Guest guest Posted September 15, 2007 Report Share Posted September 15, 2007 There can be NOsavings as SS limits savings to a total of $2,000. I would get to a supervisor or try on line to get this explained . No one ever suggested that Elie would get less than the max allowed. Bob also transfers funds every month for insurance payment (our state does not supply anything but extraction to adults, premium for his share of tricare, out to eat - weekly expense needed as he " works " . He makes about $2/wk, and spends $10-15 on eatingout and movies, occasional clothes - where is there any left for saving anyway???? > > Hi, Everyone....Sherry, Irma, Sara...this is what I don't understand. > Our > monthly budget is documented at over $1500 for everything and there are 3 > of > us. G's *fair share* (as she puts it) would be over $500. Well....he only > gets $415. How can I charge him $500?!?!? Everything was documented, > thanks > to Sherry's advice, as far as all the other *extras* for the month....they > > came between $200-300 in addition to the $350 we charge him for room and > board. > We were only charging him $350 'cuz that is what someone told me to > charge. > I need to figure out 72% of $415 and charge him that. Plus.....I write a > check at the end of the month to pay me for all of his *extras* that > aren't > covered under room and board.....clothes, eating out, med co-pays, school > lunches, etc. Then, she said.... " how much are you saving for him? " > Take care, Everyone. > Margaret > > ************************************** See what's new at > http://www.aol.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2007 Report Share Posted September 16, 2007 Hi Sara, Thank you for always sharing any information pertaining these type of issues that we need to learn about and see how to get around them. Question how did Bob manage to get private health insurance for Elie? Only for the fact that one parent yesterday brought this up at a DS conference I had attended that she was looking into this for her daughter but was denied because of her disability. Irma,19,DS/ASD > > There can be NOsavings as SS limits savings to a total of $2,000. I would > get to a supervisor or try on line to get this explained . No one ever > suggested that Elie would get less than the max allowed. > > Bob also transfers funds every month for insurance payment (our state does > not supply anything but extraction to adults, premium for his share of > tricare, out to eat - weekly expense needed as he " works " . He makes about > $2/wk, and spends $10-15 on eatingout and movies, occasional clothes - where > is there any left for saving anyway???? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2009 Report Share Posted January 31, 2009 Hello,I went through the SSI process with my son. DS does qualify a child for SSI; however, it is needs based also. We were not eligible based on the needs; but when my son reaches 18 it will be a different story. The process was not bad, just had to make an appointment because the telephone appointments were always either canceled, or they never called. So I do suggest if you go through the process actually go to the SSI building in your area. Hope this helps. To: Multiples-DS From: ljoconnell1@...Date: Sat, 31 Jan 2009 10:10:49 +0000Subject: SSI Hello, I'm contemplating the whole Social Security issue and wondered if there were others in the group who could provide information. Does a diagnosis of Ds make a child "eligible" for SSI benefits? Is this a need based service? I've heard lots of stories but never went through the application process. Just trying to get some input from families who've been there - don't know if I'd be wasting my time or not. I'd love to hear from anyone with experience ..... Thanks! Mom to Seven including 4 year old twins Molly (Ds) and Windows Live™: E-mail. Chat. Share. Get more ways to connect. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2009 Report Share Posted January 31, 2009 Both of our boys currently have SSI, until they are 18, it is based on the parents income. One of the good parts to the SSI question is that it does allow the boys to have Medicaid which helped early on when they were so ill and with their medications... As Our income has gone up theirs goes down. Also since we are in Maine they qualify for Mainecare and a small, very small supplemental check. It is worth looking at if for no other reason that you know where you stand and will "know" the system when your child is of age.... Sandy Weber , 207... mom to Way too Many! Including Triplets! Sandy Weber , 207... mom to Way too Many! Including Triplets! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2009 Report Share Posted January 31, 2009 Hi , We were on SSI for our son Zack about7 yrs ago, it was a long process to fill out but then once we started receiving the checks we were grateful to have gone through the process! Then we purchased a piece of Commercial realestate to start our business and I never filed that pruchase with them, not really hiding anything it just never dawned on me, we were so busy, you better believe the SS department found out a short time later and informed me we owed back $3500, I am still paying them $20 a month, so just be careful and keep good records, you don't want the same thing to happen to you Irene SSI Hello, I'm contemplating the whole Social Security issue and wondered if there were others in the group who could provide information. Does a diagnosis of Ds make a child "eligible" for SSI benefits? Is this a need based service? I've heard lots of stories but never went through the application process. Just trying to get some input from families who've been there - don't know if I'd be wasting my time or not. I'd love to hear from anyone with experience ..... Thanks! Mom to Seven including 4 year old twins Molly (Ds) and __________ Information from ESET NOD32 Antivirus, version of virus signature database 3815 (20090131) __________The message was checked by ESET NOD32 Antivirus.http://www.eset.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2009 Report Share Posted January 31, 2009 Davey doesn't qualify until he turns 18, then he will get benefits.Hi ,We were on SSI for our son Zack about7 yrs ago, it was a long process to fillout but then once we started receiving the checks we were grateful to have gonethrough the process! Then we purchased a piece of Commercial realestate tostart our business and I never filed that pruchase with them, not really hiding anythingit just never dawned on me, we were so busy, you better believe the SS departmentfound out a short time later and informed me we owed back $3500, I am still paying them$20 a month, so just be careful and keep good records, you don't want the same thing tohappen to you Irene SSIHello,I'm contemplating the whole Social Security issue and wondered if there were others in the group who could provide information.Does a diagnosis of Ds make a child "eligible" for SSI benefits? Is this a need based service? I've heard lots of stories but never went through the application process. Just trying to get some input from families who've been there - don't know if I'd be wasting my time or not.I'd love to hear from anyone with experience .....Thanks!Mom to Seven including 4 year old twins Molly (Ds) and __________ Information from ESET NOD32 Antivirus, version of virus signature database 3815 (20090131) __________The message was checked by ESET NOD32 Antivirus.http://www.eset.