Re: Seizures and Service Animals(Need advice!!)

[Guest guest]

Hi ~

I am sorry I don't have any advice for you, but I am sure someone on this list

will. I just wanted to tell you to hang in there - I'm know what you're all

going through is not easy.

Becky

Laci Richter wrote:

I need advice. I'm beside myself right now.

My 15 yr old son Landon, has . When he ws an infant, he had

infantile spasms, a semi-epileptic disorder, that required we put him

on Klonopin. When he was 2 years old, he was weened off the

medications. for 13 1/2 years or so, he had not had another

seizure....until now.

On October 12th, 2006, Landon had what the paramedics called a petit

mal seizure. My 11 year old son, Skylar, was the one who caught it,

and alerted me at 5am.(My sons all share a room for now, I have 3 of

them, but we are buying a new home and soon, only Landon and my

youngest son, Hunter who is 8 will share a room.)Skylar described the

seizure to me and said he thought Landon was cold and tried to give

him a blanket, he only came to get me when Landon started kicking him

and " wasn't breathing well " . I came in on the tail end of the seizure,

the activity I saw, I could only describe as someone who's having a

bad dream. I called 911, not because I knew it was a seizure(although

I suspected it to a point), but because of his breathing. Landon is

asthmatic, and we've had many trips on the ambulance due to croup, and

pneumonia and asthma attacks. The paramedics noted that, by the time

they got here, he was sleeping. Classic signs of a seizure. They did

not transport him to the hospital, due to his combativeness, they

wanted me to take him in on my own. I did that, and we determined that

all his blood work, etc looked fine, and that we wouldnt bother with

Neuro unless he had others. Since I hadn't actually seen the whole

seizure, I prayed it was a fluke.

Much to my dismay, it isn't. This morning at 8am, while on the phone

with my mother, I sat Landon down for his morning oatmeal. 1 minute

later the oatmeal was on the floor and so was Landon and myself. My

husband heard the bowl hit the floor and alerted me to the seizure, I

hung up the phone and helped my son out of the chair onto the

linoleum. This is the first real seizure I've ever seen him have.

Minus the infantile spasms, which are nothing at all like this

activity. I'm totally beside myself right now. I have no idea what to

do or not to do. It took him one month to have another one, but I have

no idea what's triggered them or how often we'll be dealing with this.

After the seizure was over, he actually tried to crawl out of the

kitchen, it was painful to watch. I helped him lie down on the living

room floor and then went and vomited. Now that I know what kind of

seizures we're talking about, I'm wondering if I should take some

other precautions.

Does anyone here, have, or know anyone who has, a Seizure Response

Dog? I have a slew of questions reguarding this possiblity. Also,

anyone here who is also dealing with seizure activity that has advice,

stories, etc. I'm all ears...or eyes as the case may be.

Wow, sorry for the novel, had to get it off my chest.

---------------------------------

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[Guest guest]

Laci,

I would immediately make an appointment with a neurologist to evaluate

Landon and go from there. Landon’s primary care physician could

recommend one if you don’t know a neurologist to take him to.

A quick Yahoo search under seizure service dog came up with these two

sites that may be of interest to you.

HYPERLINK

" http://www.uwsp.edu/psych/dog/LA/sapp1.htm " http://www.uwsp.edu/psych/do

g/LA/sapp1.htm and this has a link to Paws with a Cause.

Prayers for all.

Louise, Mom to 44, DS, Deaf, ASD

Seizures and Service Animals(Need advice!!)

I need advice. I'm beside myself right now.

My 15 yr old son Landon, has . When he ws an infant, he had

infantile spasms, a semi-epileptic disorder, that required we put him

on Klonopin. When he was 2 years old, he was weened off the

medications. for 13 1/2 years or so, he had not had another

seizure....until now.

