Re: Temple Grandin

March 6, 2007

<<For those of you have seen her speak -- do you think it would be worth the

hassle to hear her>>

I've only seen her on TV and read all her books but YES!!!!!! It's like getting

answers from our nonverbal kids....maybe not totally accurate for everyone but

very enlightening. I hope they let you ask questions.

Sherry

March 7, 2007

Thanks Sara,

I'm going to try to get down to see her. They won't let you call ahead or

reserve tickets -- you have to drive down and pick them up in person to save a

place. So that means two trips to Cornell.

But I would like to see her speak. So, I'm going to try.

Patty

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March 7, 2007

If you have never heard her on TV or seen her, I would vote yes. But if you

have seen her once, I believe that you can benefit from reading her books.

Her very behavior when speaking is impossible to convey if you have never

seen her.\

MHO, of course.

Sara - Choose to make lemonade, not complain about the lemons.

>From: hamburgpatti@...

>Reply-To:

>To:

>Subject: Temple Grandin

>Date: Tue, 6 Mar 2007 17:21:50 EST

>

>Hi everybody. Temple Grandin is going to be speaking at Cornell U. next

>week, which is about an hour from where I live. It means really juggling

>things

>around and getting coverage for , which would include dinner and

>going to bed time, for me to get down there to see her.

>For those of you have seen her speak -- do you think it would be worth the

>hassle to hear her.

>Patty

>

> ************************************** AOL now offers free

>email to everyone. Find out more about what's free from AOL at

>http://www.aol.com.

>

March 7, 2007

<<Her very behavior when speaking is impossible to convey if you have never

seen her.\>>

Awwww go ahead and try Sara he he.

Sherry

March 7, 2007

If you go on her website there is a link to her interview on the View, although

I could not get it to work. If you go on You Tube and do a search for her name,

there are a couple of long documentaries on her. One is her giving a lecture

about animals and the other is more a documentary of her life and autism and how

she understands animals. Interesting stuff and maybe this would be helpful to

watch, and then get her book (maybe the library has it). She was recently in

Albany sponsored by the local autism group, I believe.

I believe there is a large autism group in Albany and one in Schenectady. We

went to a movie night in Rotterdam sponsored by the Schenectady group and it was

fun. The kids bring their sleeping bags and pillows and they have a big screen

and some snacks. It is nice instead of trying to sit still through a movie at

the theater and everyone there understands behavior issues and it is very

nonjudgemental. Parents get to chat while the kids are doing their thing. We are

going to try to go to more. There are lots of other family and individual

support meetings offered by these groups as well.

Also, Aim High and the Down Syndrome Resource Center are helpful resources.

The Beyond Your Wildest Dreams conference is coming up on the 24th and it's

usually excellent. Burke is going to be there. He came a couple of years

ago and his concert was so much fun!

We just had a great, great and Noble event in Saratoga that included a

storytime by Bergeron-Desai and a solo performance by Sujeet. We had an

adult panel where they told about what they were doing in their lives. We had

arts and crafts, information for awareness, and a large powerpoint projector

photo montage. We also had an essay writing and reading. It was fantastic and

there was excellent turnout.

I know that sometimes we feel not quite fully understood by either group

because of the dual diagnoses, but I think each group is very helpful in their

own ways and both are very accepting, understanding, and nonjudgemental. I know

that some people, especially in Aim High, tend to preach inclusion to the point

that it is annoying/offensive to those who feel that inclusion is not the best

option for their child, but they are coming from a place of not having inclusion

available as an option not so long ago and parents who want inclusion having to

fight hard for it now, but they are for the most part now consciously making an

effort to talk about inclusion as a choice rather than it being BEST for

everyone. I find that the relationships I have with other families in both

groups are very special and supportive. There are quite a few people in Aim

High, as well, who have been dual diagnosed or are going through the process and

definitely they all understand behavior issues

and language issues and social issues to a great extent even if they are not

dual diagnosed. If you would like information on participating in any of these

groups, please let me know.

I know this is way more information than you asked for, but I just wanted to

offer what additional support I could.

