Re: Re: Neuro protek problems?

November 11, 2011

The eggs, chocolate and dairy products as Natasha mentions are all high in amines. No fenol actually tags amines and removes a carbohydrate group from them so they can be processed.I will find the list of 'safe foods' and reply over the weekend. It was as per Prince Alfred Elimination diet in Australia (which is the core of FAILSAFE) - they are the worlds leading allergy unit. I have their book - friendly foods which ranks foods in relation to chemical content.

BWAlison

Alison, this is very interesting as my other son (AS) who is doing

well on NP has started getting occasional very red face (used to get

the red ears years ago). I give him trienza and every alternate dose

some no fenol with it depending on foods.....This red face thing

would coincide with NP but as it has been so occasional has been

hard to track down..could it be be when he does not get the extra no

fenol? I will makes sure he always has the extra no fenol with NP

and see how that goes.I would be very interested to know what the 10

foods were that your son did OK on ?

My NT does not use enzymes...though he should really. I hope this

is the reason why he is having these headaches but he did stop the

NP on Monday and is still having the headaches (more than 5 a day).

Things were going so well here, now I am sick with worry.

Dr Goyal has recommended neuroprotek for my 3 yr old son.

When I looked at it I decided against it as it is high in

flavornoids. If there is a sulphation problem according to

Rosemary Waring's research flavornoids supress SULT1 and

SULT2 enzymes which are required for sulphation. The

migraine type headaches are often associated with amines -

in infants it displays as bady tumy aches and cramps but

then changes to headaches around time of puberty.

(FAILSAFE website has good info fact sheet on this).

No fenol fixed this problem for my son and he has never

had tummy ache since. I know phenols (Including

salicylates and amines are a huge problems for him as at

10 months old we did a very strict elimination diet. When

on only 10 foods he was fantastic. When these foods were

re-introduced the hyperactive and distressed behaviour

returned.

I understand sulphation is a problem for most with asd

so it doesn't surprise me that many have reactions to NP.

We go to great lengths to make sure suppplements are

flavornoid and flavour free.

BW

Alison Rowbotham

On 10 November 2011 16:52,

and

wrote:

Anita, this is my NT son....he has just

started university and got a major migraine

(these are usually food/stress triggered and

involve scary stuff like tingling hand then

arm then throat, loses speech ,co

ordination, understanding, vision problems

and massive migraine headache). I thought

maybe it was stress related so sent him some

adrenal support and neuro protek, his AS

brother is less stressed on NP. Shortly

after this he started with sharp stabbing

headaches and during this feeling muddled?

So I was just hoping it was a possible side

effect of the NP. He has been off it since

Sunday but still getting the headaches , got

another migraine on Monday and had to call

an ambulance as he was trying to get back

from uni and could not see properly. He is

200 miles away and I am worried sick..he is

trying to register with a doctor urgently.

Thanks

On 10/11/2011 15:59, Anita

wrote:

, I have read somewhere

about other kids having trouble

with the ingredients in NP and

switching to Lutimax, which is

just the luteolin. I haven't

used it, but there are some good

reports on it. Might be worth a

try? I have also read a fwe kids

needing to take no-fenol with

the NP? Has your son had phenol

issues before?

Anita

> > > >

> > > > Hi,

> > > > A few people

have mentioned not getting on

very well with NP. Could

> > > you

> > > > please let

me know how it affected you. I

got my son (NT) to give it a

> > > > try and he

has been having a lot of

headaches and sounds like he has

> > > > been getting

brain fog too....just wondering

if it is the NP. I have

> > > > told him to

stop taking it to see how it

goes.

> > > >

> > >

> >

> > No virus found in this

message.

> > Checked by AVG - www.avg.com

<http://www.avg.com>

> > Version: 2012.0.1869 /

Virus Database: 2092/4607 -

Release Date: 11/09/11

> >

>

No virus found in this message.

Checked by AVG - www.avg.com

Version: 2012.0.1869 / Virus

Database: 2092/4607 - Release

Date: 11/09/11

No virus

found in this message.

