Re: Re: Irma

[Guest guest]

Hi Irma,

I also have not been very active on the list with my work schedule this

season. I am almost finished but have stacks of paperwork to get finished. I am

a poor secretary.

Zeb is doing great at home. I also took him to work with me the entire season.

He did better than I expected. School is another issue. I am in the middle

school burn out faze of my life. The middle school administration is very

difficult to communicate with nor do we like each other which makes life more

difficult. I am in the process of planning Zeb's HS transition. I learned to

start early. I clearly understand why most parents just throw in the towel at

this point. I have yet to get a scheduled date for observation after trying for

the past two weeks. The HS seems to do everything possible to prevent a parent

from observing their programs. They just picked the wrong parent to pull that

with. Zeb never liked school. I am having a meeting with his teachers today. I

have my doubts as to how he is doing. The school administration would never call

with a problem. They would like me to think they are perfect in everything they

do. We shall see. I know you have been busy with

the girls and .

Charlyne

Mom to Zeb 13 DS/OCD/ASD?

mum592001 wrote:

Hi Charlyne,

I know its been awhile, hope business is coming along.

How is Zeb doing?

I know I have not been too active on the list these days.

I know you would of been here in a jiffy if you could of but actually

on what you had shared with me has been serving pretty well as I will

not place my guards down and the school district are accomodating

still with everything I have been requesting and it was not like this

in the past. So true on your last sentence, I shall remember this

this everytime this happens when anyone approaches me with their

individual as well as for my own son.

You're right us parents are an equal member of the ARD/IEP committee,

and regardless of position, the number or level of degrees or letters

behind their names, no one at the ARD/IEP has more of a voice than

the parent. In addition, IDEA states all IEPs, Services and

programming must be unanimous, and above all the parent must be in

complete agreement.

I am very happy for Gail, yep passed the " IEP 101 " , having a great

mentor to cheer her on, incredible.

Irma,18,DS/ASD

>

> Hi Irma & Gail,

> Irma, your parent advocate that deserted you in your time of need

will get his. It infuriates me to think of it! I would have been at

your side if I could have made the trip.You really needed someone in

your area that could be available to you. Gail has successfully

passed IEP 101,LOL. Confronting a enraged school person and holding

your composure is no easy feat. Always keep in mind that the only

losers are the kids when we cannot successfully advocate for them.

> Charlyne

> Mom to Zeb 13 DS/OCD/ASD?

>

[Guest guest]

Hi Irma,

Thanks for asking about the school meeting. I was meeting in regards to my

summer letter of concern regarding Zeb's IEP. The school hates meeting with me

and I them. I can put my feelings aside and act appropriately. They chose to

waste time on small talk to avoid the main issues. I didn't expect to accomplish

much but if I refused to meet with them I would open myself to finger pointing

and failure to communicate. It would rather let them hang themselves. I continue

to keep Zeb's attorney abreast of the situation and let her intercede when she

feels it is necessary. The district administration usually steps in to correct

the issues before that happens. The middle school's administration are noted for

being difficult to deal even with the district superintendent. It's their career

not mine. Zeb's transition does include observation to the HS but the middle

school would prefer to closely monitor that situation. I beat to a different

drummer and do not let them control me.

They resent my taking control and how dare I make informative decisions without

asking for their expertise. Zeb is the first student to be fully included so

they do not have expertise in the path that should be taken. I do what feels

right for Zeb and always follow my gut. It's proven right so far. Zeb never

cared for school. He would rather stay home and watch movies all day, me too. He

would enjoy being homeschooled but would miss the peer interaction too much to

even consider, although, I have struggled with that decision in previous years.

You can call anytime to vent about Noah. It's nice to hear from you again.

Charlyne

Mom to Zeb 13 DS/OCD/ASD?

mum592001 wrote:

Hi Charlyne,

Nice to hear about Zeb doing well, besides the you never know what

kind of day you are going to expect.

It is terrible always having to deal with the schools and ouch now

the HS planning but I know you have extra battles to attend to for

him, its understandable as you have him in inclusion. Yes, have seen

too many parents throw in the towel when their kids reach the

secondary level. I thought the observation was part of the

transition, even when done early to help ease the student or parents

and it definitely would help to have this planned out to see what

accomodations are needed along with the changes to be expected with

the school. So much to deal with and I know you will find a way. I'll

look forward reading some updates on your challenges here. Wishing

Zeb well, I do not blame him for hating school. How did the meeting

go?

I no longer have the girls but still make sure they are still doing

well so that they will continue doing well so that they will not be

taken away again and my sister, their grandmother is able to deal

with.

My latest issue going on is in regards to my grandson. I have to

leave to a " Table Talk " meeting Which we discuss about the transition

programs, services, etc. but something has been eating me up. You

know not following my gut instinct and not paying the price to vent

it out and would like someone else's input.

Thanks,

Irma

> >

> > Hi Irma & Gail,

> > Irma, your parent advocate that deserted you in your time of need

> will get his. It infuriates me to think of it! I would have been at

> your side if I could have made the trip.You really needed someone

in

> your area that could be available to you. Gail has successfully

> passed IEP 101,LOL. Confronting a enraged school person and holding

> your composure is no easy feat. Always keep in mind that the only

> losers are the kids when we cannot successfully advocate for them.

> > Charlyne

> > Mom to Zeb 13 DS/OCD/ASD?

> >

>

>

>

>

>

>

>

[Guest guest]

congratulations irma!!!!!! remember what happens in las vegas stays in las

vegas, lol, you and hubby really live it up!!! shawna

[Guest guest]

Hi Irma,

Sounds like it was almost worth the twenty year wait. Glad you had a blast!

Charlyne

Mom to Zeb 14 DS/OCD/ASD?

mum592001 wrote:

>

> Hi Irma,

> Happy 20th anniversary!!

> Charlyne

Thank you everyone!

This was a long over due outing just the two of us not having anything

to do with the " reality " world or in my case such a break away from

the " Autism " world.

I am home now, super tired, did lots of walking, played those casino

games, watch some of those entertainment shows, visit most of those

gorgeous hotels, did some shopping, very well worth it!

This was my first time to Vegas and it was a beautiful experience.

Especially after attending Strait's concert, loved it, loved

it!!!

My dh did wonderful planning it out, everything fell into place

especially with in good hands with one of his aunt and I did not

have to worry about him.

Thanks to everyone who has cheer me on this list with the journey I

have been on. I know I would not have done this alone when I had

decided to quit work and devote my time mostly for 's care.

How? Y'all built the confidence I needed and given me that " will-power

than won't power " when I never would of imagine taking some time off

for a " couple outing " for a getaway trip, due to unable to let go for

an enjoyable time, now my dh and I were able to.

We have gone to Autism conference but then it was not like the " us "

time, this was an enjoyable blast.

Will thought I say hi & thank everyone before I head to catch some

zzz's I have a busy week. I will be attending a one-week training

course to prepare to work for , 8-5.

What I'm already attending for 's care as his primary caretaker I

will be getting paid for it.

This is with EduCare Community Living/CLASS(Community Living and

Support Services).

Thank you everyone.

Irma