Re: 7.27.10 Research Shows Controversial Illness is Real and ...

[Guest guest]

Now can we ALL shout?..... WE TOLD YOU

SO!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

CHARLESTON, S.C., July 27 -- /PRNewswire/ -- Today, Policyholders of

_America_ (_http://topics.sacbee.com/America/_

(http://topics.sacbee.com/America/) ) (_POA_

(_http://topics.sacbee.com/POA/_ (http://topics.sacbee.com/POA/) ) )

released a consensus statement written by treating physicians and

researchers in the field on the mechanism and treatment of illness found

in

people sickened by exposure to water-damaged buildings. This illness has

been the subject of heated debate that has resulted in harsh allegations

being

[Guest guest]

Sharon, My only concern is that many Drs. won't read the information and

still only treat the symptoms when they see patients. I have many friends who

are treated for different things and I know they are working in moldy

schools or workplaces. They don't listen to me and say they have diabetes,

arthritis, dermatitis, migraines, and more. It's not only physicians who don't

understand it's people in general. I am keeping my fingers crossed that

more and more physicians will listen so they can help their patients!!! This

certainly is a GIANT leap for everyone!!!! I sent the information on to ALL

my family and friends!!

Thanks for everything you do!!!

Sue

Sue,

I would say so. What is very good about this paper, among other things,

is that Chronic Inflammatory Response Syndrome CIRS has an ICD 9 code.

These codes are what physicians must follow when diagnosing a patient and

prescribing treatment. So, unlike those who carry the label for their

illness

of Multiple Chemical Sensitivity MCS, which has no ICD code, and thus the

physicians have a difficult time with insurers when trying to treat if

that

diagnosis is given; the label of CIRS-WDB will help the physician to be

able

to do with what he needs to - while adhering to the rules of the system.

[Guest guest]

Thanks for everything you do, too, Sue. It takes us all.

I think if WE on this board could start using the term " Chronic

Inflammatory Response Syndrome " (CIRS - WDB), when describing these illnesses,

it

would help much to start getting that ICD 9 Code approved name into common

language and thus into the doctor's offices.

In a message dated 7/29/2010 12:18:05 P.M. Pacific Daylight Time,

ssr3351@... writes:

Sharon, My only concern is that many Drs. won't read the information and

still only treat the symptoms when they see patients. I have many friends

who

are treated for different things and I know they are working in moldy

schools or workplaces. They don't listen to me and say they have diabetes,

arthritis, dermatitis, migraines, and more. It's not only physicians who

don't

understand it's people in general. I am keeping my fingers crossed that

more and more physicians will listen so they can help their patients!!!

This

certainly is a GIANT leap for everyone!!!! I sent the information on to

ALL

my family and friends!!

Thanks for everything you do!!!

Sue

Sue,

I would say so. What is very good about this paper, among other things,

is that Chronic Inflammatory Response Syndrome CIRS has an ICD 9 code.

These codes are what physicians must follow when diagnosing a patient and

prescribing treatment. So, unlike those who carry the label for their

illness

of Multiple Chemical Sensitivity MCS, which has no ICD code, and thus the

physicians have a difficult time with insurers when trying to treat if

that

diagnosis is given; the label of CIRS-WDB will help the physician to be

able

to do with what he needs to - while adhering to the rules of the system.

[Guest guest]

Thanks Sharon, good post.

>

> Sue,

>

> I would say so. What is very good about this paper, among other things,

> is that Chronic Inflammatory Response Syndrome CIRS has an ICD 9 code.

> These codes are what physicians must follow when diagnosing a patient and

> prescribing treatment. So, unlike those who carry the label for their

illness

> of Multiple Chemical Sensitivity MCS, which has no ICD code, and thus the

> physicians have a difficult time with insurers when trying to treat if that

> diagnosis is given; the label of CIRS-WDB will help the physician to be able

> to do with what he needs to - while adhering to the rules of the system.

>

[Guest guest]

Sharon, so is it safe to say and in agreement by our experts that the reactions,

whatever they may be, when re-exposed to a chemical/toxin, after you have been

basically sensitized or maybe better said,recieved the damages to you system

that cause you to react to further toxin insults, is based on a inflammatory

responce.