Izzo

March 7, 2007

I vote yes too, she is an incredible person whom I have had the

pleasure of meeting in person 6 years ago and still not tired of

hearing her or reading any books or contributions of her information to

several authors.

Thanks to her for opening the door for me to understand on the toilet

training days when my son was going through this and understand when

the need of some form of sensory input.

Enjoy, if you manage to work around your schedule. Well worth it!

But then this is my opinion especially when I could relate to what she

was saying.

Irma,18,DS/ASD

March 8, 2007

In a message dated 3/8/2007 2:16:53 P.M. Eastern Standard Time,

pastmidvale@... writes:

Let me know what you learn!! I think she is a fantastic resource for us -

as she means to be.

I don't know Sara -- you said mean things about her! I'm totally kidding --

I appreciate your advice and of course I'll let you know IF I go.

OK, part of my problem is.. and this is totally unrelated but it is because

you guys know what our lives involve.

I recently went on match.com to attempt to try dating again. I've been on

my own now (widowed) for 5 and 1/2 years and I'm just really lonely. OK,

for most people no problem, but for me to try and date without an ex to take

the kids every other weekend and Tues. is overwhelming. Who in their right

mind would want to take me and my crew on??? I'm afraid to tell them about

. I literally have 64 guys who have contacted me so far -- keep in mind

most of them are not anything I would even consider. But, there are a few I

like and have dates with, and I struggle with should I tell them up front?

Should I meet them and tell them on the first date? Should I wait it out and

see how things progress? I'm afraid of getting to like someone and then when

they find out they never call again.

But, here is where Temple comes into play. I had lunch with a man from

Cornell last week and he wants to see me again. She is speaking at Cornell,

which is pretty ironic. So, do I tell him I'm coming down for a lecture, " Oh,

and by the way my son is autistic " ? Or do I just go to town and not even let

him know I'm there. I liked him, but not anything that I think would ever go

anywhere.

GIRLS, be thankful for your husbands (DH's) --dating at this age with a

child with special needs is awful.

Patty --(if anyone followed any of that - thank you)

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March 8, 2007

OK - I feel she is wooden - almost scripted and mechanical. Her body

movement is a little stiff - not like a person with a stroke is stiff, but

more as if it is an effort to move. Her voice lacks inflection.

And her dress is just enough off to look eccentric.

Anyone else want to chime in??/

Sara - Choose to make lemonade, not complain about the lemons.

>

>Reply-To:

>To: < >

>Subject: Re: Temple Grandin

>Date: Wed, 7 Mar 2007 19:36:16 -0500

>

><<Her very behavior when speaking is impossible to convey if you have never

>seen her.\>>

>

>Awwww go ahead and try Sara he he.

>Sherry

>

March 8, 2007

Let me know what you learn!! I think she is a fantastic resource for us -

as she means to be.

Sara - Choose to make lemonade, not complain about the lemons.

>From: hamburgpatti@...

>Reply-To:

>To:

>Subject: Re: Temple Grandin

>Date: Wed, 7 Mar 2007 22:04:26 EST

>

>Thanks Sara,

>I'm going to try to get down to see her. They won't let you call ahead or

>reserve tickets -- you have to drive down and pick them up in person to

>save a

>place. So that means two trips to Cornell.

>But I would like to see her speak. So, I'm going to try.

>Patty

> ************************************** AOL now offers free

>email to everyone. Find out more about what's free from AOL at

>http://www.aol.com.

>

March 8, 2007

<<And her dress is just enough off to look eccentric.>>

Oh Sara, what's wrong with a 50 year old cowboy? LOL just kidding. I was teasing

you because I know exactly what you mean. I remember alot of folks talking about

temple grandin being totally recovered from Autism years ago and then she

appeared on TV and it was pretty obvious...the autism's still there.

Nevertheless I love what she has to say, whether on TV, or in her books, Never

had the chance to see her in person.

Sherry

March 8, 2007

Hi Patty,

If you like the guy just tell him your going to the conference and meet with

him, regardless if you think it's not going anywhere it's companionship and will

fill that void. Glad liked swimming.

Charlyne

Mom to Zeb 14 DS/OCD/ASD?

hamburgpatti@... wrote: