Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 Hi, Everyone....Liz...glad to hear Tori made it through the sleep studies. Did you take a camera to get a photo of all them wires?!?!? JFYI....Gareth had his T & A years before his sleep study and still had the apnea really bad. Charlyne.....thank you for the cross and papers. As for Gareth.......well....we're in standby mode, I guess. He saw the ped rheuma doc today and I was surprised by the visit. A few weeks ago, he indicated in an e-mail that he felt the ped gastro doc was way off base with the Scleroderma possibility. Now.......he's leaning towards it, too, because that's the only blood work that is coming back positive. I am sooooooooooooooooo bummed!!! He wants him to have a whole series of blood work done in 6 weeks and report back to him the end of Feb. If the results are still positive, then that is the path we will follow/treatment for. He did say, in his 10 years of practicing that he hasn't seen one case of sine Scleroderma in a teenager......something to Gareth's good. He still needs the CT scan of the abdomen to find out what the calcifications are that showed up on his abdominal X-ray.....nothing to do with the high sed rate or the esophagus!!! He also needs the MRA of the heart.....something they have to clear with the radiologist because he's got the 5 pins in his hip. That will hopefully show what is bulging in his esophagus. He did say that he felt the esophageal dismotility was permanent. Thank you so very much for all your prayers.........I really do appreciate them. Take care, Everyone. Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 Man, Margaret! We were all hoping you guys could start off 2007 with some clarity. Well, we have everything crossed for you and Mr. G and pray 2007 will bring good health and knowledge of what the heck is going on. Liz & Family Liz/Charlyne Hi, Everyone....Liz...glad to hear Tori made it through the sleep studies. Did you take a camera to get a photo of all them wires?!?!? JFYI....Gareth had his T & A years before his sleep study and still had the apnea really bad. Charlyne.....thank you for the cross and papers. As for Gareth.......well....we're in standby mode, I guess. He saw the ped rheuma doc today and I was surprised by the visit. A few weeks ago, he indicated in an e-mail that he felt the ped gastro doc was way off base with the Scleroderma possibility. Now.......he's leaning towards it, too, because that's the only blood work that is coming back positive. I am sooooooooooooooooo bummed!!! He wants him to have a whole series of blood work done in 6 weeks and report back to him the end of Feb. If the results are still positive, then that is the path we will follow/treatment for. He did say, in his 10 years of practicing that he hasn't seen one case of sine Scleroderma in a teenager......something to Gareth's good. He still needs the CT scan of the abdomen to find out what the calcifications are that showed up on his abdominal X-ray.....nothing to do with the high sed rate or the esophagus!!! He also needs the MRA of the heart.....something they have to clear with the radiologist because he's got the 5 pins in his hip. That will hopefully show what is bulging in his esophagus. He did say that he felt the esophageal dismotility was permanent. Thank you so very much for all your prayers.........I really do appreciate them. Take care, Everyone. Margaret Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.