Re: Ritalin

[Guest guest]

Liz ~

Dylan was never a big eater, but has a tiny appetite, if any, on the ritalin.

This was a huge problem because with the diabetes he's got to eat snack & meals

on schedule (well, it's way easier for us that way- but doesn't always work that

way).

They monitor his weight, he's 72 pounds & 11 years, quite the slim guy. They

have us giving him food with the highest calorie/fat content so he's getting the

most out of what he eats.

We tend to find that he eats best in the morning before the ritalin is given,

and when he gets his second dose is right in between his first 4 hour pill

wearing off and taking his second dose. School has ensure on hand if he won't

eat. The meal we struggle most with is dinner, becuase it's right in the middle

of the 3rd dose of the day. What usually happens is he has a couple chicken

nuggets at dinner time then around 7-8 he is hungry & will eat maybe a sandwich

and I usually try and talk him in to a yogurt or ice cream (no talking with the

ice cream thorugh!).

Snacks came with routine - he didn't want them at first, since he's such a

picky eater it's hard to find stuff he likes. Even though it is repetitive he

has yogurt every day for morning and afternoon snack, or he's offered pudding or

applesauce, but usually declines.

When he flat out refuses to eat & I have to get carbs in him because of the

diabetes (or calories for that matter) I have been giving him a chocolate

ensure, which we call " chocolate milk " and he loves it. He thinks it's a little

individual chocolate milk from the store and thinks he's cool.

How have Tori's behaviors been? Are you seeing a difference with the ritalin?

Hang in there. Hope this helped a little

Becky

iz.desantis@...> wrote:

Ok, I need to pick brains. Tori has lost a great deal of her appetite

on the Ritalin. The child who was a non-stop eater, now barely eats anything and

she is so lethargic when coming down off of it. I think it maybe wreaking havoc

on her.

Liz

" Success manifests in small daily events, not only in accomplishing great

things " - Remez Sasson

[Guest guest]

Hey, Becky! Thanks for your info. Tori has always been a fantastic eater

(actually non-stop) but her weight is good. This Ritalin has reduced her to

perhaps a bowl of dry cheerios, maybe a pretzel rod or 2 and that's about it for

the day. She still is asking for drinks. I spoke with the Dr. tonite and she

recommended the Ensure, etc. just as you posted. However, Tori is big on taste

& liquids more than with food. She will only drink certain juices, milks, etc..

The med has helped her impulsivity, and she is doing really well in school

now-but she is real drippy all day-not our happy, go lucky kid. I miss that

part. Well, we are going to attempt Adderall (time-released) this weekend and

see how that goes. Wish us luck!!

Liz

Re: Ritalin

Liz ~

Dylan was never a big eater, but has a tiny appetite, if any, on the ritalin.

This was a huge problem because with the diabetes he's got to eat snack & meals

on schedule (well, it's way easier for us that way- but doesn't always work that

way).

They monitor his weight, he's 72 pounds & 11 years, quite the slim guy. They

have us giving him food with the highest calorie/fat content so he's getting the

most out of what he eats.

We tend to find that he eats best in the morning before the ritalin is given,

and when he gets his second dose is right in between his first 4 hour pill

wearing off and taking his second dose. School has ensure on hand if he won't

eat. The meal we struggle most with is dinner, becuase it's right in the middle

of the 3rd dose of the day. What usually happens is he has a couple chicken

nuggets at dinner time then around 7-8 he is hungry & will eat maybe a sandwich

and I usually try and talk him in to a yogurt or ice cream (no talking with the

ice cream thorugh!).

Snacks came with routine - he didn't want them at first, since he's such a

picky eater it's hard to find stuff he likes. Even though it is repetitive he

has yogurt every day for morning and afternoon snack, or he's offered pudding or

applesauce, but usually declines.

When he flat out refuses to eat & I have to get carbs in him because of the

diabetes (or calories for that matter) I have been giving him a chocolate

ensure, which we call " chocolate milk " and he loves it. He thinks it's a little

individual chocolate milk from the store and thinks he's cool.

How have Tori's behaviors been? Are you seeing a difference with the ritalin?

Hang in there. Hope this helped a little

Becky

iz.desantis@...> wrote:

Ok, I need to pick brains. Tori has lost a great deal of her appetite on the

Ritalin. The child who was a non-stop eater, now barely eats anything and she is

so lethargic when coming down off of it. I think it maybe wreaking havoc on her.

