Guest guest Posted November 28, 2006 Report Share Posted November 28, 2006 Sara, I just spoke with our support coordinator again to be sure about the IQ test thing and she wants to know whether you needed it for SSI or medwaiver or what? Also what state are you in? Thanks Sherry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2006 Report Share Posted December 11, 2006 Yup - I thought of that. But his teacher was not in school today - training conference- and the aid/sub didn't have a clue. Tried to e-mail the teacher this afternoon (know that I just found out about this Sunday!) and tried her cell phone this evening - no response. So I will get up at 6AM tomorrow to notify the bus NOT to come. Elie will be with me. My dh disagrees on the basis that Elie won't know, but I have been listening to Santa for over a week now. HE needs a day of Hanukah talk. Friday evening is the first nite of Hanukah. A real shame that this very minor event - which in devout families is treated as a rememberence of assimilation and the right of freedom of and for religion needs hype to be equal with the salesmen's dream of a great shopping event. Well, it isn't in our house. Elie can help me clean the menorahs and count candles to be sure we have enough (we light a menora for each family member) I printed out the history and story of Hanuka and some of the customs and food normally eaten to send in Elie's back pack on Wednesday. Sara - Choose to make lemonade, not complain about the lemons. > >Reply-To: >To: < > >Subject: Sara >Date: Mon, 11 Dec 2006 20:10:35 -0500 > >Without disrupting Elie's normal school routine, the school should >recognize >that your family does not celebrate Christmas and instead, they should >bring >in a sub or another teacher for Elie so that he can continue with his day. >That would be the best way to approach this without having to have him skip >school and lose a day's worth of education. >Judi S. > > --- sara cohen wrote: > > > > > Now here is a problem I have not had before. This > > > year Elie suddenly > > > realizes that there is a Santa as something more > > > than a song one sings. He > > > keeps telling me that Santa brings presents. His > > > class is going tomorrow to > > > " visit Santa " . My inclination is to keep him home. > > > This is not our holiday > > > . Normally, I would protest anyone going - what > > > part of school and in whose > > > IEP is THAT???? But this teacher is so geat with > > > Elie, that I really don't > > > want to rain on her parade over Santa - but I also > > > do not want Elie to be > > > part of the Snata myth. > > > > > > Well, Santa is not in our house. We celebrate > > > Hanukah - and that has > > > NOTHING to do with presents. We donot have a Hanukah > > > bush, sing songs that > > > sound like Xmas songs but call them Hanukah melodies > > > - none of that. With > > > our now grown children, we did give little token > > > gifts on each night of the > > > holiday - things like candy money to play Hannukah > > > games, their own Hanuka > > > menorah, a book of movie tickets - something small > > > as that is not the reason > > > for this season!!! > > > > > > Elie has never recognized any of this except that he > > > always has had his own > > > candles which he is permitted to blow out - as that > > > has been his thrill. > > > > > > Now that all the siblings are grown and only return > > > home en masse at > > > Thanksgiving, we have taken to giving each other > > > little gifts when we are > > > together - just because we are together. Usually > > > this is something handmade > > > or a specialty food only available where each one > > > lives or the best - a new > > > batch of pix of each of them in their lives. > > > > > > So now, any ideas on how to handle this? > > > > > > > > > > > > Sara - Choose to make lemonade, not complain about > > > the lemons. > > > >-------------------------------------------------- >Checkout our homepage for information, bookmarks, and photos of >our kids. Share favorite bookmarks, ideas, and other information by >including them. Don't forget, messages are a permanent record of the >archives for our list. http://groups.yahoo.com/group/ >-------------------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2006 Report Share Posted December 12, 2006 I'm sorry that you were notified last minute about this, but I'm glad to hear that you'll be doing things with Elie that will help him learn about your religious holiday and customs :-) Maybe, next year something can be implemented into Elie's IEP so that this doesn't happen again and so that the school is better prepared? Or did you say that he was graduating this year? It's been a long night and I can't remember. My ex called me to let me know that he was taking our little one to the ER yesterday, so at 2:00 pm yesterday, I had to call my mom (she's an hour away), beg her to leave work early so she could get Jordan off the bus at 4:00, because I was headed up to Hershey Med. Ctr ER (also an hour away in the other direction). My mom got Jordan and took her back home with her but I didn't get home from the ER till late. And I have to work today and then figure out how to get Jordan from my mother's house. I'm so drained. Thankfully Jordan loves going to her Nana's house so the transition was fine and she didn't put up a fuss. Okay.. I'm done... now I'm rambling about my issues.... *sigh* Judi S. Sara > >Date: Mon, 11 Dec 2006 20:10:35 -0500 > > > >Without disrupting Elie's normal school routine, the school should > >recognize > >that your family does not celebrate Christmas and instead, they should > >bring > >in a sub or another teacher for Elie so that he can continue with his day. > >That would be the best way to approach this without having to have him skip > >school and lose a day's worth of education. > >Judi S. > > > --- sara cohen wrote: > > > > > > > Now here is a problem I have not had before. This > > > > year Elie suddenly > > > > realizes that there is a Santa as something more > > > > than a song one sings. He > > > > keeps telling me that Santa brings presents. His > > > > class is going tomorrow to > > > > " visit Santa " . My inclination is to keep him home. > > > > This is not our holiday > > > > . Normally, I would protest anyone going - what > > > > part of school and in whose > > > > IEP is THAT???? But this teacher is so geat with > > > > Elie, that I really don't > > > > want to rain on her parade over Santa - but I also > > > > do not want Elie to be > > > > part of the Snata myth. > > > > > > > > Well, Santa is not in our house. We celebrate > > > > Hanukah - and that has > > > > NOTHING to do with presents. We donot have a Hanukah > > > > bush, sing songs that > > > > sound like Xmas songs but call them Hanukah melodies > > > > - none of that. With > > > > our now grown children, we did give little token > > > > gifts on each night of the > > > > holiday - things like candy money to play Hannukah > > > > games, their own Hanuka > > > > menorah, a book of movie tickets - something small > > > > as that is not the reason > > > > for this season!!! > > > > > > > > Elie has never recognized any of this except that he > > > > always has had his own > > > > candles which he is permitted to blow out - as that > > > > has been his thrill. > > > > > > > > Now that all the siblings are grown and only return > > > > home en masse at > > > > Thanksgiving, we have taken to giving each other > > > > little gifts when we are > > > > together - just because we are together. Usually > > > > this is something handmade > > > > or a specialty food only available where each one > > > > lives or the best - a new > > > > batch of pix of each of them in their lives. > > > > > > > > So now, any ideas on how to handle this? > > > > > > > > > > > > > > > > Sara - Choose to make lemonade, not complain about > > > > the lemons. > > > > > > > >-------------------------------------------------- > >Checkout our homepage for information, bookmarks, and photos of > >our kids. Share favorite bookmarks, ideas, and other information by > >including them. Don't forget, messages are a permanent record of the > >archives for our list. http://groups.yahoo.com/group/ > >-------------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2006 Report Share Posted December 12, 2006 He agreed to wait for noon. Thus he got to eat lunch at school. HE was happy about that! Meanwhile at home, he cleaned 2 menorahs and signed 12 (twelve!) holiday cards to his teachers and classmates. So he did his handwriting practice where I could see it ain't changed a bit since he was 10. Oh well - at least it can be read. Sara - Choose to make lemonade, not complain about the lemons. > >Reply-To: >To: < > >Subject: Re: Sara >Date: Tue, 12 Dec 2006 10:05:14 -0500 > ><<When I didn't wake him up this morning, he >got up, got dressed, let the dog out, and informed me that " We missed the >bus. Mommy Daddy drive. Go to school now. I will take him FTEr the Santa >thing in time for lunch.>> > >I love a man who knows his own mind!! >(or even has one LOL) >Sherry > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2006 Report Share Posted December 12, 2006 LOL... maybe that's why I'm still single... I haven't yet found a man with his own mind... and if he has one... it's rusty from non-use! LMAO!!! Judi S. > > I love a man who knows his own mind!! > (or even has one LOL) > Sherry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2006 Report Share Posted December 13, 2006 Sara, My doc is going to monitor me for the next five weeks to see how I do. I'm also going to be quitting smoking AFTER the holidays. We both decided that it would not be in my best interests to do so now simply because of all the stress, failure is more likely to happen. I'm glad I'm making that decision, so I'll be looking at several methods. I've done the patch, gum and going cold turkey so perhaps there's something else out there for me. The wellbutrin doesn't seem to make me want to smoke any less. Judi S. Judi > If one doesn't have SAD, December sees the most depressed people because > with all the socalled holiday spirit, people feel that they must be happy > and when the situation is not happy, they get sad. And then put any kind of > family stressors into that mix, and one is sure to be depressed. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2006 Report Share Posted December 13, 2006 Judi, When I quit for the first day I had only fruit and fruit juices, 2nd and 3rd day I added vegies. Drank tons of water. All that helps flush the chemicals out. It worked for me, so maybe something like that would help you. :-) P. > > Sara, > My doc is going to monitor me for the next five weeks to see how I do. I'm > also going to be quitting smoking AFTER the holidays. We both decided that > it would not be in my best interests to do so now simply because of all the > stress, failure is more likely to happen. I'm glad I'm making that > decision, so I'll be looking at several methods. I've done the patch, gum > and going cold turkey so perhaps there's something else out there for me. > The wellbutrin doesn't seem to make me want to smoke any less. > > Judi S. > Judi > > > > If one doesn't have SAD, December sees the most depressed people because > > with all the socalled holiday spirit, people feel that they must be happy > > and when the situation is not happy, they get sad. And then put any kind > of > > family stressors into that mix, and one is sure to be depressed. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2007 Report Share Posted January 9, 2007 Sara, I'm sorry to hear about you mom. I hope your happy memories will be a comfort to you at this time. take care, patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2007 Report Share Posted January 9, 2007 Thoughts and prayers are with you Sara and your family during this sad time. Louise Re: Re: Laci As Landon gets older, there will be situations - even if he has a 24/7 person- where he will be asked for ID. Social Security is one, but now that random security checks are being done in any public venue, it could happen. As to you contributing to his lack of abilities - who am I to cast the first stone???? We all can only do what we can do and need to arrange our kids' lives so that we too have a life. We take Elie every place we go because it is either that or one of us has to stay home with him. Since we are not willing to forgo life, he has to go with us. It isn't always easy - sometimes we take a w/c because his refusal to move or his discomfort in certain venues is a well known thing- but we go. We take him on airplanes because we want to see his sibs. HE goes 'cause I am not always willing to leave him. We do drug him to fly - to the point of easy of movement using a w/c. He can stand and walk with asistance but he is too lethargic to argue or refuse. Over years of time, he has gradually learned to either tolerate going with us or even to look forward to going. It was over years Laci - and not easy- but way better than having to stay home. I am currently in FL - without Elie or my dh- because my mother died last Thursday. My husband for many reasons did not come with me so Elie stayed with him. Now all my sibs and cousins, and Elie's sibs and cousins are not happy that I didn't bring him - this was one time where there was too much going on to cater to Elie in anyway I thought - food needs, isolation, too many animals, noise, etc. Plus school just reconvened on Thursday from Xmas and he couldn't wait for school to start again. Sara - Choose to make lemonade, not complain about the lemons. -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.432 / Virus Database: 268.16.8/621 - Release Date: 1/9/2007 1:37 PM -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.5.432 / Virus Database: 268.16.8/621 - Release Date: 1/9/2007 1:37 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2007 Report Share Posted January 9, 2007 Hi Sara, I am so very sorry to hear about your mother's passing. You are in my thoughts and prayers. Charlyne Mom to Zeb 14 DS/OCD/ASD? sara cohen wrote: As Landon gets older, there will be situations - even if he has a 24/7 person- where he will be asked for ID. Social Security is one, but now that random security checks are being done in any public venue, it could happen. As to you contributing to his lack of abilities - who am I to cast the first stone???? We all can only do what we can do and need to arrange our kids' lives so that we too have a life. We take Elie every place we go because it is either that or one of us has to stay home with him. Since we are not willing to forgo life, he has to go with us. It isn't always easy - sometimes we take a w/c because his refusal to move or his discomfort in certain venues is a well known thing- but we go. We take him on airplanes because we want to see his sibs. HE goes 'cause I am not always willing to leave him. We do drug him to fly - to the point of easy of movement using a w/c. He can stand and walk with asistance but he is too lethargic to argue or refuse. Over years of time, he has gradually learned to either tolerate going with us or even to look forward to going. It was over years Laci - and not easy- but way better than having to stay home. I am currently in FL - without Elie or my dh- because my mother died last Thursday. My husband for many reasons did not come with me so Elie stayed with him. Now all my sibs and cousins, and Elie's sibs and cousins are not happy that I didn't bring him - this was one time where there was too much going on to cater to Elie in anyway I thought - food needs, isolation, too many animals, noise, etc. Plus school just reconvened on Thursday from Xmas and he couldn't wait for school to start again. Sara - Choose to make lemonade, not complain about the lemons. > >Reply-To: >To: >Subject: Re: Re: Laci >Date: Tue, 9 Jan 2007 08:47:18 -0800 (PST) > >Laci ~ Don't question yourself about contributing to his disabilities. I >know we all go through that, I know it's crossed my mind, but it's not fair >to us. > > Landon sounds a bit like Dylan, begs to stay home when we go places & >very unsocial. He is writing his letters though, I've waited so long for >that. He won't do it when we ask him, but on his own, alone, he will write >them. It's so awesome to see this. > > take care, > > Becky > >Laci Richter wrote: > Landon does have a medic alert bracelet, but he won't tolerate >any of >that stuff on him so it's in my truck. His medicaid is also in the >truck, but I keep that there because I lose things very easily. As far >as the ID, I will probably go ahead and do that. However, Landon is so >low functioning that there won't ever be any reason he would have to >show it, he wouldn't even carry it on him unless it was in a backpack. >he wouldn't know to pull out a wallet and show ID if he was even >asked. Basically, he's total care. I doubt he'll ever go to a bank. I >have an account for him, but it is not checking, it's a savings, and >he's never even been inside of a bank. >When I hear about all of these things, and see some even, that other >Ds-Autism kids are doing, I have to stop and question myself as to >whether or not I've contributed to the " retardation " (I hate that word) >of my own child. He doesn't function by himself at all save for eating >and walking. He's anti-social and does not like to even leave the >house unless it's a car ride or school. He knows his ABCs and his >numbers and can even read road signs. But he's so low functioning on >all other aspects, that I just have never put him in certain situations. > > > > > > <<I would still probably obtain an ID for him, he'll be 16 in >August, but I > > doubt we'd ever really need > > to use it for much.>> > > > > Hi, Everyone...Laci....you would be surprise how often Gareth is >asked for > > ID now that he is older. Even the guy from MH/MR wanted to see >'ID'. Gareth > > had to have an ID card for the bank when him and I went to open a >joint > > checking acct. when he started SSI. Since Gareth's speech is so >poor and many > > have a hard time understanding him, he has pulled out his wallet to >show them > > his name whenever they can't understand him. It has his address on >it, too. > > Also.....Gareth is VERY proud of the fact he can whip his ID out of >his > > wallet!!! Take care, Everyone. > > Margaret > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2007 Report Share Posted January 9, 2007 Hi Sara, I am so very sorry to hear about your mother's passing. You are in my thoughts and prayers. Charlyne Mom to Zeb 14 DS/OCD/ASD? sara cohen wrote: As Landon gets older, there will be situations - even if he has a 24/7 person- where he will be asked for ID. Social Security is one, but now that random security checks are being done in any public venue, it could happen. As to you contributing to his lack of abilities - who am I to cast the first stone???? We all can only do what we can do and need to arrange our kids' lives so that we too have a life. We take Elie every place we go because it is either that or one of us has to stay home with him. Since we are not willing to forgo life, he has to go with us. It isn't always easy - sometimes we take a w/c because his refusal to move or his discomfort in certain venues is a well known thing- but we go. We take him on airplanes because we want to see his sibs. HE goes 'cause I am not always willing to leave him. We do drug him to fly - to the point of easy of movement using a w/c. He can stand and walk with asistance but he is too lethargic to argue or refuse. Over years of time, he has gradually learned to either tolerate going with us or even to look forward to going. It was over years Laci - and not easy- but way better than having to stay home. I am currently in FL - without Elie or my dh- because my mother died last Thursday. My husband for many reasons did not come with me so Elie stayed with him. Now all my sibs and cousins, and Elie's sibs and cousins are not happy that I didn't bring him - this was one time where there was too much going on to cater to Elie in anyway I thought - food needs, isolation, too many animals, noise, etc. Plus school just reconvened on Thursday from Xmas and he couldn't wait for school to start again. Sara - Choose to make lemonade, not complain about the lemons. > >Reply-To: >To: >Subject: Re: Re: Laci >Date: Tue, 9 Jan 2007 08:47:18 -0800 (PST) > >Laci ~ Don't question yourself about contributing to his disabilities. I >know we all go through that, I know it's crossed my mind, but it's not fair >to us. > > Landon sounds a bit like Dylan, begs to stay home when we go places & >very unsocial. He is writing his letters though, I've waited so long for >that. He won't do it when we ask him, but on his own, alone, he will write >them. It's so awesome to see this. > > take care, > > Becky > >Laci Richter wrote: > Landon does have a medic alert bracelet, but he won't tolerate >any of >that stuff on him so it's in my truck. His medicaid is also in the >truck, but I keep that there because I lose things very easily. As far >as the ID, I will probably go ahead and do that. However, Landon is so >low functioning that there won't ever be any reason he would have to >show it, he wouldn't even carry it on him unless it was in a backpack. >he wouldn't know to pull out a wallet and show ID if he was even >asked. Basically, he's total care. I doubt he'll ever go to a bank. I >have an account for him, but it is not checking, it's a savings, and >he's never even been inside of a bank. >When I hear about all of these things, and see some even, that other >Ds-Autism kids are doing, I have to stop and question myself as to >whether or not I've contributed to the " retardation " (I hate that word) >of my own child. He doesn't function by himself at all save for eating >and walking. He's anti-social and does not like to even leave the >house unless it's a car ride or school. He knows his ABCs and his >numbers and can even read road signs. But he's so low functioning on >all other aspects, that I just have never put him in certain situations. > > > > > > <<I would still probably obtain an ID for him, he'll be 16 in >August, but I > > doubt we'd ever really need > > to use it for much.>> > > > > Hi, Everyone...Laci....you would be surprise how often Gareth is >asked for > > ID now that he is older. Even the guy from MH/MR wanted to see >'ID'. Gareth > > had to have an ID card for the bank when him and I went to open a >joint > > checking acct. when he started SSI. Since Gareth's speech is so >poor and many > > have a hard time understanding him, he has pulled out his wallet to >show them > > his name whenever they can't understand him. It has his address on >it, too. > > Also.....Gareth is VERY proud of the fact he can whip his ID out of >his > > wallet!!! Take care, Everyone. > > Margaret > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2007 Report Share Posted January 10, 2007 Sara, I am sorry as well to hear about your Mom's passing. I am glad to hear that you are having a good family gathering in the meantime. How wonderful that Elie was missed! I understand completely your dilemma and decision about not taking him to Florida. We had Nonni's wake and funeral here in Ohio, and she was buried in Florida (Lake Wales.) We decided a long time ago that DH would just go to FL for the burial- too difficult to leave Pete under already stressful circumstances, and, like Elie, he was ready to go back to school. He did attend the visitation at the funeral home. He loved seeing the DVD of photos of Nonni, and that kept him occupied during the vigil service. Then the next day, at the funeral, he sat between his godparents. He used his Vantage (his communication device) set to " no speech " and made it through 40 minutes of the funeral mass. We were amazed that he was able to last that long. He finally pushed " I'm bored " so they took him for a ride and then he came back for the luncheon. He was happy to see some favorite people there. Later on, he was happy to be able to watch " Nonni CD " whenever he wanted. He has been telling us (per what we taught him) " Nonni heaven " . Seems to make sense for his world right now. I don't know if he will ever grasp the concept of death, or never seeing Nonni alive again. God Bless Us, Every One! Beth Mum to Pete age 16 central Ohio > > Sara, I'm sorry to hear about you mom. I hope your happy memories will be a > comfort to you at this time. > take care, patty > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2007 Report Share Posted January 28, 2007 Hi Sara, ROTFLOL, I know it isn't really funny but only a sped parent could appreciate this. I wish a few of my students at school had the 24 " and shoe goals. I am on my guard dodging fists, shoes, teeth and whatever. Many of the parents don't get it. One student comes into school with a very heavy pullover sweater everyday. He is always sweltering. I am not allowed to take his sweater off because Mom has requested that it stay on. The administration cannot convince her that the child is soaking wet with sweat. I took it off the other day and told them to fire me. One Mom has a habit of kissing her teenage daughter's finger, why? The student constantly has her fingers in the staffs face. The Mom thinks it's cute, not. The stories I could tell. Charlyne Mom to Zeb 14 DS/OCD/ASD? sara cohen wrote: We have had some crazy things in IEP's over the years: The 24 " rule- all instruction is to be given from a distance of 24 " Intermediate GOAL: Elie will not strike anyone in the face during classroom instruction. Final Goal: Elie will not attempt to strike anyone in the face but will use words to express disatisfaction. Shoes in school rule: shoes will be removed upon entering the classroom and put in cubbie. Intermediate Goal: Elie will remove shoes on direction without throwing them or kicking out at staff. Final Goal: Will wear shoes without complaint in school . Understand that these were the start and end with MANY steps in between. But to this day we haave the 24 " rule in his IEP. And he hasn't hit anyone in the face in almost 3 years. I won't even list all the " Feces " regulations from middle school. That is just too gross to live with. >From: charlyne olko >Reply-To: >To: >Subject: Re: Charlyne >Date: Sun, 28 Jan 2007 17:31:21 -0800 (PST) > >Hi Sara, > Yes your right. You have some leverage with the IEP. I don't mind if >twit me,LOL. > Charlyne > Mom to Zeb DS/OCD/ASD? > >sara cohen wrote: > State laws say many things. But IEP's can trump state laws. >That's why we >managed to get the " I " in IEP!!! > >And I know that you were passing info, so I am only twitting you. > >Sara - Choose to make lemonade, not complain about the lemons. > > >From: charlyne olko > >Reply-To: > >To: > >Subject: Re: > >Date: Sat, 27 Jan 2007 20:26:40 -0800 (PST) > > > >Hi Sara, > > I don't feel that keeping shoes off are a big deal either but only if > >they keep the socks on. Ct state laws prohibit students from being > >barefoot.I'm not certain what other states haves this law other than > >Hawaii. I know the students that I work with whip the socks off if they >do > >not have shoes on. The school is very liberal with accomodations and > >walking around in slippers, socks etc wouldn't even be an issue. Their > >motto is whatever works but barefoot is not. I suppose if it were written > >into an IEP it could be an exception to the law. > > Charlyne > > Mom to Zeb 14 DS/OCD/ASD? > > > > > >sara cohen wrote: > > Well, - I am closer to your view than some other peole who > >wrote to > >you. I say, if the kid doesn't want shoes on, then take the blasted >things > >off!! They can be worn to and from school, and I will buy dirt colored > >socks! As to nails, I cut nails weekly. Elie has had a 24 " rule in his >IEp > >since he was 5 and punch a teacher in the face. people need to watch >their > >distance and not worry about the small stuff. What is the big deal with > >shoes??? Unless of course there are foot braces or need for other >orthotic > >correction????? > > > >Sara - Choose to make lemonade, not complain about the lemons. > > > > >From: charlyne olko > > >Reply-To: > > >To: > > >Subject: Re: Vent about teacher > > >Date: Fri, 26 Jan 2007 19:54:48 -0800 (PST) > > > > > >Hi , > > > Vent away! It's very frustrated to advocate for our kids in the sped > > >world. Teachers often forget that we are the experts of our children. >If > > >you had asked to have the conference with the psychologist in an IEP > > >meeting, the teacher would have been less apt to refuse. You have a >right > > >to ask to have a daily communication sheet, 1-1 para, work modified > > >appropriately etc. Because you now have documentation that Janie is not > > >making progress clearly you can state in an IEP meeting that her needs > >are > > >not being met. You could request an independent educational consultant > >with > > >expertise in autism evaluate and observe her school program and help >the > > >team to design a program that would meet her needs. If you are unable >to > > >attend An IEP meeting because of an illness or disability you do have >the > > >right to ask for a teleconference or speaker phone meeting. > > > > > > I work at an autism school and I dodge shoes and boots on a daily >basis. > > >It is not uncommon for a teacher to request a parent to send the >student > >to > > >school with footwear that are not too easy to remove. I can't tell you > >how > > >much time I spend during the day putting shoes back on while carefully > >not > > >bending my head so that my hair is not grabbed and taking care not to >get > > >scratched. The teachers request that all students that scratch have >their > > >nails cut very often. We happen to have a few nurses that will cut the > > >students nails if it becomes a problem. I work with a very good teacher > > >that had her faced gouged by a student last week. The student was happy > >and > > >smiling one moment and in a second she lunged at the teacher. It >happens > > >all the time and is just part of the job. I don't think the teacher's > > >request was unreasonable. > > > Charlyne > > > Mom to Zeb 14 DS/OCD/ASD? > > > > > >mzdaisee47 wrote: > > > It's my turn to vent about a teacher. > > >Janie's teacher sent home a note today telling me to cut her > > >fingernails because instead of pinching she scratched today. Well, #1 > > >she pinches with her thumb and pointer, #2 she scratches with all 4 > > >fingers, and #3 her nails were cut about 4 days ago and not that > > >long. It is not that easy to get her to sit still to cut them either. > > >Also, the note said not to let her wear her boots to school because > > >she takes them off and throws them too easily. She can get ANY shoes > > >off fast and throw them including high tops with the laces double > > >knotted in the back. Not only that, but her report card shows that > > >she has made zero progress this year. In K-1 she progressed slowly, > > >but steadily both years with a different teacher. In our district her > > >current teacher has all the sped kids in her age group. This teacher > > >has been cold since I first met her last spring and has failed to > > >comply with requests for feedback throughout the year. (Thanks to the > > >person who gave me the link for the forms). She ignored Janie's > > >psychologist's offer to have a teleconference to discuss Janie's > > >needs and how to deal with her aggression. > > >I started to gather stuff before Christmas to request an IEP meeting, > > >but put it off until now due to my surgery. Now I am back at it and > > >will turn in my request tomorrow since I plan to meet with the > > >principal about today's note. Janie needs a 1-on-1 aide, she needs to > > >be given work appropriate for her level (not 2nd grade level), I need > > >written documentation regarding her behavior issues, I need to see > > >her goals being met or at least progress being made toward them. I am > > >not self disciplined enough to home school her and do not want > > >someone to come to our house to teach her because she needs to learn > > >appropriate social behaviors. I have to find out what options are > > >available in our area. We liked Janie's previous teacher so well I > > >would gladly send her back to the previous school if I could. > > >Tomorrow I also plan to call DSHS and find out if we have special ed > > >advocates here and how to get one for Janie. You can tell I am angry > > >and a bit frazzled right now. Thanks for listening! > > > P. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2007 Report Share Posted February 3, 2007 > > Weather is clear in ATL. Stop for a visit!!! > > > Sara - Choose to make lemonade, not complain about the lemons. Sara thank you for the invite and update. Would of love to! I'm really impatient to head home unless there is a flight delay it would of worked out, flights look good for now. Could I take a raincheck? Are you far from the airport? We normaly commutewhen we travel anywhere. I know we will have some near traveling out this year. Thank you, Irma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2007 Report Share Posted February 4, 2007 We are about an hour and half from the AL airport - and willingly pick up visitors. There is also a train direct from the airport to a point just south of us - about 50 minutes. Now that I have learned about the trains, I am not freaked out so much about going to ATL. When we first moved here, I was in a panic at the thought of driving into ATL. Now I don't. If someone else drives - great. Otherwise, I drive to the train station and take the train. And it is very cheap and safe. Sara - Choose to make lemonade, not complain about the lemons. > >Reply-To: >To: >Subject: Re: Sara >Date: Sat, 03 Feb 2007 22:56:02 -0000 > > > > > > Weather is clear in ATL. Stop for a visit!!! > > > > > > Sara - Choose to make lemonade, not complain about the lemons. > >Sara thank you for the invite and update. Would of love to! >I'm really impatient to head home unless there is a flight delay it >would of worked out, flights look good for now. >Could I take a raincheck? >Are you far from the airport? We normaly commutewhen we travel >anywhere. I know we will have some near traveling out this year. > >Thank you, >Irma > > > > > > >-------------------------------------------------- >Checkout our homepage for information, bookmarks, and photos of >our kids. Share favorite bookmarks, ideas, and other information by >including them. Don't forget, messages are a permanent record of the >archives for our list. http://groups.yahoo.com/group/ >-------------------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2007 Report Share Posted February 17, 2007 Sara, I understand that many teachers feel the same but would never say it publicly, as parents, we know who they are. Zeb's teachers are very good and he likes being in their classes. He is doing well academically and they treat him well. The principal and a few others have a hard lesson coming their way. I stepped on a few toes making them accountable regarding reading. Because I wouldn't agree to their warped thinking, got an IEE, hired a literacy consultant etc. that didn't agree with them, I was threatened. After, that brought them grief from the sped director so they decided to direct the retaliation toward Zeb. The superintendent and the sped director are aware and will take care of this situation administratively. I opted to direct the complaint within the administration than file for due process. I will save that for last resort. The principal and the nurse and their spouses socialize outside of school. The nurse's action will be dealt with by her supervisor. I completely agree with you and Zeb maybe entering HS early.The sped director and Zeb's attorney are working it out. I am not leaving this school status quo. There are other disabled students and parents following Zeb that will have to deal with this attitude if it's not stopped. I will stop it. Zeb is the first student fully included and being the first isn't always easy. I seem to think there may be a change in that school's administration shortly. The principal may have made the biggest mistake in his career. It doesn't bother me if I am hated but don't ever direct your frustration to my child. Truthfully, Zeb does fine unless people start badgering him. The pediatrician seems to think that Zeb has celiac's. We are in the middle of testing. I am praying not. I haven't checked the map yet. Have #3 granddaughter this weekend. Charlyne Mom to Zeb 14 DS/OCD/ASD? sara cohen wrote: Be aware that my sister would never express her opinions toward a child in her class. She would always be professional, but I know that is how she feels. As to Elie - this year when she visited in my house for a week after we moved, she did tell me how well he was behaving and how surprised she was at how much he has learned. OF course, prior to this visit, she never spent more than a few hours at a time in his presence since we came back from Israel!!! One of the reasons that we decided to remove Elie from public school when he finished middle school at 15, was because of the attitudes. we decided that his education overall was more important than the possibility of his achieving some sort of integration with the " real world " . then we hired a college young man to be the instigator to introduce Elie to the teen and adult commnity. Elie is MUCH happier than he would have been with the continued attitudes he had to cope with in upper elementary school . The 2 years he was in public middle school were good because his teacher acted as the bastion of sanity. This is the school that instituted a " danger protocol " in case Elie got out of control. There was an alarm button in each classroom that Elie would be in. They also had a riot plan in case he wouldn't leave the school in case of fire. But his teacher and the 6th grade social studies teacher and the computer teacher protected Elie from the administration. When he had to leave that cocoon, I knew that we had to work on another plan. Maybe for Zeb's overall well being it is time to look at what other options might be available. How educaationaal can it be if he is being verbally abused? And what is this about detention when face making is a manifestation of his disability caused by inability to verbalize feelings quickly enough?? Sara - Choose to make lemonade, not complain about the lemons. >From: charlyne olko >Reply-To: >To: >Subject: Re: Sara/Fl/school battle >Date: Sat, 17 Feb 2007 18:50:07 -0800 (PST) > >Sara, I'm shocked your sister feels this way especially being aunt to Elie. >Our friends that live in Riverview with a disabled middle school daughter >that is bused to , gasp. We have our share of the same teacher >attitudes in Ct. They dare not say it but actions speak louder than words. >I am in my own battle right now with Zeb's school. The pediatrician removed >him from school last week. I have been getting daily calls from the school >nurse that Zeb has the runs and a stomachache every afternoon. They have >rotating classes so I know it's not one specific class. The nurse told Zeb >that he didn't look sick and he made a face at her. The nurse called the >principal to tell him Zeb was being rude to her. As I walked down the long >school hallway toward the nurses office I could hear yelling. The principal >was yelling at Zeb about being rude to his staff and he would stay for >detention with him the next day. It would be over my dead body. The >pediatrician was furious > because she had just sent a letter telling them to deal with Zeb in a >more positive manner. I was threatened by the principal the week before and >had a meeting with the superintendent this week. I have it on tape in the >presence of Zeb's attorney. I am not certain what the outcome with be but I >have had it with these school people. Zeb is on winter vacation this week >so I am not too concerned about him missing educational time. It's a real >Jerry Springer saga. > Charlyne > Mom to Zeb 14 DS/OCD/ASD? > >sara cohen wrote: > , my sister, only teaches gifted kids and thinks that the majority >of >money should go to the most able is STILL horrified at the total use of >educational knowledge and research in the non-teaching of spec ed kids - >especial " the retarded " that goes on in Hillsborough. After many to many >years in the city, she now lives and teaches in . We were raised in >Palma Ceia. I wouldn't waste dynamite on that city. (Not that I feel >strongly about FL or anything!!) > >Oh also, there are few to none supports or help after school leaves. Waiver >is a MYTH down that way. The good thing is that with elder protection laws >now in place, most are worded as " elder and disabled " , which does give SOME >limited protection for abuse and neglect. > > > > > >Sara - Choose to make lemonade, not complain about the lemons. > > > > > > >From: charlyne olko > >Reply-To: > >To: > >Subject: Re: Sara/Fl > >Date: Fri, 16 Feb 2007 