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HI Caroline Here in

Neil and did a lot of taking off when they were 5 and it

continued until last year and they are fourteen now. The things I

used to do was always reinforce staying beside me, holding my hand

and rewarding the good behaviour. I would also give the boys things

to focus on like carring something they like. Or helping to look for

something we needed to pick up. I would also give them baskets if we

were in the grocery store, so they felt like they were helping to

shop. I would also reward the good behaviour after with a treat say

icecream at Mcdonalds where I could go through the drive through.

Unfortunately kids with ds love to wander off and do their own

thing. They do not have the understanding of personal safety and

everything around them is soooo interesting. Both and Neil

decided one day when they were eight,they were going for a walk to

their old school instead to the van where they were supposed to go.

I was able to trust the boys this far to stay at the van while I

locked up the house. Well this time they were gone in a flash, I had

to have people to help find them.

After that time I was back to reinforcing and rewarding the boys

staying with me and if they took off or not listening we would just

leave where ever we were and go home. No treat No fun outing.

The biggest thing I always did was keep my sons focus on something

while we were walking around any where, things like looking at

colors of things and so on.

I hope this helps a bit, I know it is not much information on what

can be done but it does get better. Another thing is maybe Will can

be a big helper by showing Davey how to stay with Mom and Dad and

giving Davey lots of praise and thumbs up for staying with you.

Good luck and take Care

From Caroline mom to Neil and 14 yrs old identical twins with

DS

>

> OK Moms with older kids............ Help!

>

> My husband and I are just about to pull our hair out over the

behavior of

> both boys, especially Davey. Both boys are constantly fighting,

even in

> stores, the car, home, you name it. Davey has started whining and

crying

> for everything that he wants. He also has started " disappearing "

on us,

> hiding when our backs are tuned. Today, we were showing

the map on

> the wall at the county building and Davey just vanished in the 30

seconds we

> had our eyes off of him. I could give more examples, but I think

you get

> the picture.

>

> I am pretty sure it is getting worse because of our recent move,

but this is

> getting ridiculous. My husband said he is at a point where we

will be very

> selective on where we take them. I do not want to have to leave

them with a

> sitter all of the time. We did yesterday just so we could get

some business

> done in town.

>

> Is it just because they are boys?

>

> Any and all advice would be appreciated before I pull out all of

my hair!

>

>

> Mom to Amy 20, Kelsey 17, Davey (DS) 7 and Will 7

>

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Thanks Caroline,

That helps a lot. We had to go to the rewards to get Will's homework done at night. We will try it with Davey too now!

-- Re: Problem behavior question?

HI Caroline Here in Neil and did a lot of taking off when they were 5 and it continued until last year and they are fourteen now. The things I used to do was always reinforce staying beside me, holding my hand and rewarding the good behaviour. I would also give the boys things to focus on like carring something they like. Or helping to look for something we needed to pick up. I would also give them baskets if we were in the grocery store, so they felt like they were helping to shop. I would also reward the good behaviour after with a treat say icecream at Mcdonalds where I could go through the drive through. Unfortunately kids with ds love to wander off and do their own thing. They do not have the understanding of personal safety and everything around them is soooo interesting. Both and Neil decided one day when they were eight,they were going for a walk to their old school instead to the van where they were supposed to go. I was able to trust the boys this far to stay at the van while I locked up the house. Well this time they were gone in a flash, I had to have people to help find them. After that time I was back to reinforcing and rewarding the boys staying with me and if they took off or not listening we would just leave where ever we were and go home. No treat No fun outing.The biggest thing I always did was keep my sons focus on something while we were walking around any where, things like looking at colors of things and so on.I hope this helps a bit, I know it is not much information on what can be done but it does get better. Another thing is maybe Will can be a big helper by showing Davey how to stay with Mom and Dad and giving Davey lots of praise and thumbs up for staying with you.Good luck and take Care From Caroline mom to Neil and 14 yrs old identical twins with DS>> OK Moms with older kids............ Help!> > My husband and I are just about to pull our hair out over the behavior of> both boys, especially Davey. Both boys are constantly fighting, even in> stores, the car, home, you name it. Davey has started whining and crying> for everything that he wants. He also has started "disappearing" on us,> hiding when our backs are tuned. Today, we were showing the map on> the wall at the county building and Davey just vanished in the 30 seconds we> had our eyes off of him. I could give more examples, but I think you get> the picture.> > I am pretty sure it is getting worse because of our recent move, but this is> getting ridiculous. My husband said he is at a point where we will be very> selective on where we take them. I do not want to have to leave them with a> sitter all of the time. We did yesterday just so we could get some business> done in town.> > Is it just because they are boys? > > Any and all advice would be appreciated before I pull out all of my hair!> > > Mom to Amy 20, Kelsey 17, Davey (DS) 7 and Will 7>

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Just an idea to help when they wander off - there is something called "ion kids" which is like a watch they wear on their wrist. It has a special locking mechanism so they can't take it off. Really others would think it is a wrist watch and it has stickers that come with it to customize the face of it. Then you have a cell phone looking device that you can set to a distance you are comfortable with them going away from you. If they go too far it beeps and their "watch" beeps to help you locate hiders. If you don't see them when your part beeps you can flip it open and push the locate button and it shows on the screen where they are relative to you. Our county purchased one for us but I think it was around 240$. They have a website www.ion-kids.com. I think the started kits are backordered right now because of its popularity and recent media exposure. Just an idea - hope it helpsBethany Mirka (mom to Allie 12, Cameron 8, Braden (DS) and Grant 5/fraternal twins

To: Multiples-DS From: justelou@...Date: Wed, 10 Oct 2007 19:47:52 -0700Subject: Problem behavior question?

OK Moms with older kids............ Help!

My husband and I are just about to pull our hair out over the behavior of both boys, especially Davey. Both boys are constantly fighting, even in stores, the car, home, you name it. Davey has started whining and crying for everything that he wants. He also has started "disappearing" on us, hiding when our backs are tuned. Today, we were showing the map on the wall at the county building and Davey just vanished in the 30 seconds we had our eyes off of him. I could give more examples, but I think you get the picture.

I am pretty sure it is getting worse because of our recent move, but this is getting ridiculous. My husband said he is at a point where we will be very selective on where we take them. I do not want to have to leave them with a sitter all of the time. We did yesterday just so we could get some business done in town.

Is it just because they are boys?

Any and all advice would be appreciated before I pull out all of my hair!

Mom to Amy 20, Kelsey 17, Davey (DS) 7 and Will 7

Windows Live Hotmail and Microsoft Office Outlook – together at last. Get it now!

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I agree w/ the other moms, our kids don't see the world as scary or dangerous and

very often their curiosity gets the better of them. Zack is now 9 and I have to have

him in my sights at all time, if he goes w/ his siblings to play outside they know they

have to keep their eyes on him and after a few minutes I have to double check on

him. He doesn't run away from me as much as not stay with us? We also do alot

of handholding through parking lots etc. We also have to make eye contact w/ Zack

yelling at him from across the room does nothing (selective hearing?) threats are

never the prefered tactic but they are useless on him too!

I know lots of families that have the bracelet there may be more than 1 company.

I'll check another group I belong to that had a big chat about it a year ago. We do

the same thing alot of discussing what's expected, "when we get in the store if

you wander away then you have to sit in the cart like a BABY." He can't stand any

reference to being a baby! Hang in their they do mature and this issue gets better

I use to have to grab on to him and hold tight everywhere we went if there we

crowds and that is way better now, he doesn't run off at school or in stores.

Irene

Jake 11

Zack ds/adhd, Nick & 9

Problem behavior question?

OK Moms with older kids............ Help!

My husband and I are just about to pull our hair out over the behavior of both boys, especially Davey. Both boys are constantly fighting, even in stores, the car, home, you name it. Davey has started whining and crying for everything that he wants. He also has started "disappearing" on us, hiding when our backs are tuned. Today, we were showing the map on the wall at the county building and Davey just vanished in the 30 seconds we had our eyes off of him. I could give more examples, but I think you get the picture.

I am pretty sure it is getting worse because of our recent move, but this is getting ridiculous. My husband said he is at a point where we will be very selective on where we take them. I do not want to have to leave them with a sitter all of the time. We did yesterday just so we could get some business done in town.

Is it just because they are boys?

Any and all advice would be appreciated before I pull out all of my hair!

Mom to Amy 20, Kelsey 17, Davey (DS) 7 and Will 7

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Oh I forget to mention,

Good luck with the fighting it's a multiple thing all the same age

all seeking attention, the one in my family that fights the least is

my son w/ ds, my daughter and her older brother (2yrs) are always fighting!!!

Always picking on each other, competing, they love each other but they're

2 peas in a pod ,both very strong type A personalities, yuck, yuck, yuck!

Irene

Problem behavior question?

OK Moms with older kids............ Help!

My husband and I are just about to pull our hair out over the behavior of both boys, especially Davey. Both boys are constantly fighting, even in stores, the car, home, you name it. Davey has started whining and crying for everything that he wants. He also has started "disappearing" on us, hiding when our backs are tuned. Today, we were showing the map on the wall at the county building and Davey just vanished in the 30 seconds we had our eyes off of him. I could give more examples, but I think you get the picture.

I am pretty sure it is getting worse because of our recent move, but this is getting ridiculous. My husband said he is at a point where we will be very selective on where we take them. I do not want to have to leave them with a sitter all of the time. We did yesterday just so we could get some business done in town.

Is it just because they are boys?

Any and all advice would be appreciated before I pull out all of my hair!

Mom to Amy 20, Kelsey 17, Davey (DS) 7 and Will 7

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Hi , Same story in this part of the world. and have moments when it is just impossible to do anything. We never know when or if they will just plop and refuse to move on. We do alot of rewards for behavior and recently started having negatives if bad behavior is done. At school, is spitting when he is upset, so they wash his face every time it happens. He hates that. At home, if I hear there has been a problem no treat for the afternoon. That also seems to have an impact. Now on the other hand will keep testing and seems to think it is all a wonderful game. If the kids don't kill us, what will? Anyway, we moved in April and have tried to make it a big adventure. Dad is now working 4pm - midnight and that has its own issues at bedtime. Your husband is just going to have to try and

relax.. I keep hearing that Down's children make great strides between 7 and 10... so waiting up here in Maine for that too. Good luck and remember, your not alone. Sandy Weber Mom to , , Barry, Aimee(92-03), Robbie, (98-00), , (ds) & (ds)(Identical Twins of triplets with Downs's)

Catch up on fall's hot new shows on Yahoo! TV. Watch previews, get listings, and more!

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Behavior is communicative -- particularly for kids with DS since expressive language is typically impaired. Often, if you can figure out the purpose you can address that -- verus simply responding to the behavior directly. For instance, if a child (as mine did) drops to the ground every time she has to come in from recess, you might have some success in offering positive incentives for returning to the classroom (for my daughter, a few minutes to play with a Barbie); however, you're really not addressing the root cause of the behavior (e.g., the need for assistance with transitions) so the rewards will probably stop working (or you'll have to keep upping the ante) -- same behavior will probably crop up on other situations. Again, for my daughter, her drop-to-the-ground behavior was often a cry for help with transitions and/or a need for a break and to gain some control, so we weren't addressing the real problem