Liz

" Success manifests in small daily events, not only in accomplishing great

things " - Remez Sasson

[Guest guest]

Liz,

Hi there... I read the comment about Pediasure. Jordan is 11 and she's been

on three cans per day for about five years now. She is not a great eater at

all simply because of severe GERD issues which were resolved last year with

surgery. Now we're dealing with the psychological issues stemming from the

GERD. It's not a great weight gain, but the pediasure has helped. It comes

in five different ways: Vanilla with Fiber, Vanilla, Chocolate, Strawberry

and Banana Crème. Jordan does not like the strawberry flavored but she will

drink all the other flavors. I send a month's supply to school and she gets

it between 1 and 2pm. Initially the insurance wouldn't pick it up, but

because her doctor said she must be on 3 cans per day, the insurance went

ahead and authorized to pay for it. It's very costly, at over $60 per case,

I would not have been able to afford three cases per month on my own.

Judi

Re: Ritalin

> Hey, Becky! Thanks for your info. Tori has always been a fantastic eater

(actually non-stop) but her weight is good. This Ritalin has reduced her to

perhaps a bowl of dry cheerios, maybe a pretzel rod or 2 and that's about it

for the day. She still is asking for drinks. I spoke with the Dr. tonite

and she recommended the Ensure, etc. just as you posted. However, Tori is

big on taste & liquids more than with food. She will only drink certain

juices, milks, etc..

>

> The med has helped her impulsivity, and she is doing really well in school

now-but she is real drippy all day-not our happy, go lucky kid. I miss that

part. Well, we are going to attempt Adderall (time-released) this weekend

and see how that goes. Wish us luck!!

>

> Liz

[Guest guest]

Thanks, Judi!

Re: Ritalin

> Hey, Becky! Thanks for your info. Tori has always been a fantastic eater

(actually non-stop) but her weight is good. This Ritalin has reduced her to

perhaps a bowl of dry cheerios, maybe a pretzel rod or 2 and that's about it

for the day. She still is asking for drinks. I spoke with the Dr. tonite

and she recommended the Ensure, etc. just as you posted. However, Tori is

big on taste & liquids more than with food. She will only drink certain

juices, milks, etc..

>

> The med has helped her impulsivity, and she is doing really well in school

now-but she is real drippy all day-not our happy, go lucky kid. I miss that

part. Well, we are going to attempt Adderall (time-released) this weekend

and see how that goes. Wish us luck!!

>

> Liz

[Guest guest]

No problem Liz :-)

Judi

Re: Ritalin

Thanks, Judi!

[Guest guest]

Liz,

What dosage of Ritalin is Tori taking? And is this your first venture

with meds? (Sorry, I can't remember). Is it your pediatrician or a

psychiatrist that is doing the prescribing? I am just asking because

in an ideal world, you should be able to have frequent conversations

with your dr. about how Tori is doing with the dosing.

from

http://www.coreynahman.com/11_25_ADHD_drugs.html :

" Adderall is a pill that contains amphetamine and dextroamphetamine.

Ritalin was the first ADHD product to use methylphenidate as its

active ingredient. These days, brand name Ritalin is not used very

much. Patients take generic methylphenidate or they take one of the

new methylphenidate formulations such as Concerta or Metadate. "

In other words, if you are okay with what ritalin is doing (sounds

like you are iffy; I don't blame you) then adderall may act

differently for Tori than either Metadate or Concerta. If you are okay

with the *action* of the ritalin, but want it tweaked, I would ask the

dr. to re-consider the dosage OR try Metadate or Concerta. I know it

is harder to come by the 10mg of metadate; the 20 mg are more common.

I don't know what the dosing of concerta is like.

If you want to consider another stimulant drug that has a different

chemical makeup, then go with the adderall. I hope I am not confusing

you.

Pete has been on Metadate for about four years now. Ritalin was way

too short-acting, and his behavior was " choppier " on it. But he only

takes a very low dose of Metadate- just a 10 mg capsule, which is

time-released. Since he is also on risperdal, which can cause weight

GAIN, he hasn't had the weight loss issues that the stimulants can.

In our experience, just a stimulant alone did not help Pete's

behaviors overall. It was the combination (well, he is also on

clonidine, was well as the risperdal and metadate.)

