Re: Therapy ??

[Guest guest]

, I remember my house being crazy with therapists coming and going. I

think there was only one day of the week that I didn't schedule visits to

the house. It seems like your grandchildren should be eligible for quite a bit

more. I would check with your service coordinator. I would also look into

nursery schools if they are going to do that route. We have an incredible

pre-school here in Syracuse for children of all abilities, but you have to get

your name on a list, which can be very long.

When my was little and getting early intervention, my husband was

also getting in home therapy because of his brain tumors. They would literally

come in the front door and I would say PT to left and OT to the right.

was in one room and Pete was in the other. Oh, that was a crazy time!!

[Guest guest]

Hi ,

Seth had therapy 6 days a week for most of early intervention. Speech was 3

times a week, OT was 2 times a week, PT was 2 times a week and special

education teacher was 2 times a week. Made for a very busy house! Sure seems

like Matt and Will should receive MUCH more than they are now.

Gail :-)

a message dated 2/4/2007 10:10:04 A.M. Eastern Standard Time,

nana10_4@... writes:

I have a question. I have been reading all the different post about the

public schools and the way they do the different therapies. As most of the know

my grandbabies are only two. The question I have is how often did you all have

therapiest see your children when they were in Early Intervention? I don't

feel like they see Matt and Will enough. They only come out every two weeks

to see them for one hour each. I have talked to some of them and they tell me

they are just there to train the parents and caregivers to work with them

and I realize that it takes everyone working but I still think they should at

least come at least once a week. How did iy work for you all?

[Guest guest]

I have a question. I have been reading all the different post about the public

schools and the way they do the different therapies. As most of the know my

grandbabies are only two. The question I have is how often did you all have

therapiest see your children when they were in Early Intervention? I don't feel

like they see Matt and Will enough. They only come out every two weeks to see

them for one hour each. I have talked to some of them and they tell me they are

just there to train the parents and caregivers to work with them and I realize

that it takes everyone working but I still think they should at least come at

least once a week. How did iy work for you all?

---------------------------------

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[Guest guest]

My last baby received therapy weekly - but one week it was OT?PT and the

next was speech. I was expected to work on the training that I observed.

Hey, that is much better than what Elie got - I had to take him to a center

once every 6 weeks for OT/PT. He didn't get speech help until he was 3.

Sara - Choose to make lemonade, not complain about the lemons.

>

>Reply-To:

>To:

>Subject: Re: Therapy ??

>Date: Sun, 4 Feb 2007 07:03:25 -0800 (PST)

>

>I have a question. I have been reading all the different post about the

>public schools and the way they do the different therapies. As most of the

>know my grandbabies are only two. The question I have is how often did you

>all have therapiest see your children when they were in Early Intervention?

>I don't feel like they see Matt and Will enough. They only come out every

>two weeks to see them for one hour each. I have talked to some of them and

>they tell me they are just there to train the parents and caregivers to

>work with them and I realize that it takes everyone working but I still

>think they should at least come at least once a week. How did iy work for

>you all?

>

>

>

>

>

>

>---------------------------------

>Be a PS3 game guru.

>Get your game face on with the latest PS3 news and previews at Yahoo!

>Games.

>

>

[Guest guest]

Thanks for the advice. What I don't understand is their Coordinator comes every

Wednesday Morning, but the therapiest only come every two weeks. Strange ???

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[Guest guest]

Did Elie have any speech at all? My GB's say NOTHING at 29 months old.

---------------------------------

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[Guest guest]

That is what I am thinking. I don't know what the deal is. I mean I could

understand it if they talking some but they are saying NOTHING !!!!

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[Guest guest]

Hi ,

Zeb had speech and OT once a week. I followed through during the week with the

training that they gave me. The sped teacher came out 2x per wk until Zeb was

two. The early intervention offered preschool for 2 half days. Zeb received

therapies at the school and the sped teacher came to the house once a week until

he turned three. Zeb went to a private preschool that was so great I kept him

there until he was five. I never enrolled him in public school until

kindergarten.

Charlyne

Mom to Zeb 14 DS/OCD/ASD?

Chain wrote:

I have a question. I have been reading all the different post about

the public schools and the way they do the different therapies. As most of the

know my grandbabies are only two. The question I have is how often did you all

have therapiest see your children when they were in Early Intervention? I don't

feel like they see Matt and Will enough. They only come out every two weeks to

see them for one hour each. I have talked to some of them and they tell me they

are just there to train the parents and caregivers to work with them and I

realize that it takes everyone working but I still think they should at least

come at least once a week. How did iy work for you all?

---------------------------------

Be a PS3 game guru.

Get your game face on with the latest PS3 news and previews at Yahoo! Games.

[Guest guest]

Hi ,

My son, , initially received one hour a week of physical therapy and

developmental intervention for the first 8 months. After that, he received an

additional hour per week of speech therapy, then an hour a week of occupational

therapy starting at 1 yr old. When he turned 2 yrs., the physical therapy was

increased to 2 hours per week. Finally, he received 3 hours of ABA therapy per

week starting at 2.5 years ( in addition to everything else). My husband and I

also enrolled in a private center-based early intervention program when he

was 18 months old for 2 mornings (two hours per session)per week. We paid for

this tuition ourselves.

