Re: C.

[Guest guest]

can you tell me how to get to the chat room bfl

thanks firewalker

[Guest guest]

can you tell me how to get to the chat room bfl

thanks firewalker

[Guest guest]

i was thinking there was

[Guest guest]

i was thinking there was

[Guest guest]

there's a chat room??????????? TELL ME!

Cheryl

[Guest guest]

Hi ,

'Not a problem! Hairpieces have little combs to initially hold the hairpiece in place, then there are all kinds of 'wig pins' & clips -- like large bobby pins & hairclips to pin in between the combs, etc -- to hold everything in place. If you find a regular wig boutique, they will show you how to manage all this, comb it into your own hair, etc. --- so you don't look like you sat some kind of 'fuzzy' hat on top of your head. You will be surprised how natural all this can look, once you get the hang of it!

Another thing I neglected to mention was how much Soy Protein Drinks, helped my hair & nails get back to 'better than normal'. I prefer to use the protein powder mixed with juice, at home, as opposed to some canned drinks. I quit drinking out of any kind of cans years ago, and I prefer to mix my protein drinks with a little extra protein. This also helps my energy level greatly, in a week or less.

Please let me know if you have other questions or concerns.

Blessings,

Martha Murdock

NSIF

[Guest guest]

hi .

lollll it was right " etes " .

yes i'm from quebec province , i'm near montreal ( 25 minutes drive ).

you CELIA , where are you from ? .

i have learn english at school ,i was prety good , but at school they

don't teach english well .

i have learn more in 3 weeks ( worked in texas ) then the 10 years at

school . lolllllll .

now from couple years i write faster in english then french ....

outchhhhh my french teacher will kill me if she know that ..lollll .

but i don't realy SPEAK english because of my poor hearing , and i

have a lot of difficulty to prononce well .

but for reading and listening a conversation or movie in english i

have no trouble .

now i use more sign language to comunicate , a lot more faster and

more easy to use ..lollllll

and the funny thing about sign language , we can be at 100 feets away

and understand very well the one who " hand speak " to you ..lolllll

PATRICK .

> Sorry,

>

> My french is really bad, that should have been " Etre " vous de la

> belle Province ? Gosh, my old french teacher would cringe !

>

>

>

>

> Celia

[Guest guest]

,

I was right ? HA ! That's a riot. I should just go with my gut

instinct.

To answer your question, I'm from Toronto.

Celia

> hi .

> lollll it was right " etes " .

> yes i'm from quebec province , i'm near montreal ( 25 minutes

drive ).

>

> you CELIA , where are you from ? .

> i have learn english at school ,i was prety good , but at school

they

> don't teach english well .

> i have learn more in 3 weeks ( worked in texas ) then the 10 years

at

> school . lolllllll .

> now from couple years i write faster in english then french ....

> outchhhhh my french teacher will kill me if she know that ..lollll .

> but i don't realy SPEAK english because of my poor hearing , and i

> have a lot of difficulty to prononce well .

> but for reading and listening a conversation or movie in english i

> have no trouble .

>

> now i use more sign language to comunicate , a lot more faster and

> more easy to use ..lollllll

> and the funny thing about sign language , we can be at 100 feets

away

> and understand very well the one who " hand speak " to you ..lolllll

>

> PATRICK .

>

> > Sorry,

> >

> > My french is really bad, that should have been " Etre " vous de la

> > belle Province ? Gosh, my old french teacher would cringe !

> >

> >

> >

> >

> > Celia

[Guest guest]

You are tooooooooooooooooo cute you little song bird you!!!!

Love,

Happy B-day to you

Happy B-day to you

Happy B-day

Happy B-day to you

and many moorrrrreeee!!!!

Love ya!!!!

Liz

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[Guest guest]

In a message dated 5/5/2005 10:20:58 P.M. Eastern Standard Time,

ncogan@... writes:

Hi ,

Dr. Druker also only performs PCR on peripheral blood now.....even when

also doing a bma/bmb because he thinks it is more accurate (I think because

they have a greater volume of blood to work with).

, I agree with this but yesterday I talked with my oncologist and he

said that he wants me to come in now for a bone marrow biopsy because the PCR

testing I had done in March is not accurate enough for him to tell whether I am

in Chronic phase or not! Also, my PCR results went from .262 in fall of last

year to 1.21 this spring. I asked about FISH and he said I am still

undectable BCR/ABL but that test is not very good either. So he wants a

BMB/BMA

now. I tried so hard to escape, haha.