[Guest guest]

And, wouldn't it be a fare statement to say that the more damage to organs and

tissues that you recieved during your inital exposure

the more worse a inflammatory responce might be that you would have with

re-exposure to a chemical/toxin.?

(as far as only physical damage, other immune effects aside for a moment)

and that this itself could explain some of the difference in the reactions from

mild to severe. given that dose does matter but we have no way to deturmine

that, really.

but if it were able, that two people exsosed to the same dose of the same toxin

would have different levels of reaction based on the damage they had suffered to

those certain organs/tissues that are now being assulted again by a toxin,

as for example, the difference that one may suffer

in the nasal to brain route, olfactory system, and the difference between

haveing brain fog and seizure type symptoms, being ruled by the amount of damage

there, therefore possably also the level of inflammatory responce one might

have.

this makes sence to me, because the more damage to tissues and organs, the more

of a inflammatory responce you would have.

and I dont think alot of people are understanding this.

but really, it needs to be understood because the longer you say in a WDB,

exspecially if it's a moderate dose exposure, but even at possabily a lower dose

exposure, if there is toxin exposure involved,

the more damage to tissues and organs you well recieve.

because really at even low dose exposures, mycotoxin exposure can and does make

it past the mucosa barriors,ect. at some rate from what I understand. I'm pretty

convienced that high dose exposures well basically forse one to get out sooner

than later but chances are the damage will have already been done, but at lower

dose exposure, one may just not reconize that what is happening to them is tied

to that WDB and could suffer for years, depending on exactually what they are

exposed to and how those certain toxins can affect certain organs, plus no

doubt, some effects that still might not be fully reconized.

>

> Sue,

>

> I would say so. What is very good about this paper, among other things,

> is that Chronic Inflammatory Response Syndrome CIRS has an ICD 9 code.

> These codes are what physicians must follow when diagnosing a patient and

> prescribing treatment. So, unlike those who carry the label for their

illness

> of Multiple Chemical Sensitivity MCS, which has no ICD code, and thus the

> physicians have a difficult time with insurers when trying to treat if that

> diagnosis is given; the label of CIRS-WDB will help the physician to be able

> to do with what he needs to - while adhering to the rules of the system.

>

> As such, I would strongly suggest anyone who has the " inflammation gone

> wild " from an exposure to the microbes in WDBs, start using the term Chronic

> Inflammatory Response Syndrome from Water Damaged Buildings " CIRS-WDB " when

> describing the illness they have acquired from the environmental exposure.

>

> _http://www.policyholdersofamerica.org/doc/CIRS_PEER_REVIEWED_PAPER.pdf_

> (http://www.policyholdersofamerica.org/doc/CIRS_PEER_REVIEWED_PAPER.pdf)

>

[Guest guest]

The answer is yes.

[] Re: 7.27.10 Research Shows Controversial Illness is

Real and ...

Sharon, so is it safe to say and in agreement by our experts that the

reactions, whatever they may be, when re-exposed to a chemical/toxin, after you

have been basically sensitized or maybe better said,recieved the damages to you

system that cause you to react to further toxin insults, is based on a

inflammatory responce.

[Guest guest]

I got my MCS, EI, from a WDB feel really bad for those who did not get it like

this and still do not have a code.  Although there are many codes for poisoning

which is really what MCS is slow systematic poisoning of your organs ,

................................then I have so many other things from WDB with

codes and still it has been hard getting treatment due to complete ignorance of

the Dr's I have seen.  Cannot get into the right Dr due to the ignorance of

Medicaid !

 

Mayleen

________________________________

From: osisposis <jeaninem660@...>

Sent: Thu, July 29, 2010 6:57:15 PM

Subject: [] Re: 7.27.10 Research Shows Controversial Illness is

Real and ...

 

And, wouldn't it be a fare statement to say that the more damage to organs and

tissues that you recieved during your inital exposure

the more worse a inflammatory responce might be that you would have with

re-exposure to a chemical/toxin.?

(as far as only physical damage, other immune effects aside for a moment)

and that this itself could explain some of the difference in the reactions from

mild to severe. given that dose does matter but we have no way to deturmine

that, really.

but if it were able, that two people exsosed to the same dose of the same toxin

would have different levels of reaction based on the damage they had suffered to

those certain organs/tissues that are now being assulted again by a toxin,

as for