Still need help

July 17, 2003

Hi ette,

I am from Ohio 16 yrs on AP. So sorry to hear of your trouble. I

had aflare pretty bad last yr and did not know what to do either. I was in

contact with dr. Sinnott and he said I should increase my Doxy. I had to have 3

big shots of steroids but then it like calmed down and I also am watching this

closely. I have been doing ok now but on ALERT and I have tried to really

watch foods and other things like outside chemicals and house stuff also. I did

not increase my meds as of yet I am trying less for awhile to see if maybe my

body needed a break. I will never go completely off AP but I do play with the

doses, and I may increase later but maybe you could try less and see if your

body is just needing a cleanse first. It is so hard to know what to do and

after along time it is hard to think and trust the drs. too but that is what I

have done for now anyway. Good luck and let us know what you do and decide. Just

My View from Ohio

July 17, 2003

In a message dated 7/17/2003 11:05:48 AM Pacific Daylight Time,

wport@... writes:

> I don't know how much longer I can continue with the pain without taking

> something stronger

Hi ette,

I am sorry your feeling so poorly, and I hope you feel better soon. I am

telling people if they are Americans or from the Medterrian to look into FMF. It

is way underdianoised in this country and misdiagnosed as Rheumatic

disorders. Many people have found relief taking cochicine, a little pill made

from the

Couscous plant from the saffron. I am trying this as well. I feel 95% better

with the antibiotics and I am going after that last 5% here is a link to FMF.

If any of your ancestors came from the Southern Mountains, or if you do not

know where your people were from in the US, think upon it. This drug is also

used for gout in this country, but in much larger amounts. For the FMF it is

taken a lot like the antibiotics.6mg a day a small amount.

If you go to the link below and scroll down you will find FMF and other

related illnesses.

<A HREF= " http://www.melungeonhealth.org/ " >Melungeon Health</A> <A

HREF= " www.melungeonhealth.org " >www.melungeonhealth.org</A>

Ann Pritchard

" Deep in the center of our beings

is an infinite wealth of love "

<A

HREF= " http://www.rheumatic.org/medhist.htm " >http://www.rheumatic.org/medhist.htm\

</A> < latest published work.

<A

HREF= " http://groups.msn.com/TyroMedia/pictures " >http://groups.msn.com/TyroMedia/\

pictures</A> < latest photos

<A HREF= " http://melungeon_music.tripod.com/melungeonmusic/ " >Melungeon Music</A>

< 's Web Site

January 16, 2005

Try giving the either Zyme Prime or the AFP Peptizyde for 4-5 days or

so. So stop one of them and continue the other as you are and then

post results. This may help determine what is going on.

.

January 17, 2005

> Since we have began the enzymes my son has been very obsessive

> compulsive, more visual stims and less focused. I thought at these

> things would have stopped by now.

He might still be eating foods the enzymes are not addressing. Try

adding 1/4 capsule of No-Fenol, see if that helps.

You might try removing foods. For my kids, enzymes helped with most

foods but not artificials, rice, corn, and luteins/carotenes

[primarily orange and green foods].

>>Another strange thing he does is not wanting to get dressed

> or put on new shoes.

If you are giving high doses of B vitamins, stop them and see if this

problem goes away.

It can also be foods he is eating that the enzymes are not addressing.

He also might not tolerate the enzymes.

Dana

November 22, 2010

I'm still trying to find answers concerning my health issues and after a visit

to my GP today, I think my quest will be a very long one. MY bloodwork

indicated no allergies at all. She focused on my fatigue and prescribed a B12

vitamin supplement. As for my headaches, she's ordering a CT scan. I really

have no idea where to turn next. Also, I've been pondering since I found out I

have no allergies: Even though I have no allergies, can I still be adversely

affected by SBS? I won't know if my classroom is infested with mold until it

gets tested. I really think the excessive dust is the main culprit of my

ailments. Can anyone tell me about this?

November 23, 2010

Your allergy tests can come back negative and you can be made ill by mold since

that is not an allergy but a posinoning by mycotoxins.Â

Â

Â Dr are clueless when it comes to this as I went threw 23 before I found out

what I had. Since then seen more and more Dr who are also cluless.Â Please

listen to others here you will waist your time with regular Dr who are blind and

deaf.