On October 12th, 2006, Landon had what the paramedics called a petit

mal seizure. My 11 year old son, Skylar, was the one who caught it,

and alerted me at 5am.(My sons all share a room for now, I have 3 of

them, but we are buying a new home and soon, only Landon and my

youngest son, Hunter who is 8 will share a room.)Skylar described the

seizure to me and said he thought Landon was cold and tried to give

him a blanket, he only came to get me when Landon started kicking him

and " wasn't breathing well " . I came in on the tail end of the seizure,

the activity I saw, I could only describe as someone who's having a

bad dream. I called 911, not because I knew it was a seizure(although

I suspected it to a point), but because of his breathing. Landon is

asthmatic, and we've had many trips on the ambulance due to croup, and

pneumonia and asthma attacks. The paramedics noted that, by the time

they got here, he was sleeping. Classic signs of a seizure. They did

not transport him to the hospital, due to his combativeness, they

wanted me to take him in on my own. I did that, and we determined that

all his blood work, etc looked fine, and that we wouldnt bother with

Neuro unless he had others. Since I hadn't actually seen the whole

seizure, I prayed it was a fluke.

Much to my dismay, it isn't. This morning at 8am, while on the phone

with my mother, I sat Landon down for his morning oatmeal. 1 minute

later the oatmeal was on the floor and so was Landon and myself. My

husband heard the bowl hit the floor and alerted me to the seizure, I

hung up the phone and helped my son out of the chair onto the

linoleum. This is the first real seizure I've ever seen him have.

Minus the infantile spasms, which are nothing at all like this

activity. I'm totally beside myself right now. I have no idea what to

do or not to do. It took him one month to have another one, but I have

no idea what's triggered them or how often we'll be dealing with this.

After the seizure was over, he actually tried to crawl out of the

kitchen, it was painful to watch. I helped him lie down on the living

room floor and then went and vomited. Now that I know what kind of

seizures we're talking about, I'm wondering if I should take some

other precautions.

Does anyone here, have, or know anyone who has, a Seizure Response

Dog? I have a slew of questions reguarding this possiblity. Also,

anyone here who is also dealing with seizure activity that has advice,

stories, etc. I'm all ears...or eyes as the case may be.

Wow, sorry for the novel, had to get it off my chest.

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[Guest guest]

Hello Laci

I am sorry to hear that your son has started to have seizure activity again(My

son Tim is 19 and had infantile spasms at 6mo, went on acth and weened to

prednizone and the nothing...we are still holding our breath......so far so

good)

Do you have a good neurologist? Harriet Kang at Montefiore Hosp in NYC is

great..she treated Tim as an infant..if anything started up again , I would

return to her. I don't have any in on seizure dogs..but it sounds like a great

idea.. my thoughts and prayers are with your family.

Brigid

Seizures and Service Animals(Need advice!!)

I need advice. I'm beside myself right now.

My 15 yr old son Landon, has . When he ws an infant, he had

infantile spasms, a semi-epileptic disorder, that required we put him

on Klonopin. When he was 2 years old, he was weened off the

medications. for 13 1/2 years or so, he had not had another

seizure....until now.

On October 12th, 2006, Landon had what the paramedics called a petit

mal seizure. My 11 year old son, Skylar, was the one who caught it,

and alerted me at 5am.(My sons all share a room for now, I have 3 of

them, but we are buying a new home and soon, only Landon and my

youngest son, Hunter who is 8 will share a room.)Skylar described the

seizure to me and said he thought Landon was cold and tried to give

him a blanket, he only came to get me when Landon started kicking him

and " wasn't breathing well " . I came in on the tail end of the seizure,

the activity I saw, I could only describe as someone who's having a

bad dream. I called 911, not because I knew it was a seizure(although

I suspected it to a point), but because of his breathing. Landon is

asthmatic, and we've had many trips on the ambulance due to croup, and

pneumonia and asthma attacks. The paramedics noted that, by the time

they got here, he was sleeping. Classic signs of a seizure. They did

not transport him to the hospital, due to his combativeness, they

wanted me to take him in on my own. I did that, and we determined that

all his blood work, etc looked fine, and that we wouldnt bother with

Neuro unless he had others. Since I hadn't actually seen the whole

seizure, I prayed it was a fluke.

Much to my dismay, it isn't. This morning at 8am, while on the phone

with my mother, I sat Landon down for his morning oatmeal. 1 minute

later the oatmeal was on the floor and so was Landon and myself. My

husband heard the bowl hit the floor and alerted me to the seizure, I

hung up the phone and helped my son out of the chair onto the

linoleum. This is the first real seizure I've ever seen him have.

Minus the infantile spasms, which are nothing at all like this

activity. I'm totally beside myself right now. I have no idea what to

do or not to do. It took him one month to have another one, but I have

no idea what's triggered them or how often we'll be dealing with this.

After the seizure was over, he actually tried to crawl out of the

kitchen, it was painful to watch. I helped him lie down on the living

room floor and then went and vomited. Now that I know what kind of

seizures we're talking about, I'm wondering if I should take some

other precautions.

Does anyone here, have, or know anyone who has, a Seizure Response

Dog? I have a slew of questions reguarding this possiblity. Also,

anyone here who is also dealing with seizure activity that has advice,

stories, etc. I'm all ears...or eyes as the case may be.

Wow, sorry for the novel, had to get it off my chest.

[Guest guest]

Laci,

I have no experience with seizures. I'm sure someone else will respond who

has. But I agree with the other posting I see: contact your pediatrician and

get an appointment as soon as possible with a neurologist. Where are you

located? Maybe someone on the list can recommend a Neuro. in your area. The

only thing I can offer is my prayers for you, Landon, and your family as you

tackle this challenge together. But I know that prayer is powerful from my own

experience. Poor Landon! He probably doesn't understand what is happening to

him. I know the group will be helpful at this time. Let us know how things go.

Hugs,

Donnell (mom to DJ-age 11)

Laci Richter wrote:

I need advice. I'm beside myself right now.

My 15 yr old son Landon, has . When he ws an infant, he had

infantile spasms, a semi-epileptic disorder, that required we put him

on Klonopin. When he was 2 years old, he was weened off the

medications. for 13 1/2 years or so, he had not had another

seizure....until now.

On October 12th, 2006, Landon had what the paramedics called a petit

mal seizure. My 11 year old son, Skylar, was the one who caught it,

and alerted me at 5am.(My sons all share a room for now, I have 3 of

them, but we are buying a new home and soon, only Landon and my

youngest son, Hunter who is 8 will share a room.)Skylar described the

seizure to me and said he thought Landon was cold and tried to give

him a blanket, he only came to get me when Landon started kicking him

and " wasn't breathing well " . I came in on the tail end of the seizure,

the activity I saw, I could only describe as someone who's having a

bad dream. I called 911, not because I knew it was a seizure(although

I suspected it to a point), but because of his breathing. Landon is

asthmatic, and we've had many trips on the ambulance due to croup, and

pneumonia and asthma attacks. The paramedics noted that, by the time

they got here, he was sleeping. Classic signs of a seizure. They did

not transport him to the hospital, due to his combativeness, they

wanted me to take him in on my own. I did that, and we determined that

all his blood work, etc looked fine, and that we wouldnt bother with

Neuro unless he had others. Since I hadn't actually seen the whole

seizure, I prayed it was a fluke.

Much to my dismay, it isn't. This morning at 8am, while on the phone

with my mother, I sat Landon down for his morning oatmeal. 1 minute

later the oatmeal was on the floor and so was Landon and myself. My

husband heard the bowl hit the floor and alerted me to the seizure, I

hung up the phone and helped my son out of the chair onto the

linoleum. This is the first real seizure I've ever seen him have.

Minus the infantile spasms, which are nothing at all like this

activity. I'm totally beside myself right now. I have no idea what to

do or not to do. It took him one month to have another one, but I have

no idea what's triggered them or how often we'll be dealing with this.

After the seizure was over, he actually tried to crawl out of the

kitchen, it was painful to watch. I helped him lie down on the living

room floor and then went and vomited. Now that I know what kind of

seizures we're talking about, I'm wondering if I should take some

other precautions.