Checked by AVG - www.avg.com

Version: 2012.0.1869 / Virus Database: 2092/4608 - Release Date:

11/10/11

November 11, 2011

Natasa ,

I found a site that described it as I wrote and did not explain why

it might be seasonal..or why males were more commonly affected. He

is very prone to stress, has many food allergies and gets dreadful

hay fever all summer long. He had a bad cold and a lingering cough.

He also thinks the room he is in in his flat is damp but can't find

any mould. This term he has had 2 Classic migraines with aura , the

first he thought was stress triggered , the second not as he felt

very relaxed (I see relaxing is on the list of possible triggers for

cluster migraines!). The multiple headaches have been going on for

about 3 weeks...the bit that is freaking me out is that he has

started getting olfactory with these new headaches. I did read

something that said you can get aura with the cluster type. My

husband who gets both sorts of migraine also told me yesterday that

he has had the smell of burning dust for about 3 years and had not

realised this may be migraine related....he can't remember if he

gets it with the headaches or if it just random!

Thanks for the link it was very useful...his are 'stabbing'

headaches and shift from side to side so fits the description there

, it also says aura is common.. He already avoids loads of foods as

they are triggers for his classic migraines, but not eggs or

dairy...I will get him to check this too.

Thank you so much for taking the time to pass on your wisdom. It has

helped us make more sense of my husbands migraines too.

when you say start in either autumn or spring could it be

triggered by allergic-like reaction? most pollen is

spring/summer but could there be something that flowers

twice a year in those periods? ragweed or something?

The cause of cluster headaches is unknown, although it is

suspected that the hypothalamus is involved. The

hypothalamus is the area of the brain that influences

eating and sleeping patterns, sexual activity, and many

chemical and hormone functions. During cluster headaches,

the area of the hypothalamus on the headache-affected side

of the brain is unusually active.

A number of possible cluster headache triggers have been

identified. Noise, bright light, and odors, which often

trigger migraines, do not appear to set of cluster

headaches. Instead, severe cluster headaches may be

triggered by:

alcohol (many cluster headache sufferers appear to be

sensitive to alcohol's effects)

allergies and hay fever

exposure to temperature changes

head injuries

relaxation

smoking

stress.

In some instances, it appears eating specific foods

triggers cluster headaches. Eggs, chocolate, and diary

products have all been associated with cluster headaches.

http://www.tree.com/health/types-of-headaches-cluster.aspx

> > > > > > > >

> > > > > > > > Hi,

> > > > > > > > A few people have

mentioned not getting on very well with

> > NP.

> > > > Could

> > > > > > > you

> > > > > > > > please let me know

how it affected you. I got my son (NT) to

> > > > give it a

> > > > > > > > try and he has been

having a lot of headaches and sounds

> > like

> > > > he has

> > > > > > > > been getting brain

fog too....just wondering if it is the

> > NP.

> > > > I have

> > > > > > > > told him to stop

taking it to see how it goes.

> > > > > > > >

> > > > > > >

> > > > > >

> > > > > > No virus found in this

message.

> > > > > > Checked by AVG - www.avg.com

<http://www.avg.com>

> > > > > > Version: 2012.0.1869 / Virus

Database: 2092/4607 - Release Date:

> > > > 11/09/11

> > > > > >

> > > > >

> > > >

> > > > No virus found in this message.

> > > > Checked by AVG - www.avg.com

<http://www.avg.com>

> > > > Version: 2012.0.1869 / Virus Database:

2092/4607 - Release Date:

> > 11/09/11

> > > >

> > >

> >

> > No virus found in this message.

> > Checked by AVG - www.avg.com

<http://www.avg.com>

> > Version: 2012.0.1869 / Virus Database: 2092/4608 -

Release Date: 11/10/11

> >

>

No virus

found in this message.

Checked by AVG - www.avg.com

Version: 2012.0.1869 / Virus Database: 2092/4609 - Release Date:

11/10/11

November 11, 2011

I concur on the cluster headaches I suffer from them since I was about 9 and they always come in the change of season .....

November 12, 2011

Must have been scary getting these so young , my son and husband

both started their classic migraines at about 6 years old. I was

wondering if you get hay fever over the summer as well, or do you

have any other food allergies?

