Guest guest Posted February 5, 2007 Report Share Posted February 5, 2007 This is a two part post, the second is more important, please read and think through. 1) Part of me wishes i could at least regain some sense that i can at least still perform. i am wondering if anyone has had any experience with with cialis or viagra? even if this only helped with erections, prolonging them, making them harder? -thats what I'm looking for. Has anyone read about this, could this help us perform beter. i am thinking about trying one of these so that if a sexual situation presents itself i am a little more confident and ready. Does this seem like a good idea? Would it make myself or any of us males feel a little more confident if we could at least experience stronger more enduring erections? Could these types of drugs provide this extra boost in erection quality, and help us perform better? 2) a. I am very interested in questions such as: how many people have this condition and still have a boyfreind/girlfreind? what is it like to be in a relationship with this problem? how did you tell the person you were having this problem?.....or, How many people are single with this problem? Are you lonely? To what extent? Do you feel one day you will be able to attract a life partner? Is this still something you want? How does being able to tell somebody about this problem affect you from even beginning to approach someone? How many peolpe feel this problem has greatly damaged there life and to what extent? and what could be done about this that would bring a sense of justice, understanding, acceptance, healing and meaning? 2) b. People of SSRIsex, I have read many stories,qestions,confessions and explorations on this site and I must say we are in a huge and terrible mess.This whole situation, I am starting to really realize, is filled to the brim with controversey and rife with all kinds of implications as well as complications. In essence, all of us began seeking some kind of help, so we went to a psychiatrist who we were told had real solutions to our problems, but instead what we were given was a whole new set of problems. None of us have been fully healed by any drug but all of us with this problem have been hurt to our core by an establishment that won't tell us the truth, and keeps feeding us pills and lies, pills and lies. Until there is legitate research about this problem of PSSD, until there is solid recognition and some acceptance of accountability on behalf of pharmacuetical drug companies, physicians and psychiatrists who sell these drugs, and then don't own up to the consequences and destruction they cause in peoples lives, then all of us, all the people on this site, all the people who know about this problem including OUR FAMILY MEMBERS, OUR FREINDS, all of us have another problem, the responsibilty of bringing this PSSD into the public discourse and medical discourse. We must all realize that as we are silenced about PSSD, we are being oppressed, the more we are denied recognition the more we are whipped into submission and into accepting that no-one will bare any responsibilty and noone will consider warning patients that PSSD is a possible side effect. We are being wounded on so many different levels and the ones who are wounding us are turning there backs to us faster than Bush puts books back on the shelf, and when are family and freinds tell us to just " live with it " and " move on " they are silencing this problem of PSSD too, by being compliant and not speaking out, they are helping contribute to the very denial of the existence of this deeply troubling and HUGELY IMPORTANT ISSUE. This issue is so important because these drugs are being prescribed to our children! and there isn't even a warning that these drugs may cause long term sexual side effects so that young people can make up there mind weather or not they want to risk there libido. And even though these permanant side effects are rare does't mean people should not be informed about them, most side effects are listed as rare, the important thing is to be HONEST. All of us are having this common problem, we share the same let down and smashed dreams. We at least owe it to the next generation of drug users to warn them of these possible outcomes and about taking the drugs so that if they do take them out of desperation from depression, OCD, bi-polar or whatever, then at least they can't say they were never warned- because none of us were warned about this problem! Lets all combine our efforts and do something to get this issue further into the public eye. As for myself, i want to write a book about this as well as other experiences i've had with psychiatric drugs and the damage they've caused me, even with short term use and one drug at a time. I also want to write a detailed well informed article that could be sent out to anyone who the issue of PSSD would be of concern to. I even have thought about doing some kind of a short documentary that focuses on PSSD and emotional damage from psych drugs, emphasizing real people and real experiences-its plausable too, I have a freind who is into film and could do a professional job with the filming and editing, all we would need to do is go and talk to people with these problems and then get a few experts to admit the problem exists and speak about it, perhaps even Breggin himself. It would take real bravery to admit to this problem on camera but all we would need is a few willing participants and i think it would show a lot of balls to confess and talk about these problems infont of a camera and at least then you've got nothing to hide, it might even be liberating somewhat. If needed we could blurr faces, change names ect... we could put some of it on youtube. Even more, what are the moral and ethical issues involved here? I read stories on this site and I find myself marveling almost at the deep level of suffering caused by this problem. I read about so many people striving so hard to find answers and safe remedies and they're doing all of that research on there own time and on there own budget. I read about people who are so passionate about this issue they are wanting to turn it into a part of there lifes work, they are pouring themselves into it trying to finding help, often with so so resullts. Time and time again i see expressed serious outrage and anger to where people can hardly contain themselves. I also see serious feelings of loss and regret, almost as if someone or something vitally important to them had died, as if the sexuality they felt and lost was a person all of its own and to loose so much of that is to loose a vital peice of the soul, and i can feel that because thats exactly how i feel, and that is exactly why i don't want to see this happening to people who get onto an ssri when they don't need to, or get put on a dose thats to high for them, or when another therapy or supplement would of worked well and been safer, or they aren't even given the knowledge that PSSD is a possibility however small it may be. Maybe someone out there needs a little SSRI but maybe if they know about PSSD they decide to take a smaller dose and exercise and eat better, and that because they took the smaller dose they don't get the PSSD, or maybe a person is slightly depressed and wants to try an SSRI but then finds out about PSSD and decides not to get on it and that saves him because he was the exact type of person that contracts PSSD and maybe that person was a teenager with a whole life ahead of him? Maybe PT-141 will help us all get horny again and safely, until then lets treat our problems thoughtfuly and maturely. Lets use our skills to get our real stories, concerns and message to docs, physicans, psychiatrists, pharma companies, and possibly the FDA. I know it is going to be hard to do, its work, but its neccessary, for our children, and for ourselves...don't you think? With that said, would like to urge people to respond to this with what ever ideas it provoked, anything is acceptable. Also, try to come up with ideas for, as i said, getting this info more heard in our public, medical discourse and lit. What can we do to be heard??? If you want to e-mail me privately, aside from the group, with anything thats come up for you around PSSD, please don't hesitate, i am open and will respond to you when i can, i am busy so it may take time but i will make an effort to respond. My e-mail is devinn321@... To anyone who read this post thank you all so much, i love you all. Quote Link to comment Share on other sites More sharing options...
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