Does anyone here, have, or know anyone who has, a Seizure Response

Dog? I have a slew of questions reguarding this possiblity. Also,

anyone here who is also dealing with seizure activity that has advice,

stories, etc. I'm all ears...or eyes as the case may be.

Wow, sorry for the novel, had to get it off my chest.

[Guest guest]

A huge thank you to everyone who's posted responses to this! Thank you

tons.

I live in Graham, Texas. Back in '91 when we had first been dealing

with this issue, he saw a neurologist at the Denver Children's

Hospital. That was way back when I lived in my home state of Wyoming.

We live near Dallas/Ft. Worth now, and I'm positive that we'll be

making a trip to Cook's in Ft. Worth.

As for the Dog links, I will certainly check those out. And thank you

for those! I will certainly let everyone know what happens!

In the meantime, anyone with advice or stories for seizures, alert

dogs, Doc's, etc. Keep em coming.

Again, thank you, everyone!

> I need advice. I'm beside myself right now.

>

> My 15 yr old son Landon, has . When he ws an infant, he had

> infantile spasms, a semi-epileptic disorder, that required we put him

> on Klonopin. When he was 2 years old, he was weened off the

> medications. for 13 1/2 years or so, he had not had another

> seizure....until now.

>

> On October 12th, 2006, Landon had what the paramedics called a petit

> mal seizure. My 11 year old son, Skylar, was the one who caught it,

> and alerted me at 5am.(My sons all share a room for now, I have 3 of

> them, but we are buying a new home and soon, only Landon and my

> youngest son, Hunter who is 8 will share a room.)Skylar described the

> seizure to me and said he thought Landon was cold and tried to give

> him a blanket, he only came to get me when Landon started kicking him

> and " wasn't breathing well " . I came in on the tail end of the seizure,

> the activity I saw, I could only describe as someone who's having a

> bad dream. I called 911, not because I knew it was a seizure(although

> I suspected it to a point), but because of his breathing. Landon is

> asthmatic, and we've had many trips on the ambulance due to croup, and

> pneumonia and asthma attacks. The paramedics noted that, by the time

> they got here, he was sleeping. Classic signs of a seizure. They did

> not transport him to the hospital, due to his combativeness, they

> wanted me to take him in on my own. I did that, and we determined that

> all his blood work, etc looked fine, and that we wouldnt bother with

> Neuro unless he had others. Since I hadn't actually seen the whole

> seizure, I prayed it was a fluke.

>

> Much to my dismay, it isn't. This morning at 8am, while on the phone

> with my mother, I sat Landon down for his morning oatmeal. 1 minute

> later the oatmeal was on the floor and so was Landon and myself. My

> husband heard the bowl hit the floor and alerted me to the seizure, I

> hung up the phone and helped my son out of the chair onto the

> linoleum. This is the first real seizure I've ever seen him have.

> Minus the infantile spasms, which are nothing at all like this

> activity. I'm totally beside myself right now. I have no idea what to

> do or not to do. It took him one month to have another one, but I have

> no idea what's triggered them or how often we'll be dealing with this.

> After the seizure was over, he actually tried to crawl out of the

> kitchen, it was painful to watch. I helped him lie down on the living

> room floor and then went and vomited. Now that I know what kind of

> seizures we're talking about, I'm wondering if I should take some

> other precautions.

>

> Does anyone here, have, or know anyone who has, a Seizure Response

> Dog? I have a slew of questions reguarding this possiblity. Also,

> anyone here who is also dealing with seizure activity that has advice,

> stories, etc. I'm all ears...or eyes as the case may be.

>

> Wow, sorry for the novel, had to get it off my chest.

>

>

>

>

>

>

>

[Guest guest]

Oh, Laci... I am so sorry the seizures seem to be back in full force. I would

contact the local Service Dog Foundation and ask them.

Liz

Re: Seizures and Service Animals(Need advice!!)