Pete had ben extremely hyperacitve and just so quick and impulsive

that safety was always an issue and learning was challenged by his

lack of concentration. While the combo of meds has him a little tired

mid-morning, his personality has been pretty much unaffected.

The other thing that our doctor has always stressed when discussing

" behavioral " meds is the adage, " start LOW and go SLOW " - begin with

the smallest recommended dose and increase it gradually based on the

results you are or are not getting. Every time we started Pete on a

new med, I would be calling the dr. at least once a week with updates

so he and the nurse were very tuned in to how things were working or not.

The good thing with ritalin is that it has a very short half life so

you can stop it fairly easily.

One thing that I added to Pete's bedtime prayers is that his meds

only help and never hurt him. It is a hard thing to make this decision

and know that there is no clear cut answer.

Good luck!

Beth Mum to Pete (aka Ben), age 16 Columbus Ohio area

>

> Hey, Becky! Thanks for your info. Tori has always been a fantastic

eater (actually non-stop) but her weight is good. This Ritalin has

reduced her to perhaps a bowl of dry cheerios, maybe a pretzel rod or

2 and that's about it for the day. She still is asking for drinks. I

spoke with the Dr. tonite and she recommended the Ensure, etc. just as

you posted. However, Tori is big on taste & liquids more than with

food. She will only drink certain juices, milks, etc..

>

> The med has helped her impulsivity, and she is doing really well in

school now-but she is real drippy all day-not our happy, go lucky kid.

I miss that part. Well, we are going to attempt Adderall

(time-released) this weekend and see how that goes. Wish us luck!!

>

> Liz

[Guest guest]

Hi, Beth and thanks for the info. Tori also takes Prozac and Risperdal.

Unfortunately, the longer she is on the Ritalin, the more lethargic she is

getting. She is not her happy go luck self and we need that back. It is,

however, helping with her academically. Her appetite is almost down to nothing

compared to how she normally eats non-stop all day long. We are going with the

Adderall this weekend to see what happens. I want my cheery little girl back

without the impulsivity and aggressiveness-if that is even possible. Here's

hoping we find a happy medium!

Liz

Re: Ritalin

Liz,

What dosage of Ritalin is Tori taking? And is this your first venture

with meds? (Sorry, I can't remember). Is it your pediatrician or a

psychiatrist that is doing the prescribing? I am just asking because

in an ideal world, you should be able to have frequent conversations

with your dr. about how Tori is doing with the dosing.

from

http://www.coreynahman.com/11_25_ADHD_drugs.html :

" Adderall is a pill that contains amphetamine and dextroamphetamine.

Ritalin was the first ADHD product to use methylphenidate as its

active ingredient. These days, brand name Ritalin is not used very

much. Patients take generic methylphenidate or they take one of the

new methylphenidate formulations such as Concerta or Metadate. "

In other words, if you are okay with what ritalin is doing (sounds

like you are iffy; I don't blame you) then adderall may act

differently for Tori than either Metadate or Concerta. If you are okay

with the *action* of the ritalin, but want it tweaked, I would ask the

dr. to re-consider the dosage OR try Metadate or Concerta. I know it

is harder to come by the 10mg of metadate; the 20 mg are more common.

I don't know what the dosing of concerta is like.

If you want to consider another stimulant drug that has a different

chemical makeup, then go with the adderall. I hope I am not confusing

you.

Pete has been on Metadate for about four years now. Ritalin was way

too short-acting, and his behavior was " choppier " on it. But he only

takes a very low dose of Metadate- just a 10 mg capsule, which is

time-released. Since he is also on risperdal, which can cause weight

GAIN, he hasn't had the weight loss issues that the stimulants can.

In our experience, just a stimulant alone did not help Pete's

behaviors overall. It was the combination (well, he is also on

clonidine, was well as the risperdal and metadate.)

Pete had ben extremely hyperacitve and just so quick and impulsive

that safety was always an issue and learning was challenged by his

lack of concentration. While the combo of meds has him a little tired

mid-morning, his personality has been pretty much unaffected.

The other thing that our doctor has always stressed when discussing

" behavioral " meds is the adage, " start LOW and go SLOW " - begin with

the smallest recommended dose and increase it gradually based on the

results you are or are not getting. Every time we started Pete on a

new med, I would be calling the dr. at least once a week with updates

so he and the nurse were very tuned in to how things were working or not.

The good thing with ritalin is that it has a very short half life so

you can stop it fairly easily.

