/

[Guest guest]

Hi, Everyone........about 's open sore. You said it healed and

then reopened. Did anyone mention 'granulation tissue' to you? The reason I

am asking is because Gareth has had 8 or 9 surgeries for those pilonidal

cysts on his butt. Twice they sent him home with 'marsupial wounds'....open,

packed wounds that had to heal from the inside out. They said they had to do

it

this way because previous surgeries had left granulation tissue that wasn't

healthy. They literally had to go in and scrape away old the granulation

tissue and let it heal from the inside out. Once they sent him home with a

wound the size of a golf ball and the second time, it was all the way to the

white fascia of his tailbone. Very gross!!! But, the sores never came back in

that area. Just curious as to whether the original one is surgically cleaned

if it would heal better.

....that is scary hearing about Adam and his poop issues. That is

one thing I have never had a problem with since Gareth was out of diapers by

31/2 .....he never lost that skill because of the autism. I can't imagine

having a child in so much pain just to go poop.

Take care, Everyone.

Margaret

[Guest guest]

Margaret, No they had not. But I mentioned cutting this open and

cleaning it out to the wound care specialist and he said " you will

have a bigger sore and it will take just as long to heal. phy

doc said they may have to clean it out and this is why I mentioned

this to him. I am at a loss and tired of dealing with this.Cyndi B

>

> Hi, Everyone........about 's open sore. You said it

healed and

> then reopened. Did anyone mention 'granulation tissue' to you?

The reason I

> am asking is because Gareth has had 8 or 9 surgeries for those

pilonidal

> cysts on his butt. Twice they sent him home with 'marsupial

wounds'....open,

> packed wounds that had to heal from the inside out. They said

they had to do it

> this way because previous surgeries had left granulation tissue

that wasn't

> healthy. They literally had to go in and scrape away old the

granulation

> tissue and let it heal from the inside out. Once they sent him

home with a

> wound the size of a golf ball and the second time, it was all the

way to the

> white fascia of his tailbone. Very gross!!! But, the sores

never came back in

> that area. Just curious as to whether the original one is

surgically cleaned

> if it would heal better.

>

> ....that is scary hearing about Adam and his poop

issues. That is

> one thing I have never had a problem with since Gareth was out of

diapers by

> 31/2 .....he never lost that skill because of the autism. I

can't imagine

> having a child in so much pain just to go poop.

>

> Take care, Everyone.

> Margaret

>

>

>

[Guest guest]

Margaret - my advice to you is to try to get all the things you want

done before the surgery because for about a month you cant do anything

at all! and you will have pain afterwards, i woulve rather had ten

babies than to feel the pain this surgery brought. but it does get

better. I just made sure to get all the house stuff done before my

surgery, any repairs, cleaning, vacations if you can. thats what we

did, i was fortunate enough to have my husband home for 4 weeks. he

actually went back today and i just have to feed haylee on the floor

which isnt so bad but im still stuck in this house because i cannot put

her in the carseat.

mfroof@... wrote:

>

> <<I had surgery one month ago for Scoliosis! >>

>

> Hi, Everyone......I just about fell off the chair reading

> this!!!

> Wow....you gained two whole inches!!! Where did you have your surgery

> done? I just met with Dr Gelb in Baltimore and plan to have my back

> done next

> year.....after we get moved into our new house. I, too, was dx'd at

> age 16 and

> have a terrible S curve that is slowing taking away inches form my height

> and keeps me in chronic pain. I was told I couldn't left anything

> heavier than

> a gallon of milk for 6 months....which is the ONLY reason I am waiting

> till

> next year. I would just bend down and pick up some heavy box loaded with

> household stuff and not give it a second though. I am REALLY going to

> have a

> hard time with the 'no lifting' part.....I am sooooooooo use to doing

> everything

> myself. .....good luck with Liam and

> his brace. Maybe a few yrs down the road, they will have better

> surgery/therapies for scoliosis. When I was 16, they wanted to do

> surgery and I would have

> been in a cast for a year!!! No thank you!!! Now at age 52, they don't

> even put you in a cast or brace afterwards!!!

> Take care, Everyone.

> Margaret

>

>

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