Re: Scotson Therapy and Autism

September 2, 2011

Our journey with TST has been a mixed bag.... what I'd share first is

that like some here I have struggled with it.... really struggled but

this can be explained by our family situation and our son's complex

condition!

It's so difficult to fit in around a " young adult " , esp. when they do

not seem willing to have exercises done but also so difficult when you

have a child who is totally reliant on you for his every need.....there

is just not enough hrs in the day to fit in with the severity of the

condition. When we first started we kept up with the recommended

therapy hrs but with so many other serious problems coming up and trying

to deal with them, I soon " burnt out " . So now I do it when I am able

to.

Our noticeable changes when we started TST were improved posture,

circulation and also reduction of tightness in certain muscles. We did

not/have not seen any improvement in sleep or seizures or bowels.

My feeling is ds' seizures have not improved because they are due to a

genetic/metabolic condition and not due to lack of oxygen prior/at birth

and the same goes with his severe sleep disorder. However when he does

sleep his body is more relaxed than prior to TST when he used to just

curl up in a foetal position. So for us TST helps to address certain

issues but not with everything....

> > >

> > > Does anyone know about what causes intense mouthing and chewing of

non-edible objects? My son did this constantly before I put him on gfcf,

and I suspected he had pica. The physio at the assessment thought it was

part of sensory impairment; chiropracter said sucking reflex was a way

of relieving pressures in the membranes of the head. My feeling is it

must be partly due to inflammatory issues because diet really helped

until the calcium supplement mistake.

> > > Zoe

> > >

> >

>

September 2, 2011

We did see some gains initially. We are 18 months in and did the exercises religiously every day. The last 3 months we haven't seen any gains and Rose was getting more and more anxious during the exercises. Not sure that she was gaining anything out of being anxious and agitated for an hour and a half!!! To the contrary I guess!

We have stopped for a month to see if she regresses. If no regression, we will stop the exercises. As Kirsty says, it's too time consuming and expensive not to see any gains. If she does regress, we will start from the beginning again as we found it was the first three sets of exercises that were the most beneficial.

Esme x

To: Autism-Biomedical-Europe Sent: Fri, 2 September, 2011 14:47:21Subject: Re: Scotson Therapy and Autism

Hi,I must admit I am struggling with Scotson these days.I personally feel it helps sam sleep and calm him, but with regards to his autism it does not help. Heavy metal removal, work on virus's does that.I think it is a good therapy to do alongside like many others I do but would never recommend purely on it's own and would want new comers to not just do Scotson but to do biomed alongside.The downside is it is expensive and extremely time consuming and takes me away from my other son.I got funding for the first year but know I cannot afford it afterwards.But I feel just the gains I have had (sleepwise) help me to continue to do it but I do not do them daily. I do them when I can fit them in.Having said that my friends son who has seizures and celebral palsy has become alot more aware and is off his oxygenKirstyX> >> >> >> >> >> > I have been doing it with my son for about 5 months and we've seen> > nothing much - possibly nothing - it's difficult to tell with> everything> > else that we're doing. I'm carrying on for a while cos of the photos> > that showed that his body was out of shape - just in case - also I> have> > asthma, I've been it's not related but I can't help thinking it must> be.> > It's hard to do and expensive. It seems to help more with other> > conditions such as epilepsy than with autism.> > Sara> >>

September 2, 2011

Dear Nevin suggested we use the punch bag as a fitness activity for Tash... the punching action gave her diaphragm a work out this seems to make her fitter. I know that has suggested this to many of her patients... Perhaps it is a question to ask her.

I think what people forget is that I have been on my journey with Tash for 17 years... and it is like peeling the layers away from an onion.. slowly layer by layer... and since she has only ever had organic healthy food, never had diary, was taken off wheat very early and was never vaccinated, I think her body has not had such a tough time as those who have been vaccinated.

I think where seizures are an issue, the most important thing I have had to learn to do is to be calm and to watch my breathing to ensure I breath slowly and deeply and speak calmly around her.. because she responds to anxiety and this affects her breathing and used to increase her seizure rates.

Tracey

Dear Tracey,

When does the punch bag come to TST therapy? What gains brings or what is the idea behind of this?

We've finished the fourth package and waiting for another one.If I summarise the gains from TST over a year;

Seizures have not stopped yet!..(because it has different causes I strongly believe..possibly links with neurotransmitters., mopre complex brain chemistry!)

He grows tall and slim but not significant changes on his body or I can not distinguish.

His circulations slightly better.

His appetities especially now very bad,still very underlow of the scale.

He still hyperventilates especially before seizures,increases his anxiety.having said that my GP noticed some improvement in his breathing,so I credit for TST

The major positive gains happened with sleep..He is no longer on Melatonin, I think it comes from TST.

I am trying to do every day short intervals but a few times.

Dear Tracey,You are the most lucky one I think, seeing very significant changes in your child,like seizures...I hope I will see this from all the interventions which I am putting practise into my son's treatment.

All the best

Nevin

> > >

> > > I have been doing it with my son for about 5 months and we've seen

> > > nothing much - possibly nothing - it's difficult to tell with everything

> > > else that we're doing. I'm carrying on for a while cos of the photos

> > > that showed that his body was out of shape - just in case - also I have

> > > asthma, I've been it's not related but I can't help thinking it must be.

> > > It's hard to do and expensive. It seems to help more with other

> > > conditions such as epilepsy than with autism.

> > > Sara

> > >

> >

>

September 2, 2011

Hi EsmeHave you fed back this information to ? We did have times where exercises did not seem to be benefitting as much.. and we modified them... We did have times where initially the exercises seemed to be counter productive, however then by slowing the introduction down, we had other gains. I think too that sometimes Tash has needed time to accomodate the structural changes and to upgrade neurologically..

It is a very inexact science.. and our babes have each been affected differently.. it would be so simple if their conditions followed a simple A to Z route... but guess the word Spectrum.. kind of says it all.