Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 In a message dated 12/28/2006 8:44:56 A.M. Eastern Standard Time, cmedrano@... writes: Anyone know or have a child with nervous tic/tic? My oldest has had tics of various kinds. As one seems to stop another begins. The latest is tilting his head from side to side as if he is streching/cracking his neck. he will also move his shoulders up and down as if stretching those muscles aslo. He has been to a neuro as he had a stroke when he was 11 months old and he has yearly visits. The last visit we did not see our regular doc but saw his partner. He seemed to completely analyze my son in the short time he spent. He put down that he thinks my son has possible OCD or mild tuerettes (sp??)or some other anxiety disorder. My son is a bit high strung at times and I always said I thought he had mild OCD tendencies but this guy wants m,e to consider all kinds of testing and possible shrink visits. I know this all stems from the fact that I homeschool and that was all he could focus on. He spent so much time on questioning my ability to do it, how my son is doing etc. I can't wait until I have my meeting with his regular neoro. I am so angry that his partner, after only talking to my son for all of 1/2 hour has him fitting into this box. Blessings, W in CT homeschooling mom to AJ (12), (8), ^l^, (just turned 5, Trisomy 18 mosaic aka syndrome) and Birgitta (age 3, adoption finalized 2/1/05 !!, Trisomy 21 aka Down's Syndrome, Fetal Alcohol Syndrome, Autism, SID ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 Hello - I'm new to this site and my son is 21 with DS and never been diagnosed with autism spectrum - but we have noticed many similarities over the years. At different times growing up, displayed tics. Mostly age 8 - 15. He has grown out of them as far as we can tell. Distracting him with physical activites seemed to help as I recall. Missy > > > In a message dated 12/28/2006 8:44:56 A.M. Eastern Standard Time, > cmedrano@... writes: > > Anyone know or have a child with nervous tic/tic? > > > > My oldest has had tics of various kinds. As one seems to stop another > begins. The latest is tilting his head from side to side as if he is > streching/cracking his neck. he will also move his shoulders up and down as if > stretching those muscles aslo. > He has been to a neuro as he had a stroke when he was 11 months old and he > has yearly visits. The last visit we did not see our regular doc but saw his > partner. He seemed to completely analyze my son in the short time he spent. > He put down that he thinks my son has possible OCD or mild tuerettes > (sp??)or some other anxiety disorder. > My son is a bit high strung at times and I always said I thought he had mild > OCD tendencies but this guy wants m,e to consider all kinds of testing and > possible shrink visits. I know this all stems from the fact that I homeschool > and that was all he could focus on. He spent so much time on questioning my > ability to do it, how my son is doing etc. > > I can't wait until I have my meeting with his regular neoro. I am so angry > that his partner, after only talking to my son for all of 1/2 hour has him > fitting into this box. > > Blessings, W > in CT > homeschooling mom to AJ (12), (8), ^l^, > (just turned 5, Trisomy 18 mosaic aka syndrome) and Birgitta (age 3, > adoption finalized 2/1/05 !!, Trisomy 21 aka Down's Syndrome, Fetal Alcohol > Syndrome, Autism, SID ) > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 Hey! My name is , I live in Georgia and have four sons. My third son, , has DS and Autism. I am also new to this group. We knew at 17 wks. gestation that our son would have Downs. I first suspected my son had Autism shortly after birth. He had this blank stare and his expression never changed. I couldn't get over the look. My other two sons never looked like that, and they always made those little baby faces. By the time was 3 - 4 months old, he would wave his hand back and forth in front of his face and stare at it. Then he would alternate inner-twining his fingers and watching them. This would go on all day if I let him. When he held a toy in his hand, he wouldn't shake it or chew on it appropriately either. He would wave it back and forth and watch it. From the time he started crawling at about 13 months, he started having Myoclonic seizures which lasted until 18 months and then mysteriously went away. Then, when started walking at 2 1/2 he would take a step with his left leg but swing his right leg around and hold his right hand open and keep it stiff. We couldn't figure this out. His therapist kept suggesting to me to see 's neurologist about this. I had already seen his pediatrician about it who so coldly said " Well, Down's