Guest guest Posted April 5, 2007 Report Share Posted April 5, 2007 In a message dated 4/5/2007 5:15:53 P.M. Eastern Daylight Time, mick8_7@... writes: Steve on the otherhand got mad at me and yelled at me and now were not talking. I was very pleased to see Oprah do that show. Laurie why did he get mad at you? Carol Trishasmom She isn't typical, She's Trisha! _TEAL_ (http://groups.yahoo.com/group/TechnologyinEducationforallLearners/) ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2007 Report Share Posted April 5, 2007 In a message dated 4/5/2007 5:15:53 P.M. Eastern Daylight Time, mick8_7@... writes: kept on crying thru the enitre show. Steve on the otherhand got mad at me and yelled at me Have you thought about why he yelled at you? Please do not take offense but some times we are so bogged down in our own world that we don't always notice what others are going through. Was your crying maybe causing him not to be able to concentrate on the show, was it making him feel helpless cause he doesn't know how to help? Sometimes our little quirks like crying over everything good and bad and sometimes be annoying to some without us even realizing it. You know you hear a lot about how husbands just do not get it or understand or doesn't care but that may not always be the case. Sometimes husbands gets scared just like us moms but the big difference is they don't know how to express themselves so it can be a communication issue for them as well. While we all know there is no crime in being scared or crying or showing emotions men still to this day will hold back thinking it makes them appear weak. So what happens it all builds up and then on top of that they hear how they don't understand or don't care or any number of other accusations and then they just give up. Take it from a single mom it isn't easy raising a child all on your own especially if they are special needs and what little support out there is not enough to live a prosperous and decent style of life. There is no one to help you make the tough decisions, if you are sick there is no one to take care of you so you can get well to take care of your child, all the stress falls on your shoulders and believe me there is a lot of stress even before you get to the special needs child. Believe me, being single is not where you want to be, if you think it's hard now just think how much harder it would be for you by yourself. Any mistakes that are made are all mine no one to blame and no one to share, when I am scared there is no one to give me a hug to reassure me everything is going to be alright and when I am tired and need a break well yep, you guessed it, there is no one. It is just as important that both spouses understand each other's feelings even if they don't agree and not expect them to feel the same way as we do. I've aged more than just my normal age simply from all the stress I have had to handle on my own and believe me when I say while you can make it as a single mom of a special needs child it is one of the hardest things I have ever done in my life. I'm not complaining just thought I'd share from the perspective of a single mom raising a beautiful unique individual whom I love and have no regrets but am sad that so much of my life has been alone in dealing with everything. Carol Trishasmom She isn't typical, She's Trisha! _TEAL_ (http://groups.yahoo.com/group/TechnologyinEducationforallLearners/) ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2007 Report Share Posted April 5, 2007 In a message dated 4/5/2007 6:40:38 P.M. Eastern Daylight Time, hmickgarcia@... writes: It is exhausting too. Sometimes only having to answer to myself sounds pretty damn good. After 15 years of answering to myself having someone else to answer to sounds pretty good to me! lol Carol Trishasmom She isn't typical, She's Trisha! _TEAL_ (http://groups.yahoo.com/group/TechnologyinEducationforallLearners/) ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2007 Report Share Posted April 5, 2007 Way to go OPRAH! Now let us get on the show!! OPRAH What a powerful show!! I was really impressed about her footage and how she allowed the parent to express themselves. The dad was just awesome! Now if we could get her to do a show on DUAL DX. Sara - Choose to make lemonade, not complain about the lemons. > __________________________________________________________ Mortgage refinance is Hot. *Terms. Get a 5.375%* fix rate. Check savings https://www2.nextag.com/goto.jsp?product=100000035 & url=%2fst.jsp & tm=y & search=mor\ tgage_text_links_88_h2bbb & disc=y & vers=925 & s=4056 & p=5117 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2007 Report Share Posted April 5, 2007 I watched the Opera show today, and i too think it was well done, I have to tell you though I feel blessed in that I don;t think is as severe as they were showing, I do get to talk to , he does say Mommy and many other things, he is very well behaved I can take him to restaurants , the store, vacations he is very well behaved, the