ZEB

[Guest guest]

Gee - all this time I thought Zeb was short for Zebulon!!!

Sara - Choose to make lemonade, not complain about the lemons.

>

>Reply-To:

>To:

>Subject: Re: Brigid/Glasses

>Date: Thu, 2 Nov 2006 16:02:20 -0800 (PST)

>

>Hi Brigid,

> Thanks, yes the school had insisted and that's where the problems began.

>Zeb is the kind of kid that has to feel he has some control over his life.

>He could see that his typical peers took their glasses off and they were

>told they should wear them but it was their choice. The elementary school

>never gave Zeb that option and escalated the glasses issue. They backed off

>after an ed consultant explained better strategies to address the problem.

>Zeb is at a different school and they are on his back again. I have bought

>three pairs of glasses since school started. All people with DS have

>difficulty having glasses adjusted properly without that pronouced ear

>bone. Zeb's never fit exactly right and they drive him crazy. He can

>tolerate them only so long. I was just thinking you may have had some tips

>to help. My friend is an optician so she is always adjusting and

>straightening the frames for him. I buy all of the glasses at Costco at a

>good price and get $25 credit for the

> second pair. They know me well. They are just coming out with frames with

>self adjustable temples but they are extremely expensive. I may have to

>bite the bullet and buy a pair to resolve this problem. They suggested

>contacts but I can't even get mine into my eyes nevermind trying to do it

>for Zeb, LOL. Thanks, I like Zeb's name too. I was looking for something

>different, short and easy to write and memorize. My dh came up with the

>name and it stuck. Zeb has been sick all week and home from school. I am

>enjoying having him home. I too also enjoy hearing about your children.

> Charlyne

> Mom to Zeb 13 DS/OCD/ASD?

>

>brigid sullivan wrote:

> Charlyne

>My best gift was the school. They really insisted he wear them...and they

>were persistent about it. He is in a very small class(6-1-1) at Pathfinder

>Village, a private school for kids who have Down syndrome. It is

>residential, but we live only 16 miles from there so my school district

>sends him there, We are VERY happy with Pathfinder Village! It took over a

>year for it to really work..and yes, a couple of " lost " and broken

>ones...so I say just stick with it..and good luck...I always enjoy your

>post and hearing about Zeb...and I love the name!

>Brigid

> Debby

>

><<to those of you with a child that will wear the c pap i say

>wow how lucky you are sadly i know ethan never would bless you

>all and thank you debby - ethan 20>>

>

>Hi, Everyone....Debby....has Ethan had a sleep study done? Gareth (18 y/o)

>uses the C-Pap machine with two nasal plugs that rest up against his nose.

>We don't use the chin strap 'cuz he won't tolerate that and the full mask

>is

>too scary for him. Gareth started at just an hour or so at a time and

>gradually built up to all night. I think once the kids get comfortable with

>the

>air, they realize they are sleeping all night and not waking up gasping for

>air.

>Gareth refuses to sleep without it now because he knows it keeps him

>breathing. I slept with him for the first week, gently putting it back on

>through

>the night when he would take it off. You'd be surprised what our kiddos can

>do!!! Take care, Everyone.

>Margaret

>

>