One thing that I added to Pete's bedtime prayers is that his meds

only help and never hurt him. It is a hard thing to make this decision

and know that there is no clear cut answer.

Good luck!

Beth Mum to Pete (aka Ben), age 16 Columbus Ohio area

>

> Hey, Becky! Thanks for your info. Tori has always been a fantastic

eater (actually non-stop) but her weight is good. This Ritalin has

reduced her to perhaps a bowl of dry cheerios, maybe a pretzel rod or

2 and that's about it for the day. She still is asking for drinks. I

spoke with the Dr. tonite and she recommended the Ensure, etc. just as

you posted. However, Tori is big on taste & liquids more than with

food. She will only drink certain juices, milks, etc..

>

> The med has helped her impulsivity, and she is doing really well in

school now-but she is real drippy all day-not our happy, go lucky kid.

I miss that part. Well, we are going to attempt Adderall

(time-released) this weekend and see how that goes. Wish us luck!!

>

> Liz

[Guest guest]

Beth:

Our Dev. Ped. is very wonderful in regards to being able to contact at any time.

She is a true life saver to me! Tori is only taking 2.5 ml in the am and the

same at noon and then half of the dose when she gets home. She won't wear a

patch or take a pill so we were stuck taking the liquid.

Liz

Re: Ritalin

Liz,

What dosage of Ritalin is Tori taking? And is this your first venture

with meds? (Sorry, I can't remember). Is it your pediatrician or a

psychiatrist that is doing the prescribing? I am just asking because

in an ideal world, you should be able to have frequent conversations

with your dr. about how Tori is doing with the dosing.

from

http://www.coreynahman.com/11_25_ADHD_drugs.html :

" Adderall is a pill that contains amphetamine and dextroamphetamine.

Ritalin was the first ADHD product to use methylphenidate as its

active ingredient. These days, brand name Ritalin is not used very

much. Patients take generic methylphenidate or they take one of the

new methylphenidate formulations such as Concerta or Metadate. "

In other words, if you are okay with what ritalin is doing (sounds

like you are iffy; I don't blame you) then adderall may act

differently for Tori than either Metadate or Concerta. If you are okay

with the *action* of the ritalin, but want it tweaked, I would ask the

dr. to re-consider the dosage OR try Metadate or Concerta. I know it

is harder to come by the 10mg of metadate; the 20 mg are more common.

I don't know what the dosing of concerta is like.

If you want to consider another stimulant drug that has a different

chemical makeup, then go with the adderall. I hope I am not confusing

you.

Pete has been on Metadate for about four years now. Ritalin was way

too short-acting, and his behavior was " choppier " on it. But he only

takes a very low dose of Metadate- just a 10 mg capsule, which is

time-released. Since he is also on risperdal, which can cause weight

GAIN, he hasn't had the weight loss issues that the stimulants can.

In our experience, just a stimulant alone did not help Pete's

behaviors overall. It was the combination (well, he is also on

clonidine, was well as the risperdal and metadate.)

Pete had ben extremely hyperacitve and just so quick and impulsive

that safety was always an issue and learning was challenged by his

lack of concentration. While the combo of meds has him a little tired

mid-morning, his personality has been pretty much unaffected.

The other thing that our doctor has always stressed when discussing

" behavioral " meds is the adage, " start LOW and go SLOW " - begin with

the smallest recommended dose and increase it gradually based on the

results you are or are not getting. Every time we started Pete on a

new med, I would be calling the dr. at least once a week with updates

so he and the nurse were very tuned in to how things were working or not.

The good thing with ritalin is that it has a very short half life so

you can stop it fairly easily.

One thing that I added to Pete's bedtime prayers is that his meds

only help and never hurt him. It is a hard thing to make this decision

and know that there is no clear cut answer.

Good luck!

Beth Mum to Pete (aka Ben), age 16 Columbus Ohio area

>

> Hey, Becky! Thanks for your info. Tori has always been a fantastic

eater (actually non-stop) but her weight is good. This Ritalin has

reduced her to perhaps a bowl of dry cheerios, maybe a pretzel rod or

2 and that's about it for the day. She still is asking for drinks. I

spoke with the Dr. tonite and she recommended the Ensure, etc. just as

you posted. However, Tori is big on taste & liquids more than with

food. She will only drink certain juices, milks, etc..

>

> The med has helped her impulsivity, and she is doing really well in

school now-but she is real drippy all day-not our happy, go lucky kid.

I miss that part. Well, we are going to attempt Adderall

(time-released) this weekend and see how that goes. Wish us luck!!

>

> Liz

[Guest guest]

Liz, I am so glad to hear that you have an available dr. And since

Tori's dose is quite minimal, at least you know she isn't on too much.

Good luck with the weekend!

MB

>

> Beth:

>

> Our Dev. Ped. is very wonderful in regards to being able to contact

at any time. She is a true life saver to me! Tori is only taking 2.5

ml in the am and the same at noon and then half of the dose when she

gets home. She won't wear a patch or take a pill so we were stuck

taking the liquid.

>

\

[Guest guest]

I just called the Hershey clinic for developmental disabilities to get

Jordan scheduled to be seen. They are mailing out the forms and once they

get them back, they will tell me whether or not they think they can help

Jordan. Wish us luck!

Judi

Re: Ritalin

>

>

> Liz,

>

> What dosage of Ritalin is Tori taking? And is this your first venture

> with meds? (Sorry, I can't remember). Is it your pediatrician or a

> psychiatrist that is doing the prescribing? I am just asking because

> in an ideal world, you should be able to have frequent conversations

> with your dr. about how Tori is doing with the dosing.

>

> from

> http://www.coreynahman.com/11_25_ADHD_drugs.html :

>

> " Adderall is a pill that contains amphetamine and dextroamphetamine.

>

> Ritalin was the first ADHD product to use methylphenidate as its

> active ingredient. These days, brand name Ritalin is not used very

> much. Patients take generic methylphenidate or they take one of the

> new methylphenidate formulations such as Concerta or Metadate. "

>

> In other words, if you are okay with what ritalin is doing (sounds

> like you are iffy; I don't blame you) then adderall may act

> differently for Tori than either Metadate or Concerta. If you are okay

> with the *action* of the ritalin, but want it tweaked, I would ask the

> dr. to re-consider the dosage OR try Metadate or Concerta. I know it

> is harder to come by the 10mg of metadate; the 20 mg are more common.

> I don't know what the dosing of concerta is like.

>

> If you want to consider another stimulant drug that has a different

> chemical makeup, then go with the adderall. I hope I am not confusing

> you.

>

> Pete has been on Metadate for about four years now. Ritalin was way

> too short-acting, and his behavior was " choppier " on it. But he only

> takes a very low dose of Metadate- just a 10 mg capsule, which is

> time-released. Since he is also on risperdal, which can cause weight

> GAIN, he hasn't had the weight loss issues that the stimulants can.

>

> In our experience, just a stimulant alone did not help Pete's

> behaviors overall. It was the combination (well, he is also on

> clonidine, was well as the risperdal and metadate.)

>

> Pete had ben extremely hyperacitve and just so quick and impulsive

> that safety was always an issue and learning was challenged by his

> lack of concentration. While the combo of meds has him a little tired

> mid-morning, his personality has been pretty much unaffected.

>

> The other thing that our doctor has always stressed when discussing

> " behavioral " meds is the adage, " start LOW and go SLOW " - begin with

> the smallest recommended dose and increase it gradually based on the

> results you are or are not getting. Every time we started Pete on a

> new med, I would be calling the dr. at least once a week with updates

> so he and the nurse were very tuned in to how things were working or

not.

>

> The good thing with ritalin is that it has a very short half life so

> you can stop it fairly easily.

>

> One thing that I added to Pete's bedtime prayers is that his meds

> only help and never hurt him. It is a hard thing to make this decision

> and know that there is no clear cut answer.

>

> Good luck!

>

> Beth Mum to Pete (aka Ben), age 16 Columbus Ohio area

>

>

> >

> > Hey, Becky! Thanks for your info. Tori has always been a fantastic

> eater (actually non-stop) but her weight is good. This Ritalin has

> reduced her to perhaps a bowl of dry cheerios, maybe a pretzel rod or

> 2 and that's about it for the day. She still is asking for drinks. I

> spoke with the Dr. tonite and she recommended the Ensure, etc. just as

> you posted. However, Tori is big on taste & liquids more than with

> food. She will only drink certain juices, milks, etc..

> >

> > The med has helped her impulsivity, and she is doing really well in

> school now-but she is real drippy all day-not our happy, go lucky kid.