Hi ~

I am sorry I don't have any advice for you, but I am sure someone on this list

will. I just wanted to tell you to hang in there - I'm know what you're all

going through is not easy.

Becky

Laci Richter wrote:

I need advice. I'm beside myself right now.

My 15 yr old son Landon, has . When he ws an infant, he had

infantile spasms, a semi-epileptic disorder, that required we put him

on Klonopin. When he was 2 years old, he was weened off the

medications. for 13 1/2 years or so, he had not had another

seizure....until now.

On October 12th, 2006, Landon had what the paramedics called a petit

mal seizure. My 11 year old son, Skylar, was the one who caught it,

and alerted me at 5am.(My sons all share a room for now, I have 3 of

them, but we are buying a new home and soon, only Landon and my

youngest son, Hunter who is 8 will share a room.)Skylar described the

seizure to me and said he thought Landon was cold and tried to give

him a blanket, he only came to get me when Landon started kicking him

and " wasn't breathing well " . I came in on the tail end of the seizure,

the activity I saw, I could only describe as someone who's having a

bad dream. I called 911, not because I knew it was a seizure(although

I suspected it to a point), but because of his breathing. Landon is

asthmatic, and we've had many trips on the ambulance due to croup, and

pneumonia and asthma attacks. The paramedics noted that, by the time

they got here, he was sleeping. Classic signs of a seizure. They did

not transport him to the hospital, due to his combativeness, they

wanted me to take him in on my own. I did that, and we determined that

all his blood work, etc looked fine, and that we wouldnt bother with

Neuro unless he had others. Since I hadn't actually seen the whole

seizure, I prayed it was a fluke.

Much to my dismay, it isn't. This morning at 8am, while on the phone

with my mother, I sat Landon down for his morning oatmeal. 1 minute

later the oatmeal was on the floor and so was Landon and myself. My

husband heard the bowl hit the floor and alerted me to the seizure, I

hung up the phone and helped my son out of the chair onto the

linoleum. This is the first real seizure I've ever seen him have.

Minus the infantile spasms, which are nothing at all like this

activity. I'm totally beside myself right now. I have no idea what to

do or not to do. It took him one month to have another one, but I have

no idea what's triggered them or how often we'll be dealing with this.

After the seizure was over, he actually tried to crawl out of the

kitchen, it was painful to watch. I helped him lie down on the living

room floor and then went and vomited. Now that I know what kind of

seizures we're talking about, I'm wondering if I should take some

other precautions.

Does anyone here, have, or know anyone who has, a Seizure Response

Dog? I have a slew of questions reguarding this possiblity. Also,

anyone here who is also dealing with seizure activity that has advice,

stories, etc. I'm all ears...or eyes as the case may be.

Wow, sorry for the novel, had to get it off my chest.

---------------------------------

Sponsored Link

Don't quit your job - take classes online and earn your degree in 1 year.

Start Today

[Guest guest]

I work as a instructional aide in a middle school and one of our students

has a medical alert dog. The dog is trained to alert us when the student is

going to have seizure. The dog will also stay right near her.

Let me know if you need more info and I will try and talk to her mom.

michelle

[Guest guest]

,

Yes, I'm definatly interested in more information about the dog that

your student uses. All I would need to know is, where the obtained the

dog and how long they had to wait for it, etc. Thank you so much in

advance. I will be contacting a couple of Service Dog organizations

after the Thanksgiving holiday. I will keep everyone up to date on how

things go there.

Thank you, everyone for your support!

>

> I work as a instructional aide in a middle school and one of our

students

> has a medical alert dog. The dog is trained to alert us when the

student is

> going to have seizure. The dog will also stay right near her.

>

> Let me know if you need more info and I will try and talk to her mom.

