Fw: Please help ... does my CFS means Circulating Fermented Saline?

[Guest guest]

Please give Jeanette support through this...this all sounds too familiar.

She describes this so well....the cognitive dysfunction especially...<sigh>,

another poor soul...her address is listed below.

Patty

----- Original Message -----

From: " by way of ilena rose " <TOMPAHPE@...>

Sent: Monday, November 19, 2001 11:52 PM

Subject: Please help ... does my CFS means Circulating Fermented Saline?

> Re; more details per our phone conversation earlier today

>

> Dear Ilena,

>

> How can I find out if my CFS, in reality, spells out Circulating Fermented

> Saline?

>

> McGhan saline implants, 1995. Originally an 'A' cup, I went to a 'D'

during

> pregnancy. After nursing, I was left with 'A' internal mass in 'D'

external

> capacity. 'Pendulous' was an understatement. Add a very uneven,

extra-wide,

> dark C-section scar and stretch marks so extensive that I've got them on

my

> calves and arms...I felt disfigured, as if I'd been in a massive accident.

>

> The surgery allowed me to like my body again and in turn, my self-esteem

> improved.

>

> My health, however, has declined, most significantly over the last 12

> months...

>

> Symptoms:

> Lack of energy/feeling 'exhausted' even with adequate sleep/rest since

last

> December. Prior to then, I worked as many as 3 jobs at a time, in addition

to

> being a single parent of 2 elementary school-aged children.

>

> Acute physical response to emotional/mental stress. The reaction time is

> fairly immediate, comparable to something akin to a deflated balloon and

> often 'knocks me out' for 1-4 days. During these 'down times' I sleep

> excessively and awake, can barely even sit up. Despite very strong coping

> skills, I'm presently experiencing this on a weekly basis.

>

> A bothersome - though not painful - sensation along the lower half of my

> spine that comes and goes. The best way to describe it is some type of

> inflammation and it always precedes a significant decrease in

> mental/cognitive functioning. I discovered 3 Advil helped reduce this and

am

> now on Celebrex, a COX2 inhibitor, which seems somewhat helpful.

>

> The cognitive impairment most noticeably affects my ability to write. I

work

> as a trade journalist/marketing consultant so this is a big problem for

me.

> It's a little different from how I'd describe writer's block, which I

define

> as not knowing what to write or where to start with a writing task. Most

of

> the time, I know what I want to say but transferring the words from my

mind

> to the keyboard or pen is unbelievably difficult - they seem to get 'lost'

> between point A and B. Again, there's a distinct correlation between my

> emotional/mental states and my ability to perform. High-pressure projects

> that I once sailed through now seem nearly impossible. Speaking ability is

> much less impacted and for the most part, generally 'transition' related -

> 'shifting into gear' from being engaged in one thing but then

> disrupted/distracted by another might take a few minutes but then my

ability

> to focus returns to normal.

>

> Hair loss. A good dose of stress causes this. On 2 or 3 occasions since

> December, I have lost all or nearly all eyelashes from one of my upper

> eyelids although the lower lashes of the same eye remain stable. Cosmetics

> are not a factor. Additionally, I have patches of short hair in certain

area

> of my scalp, obvious new growth.

>

> Change in acne. Frequency is the same, usually connected to my hormonal

cycle

> but there seems to be a disruption in the healing process. It can take 8

> weeks for what started out as a pimple to clear up. Additionally, the

process

> itself is different. Typically, the pimple ruptures and scabs over but a

> yellowish fluid accumulates under it. The spot becomes inflamed which

seems

> to further stimulate the production of this fluid and extends the diameter

of

> the affected spot. I now have approx. 15 round, crater-like scars of

varying

> diameter and depths on my face, with 2 severe ones between my eyebrows, 4

on

> my left cheek and 1 on the right side of my chin. These scars measure

between

> 4-10mm across and up to 2-3mm deep.

>

> Swollen lymph nodes throughout my body for more than 4 years. A biopsy was

> done 3 years ago and I was told the pathology report (from Mayo Clinic)

> offered no explanation. No pain involved but if one is rubbed too hard,

such

> as during an examination or from tight clothing, the pressure somehow

> generates a residual, localized muscular weakness. It sets in several

hours

> later and lasts a few days to a week.

>

> Low grade fevers. I get them regularly.

>

> Night sweats. Not sheet-soaking though and the low grade fevers are more

> frequent.

