Re: re:Sherry's story and strange behaviors

April 5, 2007

Sherry-

You have me ROTFLOL tonight! Tooooooo funny!!! DJ has always licked the TV

screen and any other glass he can. And though he doesn't seem to have the

skills yet to turn on the VCR or other taping device, he does have two favorite

toys that play music and have flashing colored lights that he will sit, rocking

of course, while turning both on to the same song. The songs don't play in

pitch or in the exact same rhythm, but he continues to play them at the same

time. As the rest of the family is very musical, and the cacophony of sound is

grating to our nerves, we usually insist he put one toy away. He seems to give

us a look of disdain for our lack of understanding about his wonderful " duelling

musical toy " concert, but he grudgingly gives in to our demand. I never knew

anyone else's child exhibited any behavior similar to his, but your story about

lets me know that we are not alone. Thank-you for sharing.

I am enjoying this wonderful spate of storytelling we seem to be having

lately. Let's hear more!

Hugs,

Donnell (mom to DJ-age 11)

gldcst2 wrote:

Here is my theory. I don't believe the liner uppers (LUS= lining up

syndrome) and the TRS (Tape rewinding syndrome) gets better as they

get older if you mean does it let up later in life. I think it gets

better by virtue of their increased skill and creativity and

multitasking.

does not believe a book should ever be filed vertically on a

shelf. They've always had to be face up and in line. But lately with

books she has graduated to the PUS (piling up syndrome) and has

replaced the lining up books with lining up audiotapes. Another thing

we have to stock up on like Sara mentioned with the VCRs.

now enjoys a combination stack and line with the cassette

tapes. She spreads them out for great distances and then begins to

pile them from one end so they become a graduated curved incline like

a skateboarding ramp. It's really quite ingenious. The PUS extends to

libraries and bookstores where we are no longer welcome. However on

her desk she enjoys making cleverly delicately balanced piles with

little spaces in between from which she can peer at the TV. She then

rewinds her audiotape of the video and plays them both at the same

time cueing them up to the same phrase and rewinding them both at the

same time.

She's never attempted to watch TV upside down (which is so funny!)

but she loves to watch it thru the reflection in the window or a

mirror. She also likes to lick the TV but not quite as much as when

she was younger. Personally I think Maddie and her no eye contact LUS

is hilarious. She must be such a character.

I think I've mentioned before that my shrink has an OCD clinic where

she works and likes to line up all the OCD pamphlets on the

carpet in the waiting room making all the other clients (happy maybe?)

but very confused when I am the one who gets up to go in and see the

doctor. She also used to line up all the furniture in the waiting

rooms at Doctor's offices, all their magazines and then walk in

little steps backwards on them while hitting her head at appropriate

intervals with her favorite book " What to Do about your Brain Injured

Child " which she carried everywhere till she switched to " Amino Acids

in Therapy " . All the while making that dreaded uuuhhh sound. You all

know what I'm talking about.

I personally believe there should be a TRS, LUS and PUS category in

the olympics and our brilliant kids could compete and wipe out all

the " normal " kid competitors.

Sherry

April 5, 2007

Our guy has " SAS " = Sports Announcer's Syndrome. He loves getting a

new year book or roster from Special Olympics teams and loudly reading

the names off, over and over again.

> Sherry-

> You have me ROTFLOL tonight! Tooooooo funny!!! DJ has always licked

> the TV screen and any other glass he can. And though he doesn't seem

> to have the skills yet to turn on the VCR or other taping device, he

> does have two favorite toys that play music and have flashing colored

> lights that he will sit, rocking of course, while turning both on to

> the same song. The songs don't play in pitch or in the exact same

> rhythm, but he continues to play them at the same time. As the rest of

> the family is very musical, and the cacophony of sound is grating to

> our nerves, we usually insist he put one toy away. He seems to give us

> a look of disdain for our lack of understanding about his wonderful

> " duelling musical toy " concert, but he grudgingly gives in to our

> demand. I never knew anyone else's child exhibited any behavior

> similar to his, but your story about lets me know that we are

> not alone. Thank-you for sharing.

>

> I am enjoying this wonderful spate of storytelling we seem to be

> having lately. Let's hear more!

>

> Hugs,

> Donnell (mom to DJ-age 11)

>

> gldcst2 wrote:

> Here is my theory. I don't believe the liner uppers (LUS= lining up

> syndrome) and the TRS (Tape rewinding syndrome) gets better as they

> get older if you mean does it let up later in life. I think it gets

> better by virtue of their increased skill and creativity and

> multitasking.

> does not believe a book should ever be filed vertically on a

> shelf. They've always had to be face up and in line. But lately with

> books she has graduated to the PUS (piling up syndrome) and has

> replaced the lining up books with lining up audiotapes. Another thing

> we have to stock up on like Sara mentioned with the VCRs.

>

> now enjoys a combination stack and line with the cassette

> tapes. She spreads them out for great distances and then begins to

> pile them from one end so they become a graduated curved incline like

> a skateboarding ramp. It's really quite ingenious. The PUS extends to

> libraries and bookstores where we are no longer welcome. However on

> her desk she enjoys making cleverly delicately balanced piles with

> little spaces in between from which she can peer at the TV. She then

> rewinds her audiotape of the video and plays them both at the same

> time cueing them up to the same phrase and rewinding them both at the

> same time.

>

> She's never attempted to watch TV upside down (which is so funny!)

> but she loves to watch it thru the reflection in the window or a

> mirror. She also likes to lick the TV but not quite as much as when

> she was younger. Personally I think Maddie and her no eye contact LUS

> is hilarious. She must be such a character.

>

> I think I've mentioned before that my shrink has an OCD clinic where

> she works and likes to line up all the OCD pamphlets on the

> carpet in the waiting room making all the other clients (happy maybe?)

> but very confused when I am the one who gets up to go in and see the

> doctor. She also used to line up all the furniture in the waiting

> rooms at Doctor's offices, all their magazines and then walk in

> little steps backwards on them while hitting her head at appropriate

> intervals with her favorite book " What to Do about your Brain Injured

> Child " which she carried everywhere till she switched to " Amino Acids

> in Therapy " . All the while making that dreaded uuuhhh sound. You all

> know what I'm talking about.

>

> I personally believe there should be a TRS, LUS and PUS category in

> the olympics and our brilliant kids could compete and wipe out all

> the " normal " kid competitors.

> Sherry

>

April 5, 2007

In a message dated 4/5/2007 2:23:16 AM Eastern Daylight Time,

donnellkenworthy@... writes:

I never knew anyone else's child exhibited any behavior similar to his, but

your story about lets me know that we are not alone.

Birgitta loves to lick the TV screen also. She especially enjoys feeling

the vibration coming from the side speaker and will press her face into it. We

have smaller chairs with steel legs in the playroom. She will sit under one

of the chairs and lick the legs! I purchased a big stainless steel mirror

for her to use. She will slide her face back and forth across it licking it.

Blessings, W

in CT

homeschooling Mom to AJ (12), (8), ^l^, (5,

Trisomy 18 mosaic AKA 's syndrome) and Birgitta (age 3, adoption

finalized 2/1/05 !!, Trisomy 21 AKA Down's Syndrome, Fetal Alcohol Syndrome,

Autism, SID)

************************************** See what's free at http://www.aol.com.

April 5, 2007

<<Our guy has " SAS " = Sports Announcer's Syndrome. He loves getting a

new year book or roster from Special Olympics teams and loudly reading

the names off, over and over again.>>

We have one of these guys at Special olympics Gymnastics who is Autistic only,

not DS. He is so dang funny. Every year when we have the final ceremony it seems

to coincide with the awards shows on TV and he gets up in front of the whole

crowd like a master of ceremonies handing out trophies and announcing to the

audience....sometimes he just mouths words into a pretend mike but the arm

gestures and the bows and all are so entertaining.... " And the winner is..... "

Sherry

April 6, 2007

<<As the rest of the family is very musical, and the cacophony of sound is

grating to our nerves, we usually insist he put one toy away. He seems to give

us a look of disdain for our lack of understanding about his wonderful " duelling

musical toy " concert, but he grudgingly gives in to our demand. I never knew

anyone else's child exhibited any behavior similar to his, but your story about

lets me know that we are not alone. Thank-you for sharing.>>

Hey Donnell, I forgot to respond to this email........Can you imagine if we got

DJ and together????? Maybe DJ is a prophetic name for him if he is so

proficient at cueing up music LOL. I remember we were so excited when

finally learned to put her own Video into the VCR. I think she was 7. Before

that she was constantly coming to us and handing us a video to put in over and

over again. Then of course she discovered the buttons and we began that long

road down expensive VCR repair until VCRs finally became cheaper than repairs.

She absolutely refused to wear headphones for ages (a sensory thing) but once

she was able to accept the headphones life was so much easier- we could travel

in the car in silence while she rocked out in the back seat. And people stopped

giving us such nasty looks at doctors' offices because the volume always had to

be on HIGH!

So now....when she cues up the audiotape it is with headphones on so we only

have to listen to the VCR not both at the same time. I don't know how any of us

has maintained their sanity (not that any of us has) while listening to dueling

videos and music (plus dad's basketball games etc.) Sometimes I wear earplugs

just to dull the pain.

Sherry

April 6, 2007

> So now....when she cues up the audiotape it is with headphones on so

we only have to listen to the VCR not both at the same time. I don't

know how any of us has maintained their sanity (not that any of us has)

while listening to dueling videos and music (plus dad's basketball

games etc.) Sometimes I wear earplugs just to dull the pain.

> Sherry

The more the merrier is Trisha's philosophy! Right now she has dvd

going and her talking book here in the living room, I am just so

grateful she didn't bring out her musical radio and her other talking

book. Most of the time when she is in her room she has the t.v. and

the portable dvd player plus both talking books and her comupter with

the Bereinstein bears playing not to forget her musical radio all going

full blast until mean ole mom goes in and makes her turn it down. My

ears are constantly throbbing even when she is at school and it's quiet

around here the long term effects just seem to linger. lol

April 7, 2007

My husband took the control button out for Jake's television so that he cannot

turn the volumne up. We can do it with the remote but he doesnt know that. He

gets the tv and the computer going at the same time. I fight the dualing

televisions between all our family watching different tvs in different rooms.

Holly

Re: re:Sherry's story and strange behaviors

<<As the rest of the family is very musical, and the cacophony of sound is

grating to our nerves, we usually insist he put one toy away. He seems to give

us a look of disdain for our lack of understanding about his wonderful " duelling

musical toy " concert, but he grudgingly gives in to our demand. I never knew

anyone else's child exhibited any behavior similar to his, but your story about

lets me know that we are not alone. Thank-you for sharing.>>

Hey Donnell, I forgot to respond to this email........Can you imagine if we

got DJ and together????? Maybe DJ is a prophetic name for him if he is so