by simply offering her incentives to "comply". Instead, on the advice of other parents, we started: (1) proactively giving her warnings that recess (or other activity) time was going to end soon, so that we wouldn't be expecting her to suddenly drop everything and move on to the next activities (incidentally, these warnings were beneficial for LOTS of kids... not just her); (2) NOT giving her attention when she did it (as this, in itself, became a motivator for the behavior; and (3) when the behavior did still occur (which became increasingly less frequent) telling her that she could come in "when she was ready" -- which typically made her just stand up and come in (essentially, we were giving her back the control she needed, and not giving her any attention). There's an article I read a couple of years ago on the "myth" that kids with DS are "stubborn" -- the main idea was that this "stubborness" was really a natural response to the disabilities our kids

face: not being able to communicate effectively, never being in control of one's own life (think about how early our kids started to get therapies...). I also found that teachers/aides somehow felt it was OK to treat my daughter in a manner that they would never treat a typical child -- e.g., on day, when she dropped in the playground, an aide tried to "scare her" (her words) into coming in, actually grabbing at her, and my daughter responded by BITING her (the only time she has EVER bitten anyone). I told the principal -- and he didn't disagree -- that this is an example of what happens when you respond to a behavior inappropriately. I am happy to say that -- knock on wood... -- the dropping behavior has ceased COMPLETELY (she's now 8), and I rarely even see "stubbornness". My husband and I always joke that if you go head-to-head with Louisa, you'll ALWAYS lose -- so we simply try not to get in that situation in

the first place. Instead of telling her she has to do something immediately, we give her some choice regarding the activity -- e.g., with homework, we ask her which color pencil she wants to use or whether she wants to do reading or math first as opposed to focusing on the fact that she has to do the homework. A professor/consultant also once told me that she's observed that these undesired behaviors often evolve on their own for kids with DS -- that is, one minute you'll have issues with pushing, and then one day you'll notice that the child is now grabbing objects from others, etc. So, if all else fails... hang in there. Things WILL get better. Also, remember that you'd rather have a child who advocates for himself than one who'd sit quietly in a corner by himself... since when is "fiesty" such a bad word??!! Sheryl Weber

wrote: Hi , Same story in this part of the world. and have moments when it is just impossible to do anything. We never know when or if they will just plop and refuse to move on. We do alot of rewards for behavior and recently started having negatives if bad behavior is done. At school, is spitting when he is upset, so they wash his face every time it happens. He hates that. At home, if I hear there has been a

problem no treat for the afternoon. That also seems to have an impact. Now on the other hand will keep testing and seems to think it is all a wonderful game. If the kids don't kill us, what will? Anyway, we moved in April and have tried to make it a big adventure. Dad is now working 4pm - midnight and that has its own issues at bedtime. Your husband is just going to have to try and relax.. I keep hearing that Down's children make great strides between 7 and 10... so waiting up here in Maine for that too. Good luck and remember, your not alone. Sandy Weber Mom to , , Barry, Aimee(92-03), Robbie, (98-00), , (ds) & (ds)(Identical Twins of triplets with Downs's) Catch up on fall's hot new shows on Yahoo! TV. Watch previews, get listings, and more! Sheryl Knapp Literacy Advocates www.LiteracyAdvocates.com

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My 8-year-old (typical) boys fight almost constantly... we've really been trying to work on it, but have had little success. I really think it's a multiples thing, but I know how frustrating it is (and my parents of course attribute it to bad parenting, since none of their other sibling grandchildren fight like that...). Any advice from older parents would be greatly appreciated! Verissimo wrote: OK Moms with older kids............ Help! My husband and I are just about to pull our hair out over the behavior of both boys, especially Davey. Both boys are constantly fighting, even in stores, the car, home, you name it. Davey has started whining and crying for everything that he wants. He also has started "disappearing" on us, hiding when our backs are tuned. Today, we were showing the map on the wall at the county building and Davey just vanished in the 30 seconds we had our eyes off of him. I could give more examples, but I think you get the picture.