22:42:08 -0800 (PST) > > > >Sara, what's stands in my mind when I hear about Hillsborough County is > >reading about the landmark Whitehead sped case. Most of our friends live >in > >Gibsonton, Riverview and Ruskin. I will keep Fl as a nice place to visit. > >My inlaws are in Sarasota. > > Charlyne > > Mom to Zeb 14 DS/OCD/ASD? > > > >sara cohen >wrote: > > Since my brother and sister (and until January, my mother) are > >all in FL we > >considered Fl for retirement - even though I HATED Tampa when I was >forced > >to live there as a teen. BUT, my sister who has taught for 35 years in > >Hillsborough County, reported to me about the separate schools for KIDS > >LIKE > >THESE and I wrote the state to find out about supports (and listened to >our > >sisters from Fl on this list), FL is the next to last place I would move. >I > >wanted warmer weather, but no humidity. So I opted for what the people >here > >call " Half back Land " , the place where Fl people heading back north > >stop!!! > > > >And I am learning that supports are available if one asks and asks. The > >schools where I am are good IMHO> > > > >Sara - Choose to make lemonade, not complain about the lemons. > > > > >From: charlyne olko > > >Reply-To: > > >To: > > >Subject: Re: This weather/Sherry Donna > > >Date: Fri, 16 Feb 2007 07:47:39 -0800 (PST) > > > > > >My dh plowed snow for years. He had the school contracts and did the > > >arrivals and departure roads for the airport. He would move to Fl in a > > >moments notice if I said yes. I am not to keen on the schools in Fl and > > >hesitate to move becuase of Zeb. > > > Charlyne > > > Mom to Zeb 14 DS/OCD/ASD? > > > > > >duffey48@... wrote: > > > > > >In a message dated 2/15/2007 12:11:09 P.M. Eastern Standard Time, > > >charlyne1121@... writes: > > > > > >Dh would love to move to a warmer climate but after my recent visit to >Fl > >I > > >got into the car and was bitten on my arm by a fire ant. The nasty welt > > >reminded me that New England is not so bad. > > > > > >I love ALL seasons. Even the cold. And I love snow. I honestly don't > > >think I could live somewhere that didn't get snow. Duff, however. > >despises > > >the cold. Probably because the memories it brings back of his early >days > > >in the family heating oil business......no matter what you did, driving > > >that > > >oil truck, nothing could warm you up! Of all the seasons, my favorite >is > > >Fall. I love the colors, the smells, the crispness....and I always >think > > >of the smell of pencils and fresh books!!!!! > > >Donna (who obviously places great import on her olfactory unit....LOL) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2007 Report Share Posted February 17, 2007 Hi Sara, Yes, Zeb is learning and has friends. He isn't too great on the functional skills, bed making, cleaning his room etc. He is so lazy. He can do many things when he wants too. I think the move was good for Elie. Research has proven that people with DS continue to learn throughout their lives. Elie seems to be doing so well. What's the plan after HS? I remember he hates to work as much as Zeb does,LOL. Charlyne Mom to Zeb 14 DS/OCD/ASD? sara cohen wrote: I always believed and fought for Elie to be included AS LONG AS HE WAS LEARNING> I hear you saying that Zeb is succeeding in that school. I am always happy when that is possible. It wasn't for ELie. But now, his last year in FAPE, he is in a regular high school, included in some activities - as he is able to deal- and is learning so much about time, and plaanning, following a plan, able to create a plan for his day, etc. No he isn't learning to read again other than signs and isolated words but he is understanding some math concepts he never learned before, he has suddenly achieved some housekeeping skills, including bed making (with minimal help) where he can actually put sheets on his bed. And he is becoming part of our new community where people in the community want to be his friend and come up to him for the joy of being recognized by Elie! Life is so strange that I am sure the principal will find out sometime in life how very small the wheel of fate grinds!!! Sara - Choose to make lemonade, not complain about the lemons. >From: charlyne olko >Reply-To: >To: >Subject: Re: Sara >Date: Sat, 17 Feb 2007 21:01:31 -0800 (PST) > >Sara, I understand that many teachers feel the same but would never say it >publicly, as parents, we know who they are. Zeb's teachers are very good >and he likes being in their classes. He is doing well academically and they >treat him well. The principal and a few others have a hard lesson coming >their way. I stepped on a few toes making them accountable regarding >reading. Because I wouldn't agree to their warped thinking, got an IEE, >hired a literacy consultant etc. that didn't agree with them, I was >threatened. After, that brought them grief from the sped director so they >decided to direct the retaliation toward Zeb. The superintendent and the >sped director are aware and will take care of this situation >administratively. I opted to direct the complaint within the administration >than file for due process. I will save that for last resort. The principal >and the nurse and their spouses socialize outside of school. The nurse's >action will be dealt with by her supervisor. I > completely agree with you and Zeb maybe entering HS early.The sped >director and Zeb's attorney are working it out. I am not leaving this >school status quo. There are other disabled students and parents following >Zeb that will have to deal with this attitude if it's not stopped. I will >stop it. Zeb is the first student fully included and being the first isn't >always easy. I seem to think there may be a change in that school's >administration shortly. The principal may have made the biggest mistake in >his career. It doesn't bother me if I am hated but don't ever direct your >frustration to my child. Truthfully, Zeb does fine unless people start >badgering him. The pediatrician seems to think that Zeb has celiac's. We >are in the middle of testing. I am praying not. I haven't checked the map >yet. Have #3 granddaughter this weekend. > Charlyne > Mom to Zeb 14 DS/OCD/ASD? > >sara cohen wrote: > Be aware that my sister would never express her opinions toward a child >in >her class. She would always be professional, but I know that is how she >feels. As to Elie - this year when she visited in my house for a week after >we moved, she did tell me how well he was behaving and how surprised she >was >at how much he has learned. OF course, prior to this visit, she never spent >more than a few hours at a time in his presence since we came back from >Israel!!! > >One of the reasons that we decided to remove Elie from public school when >he >finished middle school at 15, was because of the attitudes. we decided >that his