LACI

[Guest guest]

Be afraid - be very afraid of not making a plan that does not include you.

Not to be lacking in understanding BUT - what are the odds that you will

live longer than Landon? I am looking and trying to make plans for my son

because since he is 21.5 yo and my husband and I are both in our mid 60's

(he more mid than I), the odds according to acuarial tables are that he will

outlive us. I want to be as sure as I can be that Elie is safe and happy

before there is a crisis that I cannot control, so that he will never be

someones emergency placement.

My husband and I served for 6 years as the emergency home for people with a

dx of MR when there was an emergency. The bewildered sad, frightened people

that we cared for while more permanent arrangements were made were each the

result of no planning or poor planning on the part of their parents. The 21

y0o boy who came to us on New YEar's Day because his mom dropped dead - he

was with us 6 months until arrangements could be made - his mother never

trusted anyone else to care for her son.

Sara - Choose to make lemonade, not complain about the lemons.

>

>Reply-To:

>To:

>Subject: Re: What are the bigger issue in your state?

>Date: Fri, 22 Dec 2006 21:35:40 -0000

>

>See, that's probably where I differ the most from others. Landon will

>never again leave my care. I trusted my ex husband with him for 7

>years, and his ex wife kept me well snowed about what was really going

>on there. I've come to learn, in the last 2 years, that not only does

>Wyoming lack in most areas, but the Docs there also commonly give out

>false diagnosis. Like alopecia when my son was really ripping his own

>hair out of his head, literaly, because he hated it being long. The

>reason they give out that kind of information is because they simply

>don't get it.

>

>So, I'm thankful to have him back in my controlled environment, where

>I know exactly what's up and what's going on. But it's also made me a

>paranoid mother too. I could never and would never trust anyone else

>to look after my son on a permanent basis. Day program yes, living

>situation, no way. I would be a neurotic mess if he ever left my sight

>again.

>

>

>

>

> > > >

> > > > Good points Sara. I often wonder what specifics are asked in the

> > >rankings. For me personally, if the medical supports are not in the

> > >state, but the schooling is great, or the schooling is great for Early

> > >Intervention, but not for inclusion, or life skills or what ever you

> > >choose, this all plays into things. MI has very little respite or

> > >group homes, or places like Penn-Mar or any of the opportunities to

> > >get adults with disabilities out in the workforce. However, other

> > >things are tremendous. I would love to know what others might

> > >consider their most important issues in a state. I guess again, it

> > >would also depend on how old your child is.

> > > > Holly

> > > >

> > > > Re: petition For Dr. Rhen

> > > > >Date: Wed, 20 Dec 2006 13:57:14 -0500

> > > > >

> > > > >I don't want to start any bad banter or anything. I don't know

> > >much about

> > > > >Dr. Rhen but from what we have seen the past 3 years of living in

> > >PA, she

> > > > >must have been doing a pretty darn good job. My only complaint

> > >about the

> > > > >petition information is that PA is NOT one of the worst states

> > >for people

> > > > >with disabilities. I think by the chatter on this site, there are

> > >many

> > > > >many many states who can claim that title. MI and PA are some

>of the

> > > > >better states for services. I hear about other states and it

> > >scares me to

> > > > >think I might ever have to live there. People who work in MD,

> > >chose to

> > > > >live in PA just because of the better services.

> > > > >

> > > > >Like I said, I don't want to start anything, just wanted to

> > >express my

> > > > >opinion.

> > > > >

> > > > >Holly

> > > > >

> > > > >

> > > > >

> > > > >