We were fortunate to have a reliable caseworker who worked with us, but it

definitely took time, patience, and persistance to get what we felt

needed. You know, it's the same old story when dealing with the state: they're

overworked and overloaded with cases. We found it especially frustrating when it

came to the speech component (which is so essential for all of our children)

because there is such a shortage of these therapists to begin with. We waited a

while and the state speech therapist that was assigned to us was not that great

, and she was often sick and had to cancel sessions without makeups. Thank

goodness for the private program which is terrific ( is actually attending

their full-time preschool program there now; it goes up to age 9).

There was a also a family-link advocate who we were able to complain to when

challenges occurred. She was able to help us resolve issues many times.

I think your instincts are probably correct regarding your grandbabies needing

more therapy- the earlier on they receive what they need, the better the

outcome. I hope that the state caseworker will work with you in this regard. You

will be in my prayers for the best outcome.

Sincerely,

Mom to , 3 years old

DS/PDD-NOS

To: @...: nana10_4@...: Sun, 4 Feb 2007

07:03:25 -0800Subject: Re: Therapy ??

I have a question. I have been reading all the different post about the public

schools and the way they do the different therapies. As most of the know my

grandbabies are only two. The question I have is how often did you all have

therapiest see your children when they were in Early Intervention? I don't feel

like they see Matt and Will enough. They only come out every two weeks to see

them for one hour each. I have talked to some of them and they tell me they are

just there to train the parents and caregivers to work with them and I realize

that it takes everyone working but I still think they should at least come at

least once a week. How did iy work for you

all?---------------------------------Be a PS3 game guru.Get your game face

on with the latest PS3 news and previews at Yahoo! Games.[Non-text portions of

this message have been removed]

[Guest guest]

No speech therapy - we worked on mouth formation, chewing, swallowing, mouth

closure. this was all done by the OT.

Have to have good musculature to speak.

Sara - Choose to make lemonade, not complain about the lemons.

>

>Reply-To:

>To:

>Subject: Re: Therapy ??

>Date: Sun, 4 Feb 2007 12:18:50 -0800 (PST)

>

>Did Elie have any speech at all? My GB's say NOTHING at 29 months old.

>

>

>

>

>

>

>---------------------------------

>Cheap Talk? Check out Yahoo! Messenger's low PC-to-Phone call rates.

>

>

[Guest guest]

Janie first got involved in PT by referral from her pediatrician at 1 month

of age. It was once weekly at the Childrens Therapy Unit (CTU) at the

hospital. After a few months we also had a therapist who came to the house

weekly for an hour to reinforce what the PT did and work on some

interaction. I hated her coming to the house because like so many others

have said, when you are overwhelmed by caring for you special kid your house

gets kind of grungy. Janie had reflux and it was next to impossible to keep

the carpet clean even with spot cleaning.

Anyway, we decided to switch to a birth to 3 classroom setting at 2 years

still at CTU. She got into the school system's special ed preschool for

ages 3 - 4. During that time a speech teacher came into the classroom weekly

and we added speech and OT to her CTU schedule. PT was stopped. Janie got to

a plateau and misbehaved badly at her CTU programs, so at 4-1/2 we stopped

(for the safety of the therapists). She really did not need PT any more.

At 5 when she started K she had speech at school. There were only about 12

kids in the class with the teacher and 3-4 aides. Janie mostly was kept in

her kid cart to keep her under control unless she had a 1 on 1 aide. The

teaching was done at a level appropriate for her and she made a lot of

progress, although behavior is still a big issue.

She is now in 2nd grade at a different school. Still about a dozen kids. She

has speech and the school counselor comes into the classroom weekly for

social skills. Until recently the teaching was all done way above her level

in order to accomodate more advanced students. She is in a spec ed classroom

with music and PE with typical peers. Now she gets some work that is more

appropriate for her and is getting interested because she kind of gets that

letters make words. She has great difficulty with using a pencil so when we

have our IEP meeting later this month we will be adding OT, specifically for

writing/drawing. I also got a referral for OT and social skills group at CTU

so hope to start soon. Also, I am working on getting involved with the UW

Autism Program. For more support services.

I have found that first you have to read the posts here in order to learn

what is important to others that relates to your special little

(grand)person(s). Then you use every means you can think of to get the

services you need. If the school doesn't have what you need, get a referral

from your kids' medical providers. I don't know what state you are in so

there may be different programs there. Our birth to 3 program lost funding a

couple years ago so I don't know if we still have one or where it is if we

do.

Janie really needs behavior therapy or training and I have not found ABA in

our area. We live in Washington State between Seattle and Tacoma. If anyone

knows of a ABA therapist, please let me know! She does have a psychiatrist

and psychologist working with me and the school to find some solutions to

her aggression.

Sorry this is so long. I tend to get long-winded. I hope this information

will at least give you some ideas. Not knowing the income level of the

parents of your grandsons, some programs operate on a sliding fee scale or

accept Medicaid.

P. - Mom of Janie (7) DS/PDD-NOS/ADHD with sensory issues, aggression,

and some compulsivity, Katelyn (11) ADHD/depression, and 2 adult daughters

(39 & 36) & 5 grandkids (24 mos.-20 years)