Re: not getting a dx..cause ??

December 11, 2006

I sometimes wonder if the " Trauma " of their illnesses and all involved with it

doesn't have an impact on their diagnosis of " autism spectrum " . My son Andy

seemed to be developing normally for a child with Down syndrome until he had his

heart surgery which went terribly around 15 months.He went through a terrible

ordeal with it..needing to be " revived " several times during and after surgery,

getting a staph aurous infection and being cut open without any anesthesia 7

days after his surgery. And healing from the inside out as he was never stitched

up again. His behavior completely changed after surgery. From his perspective it

must have seemed like child abuse...and I was helping. I regret how I handled it

all ..now 23 years ago. I wanted to be with him at all times and now I wonder

what he through about that. Like why are you letting them do this to me mommy?

He was and is still a very loving fellow, but with all of the markers of autism.

Little speech.(much of it echolalia) Takes our hand,and brings us to what he

wants. Lines up his " toys " (things) Very upset if a change in routine. Of course

others would say that autism may just be starting to show at around 14

months...but I always associate it with his surgery.

Brigid

not getting a dx

> >

> > So why is it so many " professionals " do not want to recognize or

admit

> > there may be more than just DS? It seems to me that that attitude is

> > not very professional! At our IEP, they just keep saying how

Angie is

> > just very low functioning and not testable and it seems lots of

> > parents hear this. Isn't autism more than just social " delays " ? I

> > thought autism included behaviors like spinning, flicking, dropping

> > etc. And most parents with a DS child report this these autistic

type

> > of behaviors, so why are these DS kids not getting a dual dx? I am

> > confused I guess. I know it is more than just a label, but, in some

> > cases, you need that label, if you know what I mean. We're going to

> > see a neuro in a couple weeks. What kind of data can I bring to

him on

> > the dual dx? I hear he specializes in DS, so, perhands he'd be aware

> > of the dual dx?

> >

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