Zeb/celiac

[Guest guest]

In a message dated 3/8/2007 12:14:49 A.M. Eastern Standard Time,

gldcst@... writes:

<<Zeb's blood tests did come back favorable for celiac. I am enjoying the

next three weeks before we see the GI doc and I have to completely revamp the

way we eat. I hate diet food and all that natural stuff. I am an old fashion

meat and potatoes cook. Nothing on this GF diet appeals to me. I visualize

myself sneaking out to a restaurant for some good bread and dessert. >>

Charlyne- I hear you!!! but this dang GI stuff is so rampant in Autism.

celiac or not I hope you see results that make it worthwhile for you; that's

the

only way we've managed to keep it up. Plus I tortured jamie with weird diets

before she was old enough to develop a taste for the bad stuff so while I'm

out there cooking her stuff- I'm eating a bag of potato chips LOL. hey...meat

and potatoes is totally GF (but you're right you gotta go sneak the bread).

Feel free to use me as a punching bag when you're freaking out about going GF.

Are they gonna do a scope first to test for celiac or are you just going by

the blood work? (I personally think the bloodwork is enough and we've been to

a few Gis who agree).

Sherry

Charlyne, I guess this is good news/bad news. When I found out we had to do

this diet - I lost it. I thought " what next " " isn't life already hard

enough " ? But, take it slow -- you'll find foods that work for you(and him).

We

have a health food store here that has a Celiac Day once a month. You can go

in and taste the foods so you know what's good and what not to waste your

money on. A lot of it taste like cardboard, and spits it out. But the

good news is is more focused and more engaging and his digestive

system is better.

I was also going to ask if you are doing the scope? I was told that is the

only way to really get accurate results. Good luck.

Patty

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[Guest guest]

> I was also going to ask if you are doing the scope? I was told

that is the only way to really get accurate results. Good luck.

> Patty

Charlyne,

I have been following this route for quite awhile in regards to the

GI issues, etc. that most of our kids undergo and just to rule out

anything this was told to me too.

In your case when your on this road of having your own business and

carrying all the non-food items that Zeb is not allowed and

craves/habit forming, I do hope you are able to handle this well and

who knows you might have to add some extra food items to your list to

sell because there are actually alot of Zebs out there with this

issue. I know I would be the first one in line. ; )

I wish I could freeze up the food I have been making so that Zeb

could taste it, so far its been pretty close to what we have been use

to as my family and I are all adapting to these changes.

Do not forget though, is allergic to eggs and milk so I had to

find ways to work around this too. I can not just go out and purchase

any GF products as some contain the prohibit food ingredients so I

have to make them out of scratch most of the time.

I am holding off to one of the recommendations for now which is the

Raw milk, due to another doc whom is receiving medical care

from he does not recommend this due to having immuno-

deficiency disorder which coming from a cow could cause other health

issues. Still open until I hear further info.

Today was the first time to actually observe with a smile

compared to him being in a trance for the past weeks and actually

vocalized " ok " . To us the supplements, vitmains, & special diet have

been a Godsend. Of course not 100% but a relief compare to the past.

To all who are reading this, here is something to consider, if your

child even yourself as I am noticing a difference is to make sure to

use some type of Probotics as we have had antibiotics, etc. into our

system this will decrease some of the health issues in the mean time,

not heal just some relief until under a medical doc figures out what

is going on. This is why it is very important to be under medical

care when wanting to apply any special diet as there are so many

underlying medical problems going on to detect and you do not want to

cause more harm.

Numerous of my other cyber friends have had some tremendous results

with Aquaflora or just mega doses of Dannon Activa (the green

package) vanilla flavor and would give 3-4 containers a day. Would

alternate days with the Dannon Immunity (yellow package drinkable

yogurt)strawberry flavor 2-3 per day..

So far for he has been using the Milk-free Acidophilus, what

incredible results of the missing piece for NOW. Special diet and

vit/supplements is not enough there has to be some cleansing too.

does not have Celiac, this has been ruled out on an annual

basis.

Wish everyone luck and hope everyone always find ways to work around

this.

Irma,18,DS/ASD