodness

we have each other........... I can't imagine not having this list or the

friendships I have gained......hang in there.......... we are all here for

you.....

Leah

laurie drago wrote:

Leah so nice to hear from you, I think of you often, so sorry to hear your

having problems.You go girl think of all the hurdles you jumped right over and I

know you will get past this one. Im going thru alot of the stuff you have

already been thru and expect to find myself a single parent anyday now and I

wouldnt have the strength if I didnt know you.I think you tops. Laurie

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[Guest guest]

I plan to do that Margaret.I overstepped my boundaries and am sincerely sorry.

Laurie

To: @...: mfroof@...: Fri, 28 Sep 2007 13:57:05

-0400Subject: Laurie

<<Wow Im shockedDate: Fri, 28 Sep 2007 09:40:58 -0700Subject: Re:

autismFrom:_whatsup@..._

(http://groups.yahoo.com/group//post?postID=ICbF3DLIdH4CS0kUPl4-NznKtyC\

ldEGO-3ljYrZpAJAFqECOFLHkf0xxZ7nAdJNHToL3HTmye_npzrx9c7s) : _lauriedrago@..._

(http://groups.yahoo.com/group//post?postID=ahzeSmeciKUEEWf01efKTmU1iBs\

d29nzaUvQhVVVKjBazTAQwXY-yCIGwwpOj4pI5iwhzdPmKl8c5xy1Jlxv) Hello,Holly is

traveling at this time but would like to send her sincere thanksfor your

message. She will personally reply as soon as it is possible for herto do

so.>>Hi, Everyone....Laurie...please tell them that you were speaking only for

yourself. I haven't gotten involved in this issue and don't want to be included

in it now.Take care, Everyone.Margaret************************************** See

what's new at http://www.aol.com[Non-text portions of this message have been

removed]

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