Guest guest Posted July 1, 2003 Report Share Posted July 1, 2003 In a message dated 7/1/03 8:31:45 AM Central Daylight Time, ckcarlson@... writes: > >HHV6< > > It causes Herpes, Epstein Barr, and Roseola. I'm pretty sure Epstein Barr is a separate virus since they test for it separately as EBV. Not that it matters since most of the viruses tend to affect the body in similar ways from what I understand though the treatments can vary a little depending on what you are dealing with. >> > Dr. in Austin treats for it (we've heard) and Tristan has an > I recently heard (through another parent) that Dr. uses steriodal treatments in his treatment of viral issues. Does anyone know if this is true? That concerns me because the two other viral docs I've talked to are pretty adamantly against steriod use in people with viral problems because they say the viruses and steriods react and tend to crash a person's immune system. I've found this to be true with my son and another child with a viral problem. They at first seem better on the steriod med and then take a nose-dive into a regression that can last for quite awhile. Even cortizone cream will cause a minor immune crash for my son. I'm still really new to viral stuff but I'd be concerned about using steriods in these kids because of the fear that I might see a temporary improvement followed by a worsening of the immune dysregulation. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2003 Report Share Posted July 1, 2003 I've heard he puts kids on steroids and anti-virals. However, it is my understanding that Dr. Goldberg in CA is strongly opposed to steroid use in children. I don't have experience with either doctor, but I know families who have had appointments with both. I would not feel safe putting a child on steroids...but that's just me (lots of medical doctors agree). You have to decide what's best for your family. Re: Re: EBV and HHV6 In a message dated 7/1/03 8:31:45 AM Central Daylight Time, ckcarlson@... writes: > >HHV6< > > It causes Herpes, Epstein Barr, and Roseola. I'm pretty sure Epstein Barr is a separate virus since they test for it separately as EBV. Not that it matters since most of the viruses tend to affect the body in similar ways from what I understand though the treatments can vary a little depending on what you are dealing with. >> > Dr. in Austin treats for it (we've heard) and Tristan has an > I recently heard (through another parent) that Dr. uses steriodal treatments in his treatment of viral issues. Does anyone know if this is true? That concerns me because the two other viral docs I've talked to are pretty adamantly against steriod use in people with viral problems because they say the viruses and steriods react and tend to crash a person's immune system. I've found this to be true with my son and another child with a viral problem. They at first seem better on the steriod med and then take a nose-dive into a regression that can last for quite awhile. Even cortizone cream will cause a minor immune crash for my son. I'm still really new to viral stuff but I'd be concerned about using steriods in these kids because of the fear that I might see a temporary improvement followed by a worsening of the immune dysregulation. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2003 Report Share Posted July 1, 2003 When we saw Dr. , he did prescribe Valtrex and Cortef. The Cortef was a 10-day prescription only, although I can't remember why and don't have my notes with me. He also prescribed Strattera. We did not fill any of the prescriptions and have not been back to see him as I was not satisfied with the manner that he used to evaluate my son. If anyone would like to email me off-line, I will go into further detail. - > I've heard he puts kids on steroids and anti-virals. However, it is my > understanding that Dr. Goldberg in CA is strongly opposed to steroid use in > children. I don't have experience with either doctor, but I know families > who have had appointments with both. > > I would not feel safe putting a child on steroids...but that's just me (lots > of medical doctors agree). You have to decide what's best for your family. > > Re: Re: EBV and HHV6 > > In a message dated 7/1/03 8:31:45 AM Central Daylight Time, > ckcarlson@e... writes: > > > > >HHV6< > > > > It causes Herpes, Epstein Barr, and Roseola. > > I'm pretty sure Epstein Barr is a separate virus since they test for it > separately as EBV. Not that it matters since most of the viruses tend to > affect > the body in similar ways from what I understand though the treatments can > vary a > little depending on what you are dealing with. > > > >> > > Dr. in Austin treats for it (we've heard) and Tristan has an > > > > I recently heard (through another parent) that Dr. uses steriodal > treatments in his treatment of viral issues. Does anyone know if this is > true? > That concerns me because the two other viral docs I've talked to are pretty > adamantly against steriod use in people with viral problems because they say > the > viruses and steriods react and tend to crash a person's immune system. I've > > found this to be true with my son and another child with a viral problem. > They at first seem better on the steriod med and then take a nose- dive into > a > regression that can last for quite awhile. Even cortizone cream will cause > a > minor immune crash for my son. > > I'm still really new to viral stuff but I'd be concerned about using > steriods > in these kids because of the fear that I might see a temporary improvement > followed by a worsening of the immune dysregulation. > Gaylen > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2003 Report Share Posted July 1, 2003 Just as an FYI, I was placed on steroids as a young child for rheumatoid arthritis. It had both good and bad effects on me. It did cause a delay in my menstrual cycle and emotional problems. Re: Re: EBV and HHV6 In a message dated 7/1/03 8:31:45 AM Central Daylight Time, ckcarlson@... writes: > >HHV6< > > It causes Herpes, Epstein Barr, and Roseola. I'm pretty sure Epstein Barr is a separate virus since they test for it separately as EBV. Not that it matters since most of the viruses tend to affect the body in similar ways from what I understand though the treatments can vary a little depending on what you are dealing with. >> > Dr. in Austin treats for it (we've heard) and Tristan has an > I recently heard (through another parent) that Dr. uses steriodal treatments in his treatment of viral issues. Does anyone know if this is true? That concerns me because the two other viral docs I've talked to are pretty adamantly against steriod use in people with viral problems because they say the viruses and steriods react and tend to crash a person's immune system. I've found this to be true with my son and another child with a viral problem. They at first seem better on the steriod med and then take a nose-dive into a regression that can last for quite awhile. Even cortizone cream will cause a minor immune crash for my son. I'm still really new to viral stuff but I'd be concerned about using steriods in these kids because of the fear that I might see a temporary improvement followed by a worsening of the immune dysregulation. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2003 Report Share Posted July 1, 2003 Just a quick comment, as I am getting only part of the information to this since I just joined today. But a huge percentage of the population has herpes, whether they have an out break or not many have the virus Epstein Barr is basically Mono I thought (?) and Roseola is scarlet fever a lot of small children get that. A lot of kids get it but have few symptoms, they just get tired. In adults it is much more serious, with side effects of aching joints, stomach aches, extreme fatigue, loss of appetite, and Weight loss. Many Dr's think they have Lupus or M.S. Kids with autism probably feel worse with Mono. Also another thing that I know most the DR's miss, as I have to deal with this as an adult. Have your child's Thyroid checked, T3, T4, and TSH and see if those tests are in the normal range. Even if they are in the low but normal range that to me that is a RED FLAG. Do thyroid disorders run in the family? The thyroid running to high or low, is also an autoimmune disease and should be treated as such, and start on Thyroid medication quickly as it can effect your child's growth and develpment. Another option to the steroids would be to use some things to boost the immune system. Like the essential oils, Omega 3 & 6,nut oils & organic coconut oil. Licorice root is a steroid ( you would want to check with someone who works with herbs for the duration to use this herb). A good B vit complex, Probotic's, digestive enzymes that break down all the foods and fats. Extra mult vitiams, and minerals to boost their health. A round of using grape seed extract and alternate each month with another antifungal like Caprylic acid, there are many other natural ones to use. And a diet eliminating sugar, yeast & wheat. Replaced with lots of fresh fruit, veg's, and meats. I too have concerns about the steroids. Allie << >HHV6< > > It causes Herpes, Epstein Barr, and Roseola. I'm pretty sure Epstein Barr is a separate virus since they test for it separately as EBV. >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2003 Report Share Posted July 3, 2003 In reference to your statement " However, the phrase " boost the immune system " caught my attention because I think it is used so often with our kids when perhaps the phrase " help regulate the immune system " would be more appropriate. " I think you are exactly correct. The reason is (as I understand it, and I am NOT a doctor) the immune system is like a seesaw with two different sides that must be in balance. When one side gets out of balance, your immune system can get really good at protecting against some things,but overeact to other things. My understanding of this is very simplistic. But what I understand is that Doctors are starting to view the immune system differently than they did even 10 years ago. They used to see it as either weak or strong, so you might, could or want to, " boost " it when it is weak. They now understand it to be more like the Seesaw example where being TOO strong can be a bad thing when tilted in one direction or the other. It really needs to be in balance. An Allergist could explain this better- I am referring to the balance of the TH1 and TH2 lymphocytes (I believe) that a healthy body should have. But, again I have no medical training, consult your doctor for medical advice. J. P. Reirdon Webmaster <http://www.featnt.org/> http://www.featnt.org " Building a Bridge of Hope " Webmaster <http://www.autismtreatment.info/> http://www.AutismTreatment.info/ You CAN treat Autism!! Get treatment tips for children with Autism, PDD and Aperger's Syndrome from parents who have successfully helped their children. Webmaster http://www.StarThrowers.org/ <http://www.starthrowers.org/> Fundraising for In-Home treatment programs Re: Re: EBV and HHV6 In a message dated 7/1/03 11:49:01 PM Central Daylight Time, blessingsx10@... writes: > Another option to the steroids would be to use some things to boost the > Allie offered some nice suggestions for natural supports which I imagine are very helpful for many kids. However, the phrase " boost the immune system " caught my attention because I think it is used so often with our kids when perhaps the phrase " help regulate the immune system " would be more appropriate. In following Dr. Goldberg's work (he is a bit of a goofy doctor but does seem to have good experience in immune regulation and viral stuff), and looking at test results from various kids, there seems to be several subsets of kids with immune regulation problems and the autism/pdd/aspie label. Many have excessively over-active immune systems that are extremely excitable and react way too much to everything; some have depressed immune function and don't react to anything appearing to never be ill but are in a constant weak state; while others, like my son, have a combo of systems that over-react to typical things (allergies) and under-react to pathogens (viruses, toxins, bacteria, yeast). Giving an immune system " booster " to all but the under-reactors, could have disastrous effects. I think this is why some kids crash on steriods. We found this out the hard way over the years in trying various supplements that seemed to help some kids but made my son's system go into hyper-drive or really crash. For this reason, I think it's important to really understand your child's system before you start throwing things at it. By the way, it's my understanding that Lauricidin is an immune system regulator rather than a booster. It supposedly treats bacteria, yeast and viral problems and is also supposed to help the body better regulate between reacting to pathogens and allergens. It does seem to be pretty helpful for my son though is more subtle/weaker in its effectiveness compared with conventional anti-virals and anti-yeast drugs. Gaylen Quote Link to comment Share on other sites More sharing options...
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