Guest guest Posted November 10, 2006 Report Share Posted November 10, 2006 Sara- Thank-you. I value your onpinion. Donnell sara cohen wrote: Beautifully said. (((hugs))) Sara - Choose to make lemonade, not complain about the lemons. > >Reply-To: >To: >Subject: Re: Re: New here--anyone in Seattle/Bellevue? more >advice needed >Date: Thu, 9 Nov 2006 23:01:53 -0800 (PST) > >Tina- > We are still looking into this DS/ASD diagnosis for our son, DJ. We are >waiting to be able to see someone we can really trust to give us their >assessment. But I can't help but hear your pain and respond to it tonight. > I explained to someone just the other day that it is like feeling like >there is something really wrong with you, like you have symptoms of cancer. > You want to find the best doctor available to examine you and you really, >truly in your heart-of-hearts want them to tell you that you don't have >cancer--and yet if you do, you want them to tell you that you do. You can't >just have any doctor tell you that, you must have one you have confidence >in. YES---you can have very ambivalent feelings about seeking this >diagnosis for your child. And yet you know that you want your child to >receive the best education and medical care that they need. Perhaps in >your reading you have come to realize that autism in a child with down >syndrome can look different than > autism in a child that does not have down syndrome. And of course, there >are a lot of myths about autism, like kids with autism are not loving or >will not look you in the eye. Many of the moms on this list (and dads too) >will say this is not how their kiddos are. Many ARE loving and look you in >the eye, but there is that about their children that drove them to seek out >the opinion of a professional that they trusted to answer questions about >their children that weren't answered just by the down syndrome diagnosis. >We all grieve for what we believe we have lost, that imaginary child that >we dreamed of having. But we love and work at coming to know the child we >have. It is not unusual to feel confused. I still am. Some days I'm >convinced DJ has no other concerns than the down syndrome and all the >accompanying medical needs that he came to us with. Then I see him >stimming instead of interacting, choosing pictures to tell us his needs >over speaking to us, escaping > from our supervision to follow the line painted on the parking lot only >to be raced after and caught up with a block away-his eyes free of any fear >and and only filled with the thought of following the road as it unwound >before him. We have our moments of engagement, where I know he is " there " >in the moment and interacting with me or his dad or sister. And then there >are the many hours when he is content to sit and rock to his favorite CD's >playing over and over again. > > No, your confusion is understandable and appropriate. But it does serve >a purpose. To cause us to reach out to find someone we can trust, who will >give meaning and understanding to us about the behaviors of our children >that cause us to feel, deep inside, that there is something more to our >child than just down syndrome. When the real answers come, we will >undoubtedly feel grief, but we will also know a peace that says that we >have arrived at the right answer to our questions. > > Hugs- > Donnell (mom to DJ-age 11) > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2007 Report Share Posted March 21, 2007 Being that I can't stand pottys, we got a lovely padded inset ring for Elie, and steps with side rails (he was soooooo tiny when we started!) The toilet I don't think was the issue. I believe that it was a matter of understanding bodies messages. Thus, giving lots to drink so the bladder is full and lots of experience voiding works. We did use gentle fiber laxatives at one point (like very small amounts of Miralax) . But I really donot feel that was affective (It was a docs recommendation.). Sara - Choose to make lemonade, not complain about the lemons. >From: mfroof@... >Reply-To: >To: >Subject: Donnell >Date: Tue, 20 Mar 2007 21:18:48 EDT > >Hi, Everyone....Donnell....I trained both Gareth and his brother that way. >I did it in the summer time and sat their potty chair on a thick towel in >the >family room. They both went butt naked for the morning and afternoon >while >watching TV or playing. The chair was right there and I constantly >reminded >them to " sit on the chair and see if you can go. " I never made a big deal >out of mistakes. If they pooped on the carpet or floor, I would pick it >up >with toilet paper and place it in their potty. I would then wipe their >butts >and together we would dump it down the big toilet. After they get the idea >down >and use it appropriately, you slowly move it out of the family room and >towards the bathroom. When it came to the big toilet, I had to place a >stool >under G's feet. At first, Gareth was scared to death of the big toilet. I >also >learned that he had to do his own 'movements' in order to pee and poop. >He >always is bent over in half in order to do either. Looks funny, but >works >for him.....and me!!! Sometimes we have to think out of the box in order >for >our kids to 'get it.' >Take care, Everyone. >Margaret > > > >************************************** AOL now offers free email to >everyone. > Find out more about what's free from AOL at http://www.aol.com. > > > Quote Link to comment Share on other sites More sharing options...
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