kids walk funny anyway. " Upon seeing the neurologist a few weeks later, we learned that has Cerebal Palsy on his right side. I thought the world had ended, because " What else could he have?! " Down's and seizures was bad enough, plus, I was already convinced that he had autism. Well, as got older, his play and behavior got worse. He could wipe out a room in under sixty seconds and destroy any kind of organization attempted on a toy shelf or play area at home, school, church, ... We dubbed him " Rowdy " and " Wild Man " . (Although, it was far from funny, but humor helps!) Finally, at age 8, after fighting the school system about his terrible behaviors, etc.; a new neurologist came to town. We paid her a visit, and after spending three hours playing with him, she said " Without a doubt, has Autism. " I was so relieved! I felt as if there was this huge weight lifted from me. I could hardly believe it, either. After all of those years of struggling and crying and thinking I was doing something wrong! So, today, at age 14 with another birthday five weeks away, is no longer terrible - I'm happy to say! He has Downs, Cerebal Palsy on his right side (he can walk just fine, but a little differently from us), and Autism. He has impulsive behaviors every now and then, and some things have to stay the same, or he can't handle it. He's obssessed with ' the Train' videos, books, toys, etc. He's obssessed with trains in general, 18-wheelers, heavy equipment machinery, lawn mowers, and most things with wheels. He loves childrens music, and he eats ketchup on everything and loves any food that is red. And finally, he has nervous tics! The whole reason for my response! He loves to swing and swings about 6 - 8 hours a day. The entire time he swings (or sometimes when he isn't swinging), he stiffens his arms and flexes his wrists and twitches. Then he makes this annoying noise that sounds like a moan (that drives everyone crazy!). We, of course, tell him to stop and he will momentarily, but then he starts it back up again. Also, when is excited, he'll kind of toe walk and bounce back and forth. He does this alot. He also stares at his hand and twitches, and that is usually accompanied by a laugh. He batts his eyes alot and makes them open really wide, which is also accompanied by a laugh. He does some other little things too, but I feel I've written enough for now. With all of this said (and I've left alot out), we love just the way he is. God has seen us through and knew exactly what He was doing when He gave to our family! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 Welcome, ! I am Liz, mom to Tori who will be 7 in Feb. We also knew Tori was going to be born with DS at 20 weeks. Liz Re: Nervous Tics Hey! My name is , I live in Georgia and have four sons. My third son, , has DS and Autism. I am also new to this group. We knew at 17 wks. gestation that our son would have Downs. I first suspected my son had Autism shortly after birth. He had this blank stare and his expression never changed. I couldn't get over the look. My other two sons never looked like that, and they always made those little baby faces. By the time was 3 - 4 months old, he would wave his hand back and forth in front of his face and stare at it. Then he would alternate inner-twining his fingers and watching them. This would go on all day if I let him. When he held a toy in his hand, he wouldn't shake it or chew on it appropriately either. He would wave it back and forth and watch it. From the time he started crawling at about 13 months, he started having Myoclonic seizures which lasted until 18 months and then mysteriously went away. Then, when started walking at 2 1/2 he would take a step with his left leg but swing his right leg around and hold his right hand open and keep it stiff. We couldn't figure this out.! His therapist kept suggesting to me to see 's neurologist about this. I had already seen his pediatrician about it who so coldly said " Well, Down's kids walk funny anyway. " Upon seeing the neurologist a few weeks later, we learned that has Cerebal Palsy on his right side. I thought the world had ended, because " What else could he have?! " Down's and seizures was bad enough, plus, I was already convinced that he had autism. Well, as got older, his play and behavior got worse. He could wipe out a room in under sixty seconds and destroy any kind of organization attempted on a toy shelf or play area at home, school, church, ... We dubbed him " Rowdy " and " Wild Man " . (Although, it was far from funny, but humor helps!) Finally, at age 8, after fighting the school system about his terrible behaviors, etc.; a new neurologist came to town. We paid her a visit, and after spending three hours playing with him, she said " Without a doubt, has Autism. " I was so relieved! I felt as if there was this huge weight lifted from me. I could hardly believe it, either. After all of those years of struggling and crying and thinking I was doing something wrong! So, today, at age 14 with another birthday five weeks away, is no longer terrible - I'm happy to say! He has Downs, Cerebal Palsy on his right side (he can walk just fine, but a little differently from us), and Autism. He has impulsive behaviors every now and then, and some things have to stay the same, or he can't handle it. He's obssessed with ' the Train' videos, books, toys, etc. He's obssessed with trains in general, 18-wheelers, heavy equipment machinery, lawn mowers, and most things with wheels. He loves childrens music, and he eats ketchup on everything and loves any food that is red. And finally, he has nervous tics! The whole reason for my response! He loves to swing and swings about 6 - 8 hours a day. The entire time he swings (or sometimes when he isn't swinging), he stiffens his arms and flexes his wrists and twitches. Then he makes this annoying noise that sounds like a moan (that drives everyone crazy!). We, of course, tell him to stop and he will mom! entarily, but then he starts it back up again. Also, when is excited, he'll kind of toe walk and bounce back and forth. He does this alot. He also stares at his hand and twitches, and that is usually accompanied by a laugh. He batts his eyes alot and makes them open really wide, which is also accompanied by a laugh. He does some other little things too, but I feel I've written enough for now. With all of this said (and I've left alot out), we love just the way he is. God has seen us through and knew exactly what He was doing when He gave to our family! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 HI , my name is also Cyndi and my son is 12 with Ds/autism. never had any tics until he went on Risperadal for his " bad " behaviors. was not autistic until 3 yrs of age and then he started doing stemming.Looking at his hand and playing with floppy toys over his head while starring for long periods of time.I thought at one point was having seizures because he would get real giddy and start laughing and falling around like a drunken stupor.But the Drs. ruled this was caused by consuming sweet tea. had to have heard surgery in 2003 and that was stressful.This year something bit him on the head and cause his head and face to swell up like the elaphant man and his eyes swelled shut.The Dr. said cellulitis or staph infection to the wound on his head caused this.Today we are still dealing with an open wound from the bite.With these kids life is never dull and it is always a challenge.I am glad your son is not doing great. You have a great personality and sound like a wonderful caring mom. Welcome to our group. Cyndi B > > Hey! My name is , I live in Georgia and have four sons. My third son, , has DS and Autism. I am also new to this group. > We knew at 17 wks. gestation that our son would have Downs. I first suspected my son had Autism shortly after birth. He had this blank stare and his expression never changed. I couldn't get over the look. My other two sons never looked like that, and they always made those little baby faces. By the time was 3 - 4 months old, he would wave his hand back and forth in front of his face and stare at it. Then he would alternate inner-twining his fingers and watching them. This would go on all day if I let him. When he held a toy in his hand, he wouldn't shake it or chew on it appropriately either. He would wave it back and forth and watch it. From the time he started crawling at about 13 months, he started having Myoclonic seizures which lasted until 18 months and then mysteriously went away. Then, when started walking at 2 1/2 he would take a step with his left leg but swing his right leg around and hold his right hand open and keep it stiff. We couldn't figure this out. His therapist kept suggesting to me to see 's neurologist about this. I had already seen his pediatrician about it who so coldly said " Well, Down's kids walk funny anyway. " Upon seeing the neurologist a few weeks later, we learned that has Cerebal Palsy on his right side. I thought the world had ended, because " What else could he have?! " Down's and seizures was bad enough, plus, I was already convinced that he had autism. Well, as got older, his play and behavior got worse. He could wipe out a room in under sixty seconds and destroy any kind of organization attempted on a toy shelf or play area at home, school, church, ... We dubbed him " Rowdy " and " Wild Man " . (Although, it was far from funny, but humor helps!) > Finally, at age 8, after fighting the school