>

> After extensive reading, my symptoms seemed to most closely match those of

> SLE. Last Spring, I had been prescribed a 30-day round of 10mg(?)

prednisone

> for something unrelated (structural sinus issues) and felt better while

> taking it. I don't know for certain if this means anything, one way or

> another.

>

> I finally decided to see a rheumatologist in August - lab results from

that

> visit are listed below. An ANA test came back negative but I was not given

> additional statistics.

>

> Following that visit - which I initiated on my own - my doctor sent me

back

> to an internal medicine specialist I'd seen 4 years ago. They've now

> diagnosed me as having CFS...

>

> Any help in educating myself about possible links between silicone/saline

and

> what's going on with my health would be most greatly appreciated.

>

> Respectfully,

> Jeanette Marie Kekahbah

> Lawrence, Kansas

> tompahpe@...

>

> TEST NAME RESULT AB REF RANGE UNITS

> HEMATOLOGY PROFILE:

>

WBC.......................6.9...............................4.8-10.8........

...

>

> ....10^3/cumm

>

RBC........................4.61.............................4.20-5.40.......

...

>

> ....10^6/cumm

>

HGB.......................15.0..............................12.0-16.0.......

...

>

> ....g/dL

>

HCT........................43.9..............................37.0-47.0......

...

>

> .....%

>

MCV.......................95.2..............................81.0-99.0.......

...

>

> ....fl

> MCH.......................32.5...............H

> .............27.0-31.0.............PG

>

MCHC.....................34.1..............................33.0-37.0........

...

>

> ...g/dL

>

RDW.......................12.7..............................11.5-14.5.......

...

>

> ....%

>

PLT.........................380...............................130-400.......

...

>

> ......*10^3/cumm

> MPV........................6.3................L

> ..............7.4-10.4..............fL

> MANUAL DIFFERENTIAL:

> segmt'd

> neutrophils...70.................................40-70...................%

>

bands......................0....................................0-5.........

...

>

> ...........%

> lymphocytes...........26..................L

> ..............29-39...................%

>

monocytes...............3....................................0-8............

...

>

> ........%

>

eosinophils...............1....................................05...........

...

>

> ..........%

> HEMATOLOGY MISCELLANEOUS:

> Sed

>

Rate..................8....................................0-20.............

...

>

> .....MM/HR

> SEROLOGY:

>

ANA........................NEGATIVE......................NEGATIVE...........

> CHEMISTRY REFERENCE LAB

>

aldolase...................5.1..................................1.2-7.......

...

>

> ..........U/L

>

color........................yellow.........................................

...

>

> .............

>

appearance..............clear...............................................

...

>

> .........

> spec.

>

gravity............1.010...............................1.003-1.030..........

>

PH-Urine..................6.0..................................5.0-8.0......

...

>

> .........

>

protein.....................NEGATIVE......................NEGATIVE..........

..

>

glucose...................NEGATIVE.......................NEGATIVE...........

> ketones..................1+....................AB

> ...........NEGATIVE...........

>

urobilinogen.............0.2...................................0.0-1.0......

...

>

> .........EU

>

bilirubin...................NEGATIVE.......................NEGATIVE.........

...

> .

>

hemoglobin...........1+.....................AB..........NEGATIVE............

> leukoesterase..........NEGATIVE.......................NEGATIVE............

>

nitrate.....................NEGATIVE.......................NEGATIVE.........

...

> .

>

WBCs.....................0-3...................................0-3..........

...

>

> .........../HPF

>

RBC........................0-3...................................0-3........

...

>

> ............./HPF

> squamous EPI

> cell...OCCAS............................0-1+......................

>

mucous...................TRACE..............................................

...

>

> .........

> culture set................NOT

> PERFORMED.......................................

> GENERAL CHEMISTRY:

>

AST.........................18...................................14-36......

...

>

> .............U/L

> creatinine................0.6..................L

> ..............0.7-1.2..................mg/dL

>

calcium.....................9.6..................................8.4-10.2...

...

>

> ...........mg/dL

>

CPK.........................47...................................30-135.....

...

>

> ............U/L

> IMMUNOCHEMISTRY:

>

TSH..........................1.99................................0.35-5.50..

...

>

> ............uIU/mL

> MISCELLANEOUS:

> c-reactive

>

protein........0.2..................................0.0-0.9.................

...

>

> mg/dL

>

>

>