God Bless !!

dragonflymcs

Mayleen

________________________________

From: Darlene <darlene.sullivan@...>

Sent: Tue, November 23, 2010 1:41:33 AM

Subject: [] Still need help

Â

I'm still trying to find answers concerning my health issues and after a visit

to my GP today, I think my quest will be a very long one. MY bloodwork indicated

no allergies at all. She focused on my fatigue and prescribed a B12 vitamin

supplement. As for my headaches, she's ordering a CT scan. I really have no idea

where to turn next. Also, I've been pondering since I found out I have no

allergies: Even though I have no allergies, can I still be adversely affected by

SBS? I won't know if my classroom is infested with mold until it gets tested. I

really think the excessive dust is the main culprit of my ailments. Can anyone

tell me about this?

November 23, 2010

Darlene,

I would ask a lot of questions before getting my head CT scanned unless

it was an emergency situation like a serious head injury.... I am not a

doctor so can't recommend what you do, but CT scans are WAY over

prescribed in the US without better outcomes than in other countries who

scan less. It delivers a huge dose of radiation, the equivalent of 100's

to 1,00's of chest x-rays. The presidents medical advisory council

earlier this year said medical imaging is causing cancers, Devra ,

a prominent epidemiologist, says the same thing in her book The Secret

History of the War on Cancer......ask a lot of questions, get more

medical opinions before getting the CT scan, what is it they are looking

for? what about trying some other things before resorting to a ct scan,

what are the risks of waiting etc.??

I suggest finding a good integrative medicine doctor or a naturopath...

Mold/sick building problems can cause many other problems besides allergies...

Sue V.

>I'm still trying to find answers concerning my health issues and after a

>visit to my GP today, I think my quest will be a very long one. MY

>bloodwork indicated no allergies at all. She focused on my fatigue and

>prescribed a B12 vitamin supplement. As for my headaches, she's

>ordering a CT scan. I really have no idea where to turn next. Also,

>I've been pondering since I found out I have no allergies: Even though

>I have no allergies, can I still be adversely affected by SBS? I won't

>know if my classroom is infested with mold until it gets tested. I

>really think the excessive dust is the main culprit of my ailments. Can

>anyone tell me about this?

>

November 23, 2010

The longer you wait to get the right testing & treatmentÂ theÂ possibility of

getting sicker becomes higher each day you are exposed.Â You must rule out mold

illness called biotoxin illness.Â I went to Dr. Shoemaker in Pocomoke City,

MD.Â I am getting better on a drug CMS that binds the neurotoxins also called

biooxins in the body & then they are discreted through the bowels.Â I hope you

can find the right Dr. in your area but if not please do not waste time-go to a

Dr who knows this illness. VERY IMPORTANt!Â I had horrible migraines/with

vomiting for years.Â Now they are gone b/c of a right diagnosis and

treatment.Â I had so many symptoms---fatigue, cough, respitory infections,

reflux, leg, feet, & toe cramps, muscle pain, IC bladder, eye problems like

blurriness, light sensitivity, & pain in the eye, cognitive problems, etc.Â I

had a long list and most are gone from 3 mos on the CMS.

Â

May God lead you toward the right doctor,

Diane

Â

November 24, 2010

Don't waste your time and money on Drs who don't understand mold or

environmental illness. I saw a GP and a neurologist for 10 years for migraines

with no help given. I have never tested positive for allergies. I have never had

a headache in my life not connected to mold exposure. Did you visit and read Dr

Shoemakers website? You must educate yourself, and get away from what is making

you sick. You will never know when one more day will change forever your immune

system, and your will develop a hypersensitivity that no dr knows how to cure.

Only the tests outlined by Dr Shoemaker will show mold exposure. If you want

those tests you have to go to a mold specialist, not an allergist, they don't

know squat.

>

> I'm still trying to find answers concerning my health issues and after a visit

to my GP today, I think my quest will be a very long one. MY bloodwork

indicated no allergies at all. She focused on my fatigue and prescribed a B12

vitamin supplement. As for my headaches, she's ordering a CT scan. I really

have no idea where to turn next. Also, I've been pondering since I found out I

have no allergies: Even though I have no allergies, can I still be adversely

affected by SBS? I won't know if my classroom is infested with mold until it

gets tested. I really think the excessive dust is the main culprit of my

ailments. Can anyone tell me about this?

>

November 24, 2010

Oy it's not allergies! It's sensitivities and, yes, poisoning too. My doctor did

allergy blood tests and I came out negative for everything except one form of

mold-ridiculous since all mold makes me very ill. The doctor still feels that

some of my " allergies " may be masked and I highly doubt it (why does everyone

always think I " don't realize " I'm allergic to dogs??? How stupid are we?)

Anyway, find a new doctor or go in with very specific exacting info on

sensitivities and mold poisoning. What else can you do?

Surella