I am pretty sure it is getting worse because of our recent move, but this is getting ridiculous. My husband said he is at a point where we will be very selective on where we take them. I do not want to have to leave them with a sitter all of the time. We did yesterday just so we could get some business done in town. Is it just because they are boys? Any and all advice would be appreciated before I pull out all of my hair! Mom to Amy 20, Kelsey 17, Davey (DS) 7 and Will 7 Sheryl Knapp Literacy Advocates www.LiteracyAdvocates.com

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Wow, great advice. I read your email to my hubby. The phrase that you will never win against your daughter is so true. We have to pick our battles carefully. I would rather see the war end peacefully.

You all are just the best. I really appreciate all of the advice you are sending!

Hugs,

-- Re: Re: Problem behavior question?

Behavior is communicative -- particularly for kids with DS since expressive language is typically impaired. Often, if you can figure out the purpose you can address that -- verus simply responding to the behavior directly. For instance, if a child (as mine did) drops to the ground every time she has to come in from recess, you might have some success in offering positive incentives for returning to the classroom (for my daughter, a few minutes to play with a Barbie); however, you're really not addressing the root cause of the behavior (e.g., the need for assistance with transitions) so the rewards will probably stop working (or you'll have to keep upping the ante) -- same behavior will probably crop up on other situations. Again, for my daughter, her drop-to-the-ground behavior was often a cry for help with transitions and/or a need for a break and to gain some control, so we weren't addressing the real problem by simply offering her incentives to "comply". Instead, on the advice of other parents, we started: (1) proactively giving her warnings that recess (or other activity) time was going to end soon, so that we wouldn't be expecting her to suddenly drop everything and move on to the next activities (incidentally, these warnings were beneficial for LOTS of kids... not just her); (2) NOT giving her attention when she did it (as this, in itself, became a motivator for the behavior; and (3) when the behavior did still occur (which became increasingly less frequent) telling her that she could come in "when she was ready" -- which typically made her just stand up and come in (essentially, we were giving her back the control she needed, and not giving her any attention). There's an article I read a couple of years ago on the "myth" that kids with DS are "stubborn" -- the main idea was that this "stubborness" was really a natural response to the disabilities our kids face: not being able to communicate effectively, never being in control of one's own life (think about how early our kids started to get therapies...). I also found that teachers/aides somehow felt it was OK to treat my daughter in a manner that they would never treat a typical child -- e.g., on day, when she dropped in the playground, an aide tried to "scare her" (her words) into coming in, actually grabbing at her, and my daughter responded by BITING her (the only time she has EVER bitten anyone). I told the principal -- and he didn't disagree -- that this is an example of what happens when you respond to a behavior inappropriately.

I am happy to say that -- knock on wood... -- the dropping behavior has ceased COMPLETELY (she's now 8), and I rarely even see "stubbornness". My husband and I always joke that if you go head-to-head with Louisa, you'll ALWAYS lose -- so we simply try not to get in that situation in the first place. Instead of telling her she has to do something immediately, we give her some choice regarding the activity -- e.g., with homework, we ask her which color pencil she wants to use or whether she wants to do reading or math first as opposed to focusing on the fact that she has to do the homework. A professor/consultant also once told me that she's observed that these undesired behaviors often evolve on their own for kids with DS -- that is, one minute you'll have issues with pushing, and then one day you'll notice that the child is now grabbing objects from others, etc. So, if all else fails... hang in there. Things WILL get better.

Also, remember that you'd rather have a child who advocates for himself than one who'd sit quietly in a corner by himself... since when is "fiesty" such a bad word??!!

Sheryl Weber <junglemom9> wrote:

Hi ,

Same story in this part of the world. and have moments when it is just impossible to do anything. We never know when or if they will just plop and refuse to move on. We do alot of rewards for behavior and recently started having negatives if bad behavior is done.