> I miss that part. Well, we are going to attempt Adderall

> (time-released) this weekend and see how that goes. Wish us luck!!

> >

> > Liz

>

>

>

>

>

>

[Guest guest]

Thanks, Beth!

Re: Ritalin

Liz, I am so glad to hear that you have an available dr. And since

Tori's dose is quite minimal, at least you know she isn't on too much.

Good luck with the weekend!

MB

>

> Beth:

>

> Our Dev. Ped. is very wonderful in regards to being able to contact

at any time. She is a true life saver to me! Tori is only taking 2.5

ml in the am and the same at noon and then half of the dose when she

gets home. She won't wear a patch or take a pill so we were stuck

taking the liquid.

>

\

[Guest guest]

Judi: We take Tori to CHOP.

Liz

Re: Ritalin

>

>

> Liz,

>

> What dosage of Ritalin is Tori taking? And is this your first venture

> with meds? (Sorry, I can't remember). Is it your pediatrician or a

> psychiatrist that is doing the prescribing? I am just asking because

> in an ideal world, you should be able to have frequent conversations

> with your dr. about how Tori is doing with the dosing.

>

> from

> http://www.coreynahman.com/11_25_ADHD_drugs.html :

>

> " Adderall is a pill that contains amphetamine and dextroamphetamine.

>

> Ritalin was the first ADHD product to use methylphenidate as its

> active ingredient. These days, brand name Ritalin is not used very

> much. Patients take generic methylphenidate or they take one of the

> new methylphenidate formulations such as Concerta or Metadate. "

>

> In other words, if you are okay with what ritalin is doing (sounds

> like you are iffy; I don't blame you) then adderall may act

> differently for Tori than either Metadate or Concerta. If you are okay

> with the *action* of the ritalin, but want it tweaked, I would ask the

> dr. to re-consider the dosage OR try Metadate or Concerta. I know it

> is harder to come by the 10mg of metadate; the 20 mg are more common.

> I don't know what the dosing of concerta is like.

>

> If you want to consider another stimulant drug that has a different

> chemical makeup, then go with the adderall. I hope I am not confusing

> you.

>

> Pete has been on Metadate for about four years now. Ritalin was way

> too short-acting, and his behavior was " choppier " on it. But he only

> takes a very low dose of Metadate- just a 10 mg capsule, which is

> time-released. Since he is also on risperdal, which can cause weight

> GAIN, he hasn't had the weight loss issues that the stimulants can.

>

> In our experience, just a stimulant alone did not help Pete's

> behaviors overall. It was the combination (well, he is also on

> clonidine, was well as the risperdal and metadate.)

>

> Pete had ben extremely hyperacitve and just so quick and impulsive

> that safety was always an issue and learning was challenged by his

> lack of concentration. While the combo of meds has him a little tired

> mid-morning, his personality has been pretty much unaffected.

>

> The other thing that our doctor has always stressed when discussing

> " behavioral " meds is the adage, " start LOW and go SLOW " - begin with

> the smallest recommended dose and increase it gradually based on the

> results you are or are not getting. Every time we started Pete on a

> new med, I would be calling the dr. at least once a week with updates

> so he and the nurse were very tuned in to how things were working or

not.

>

> The good thing with ritalin is that it has a very short half life so

> you can stop it fairly easily.

>

> One thing that I added to Pete's bedtime prayers is that his meds

> only help and never hurt him. It is a hard thing to make this decision

> and know that there is no clear cut answer.

>

> Good luck!

>

> Beth Mum to Pete (aka Ben), age 16 Columbus Ohio area

>

>

> >

> > Hey, Becky! Thanks for your info. Tori has always been a fantastic

> eater (actually non-stop) but her weight is good. This Ritalin has

> reduced her to perhaps a bowl of dry cheerios, maybe a pretzel rod or

> 2 and that's about it for the day. She still is asking for drinks. I

> spoke with the Dr. tonite and she recommended the Ensure, etc. just as

> you posted. However, Tori is big on taste & liquids more than with

> food. She will only drink certain juices, milks, etc..

> >

> > The med has helped her impulsivity, and she is doing really well in

> school now-but she is real drippy all day-not our happy, go lucky kid.

> I miss that part. Well, we are going to attempt Adderall

> (time-released) this weekend and see how that goes. Wish us luck!!

