Re: OT Holiday Cards/Kim

[Guest guest]

Kim

that card was absolutely beautiful and the children are gorgeous! So well put.

Did you design the site yourself? The words you picked were very loving and

caring and it's just like something this kind to come from such a wonderful

person as yourself. I hope that you got a little rest last night.

Love, Sue #2

[Guest guest]

Yeah Sue#2 I designed the site myself....thank you so

much for the compliment. My computer is my hobby, my

friend, and keeps me sane! I stay at home and

telecommute for my father when I can and I find that

the computer keeps my mind sharp and gives me some

diversion. I teach myself the programs and I'm now

working on learning flash Macromedia 5.0 I would

really like to have some motion on my site other than

animated gif images. It will take a while for me to

learn but that's one of my current projects.

Thank you for the compliment on my children as well.

Ian was crying in the picture, but I think they did a

good job snapping the shot so you couldn't tell. I

had to give him a candy cane in exchange for a tear

free moment hahaha!

Sue, I was talking to Dr. Fu yesterday and there are

two schools of thought on treating Rheumatic disease

(from what he said). One is to be on the aggressive

end of the scale and the other more conservative. I'm

not one to let any grass grow under my feet and I want

a doctor (personally) to be aggressive. Dr. Fu and Dr.

Cush fall under that catagory, as far as I can tell

(NOT wreckless but aggressive). Even if my life for

some reason is shortened by all the medication I'm

taking...I'm ok with that....I just want the life I

have to be enjoyable and pain free. I am concerned

about toxicity but...I'm willing to go for a more

aggressive- higher dosage of meds- that result in

hopefully a shorter period of time. That's not for

everyone. That's the great thing about having

options. I was at the point you're at now! Sick and

tired of being sick and tired and in pain ...all I

wanted was a few good days...I finally feel like I'm

on the right track. I contribute that to Dr. Cush's

treatment plan and to the fact that I've made a major

commitment to getting better. I quit school, cut back

on my work, and I'm only doing what I can do around

the house. I'm not as envolved in my daughter's

school as I was last year, but she still makes honor

roll and I do contribute in the ways I can. My main

focus for right now has to be " me and my illness " ...I

want remission in the worst kind of way....as I know

we all do. I feel so blessed and fortunate to be in a

situation that allows me to do this. I feel for those

that are not and I don't know how many of my fellow

Stilligans do it. You for one...being a single parent

and business owner????? My goodness....I would be out

of my mind. I know you have your parents, but it's

not the same. The burden you carry is huge....I know

you don't see it that way...I can tell because in your

postings that you feel like you are one of the most

fortunate or less ill (not feeling justified in

complaining), but I see it quite different. I see a

woman that does sooooo much in a day and then takes

the time to be an active member and support this

group...even when you don't feel well. My friend I've

seen the pictures of the rashes and I've heard the

pain in your messages. Ihope you give yourself

that...give yourself a pat on the back for doing what

you do everyday for yourself and children.

I went to bed early last night and after being up for

a few hours was able to fall back to sleep. So, I did

get some rest. Thank goodness. I went to physical

therapy today....oooowwwcccchhhhh! but a good kind of

ooowwwcchhhh! The kind I know will lead to healing.

I will go to physical therapy 3 times a week. He will

set up an exercise plan but can not do this until he

gets some other issues resolved. I can't even begin

the exercise portion of therapy for several weeks.

I'm so out of shape and I've gained 15 pounds in the

past 6 months from prednisone. Owell it's all

temporary I pray.

Lots of Love and great to hear from you, Kim

--- " A. Matera " wrote:

> Kim

> that card was absolutely beautiful and the children

> are gorgeous! So well put. Did you design the

> site yourself? The words you picked were very

> loving and caring and it's just like something this

> kind to come from such a wonderful person as

> yourself. I hope that you got a little rest last

> night.

> Love, Sue #2

>

>

> [Non-text portions of this message have been

> removed]

>

>

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