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2009 Report Share Posted January 31, 2009 & Caden qualified due to their birth weight. I filed right after I had them & am so glad I did. All of the medical expenses/copays that our insurance didn't cover, medicaid picked up. We lost SSI when they were about 4 months old due to our income. It was worth it to me for just that short time period. ~ mom to (DS) & Caden 2 yr twins Re: SSI Davey doesn't qualify until he turns 18, then he will get benefits. Hi , We were on SSI for our son Zack about7 yrs ago, it was a long process to fill out but then once we started receiving the checks we were grateful to have gone through the process! Then we purchased a piece of Commercial realestate to start our business and I never filed that pruchase with them, not really hiding anything it just never dawned on me, we were so busy, you better believe the SS department found out a short time later and informed me we owed back $3500, I am still paying them $20 a month, so just be careful and keep good records, you don't want the same thing to happen to you Irene SSI Hello, I'm contemplating the whole Social Security issue and wondered if there were others in the group who could provide information. Does a diagnosis of Ds make a child "eligible" for SSI benefits? Is this a need based service? I've heard lots of stories but never went through the application process. Just trying to get some input from families who've been there - don't know if I'd be wasting my time or not. I'd love to hear from anyone with experience ..... Thanks! Mom to Seven including 4 year old twins Molly (Ds) and __________ Information from ESET NOD32 Antivirus, version of virus signature database 3815 (20090131) __________ The message was checked by ESET NOD32 Antivirus. http://www.eset.com Get instant access to the latest most popular FREE games while you browse with the Games Toolbar - Download Now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2009 Report Share Posted January 31, 2009 I am very interested in this topic as I am applying right now. I am going through the application process online and every time I think it must be finished, they ask about 100 more questions. It's crazy - they want every detail of almost every test and doctor's appointment your child has ever had. I had actually gone to the SS office one before with the initial paperwork and they told us we wouldn't qualify because we owned 2 vehicles worth over $2,000. I am currently going through a divorce, so I am trying again. I'm very interested to see what the results have been for others. What are you supposed to do - drive around in an old beater car and hope it doesn't break down? This makes no sense to me. B., mom to , 5 and and (DS, hydrocephalus), 3-1/2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2009 Report Share Posted January 31, 2009 Any time under 18 for a child to receive ssi, it will depend on the income of the parents. If you start receiving ssi for your child and your income is over the amount that qualifies your child it will be cut off but make sure you keep records and even after you report to ss that you are making too much money it will take awhile for them to have you pay them back, but no fear it will happen and if you don't pay them back they will just wait until your son or daughter turns 18 and then will take it out of his ssi check until they are paid back. After a son or daughter turns 18 they are considered an adult and will qualify without the parents income counting. This happened to a friend of mine and in her case it took a long time for the money to be paid back by them taking it out of her sons ssi check each month. In our case we were only able to receive ssi for a few months when my husbands job was down to 4 days a week but once he was back to 5 days a week we were cut off and did have to pay back some money but I had saved it so we would be able to get it paid back. That was when was only about 3 yrs. old. After that we never qualified until turned 18yrs. Another thing when turned 18 my husband and I had to get co-guardianship and co-conservatorship of in order to make his decisions since he depends on us for all his needs. We had to have a lawyer and a court hearing to have this done. People always seem to appear surprised when I tell them that and will say you mean you have to do that even though he is your own son. And I tell them yes because he is considered an adult and we wouldn't legally be allowed to make his decisions for him if we hadn't had it done. Judy & Bob parents to 29yrs. the joy of our lives who happens to have ds and multiple disabilities and To: Multiples-DS Sent: Saturday, January 31, 2009 1:25:45 PMSubject: Re: SSI Davey doesn't qualify until he turns 18, then he will get benefits. Hi , We were on SSI for our son Zack about7 yrs ago, it was a long process to fill out but then once we started receiving the checks we were grateful to have gone through the process! Then we purchased a piece of Commercial realestate to start our business and I never filed that pruchase with them, not really hiding anything it just never dawned on me, we were so busy, you better believe the SS department found out a short time later and informed me we owed back $3500, I am still paying them $20 a month, so just be careful and keep good records, you don't want the same thing to happen to you Irene SSI Hello, I'm contemplating the whole Social Security issue and wondered if there were others in the group who could provide information. Does a diagnosis of Ds make a child "eligible" for SSI benefits? Is this a need based service? I've heard lots of stories but never went through the application process. Just trying to get some input from families who've been there - don't know if I'd be wasting my time or not. I'd love to hear from anyone with experience ..... Thanks! Mom to Seven including 4 year old twins Molly (Ds) and __________ Information from ESET NOD32 Antivirus, version of virus signature database 3815 (20090131) __________The message was checked by ESET NOD32 Antivirus.http://www.eset. com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2009 Report Share Posted April 1, 2009 Here is the link about the $250.00 coming in May for people that receive SSI. Hope it works if not just go to the Social Security site. Judy 's Mom http://www.ssa.gov/pressoffice/pr/recovery-payments-pr.htm Quote Link to comment Share on other sites More sharing options...
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