I concur on the cluster headaches I suffer from them

since I was about 9 and they always come in the change of

season .....

No virus found in this message.

Checked by AVG - www.avg.com

Version: 2012.0.1869 / Virus Database: 2092/4610 - Release Date:

11/11/11

November 12, 2011

Alison , I would very much appreciate the list of safe foods. I am

not sure he will be keen to try no fenol if I might have 'caused'

this by getting him to try NP!! If he got somewhere with safe foods

he might have more faith, also if we could see an improvement we

could stop worrying that this might be something worse than cluster

migraines...though I appreciate it may not make any difference now

they have started up.

I presume when you did the 'safe foods' that was with no enzymes at

all?

, have you never found anything to help these migraines?

The eggs, chocolate and dairy products as Natasha

mentions are all high in amines. No fenol actually tags

amines and removes a carbohydrate group from them so they

can be processed.

I will find the list of 'safe foods' and reply over the

weekend. It was as per Prince Alfred Elimination diet in

Australia (which is the core of FAILSAFE) - they are the

worlds leading allergy unit. I have their book - friendly

foods which ranks foods in relation to chemical content.

BW

Alison

On 11 November 2011 16:26,

and

wrote:

Alison, this is very interesting as my

other son (AS) who is doing well on NP has

started getting occasional very red face

(used to get the red ears years ago). I give

him trienza and every alternate dose some no

fenol with it depending on foods.....This

red face thing would coincide with NP but as

it has been so occasional has been hard to

track down..could it be be when he does not

get the extra no fenol? I will makes sure he

always has the extra no fenol with NP and

see how that goes.I would be very interested

to know what the 10 foods were that your son

did OK on ?

My NT does not use enzymes...though he

should really. I hope this is the reason

why he is having these headaches but he did

stop the NP on Monday and is still having

the headaches (more than 5 a day).

Things were going so well here, now I am

sick with worry.

Dr Goyal has recommended neuroprotek

for my 3 yr old son. When I looked at

it I decided against it as it is high in

flavornoids. If there is a sulphation

problem according to Rosemary Waring's

research flavornoids supress SULT1 and

SULT2 enzymes which are required for

sulphation. The migraine type headaches

are often associated with amines - in

infants it displays as bady tumy aches

and cramps but then changes to headaches

around time of puberty. (FAILSAFE

website has good info fact sheet on

this).

No fenol fixed this problem for my

son and he has never had tummy ache

since. I know phenols (Including

salicylates and amines are a huge

problems for him as at 10 months old we

did a very strict elimination diet.

When on only 10 foods he was fantastic.

When these foods were re-introduced the

hyperactive and distressed behaviour

returned.

I understand sulphation is a problem

for most with asd so it doesn't surprise

me that many have reactions to NP. We

go to great lengths to make sure

suppplements are flavornoid and flavour

free.

BW

Alison Rowbotham

On 10 November 2011

16:52, and

wrote:

Anita, this is my NT

son....he has just

started university and

got a major migraine

(these are usually

food/stress triggered

and involve scary stuff

like tingling hand then

arm then throat, loses

speech ,co ordination,

understanding, vision

problems and massive

migraine headache). I

thought maybe it was

stress related so sent

him some adrenal support

and neuro protek, his AS

brother is less stressed

on NP. Shortly after

this he started with

sharp stabbing headaches

and during this feeling

muddled? So I was just

hoping it was a possible

side effect of the NP.

He has been off it since

Sunday but still getting

the headaches , got

another migraine on

Monday and had to call

an ambulance as he was

trying to get back from

uni and could not see

properly. He is 200

miles away and I am

worried sick..he is

trying to register with

a doctor urgently.

Thanks

On

10/11/2011 15:59,

Anita wrote:

,

I have read

somewhere

about other

kids having

trouble with

the

ingredients in

NP and

switching to

Lutimax, which

is just the

luteolin. I

haven't used

it, but there

are some good

reports on it.

Might be worth

a try? I have

Sign In

Re: Re: Neuro protek problems?

Recommended Posts

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Join the conversation

Activity