I wondered if you have heard much about the IFN/Gleevec trial that Dr.

Druker is doing? I am wondering whether I should put an add/on (even though I

hate

IFN) right now for the summer months to see if I cannot reduce my PCR?

Anyway, as far as the BMS trial goes, it went. I don't know what is going on

with

that. I called Dana Farber a couple of times and no one called me back, and I

was waiting for these results (PCR from March) to make up my mind and I only

just got them this week! Anyway, I just found it interesting that my onc.

is making me come in for a biopsy now. I would have though 12-14 vials of blood

were enough!

- Take care and email me sometime! - Lynne A.

[Guest guest]

>

>, I agree with this but yesterday I talked with my oncologist and he

>said that he wants me to come in now for a bone marrow biopsy because the

>PCR

>testing I had done in March is not accurate enough for him to tell whether

>I am

>in Chronic phase or not! Also, my PCR results went from .262 in fall of last

>year to 1.21 this spring. I asked about FISH and he said I am still

>undectable BCR/ABL but that test is not very good either. So he wants

>a BMB/BMA

>now. I tried so hard to escape, haha.

_________________

Hi Lynne,

I have been thinking about you.....but have been real busy and not as much

on the computer.

The PCR testing does not show other chromosomal abnormalities.......which

is a sign of disease

acceleration.....so, that is the reason to do one.

On PCR testing, is there is a 3x increase or more.....then this should be

investigated or monitored.

Your increase is more than 3x.....so it is reasonable to try to figure out

what is going on. But also, does this include the time that you were off

drug.....that could be the reason for the increase in your

ph+ count.

More written below.

>I wondered if you have heard much about the IFN/Gleevec trial that Dr.

>Druker is doing? I am wondering whether I should put an add/on (even

>though I hate

>IFN) right now for the summer months to see if I cannot reduce my PCR?

>Anyway, as far as the BMS trial goes, it went. I don't know what is going

>on with

>that.

I will see Dr. Druker the end of this month........I did go to OHSU the

other day for just a PCR test.

I would say that from the effect inf had on you (I do remember those

days!)....that you are pretty inf intolerant, and it would probably not be

a first choice for you.

More below.

>I called Dana Farber a couple of times and no one called me back, and I

>was waiting for these results (PCR from March) to make up my mind and I only

>just got them this week! Anyway, I just found it interesting that my onc.

>is making me come in for a biopsy now. I would have though 12-14 vials of

>blood

>were enough!

You need to really pester Dana Farber about where you are with the BMS

trial.....insist on talking to someone. I can't see doing a bma with your

local onc, if you might need one with Dana Farber soon?

I have heard, but unofficially, that the phase 2 trial might have enough

patients soon......so it could end..........but that they are gearing up

for the phase 3 trial in a couple months.

OHSU has not, to my knowledge open a phase 2 trial (at least not for

chronic)........and I heard that the chronic won't open until the end of

July (which sounds like the timing for a phase 3 trial to me).

So, I would really bug DF to see if you will be worked up for the phase 2

trial........for some reason the trial centers seem a bit secretive about

all this.......but I think part of the reason is that the timing of things

is often out of their control (but they should say that!)..........

You can always e-mail me privately if you have other questions or concerns.

Maui Nanc

>- Take care and email me sometime! - Lynne A.

[Guest guest]

Thanks Wanda.

Isn't it wonderful how well Virginia is doing and I am so proud of her also.

It is good to see some of our seasoned lifelifters posting!!! How are

you?

Everything is going well here, we're getting a little snow here in our

dessert and are enjoying a little bit of cold before the heat hits again.

Love,

C

On 1/22/07, winwithlifelift <winwithlifelift@...> wrote:

>

> Hi ,

>

> I miss your posts. I hope all is going wonderful in your beautiful

> part of the Country.

>

> Isn't Virginia doing awesome! I am soooo happy and proud of her.

>

> Love, Wanda.

>

>

> > >

> > >

> > > TODAY I'M 53 I stopped at 50 breaths.

> > >

> > > YEAH!!!!!!!!!!!!!!!!!!!!!!!!!for the home team.

