supports

[Guest guest]

One thing that really gets me is the people fighting to prevent anyone

anywhere from getting an abortion for any reason. Now I know that is a can

of worms, but I open it in the spirit of if one does one thing, then another

needs to follow.

Thus, if people are being forced to give birth to children with devastating

health issues, than we are obligated to support the families who have these

children. Especially since our taxes go to a government who then budgets

funds not in the best intersst of people with disabilities.

Entitlements - interesting. I don't feel an entitlement to have the

government support me or mine. Just let me keep my money and I will decide

were it will go. I feel entitled to have what I earn to use for me and

mine. Since I must pay taxes to a governemnt who is so paternalistic it

makes decisions for me, then that same government needs to help support my

son's needs

I keep yelling at our politicians that there is a ripple effect to all that

they do, but I fear that they are not listening.

Sara - Choose to make lemonade, not complain about the lemons.

>

>Reply-To:

>To: < >

>Subject: Re: more interesting TV/supports

>Date: Tue, 20 Feb 2007 21:14:12 -0500

>

><<and sometimes even when you have the support there are no providers

>willing

>to drive out to rural areas so it's almost the same as not having support.

> >>

>

>And not necessarily just rural areas Carol. You can't get more urban than

>So Fla. Our first form of regular medwaiver for years required that we hire

>from agencies that paid $8 an hour to a PCA which is zippo down here. Plus

>we had $ in her account for behavioral assistants however there was no such

>thing as a certified behavioral assistant...anywhere. Nobody had been

>trained yet. And no offense to anyone please but we have never had a PCA or

>respite worker who spoke English as a first language...ever! and we're

>trying to concentrate on learning to communicate!

>

>The behavioral help allowed was strictly living skills...no ABA or VB

>period. We ended up spending our own money anyway to get any real

>trustworthy help and we quickly ran out of that. Now she's on CDC+ where

>the $ goes to us and we can hire who we want but it is such a frigging

>fight for them to get anything right with the paperwork or to get a helper

>paid correctly. I've had to front the $ plenty of times in order to keep

>our PCA fromhaving to leave. Trust me tho...I am soooooooo greatful for

>this. We couldn't have made it much longer without it.

>

>I'm sometimes so shocked by the seeming sense of entitlement I hear from

>Moms who simply expect there to be $ and help readily available. I remember

>one mom on another list giving me a bunch of doo doo becaue I must not be

>using my medwaiver $ correctly...WHAT medwaiver???? She had never heard of

>anyone NOT having medwaiver. Down here we've got people screaming because

>they've had to wait 4 years on a medwaiver waiting list. Well, I'm sorry

>but we waited 11 years. I consider it a huge blessing and a gift to get

>anything for . They're experimenting with our county now and putting

>all medicaid people on HMOs now which is a horror. So far developmentally

>delayed kids don't have to switch but it's coming.

>

> never wore a diaper that wasn't paid for by us...for 10 yrs.

>Sherry

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