system about his terrible behaviors, etc.; a new neurologist came to town. We paid her a visit, and after spending three hours playing with him, she said " Without a doubt, has Autism. " I was so relieved! I felt as if there was this huge weight lifted from me. I could hardly believe it, either. After all of those years of struggling and crying and thinking I was doing something wrong! > So, today, at age 14 with another birthday five weeks away, is no longer terrible - I'm happy to say! He has Downs, Cerebal Palsy on his right side (he can walk just fine, but a little differently from us), and Autism. He has impulsive behaviors every now and then, and some things have to stay the same, or he can't handle it. He's obssessed with ' the Train' videos, books, toys, etc. He's obssessed with trains in general, 18-wheelers, heavy equipment machinery, lawn mowers, and most things with wheels. He loves childrens music, and he eats ketchup on everything and loves any food that is red. And finally, he has nervous tics! The whole reason for my response! He loves to swing and swings about 6 - 8 hours a day. The entire time he swings (or sometimes when he isn't swinging), he stiffens his arms and flexes his wrists and twitches. Then he makes this annoying noise that sounds like a moan (that drives everyone crazy!). We, of course, tell him to stop and he will momentarily, but then he starts it back up again. Also, when is excited, he'll kind of toe walk and bounce back and forth. He does this alot. He also stares at his hand and twitches, and that is usually accompanied by a laugh. He batts his eyes alot and makes them open really wide, which is also accompanied by a laugh. He does some other little things too, but I feel I've written enough for now. > With all of this said (and I've left alot out), we love just the way he is. God has seen us through and knew exactly what He was doing when He gave to our family! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2007 Report Share Posted January 5, 2007 Hi , I am new to the group. I have little twin grandsons 28 moths old both have Autism. Even though they haven't been diagnoised yet I know that is the problem. I have searched everything I can get my hands on. In fact that is why I am here now. Only by the help of God have I made it this far. I have excepted my little angels just the way they are. They are precious to me. I just pray that real soon I will be able to open up with my son and daughter in law. They refuse to except that anything is wrong with them other than they are just slow. Please pray for us. wrote: HI , my name is also Cyndi and my son is 12 with Ds/autism. never had any tics until he went on Risperadal for his " bad " behaviors. was not autistic until 3 yrs of age and then he started doing stemming.Looking at his hand and playing with floppy toys over his head while starring for long periods of time.I thought at one point was having seizures because he would get real giddy and start laughing and falling around like a drunken stupor.But the Drs. ruled this was caused by consuming sweet tea. had to have heard surgery in 2003 and that was stressful.This year something bit him on the head and cause his head and face to swell up like the elaphant man and his eyes swelled shut.The Dr. said cellulitis or staph infection to the wound on his head caused this.Today we are still dealing with an open wound from the bite.With these kids life is never dull and it is always a challenge.I am glad your son is not doing great. You have a great personality and sound like a wonderful caring mom. Welcome to our group. Cyndi B > > Hey! My name is , I live in Georgia and have four sons. My third son, , has DS and Autism. I am also new to this group. > We knew at 17 wks. gestation that our son would have Downs. I first suspected my son had Autism shortly after birth. He had this blank stare and his expression never changed. I couldn't get over the look. My other two sons never looked like that, and they always made those little baby faces. By the time was 3 - 4 months old, he would wave his hand back and forth in front of his face and stare at it. Then he would alternate inner-twining his fingers and watching them. This would go on all day if I let him. When he held a toy in his hand, he wouldn't shake it or chew on it appropriately either. He would wave it back and forth and watch it. From the time he started crawling at about 13 months, he started having Myoclonic seizures which lasted until 18 months and then mysteriously went away. Then, when started walking at 2 1/2 he would take a step with his left leg but swing his right leg around and hold his right hand open and keep it stiff. We couldn't figure this out. His therapist kept