Margaret

[Guest guest]

Margaret, don’t you just hate the waiting? I feel so sad you are going

through all of this with Gareth. Hope he is comfortable though.

Prayers continue and will watch for your updates. Louise

Liz/Charlyne

* Hi, Everyone....-Liz...glad to hear Tori made it through the sleep

studies.

Did you take a camera to get a photo of all them wires?!?!?

JFYI....Gareth

had his T & A years before his sleep study and still had the apnea really

bad.

Charlyne....-.thank you for the cross and papers.

As for Gareth......-.well....-we're in standby mode, I guess. He saw the

ped

rheuma doc today and I was surprised by the visit. A few weeks ago, he

indicated in an e-mail that he felt the ped gastro doc was way off base

with the

Scleroderma possibility. Now.......he'-s leaning towards it, too,

because

that's the only blood work that is coming back positive. I am

sooooooooooooooooo

bummed!!! He wants him to have a whole series of blood work done in 6

weeks

and report back to him the end of Feb. If the results are still

positive,

then that is the path we will follow/treatment for. He did say, in his

10

years of practicing that he hasn't seen one case of sine Scleroderma in

a

teenager....-..something to Gareth's good. He still needs the CT scan of

the

abdomen to find out what the calcifications are that showed up on his

abdominal

X-ray.....nothing to do with the high sed rate or the esophagus!!! He

also

needs the MRA of the heart.....something they have to clear with the

radiologist

because he's got the 5 pins in his hip. That will hopefully show what is

bulging in his esophagus. He did say that he felt the esophageal

dismotility

was permanent. Thank you so very much for all your prayers.....-....I

really do

appreciate them. Take care,

Everyone.

Margaret

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