only thing I really related to was the stimming. Viola ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2007 Report Share Posted April 5, 2007 Even when we're married, many of us still live like this Carol. Believe me, I can understand how hard it is, even though I've been married for 16 years. Though it does ease the burden financially, the rest of the responsibilities are all mine, but add meeting the needs of a husband into it. It is exhausting too. Sometimes only having to answer to myself sounds pretty damn good. Hugs, Take it from a single mom it isn't easy raising a child all on your own especially if they are special needs and what little support out there is not enough to live a prosperous and decent style of life. There is no one to help you make the tough decisions, if you are sick there is no one to take care of you so you can get well to take care of your child, all the stress falls on your shoulders and believe me there is a lot of stress even before you get to the special needs child. Believe me, being single is not where you want to be, if you think it's hard now just think how much harder it would be for you by yourself. Any mistakes that are made are all mine no one to blame and no one to share, when I am scared there is no one to give me a hug to reassure me everything is going to be alright and when I am tired and need a break well yep, you guessed it, there is no one. It is just as important that both spouses understand each other's feelings even if they don't agree and not expect them to feel the same way as we do. I've aged more than just my normal age simply from all the stress I have had to handle on my own and believe me when I say while you can make it as a single mom of a special needs child it is one of the hardest things I have ever done in my Csvillars@... wrote: In a message dated 4/5/2007 5:15:53 P.M. Eastern Daylight Time, mick8_7@... writes: kept on crying thru the enitre show. Steve on the otherhand got mad at me and yelled at me Have you thought about why he yelled at you? Please do not take offense but some times we are so bogged down in our own world that we don't always notice what others are going through. Was your crying maybe causing him not to be able to concentrate on the show, was it making him feel helpless cause he doesn't know how to help? Sometimes our little quirks like crying over everything good and bad and sometimes be annoying to some without us even realizing it. You know you hear a lot about how husbands just do not get it or understand or doesn't care but that may not always be the case. Sometimes husbands gets scared just like us moms but the big difference is they don't know how to express themselves so it can be a communication issue for them as well. While we all know there is no crime in being scared or crying or showing emotions men still to this day will hold back thinking it makes them appear weak. So what happens it all builds up and then on top of that they hear how they don't understand or don't care or any number of other accusations and then they just give up. Take it from a single mom it isn't easy raising a child all on your own especially if they are special needs and what little support out there is not enough to live a prosperous and decent style of life. There is no one to help you make the tough decisions, if you are sick there is no one to take care of you so you can get well to take care of your child, all the stress falls on your shoulders and believe me there is a lot of stress even before you get to the special needs child. Believe me, being single is not where you want to be, if you think it's hard now just think how much harder it would be for you by yourself. Any mistakes that are made are all mine no one to blame and no one to share, when I am scared there is no one to give me a hug to reassure me everything is going to be alright and when I am tired and need a break well yep, you guessed it, there is no one. It is just as important that both spouses understand each other's feelings even if they don't agree and not expect them to feel the same way as we do. I've aged more than just my normal age simply from all the stress I have had to handle on my own and believe me when I say while you can make it as a single mom of a special needs child it is one of the hardest things I have ever done in my life. I'm not complaining just thought I'd share from the perspective of a single mom raising a beautiful unique individual whom I love and have no regrets but am sad that so much of my life has been alone in dealing with everything. Carol Trishasmom She isn't typical, She's Trisha! _TEAL_ (http://groups.yahoo.com/group/TechnologyinEducationforallLearners/) ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2007 Report Share Posted April 5, 2007 Even when we're married, many of us still live like this Carol. Believe me, I can understand how hard it is, even though I've been married for 16 years. Though it does ease the burden financially, the rest