education overall was more important than the possibility of his >achieving some sort of integration with the " real world " . then we hired a >college young man to be the instigator to introduce Elie to the teen and >adult commnity. Elie is MUCH happier than he would have been with the >continued attitudes he had to cope with in upper elementary school . The 2 >years he was in public middle school were good because his teacher acted as >the bastion of sanity. This is the school that instituted a " danger >protocol " in case Elie got out of control. There was an alarm button in >each classroom that Elie would be in. They also had a riot plan in case he >wouldn't leave the school in case of fire. But his teacher and the 6th >grade social studies teacher and the computer teacher protected Elie from >the administration. When he had to leave that cocoon, I knew that we had to >work on another plan. > >Maybe for Zeb's overall well being it is time to look at what other options >might be available. How educaationaal can it be if he is being verbally >abused? And what is this about detention when face making is a >manifestation of his disability caused by inability to verbalize feelings >quickly enough?? > > > >Sara - Choose to make lemonade, not complain about the lemons. > > > > > >From: charlyne olko > >Reply-To: > >To: > >Subject: Re: Sara/Fl/school battle > >Date: Sat, 17 Feb 2007 18:50:07 -0800 (PST) > > > >Sara, I'm shocked your sister feels this way especially being aunt to >Elie. > >Our friends that live in Riverview with a disabled middle school daughter > >that is bused to , gasp. We have our share of the same teacher > >attitudes in Ct. They dare not say it but actions speak louder than >words. > >I am in my own battle right now with Zeb's school. The pediatrician >removed > >him from school last week. I have been getting daily calls from the >school > >nurse that Zeb has the runs and a stomachache every afternoon. They have > >rotating classes so I know it's not one specific class. The nurse told >Zeb > >that he didn't look sick and he made a face at her. The nurse called the > >principal to tell him Zeb was being rude to her. As I walked down the >long > >school hallway toward the nurses office I could hear yelling. The >principal > >was yelling at Zeb about being rude to his staff and he would stay for > >detention with him the next day. It would be over my dead body. The > >pediatrician was furious > > because she had just sent a letter telling them to deal with Zeb in a > >more positive manner. I was threatened by the principal the week before >and > >had a meeting with the superintendent this week. I have it on tape in the > >presence of Zeb's attorney. I am not certain what the outcome with be but >I > >have had it with these school people. Zeb is on winter vacation this week > >so I am not too concerned about him missing educational time. It's a real > >Jerry Springer saga. > > Charlyne > > Mom to Zeb 14 DS/OCD/ASD? > > > >sara cohen >wrote: > > , my sister, only teaches gifted kids and thinks that the majority > >of > >money should go to the most able is STILL horrified at the total use of > >educational knowledge and research in the non-teaching of spec ed kids - > >especial " the retarded " that goes on in Hillsborough. After many to many > >years in the city, she now lives and teaches in . We were raised >in > >Palma Ceia. I wouldn't waste dynamite on that city. (Not that I feel > >strongly about FL or anything!!) > > > >Oh also, there are few to none supports or help after school leaves. >Waiver > >is a MYTH down that way. The good thing is that with elder protection >laws > >now in place, most are worded as " elder and disabled " , which does give >SOME > >limited protection for abuse and neglect. > > > > > > > > > > > >Sara - Choose to make lemonade, not complain about the lemons. > > > > > > > > > > > > >From: charlyne olko > > >Reply-To: > > >To: > > >Subject: Re: Sara/Fl > > >Date: Fri, 16 Feb 2007 22:42:08 -0800 (PST) > > > > > >Sara, what's stands in my mind when I hear about Hillsborough County is > > >reading about the landmark Whitehead sped case. Most of our friends >live > >in > > >Gibsonton, Riverview and Ruskin. I will keep Fl as a nice place to >visit. > > >My inlaws are in Sarasota. > > > Charlyne > > > Mom to Zeb 14 DS/OCD/ASD? > > > > > >sara cohen > >wrote: > > > Since my brother and sister (and until January, my mother) are > > >all in FL we > > >considered Fl for retirement - even though I HATED Tampa when I was > >forced > > >to live there as a teen. BUT, my sister who has taught for 35 years in > > >Hillsborough County, reported to me about the separate schools for KIDS > > >LIKE > > >THESE and I wrote the state to find out about supports (and listened to > >our > > >sisters from Fl on this list), FL is the next to last place I would >move. > >I > > >wanted warmer weather, but no humidity. So I opted for what the people > >here > > >call " Half back Land " , the place where Fl people heading back north > > >stop!!! > > > > > >And I am learning that supports are available if one asks and asks. The > > >schools where I am are good IMHO> > > > > > >Sara - Choose to make lemonade, not complain about the lemons. > > > > > > >From: charlyne olko > > > >Reply-To: > > > >To: > > > >Subject: Re: This weather/Sherry Donna > > > >Date: Fri, 16 Feb 2007 07:47:39 -0800 (PST) > > > > > > > >My dh plowed snow for years. He had the school contracts and did the > > > >arrivals and departure roads for the airport. He would move to Fl in >a > > > >moments notice if I said yes. I am not to keen on the schools in Fl >and > > > >hesitate to move becuase of Zeb. > > > > Charlyne > > > > Mom to Zeb 14 DS/OCD/ASD? > > > > > > > >duffey48@... wrote: > > > > > > > >In a message dated 2/15/2007 12:11:09 P.M. Eastern Standard Time, > > > >charlyne1121@... writes: > > > > > > > >Dh would love to move to a warmer climate but after my recent visit >to > >Fl > > >I > > > >got into the car and was bitten on my arm by a fire ant. The nasty >welt > > > >reminded me that New England is not so bad. > > > > > > > >I love ALL seasons. Even the cold. And I love snow. I honestly don't > > > >think I could live somewhere that didn't get snow. Duff, however. > > >despises > > > >the cold. Probably because the memories it brings back of his early > >days > > > >in the family heating oil business......no matter what you did, >driving > > > >that > > > >oil truck, nothing could warm you up! Of all the seasons, my favorite > >is > > > >Fall. I love the colors, the smells, the crispness....and I always > >think > > > >of the smell of pencils and fresh books!!!!! > > > >Donna (who obviously places great import on her olfactory >unit....LOL) > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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