>

> michelle

>

>

>

[Guest guest]

nathan doesnt have seizures, but as a nurse i have cared for many children

in their homes who have seizres--main thing is safety safety safety, he

shouldnt be unatteneded, if he likes to play toys etc on the floor maybe remove

any

sharped corner tables etc. or just tables and breakables in general if his

seizrues involve wild bodily movements--also does he have a padded side rail

for his bed or mats or pillows on the floor around his bed or against the wall

some children i cared for wore a special padded helmet to help protect their

heads in the case of a seizure and they fall to the ground. All kept some

valium or ativan usually valium on hand which we gave asap during a seizure or

right after to help prevent more for awhile. During a seizure just keep him

safe on the floor is the best spot, monitor his airway, talk to him let him

know you are there, comfort him--dont stick anything in his mouth as im sure

you

know. Ive never seen anyone stop breathing during seizure but some do vomit

and aspirate on the vomit so if you dont have cpr/first aid i would get it

its inexspensive around $30 for a two year certification, if he starts to

vomit roll him to his side. Im sure your nuerologist will be able to help you

with these kind of issues. AS for the dog that sounds like a great idea!! i

know

they are exspensive but they are out there, i think i remember ones in

california or colorado, continue to dig in your area maybe find others who have

a

service dog and see how they went about getting theirs, and where they got it,

they are scattered around here and there. hope this helps some. many prayers

and hugs for you guys during such a difficult time. shawna

[Guest guest]

Laci-

Have you checked out this website?

http://www.canineassistants.org/index.html

They train seizure response dogs.

Hugs-

Donnell

(mom to DJ-age 11)

Laci Richter wrote:

I need advice. I'm beside myself right now.

My 15 yr old son Landon, has . When he ws an infant, he had

infantile spasms, a semi-epileptic disorder, that required we put him

on Klonopin. When he was 2 years old, he was weened off the

medications. for 13 1/2 years or so, he had not had another

seizure....until now.

On October 12th, 2006, Landon had what the paramedics called a petit

mal seizure. My 11 year old son, Skylar, was the one who caught it,

and alerted me at 5am.(My sons all share a room for now, I have 3 of

them, but we are buying a new home and soon, only Landon and my

youngest son, Hunter who is 8 will share a room.)Skylar described the

seizure to me and said he thought Landon was cold and tried to give

him a blanket, he only came to get me when Landon started kicking him

and " wasn't breathing well " . I came in on the tail end of the seizure,

the activity I saw, I could only describe as someone who's having a

bad dream. I called 911, not because I knew it was a seizure(although

I suspected it to a point), but because of his breathing. Landon is

asthmatic, and we've had many trips on the ambulance due to croup, and

pneumonia and asthma attacks. The paramedics noted that, by the time

they got here, he was sleeping. Classic signs of a seizure. They did

not transport him to the hospital, due to his combativeness, they

wanted me to take him in on my own. I did that, and we determined that

all his blood work, etc looked fine, and that we wouldnt bother with

Neuro unless he had others. Since I hadn't actually seen the whole

seizure, I prayed it was a fluke.

Much to my dismay, it isn't. This morning at 8am, while on the phone

with my mother, I sat Landon down for his morning oatmeal. 1 minute

later the oatmeal was on the floor and so was Landon and myself. My

husband heard the bowl hit the floor and alerted me to the seizure, I

hung up the phone and helped my son out of the chair onto the

linoleum. This is the first real seizure I've ever seen him have.

Minus the infantile spasms, which are nothing at all like this

activity. I'm totally beside myself right now. I have no idea what to

do or not to do. It took him one month to have another one, but I have

no idea what's triggered them or how often we'll be dealing with this.

After the seizure was over, he actually tried to crawl out of the

kitchen, it was painful to watch. I helped him lie down on the living

room floor and then went and vomited. Now that I know what kind of

seizures we're talking about, I'm wondering if I should take some

other precautions.

Does anyone here, have, or know anyone who has, a Seizure Response

Dog? I have a slew of questions reguarding this possiblity. Also,

anyone here who is also dealing with seizure activity that has advice,

stories, etc. I'm all ears...or eyes as the case may be.

Wow, sorry for the novel, had to get it off my chest.