of the responsibilities are all mine, but add meeting the needs of a husband into it. It is exhausting too. Sometimes only having to answer to myself sounds pretty damn good. Hugs, Take it from a single mom it isn't easy raising a child all on your own especially if they are special needs and what little support out there is not enough to live a prosperous and decent style of life. There is no one to help you make the tough decisions, if you are sick there is no one to take care of you so you can get well to take care of your child, all the stress falls on your shoulders and believe me there is a lot of stress even before you get to the special needs child. Believe me, being single is not where you want to be, if you think it's hard now just think how much harder it would be for you by yourself. Any mistakes that are made are all mine no one to blame and no one to share, when I am scared there is no one to give me a hug to reassure me everything is going to be alright and when I am tired and need a break well yep, you guessed it, there is no one. It is just as important that both spouses understand each other's feelings even if they don't agree and not expect them to feel the same way as we do. I've aged more than just my normal age simply from all the stress I have had to handle on my own and believe me when I say while you can make it as a single mom of a special needs child it is one of the hardest things I have ever done in my Csvillars@... wrote: In a message dated 4/5/2007 5:15:53 P.M. Eastern Daylight Time, mick8_7@... writes: kept on crying thru the enitre show. Steve on the otherhand got mad at me and yelled at me Have you thought about why he yelled at you? Please do not take offense but some times we are so bogged down in our own world that we don't always notice what others are going through. Was your crying maybe causing him not to be able to concentrate on the show, was it making him feel helpless cause he doesn't know how to help? Sometimes our little quirks like crying over everything good and bad and sometimes be annoying to some without us even realizing it. You know you hear a lot about how husbands just do not get it or understand or doesn't care but that may not always be the case. Sometimes husbands gets scared just like us moms but the big difference is they don't know how to express themselves so it can be a communication issue for them as well. While we all know there is no crime in being scared or crying or showing emotions men still to this day will hold back thinking it makes them appear weak. So what happens it all builds up and then on top of that they hear how they don't understand or don't care or any number of other accusations and then they just give up. Take it from a single mom it isn't easy raising a child all on your own especially if they are special needs and what little support out there is not enough to live a prosperous and decent style of life. There is no one to help you make the tough decisions, if you are sick there is no one to take care of you so you can get well to take care of your child, all the stress falls on your shoulders and believe me there is a lot of stress even before you get to the special needs child. Believe me, being single is not where you want to be, if you think it's hard now just think how much harder it would be for you by yourself. Any mistakes that are made are all mine no one to blame and no one to share, when I am scared there is no one to give me a hug to reassure me everything is going to be alright and when I am tired and need a break well yep, you guessed it, there is no one. It is just as important that both spouses understand each other's feelings even if they don't agree and not expect them to feel the same way as we do. I've aged more than just my normal age simply from all the stress I have had to handle on my own and believe me when I say while you can make it as a single mom of a special needs child it is one of the hardest things I have ever done in my life. I'm not complaining just thought I'd share from the perspective of a single mom raising a beautiful unique individual whom I love and have no regrets but am sad that so much of my life has been alone in dealing with everything. Carol Trishasmom She isn't typical, She's Trisha! _TEAL_ (http://groups.yahoo.com/group/TechnologyinEducationforallLearners/) ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2007 Report Share Posted April 5, 2007 Well, I thought it was really good. I was crying too. I just get so da*^ mad because people seem to tell me it is the Downs, profound mental delay etc. But, like they showed the boy grinding his teeth (Angie does that), the limited diet (Angie does that), flopping to the ground (Angie does that), no language (Angie says nothing), and yet they tell me she is not autistic. I realize and I tell the docs this, that Downs can have a full spectrum too. But, come on! I see tons of DS kids, ones younger than Angie, and they can sit and pay attention, they eat regular foods. I just get so upset! Whoever posted about emailing Oprah again about the Dual DX I think its such a good idea! I mean, I hardly see anything about just Down Syndrome, let alone dual dx. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2007 Report Share Posted April 5, 2007 , As I watched Oprah's show I to cried.My husband was just coming in from work as I was hurring him in to watch this show.He was not in too big of a hurry.I hated that I had to leave to take to a hair appointment so my husband offered to video tape the rest of the show.That was amazing in itsself.Children usually fall back on the women as " our " responsibility rather there are the general population or disabled. I am in no way saying I agree with this it is just how it is.Alot of men think that because they are the main money providers that is enough.But as Dr. Phil put it one day he said there is other currience beside financilly and all the banks have to be filled.The love bank, the emotional bank,etc.Raising our kids takes to people to bounce off of for support and respite.If you do not have the dual diagnoisis yet print off one of the articles that is on dual dx and make an appointment with a developemental pediatrician.Ask questions before you go to the office of the DoDown Syndrome and Autism Dual Diagnosis I hope this helps the info following my letter. Cyndi B Although there is a great deal of attention being directed at autism, mostly through the efforts of the growing numbers of families affected by this diagnosis, there is little mention about the growing number of children with a dual diagnosis in families whose children were born with Down syndromec's stack.http://www.bellaonline.com/articles/art33178.asp >http://www.altonweb.com/cs/downsyndrome/index.htm?page=autism.html > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2007 Report Share Posted April 5, 2007 Sara, No kidding I write to Dr. Phil and Oprah daily about our children.Just yesterday I post on Oprah's message board about our kids for other parents to read. Dr. Phil producers contacted me about a different issue I wrote about and while I had them on the phone I tried to speak about this.They said they would keep this in mind for any future shows.All we can do is keep writing until they see we are not giving up. Keep writing Sara, you friend Cyndi B > > I registered, and wrote. Come on friends - go thru the process - register > and write. > > I also wrote KAtie Couric and 60minutes. > > > > Sara - Choose to make lemonade, not complain about the lemons. > > > > > > > > >Reply-To: > >To: < > > >Subject: re: Oprah > >Date: Thu, 5 Apr 2007 17:38:00 -0800 > > > >Well, I thought it was really good. I was crying too. I just get so > >da*^ mad because people seem to tell me it is the Downs, profound > >mental delay etc. But, like they showed the boy grinding his teeth > >(Angie does that), the limited diet (Angie does that), flopping to the > >ground (Angie does that), no language (Angie says nothing), and yet > >they tell me she is not autistic. I realize and I tell the docs this, > >that Downs can have a full spectrum too. But, come on! I see tons of > >DS kids, ones younger than Angie, and they can sit and pay attention, > >they eat regular foods. I just get so upset! > >Whoever posted about emailing Oprah again about the Dual DX I think > >its such a good idea! I mean, I hardly see anything about just Down > >Syndrome, let alone dual dx. > > > > > > > >-------------------------------------------------- > >Checkout our homepage for information, bookmarks, and photos of > >our kids. Share favorite bookmarks, ideas, and other information by > >including them. Don't forget, messages are a permanent record of the > >archives for our list. http://groups.yahoo.com/group/ > >-------------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2007 Report Share Posted April 16, 2007 Laurie, I saw Oprah and one of her guest even mentioned.What good does it do to have Imus fired when nothing is being done about the racial slurs other celebraties like Snoop Dog has made.Snoop Dog has taken women to awards shows wearing a leash and dog collar.I want to know who is alive today that actually was there when cotton picking was going on and remembers exactly what happened.I am very sorry for how people were treated but we need to move forward. Take care of the here and now. > > I posted a message at Oprah.con and enrolled in her membership program. Im having a real hard time with this Imus thing we all make mistakes and he has done so much for us as parents of kids with asd and gets no credit. If the girls on the basketball team can forgive him why cant we.Has Al Sharpton apologized to the 3 young men he crucified about raping a woman and all was unfounded. If you ask me Al Sharpton has done more destruction in creating racisism then anybody I can think of. Just venting Laurie > > Quote Link to comment Share on other sites More sharing options...
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