suggesting to me to see 's neurologist about this. I had already seen his pediatrician about it who so coldly said " Well, Down's kids walk funny anyway. " Upon seeing the neurologist a few weeks later, we learned that has Cerebal Palsy on his right side. I thought the world had ended, because " What else could he have?! " Down's and seizures was bad enough, plus, I was already convinced that he had autism. Well, as got older, his play and behavior got worse. He could wipe out a room in under sixty seconds and destroy any kind of organization attempted on a toy shelf or play area at home, school, church, ... We dubbed him " Rowdy " and " Wild Man " . (Although, it was far from funny, but humor helps!) > Finally, at age 8, after fighting the school system about his terrible behaviors, etc.; a new neurologist came to town. We paid her a visit, and after spending three hours playing with him, she said " Without a doubt, has Autism. " I was so relieved! I felt as if there was this huge weight lifted from me. I could hardly believe it, either. After all of those years of struggling and crying and thinking I was doing something wrong! > So, today, at age 14 with another birthday five weeks away, is no longer terrible - I'm happy to say! He has Downs, Cerebal Palsy on his right side (he can walk just fine, but a little differently from us), and Autism. He has impulsive behaviors every now and then, and some things have to stay the same, or he can't handle it. He's obssessed with ' the Train' videos, books, toys, etc. He's obssessed with trains in general, 18-wheelers, heavy equipment machinery, lawn mowers, and most things with wheels. He loves childrens music, and he eats ketchup on everything and loves any food that is red. And finally, he has nervous tics! The whole reason for my response! He loves to swing and swings about 6 - 8 hours a day. The entire time he swings (or sometimes when he isn't swinging), he stiffens his arms and flexes his wrists and twitches. Then he makes this annoying noise that sounds like a moan (that drives everyone crazy!). We, of course, tell him to stop and he will momentarily, but then he starts it back up again. Also, when is excited, he'll kind of toe walk and bounce back and forth. He does this alot. He also stares at his hand and twitches, and that is usually accompanied by a laugh. He batts his eyes alot and makes them open really wide, which is also accompanied by a laugh. He does some other little things too, but I feel I've written enough for now. > With all of this said (and I've left alot out), we love just the way he is. God has seen us through and knew exactly what He was doing when He gave to our family! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2007 Report Share Posted January 6, 2007 Hey! I forgot to mention that is not in public school anymore. The last year he was in school (four years ago) my youngest son was in Kindergarten, so I took the opportunity to be a substitute teacher. Just 'by chance' I was asked to sub in the classroom that would be going into the following year. It was at the middle school, and he would have been going into sixth grade there. Let me tell ya! - what a difference in atmosphere, social surroundings, everything! I was in shock, I think, but I immediately knew that it was not for . I had home schooled my older two boys previously and taught my Kindergartner at home before he entered school, so it wasn't any drastic move. But, to top it off, my husband asked me to home school all of our boys again. I agreed, and it was the best thing we ever did for our family. Our oldest graduated in 2006 and is in college now, and our other boys are in 9th and 4th grades here at home. Upon taking out of school he came out of his shell. He didn't talk until he was eight, so at age 11 he suddenly started to say new words. He even started to ask for things and want to be involved in simple things like making lunch and carrying things from the kitchen to the table, etc. It was amazing to see him do these things! His brothers and I would stand in amazement when he'd suddenly say new words and socialize with us like he'd been doing it all of his life. I still can't figure it out. I just thanked God and still do everytime does something new. is almost 15 now, and he's still surprising us with his speech. The other day he walked into the kitchen and said in his slurred kind of speech " Hey Mom, guess what? " He had never said that before! It made me want to cry, because he sounded just like one of the other boys. I know this wouldn't be the right decision for every family, but I'm glad it was for ours. Quote Link to comment Share on other sites More sharing options...
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