> > >

> > > __________________________________________________________

> > > Never miss an email again!

> > > Toolbar alerts you the instant new Mail arrives.

> > > http://tools.search./toolbar/features/mail/

> > >

> > >

> >

> >

> >

[Guest guest]

And I am always so proud of YOU, Wanda, my friend!!! So very, very proud of

you, sweetheart!!!

Love always,

Pat

C.

Hi ,

I miss your posts. I hope all is going wonderful in your beautiful

part of the Country.

Isn't Virginia doing awesome! I am soooo happy and proud of her.

Love, Wanda.

> >

> >

> > TODAY I'M 53 I stopped at 50 breaths.

> >

> > YEAH!!!!!!!! !!!!!!!!! !!!!!!!!for the home team.

> >

> > ____________ _________ _________ _________ _________ _________ _

> > Never miss an email again!

> > Toolbar alerts you the instant new Mail arrives.

> > http://tools. search.. com/toolbar/ features/ mail/

> >

> >

>

>

>

[Guest guest]

Thanks for the insight :-)

- C.

Mom to Cassie 16 PCOS, Austin 14 ADHD and a 3.5 HFA/AS & SPD/SID

( ) C.

Beleive it or not they do transition. I got Austin into EELP through the

public shcool system and it's not based on income. Only the child's need for

extra education. This class contains children that are having issues as well.

Austin is 3 and just turned 3 in August and was applicable for this program.The

class contains children from the ages of 3 -5 and it's been wonderful for him.

It took him 2 months to adjust. He still has a hard time. The best advice is to

try to get to know the staff by name. His teacher I talk to every morning and

the teacher's aides I talk with all the time even on a personal level. It's

important to have that type of relationship because if your child has some extra

needs they are all to happy to help out in those. Also we just found out that

Austin has Aspergers Syndrome I just told his teacher on Monday. She told me

that she has worked with Severely Autistic children from middle school age to

pre-K for 9 years. So I can see why she is qualified

to work with children of all different delays and issues. Also she said that

making a picture chart for austin to tell him what's next can help him to

mentally visualize what we are doing next. Like going to bed at night. A faculty

that works with you on a daily basis is a key component to your child's success.

Don't be afraid to let them go a full day either when you feel comfortable. I

thought Austin would have a hard time especially only just turning 3 but because

I let go and said ok a full day he will now be integrated with other children 2

-3 years from now. They said he is catching up by leaps and bounds. As a parent

they are your baby and no one can take care of them as good as you do that will

never change. But giving that child independence also helps them to grow in ways

you just can't imagine. My kid isn't even the same kid and it's just been

awesome the progress he's made.

Ada Tickle, Tampa Florida

luvmy2arabians <luvmy2arabians@...> wrote:

You can never be too overprotective when it comes to a special needs

child! You advocate for her girl! Get her what she needs - only you

as a mother know exactly what will help her to succeed.

>

> We have applied to get a into our states (NC) More at 4 Program,

it is a preschool program done through the school systems. I received

a phone call yesterday stating that we made $600. a year to much money

to qualify...but the director was writing a letter to petition that

she be able to get in any way because of her Autism (that is how the

school system classifies ASD/HFA/AS) They woman I spoke to said she

thought it would go through because he, the director, normally gets

what he petitions for.

> She asked if we wanted a to stay 1/2 day or full day...and once

again I told her we wanted 1/2 day 3 days a week and I would be there

at the beginning to help a transition. I cant fathom how she will

do I have never been able to leave her except at our church nursery.

I do think she has made progress in the 1 hour, once a week she

currently goes to a classroom...but it still scares me that she will

slip through the cracks and be un noticed because if you don't know

what to look for you will not understand her or it will be to late and

there will be major issues, meltdowns ect.

>

> How did you guys get through this?

>

> We will have an IEP meeting before school starts and I have copied

tons of IEP stuff already to reference but I don't want to be the

overprotective mom...just the advocating mom :-)

>

> - C.

> Mom to Cassie 16 PCOS, Austin 14 ADHD and a 3.5 HFA/AS & SPD/SID

>

>

>

[Guest guest]

Hi , how was your recent trip? I don't go online much but did hear that

you went to see Norma and Bob. How was the weather and the trip overall?

Have been thinking of you. - Lynne A.

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