> >

> > Liz

>

>

>

>

>

>

[Guest guest]

Sometimes I wish I lived closer to there. We came from MD ten years ago, so

I'm familiar with the DS clinic at Kennedy Krieger, but I haven't found any

sort of DS clinic up here. I was " told " there was a DS clinic at Hershey,

yet, everytime I've checked into it, apparently it doesn't exist.

Judi

Re: Re: Ritalin

> Judi: We take Tori to CHOP.

>

> Liz

[Guest guest]

Judi: There actually 2. One in Phila and 1 in the Lehigh Valley. Where do you

live again?

Liz

Re: Re: Ritalin

> Judi: We take Tori to CHOP.

>

> Liz

[Guest guest]

There is a DS clinic in Hershey. Dr. Jeane Rimer (I think that is how her

name is spelled) is in charge. She even sees adults with DS. Elie was

evaluated there by her and her educational team. She then followed him for

a few years even after we moved to Coatesvilole. She was willing to consult

by phone.

I really liked her and her team.

Sara - Choose to make lemonade, not complain about the lemons.

>

>Reply-To:

>To: < >

>Subject: Re: Re: Ritalin

>Date: Fri, 13 Oct 2006 06:20:46 -0400

>

>Sometimes I wish I lived closer to there. We came from MD ten years ago,

>so

>I'm familiar with the DS clinic at Kennedy Krieger, but I haven't found any

>sort of DS clinic up here. I was " told " there was a DS clinic at Hershey,

>yet, everytime I've checked into it, apparently it doesn't exist.

>

>Judi

>

> Re: Re: Ritalin

>

>

> > Judi: We take Tori to CHOP.

> >

> > Liz

>

>

>

>--------------------------------------------------

>Checkout our homepage for information, bookmarks, and photos of

>our kids. Share favorite bookmarks, ideas, and other information by

>including them. Don't forget, messages are a permanent record of the

>archives for our list. http://groups.yahoo.com/group/

>--------------------------------------------

>

[Guest guest]

Liz, I'm in South Central PA - more specifically Red Lion, York County.

Hershey is approximately one hour north of where I live. I'd be willing to

travel up to two or three hours though.

Judi

Re: Re: Ritalin

>

> > Judi: We take Tori to CHOP.

> >

> > Liz

>

>

>

>

>

>

[Guest guest]

Would you consider CHOP? Dr. Pipan is a great doc and we love her? Her secy's

# is and her name is Rita. Just mention my name and she'll take it

from there if interested.

Liz

Re: Re: Ritalin

>

> > Judi: We take Tori to CHOP.

> >

> > Liz

>

>

>

>

>

>

[Guest guest]

Liz,

What can they do for my daughter? She's already being seen by five

specialists over at Hershey, but, again, no DS clinic. Does CHOP have a

specific clinic for kids with DS? Thanks :-)

Judi

> Would you consider CHOP? Dr. Pipan is a great doc and we love her? Her

secy's # is and her name is Rita. Just mention my name and

she'll take it from there if interested.

>

> Liz

[Guest guest]

Judi,

I am in Shrewsbury. Did we meet at the get together? We are so lose to each

other.

Holly

Re: Re: Ritalin

>

> > Judi: We take Tori to CHOP.

> >

> > Liz

>

>

>

>

>

>

[Guest guest]

Judi:

Yes, it is called Trisomy 21 Center. Here is the email address for Kim

Schadt-The Pres. of the group. SCHADT@...

However, if you are concerned about the dual dx. I would contact Dr. Pipan's

office. Unfortunately, Autism is now our primary dx whereas the DS is now

secondary.

Liz

Re: Re: Ritalin

Liz,

What can they do for my daughter? She's already being seen by five

specialists over at Hershey, but, again, no DS clinic. Does CHOP have a

specific clinic for kids with DS? Thanks :-)

Judi

> Would you consider CHOP? Dr. Pipan is a great doc and we love her? Her

secy's # is and her name is Rita. Just mention my name and

she'll take it from there if interested.

>

> Liz

[Guest guest]

Hi Holly,

I think we've met at the CDSPG's Christmas parties and June picnic's before.

I didn't go to the picnic this year because I was so busy, but I'll be sure

to make it to the Christmas party. I think I had also asked you what kind

of programs you have at your gym.

Judi

Re: Re: Ritalin

> >

> > > Judi: We take Tori to CHOP.

> > >

> > > Liz

> >

> >

> >

> >

> >

> >