At school, is spitting when he is upset, so they wash his face every time it happens. He hates that. At home, if I hear there has been a problem no treat for the afternoon. That also seems to have an impact. Now on the other hand will keep testing and seems to think it is all a wonderful game. If the kids don't kill us, what will? Anyway, we moved in April and have tried to make it a big adventure. Dad is now working 4pm - midnight and that has its own issues at bedtime.

Your husband is just going to have to try and relax.. I keep hearing that Down's children make great strides between 7 and 10... so waiting up here in Maine for that too.

Good luck and remember, your not alone.

Sandy Weber

Mom to , , Barry, Aimee(92-03), Robbie, (98-00), , (ds) & (ds)(Identical Twins of triplets with Downs's)

Catch up on fall's hot new shows on Yahoo! TV. Watch previews, get listings, and more! Sheryl Knapp Literacy Advocates www.LiteracyAdvocates.com

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THE PROJECT LIFESAVER AND VARIOUS COUNTIES IN SOUTH FLORIDA PUT A PROGRAM TOGETHER W/ CERTAIN SHERIFF/POLICE DEPTS AND THE CARTRAK WRISTBANDS TO HELP CHILDREN THAT WANDER. CHECK IT OUT AT caretrak.com

I have friends who are part of the program and love it. Let me know. Irene

Re: Problem behavior question?

Hi ,

Same story in this part of the world. and have moments when it is just impossible to do anything. We never know when or if they will just plop and refuse to move on. We do alot of rewards for behavior and recently started having negatives if bad behavior is done.

At school, is spitting when he is upset, so they wash his face every time it happens. He hates that. At home, if I hear there has been a problem no treat for the afternoon. That also seems to have an impact. Now on the other hand will keep testing and seems to think it is all a wonderful game. If the kids don't kill us, what will? Anyway, we moved in April and have tried to make it a big adventure. Dad is now working 4pm - midnight and that has its own issues at bedtime.

Your husband is just going to have to try and relax.. I keep hearing that Down's children make great strides between 7 and 10... so waiting up here in Maine for that too.

Good luck and remember, your not alone.

Sandy Weber

Mom to , , Barry, Aimee(92-03), Robbie, (98-00), , (ds) & (ds)(Identical Twins of triplets with Downs's)

Catch up on fall's hot new shows on Yahoo! TV. Watch previews, get listings, and more!

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I will, very cool idea.

Thanks.

-- Re: Re: Problem behavior question?

THE PROJECT LIFESAVER AND VARIOUS COUNTIES IN SOUTH FLORIDA PUT A PROGRAM TOGETHER W/ CERTAIN SHERIFF/POLICE DEPTS AND THE CARTRAK WRISTBANDS TO HELP CHILDREN THAT WANDER. CHECK IT OUT AT caretrak.com

I have friends who are part of the program and love it. Let me know. Irene

Re: Problem behavior question?

Hi ,

Same story in this part of the world. and have moments when it is just impossible to do anything. We never know when or if they will just plop and refuse to move on. We do alot of rewards for behavior and recently started having negatives if bad behavior is done.

At school, is spitting when he is upset, so they wash his face every time it happens. He hates that. At home, if I hear there has been a problem no treat for the afternoon. That also seems to have an impact. Now on the other hand will keep testing and seems to think it is all a wonderful game. If the kids don't kill us, what will? Anyway, we moved in April and have tried to make it a big adventure. Dad is now working 4pm - midnight and that has its own issues at bedtime.

Your husband is just going to have to try and relax.. I keep hearing that Down's children make great strides between 7 and 10... so waiting up here in Maine for that too.

Good luck and remember, your not alone.

Sandy Weber

Mom to , , Barry, Aimee(92-03), Robbie, (98-00), , (ds) & (ds)(Identical Twins of triplets with Downs's)

Catch up on fall's hot new shows on Yahoo! TV. Watch previews, get listings, and more!

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Definitely not bad parenting, or we all must be bad parents!

-- Re: Problem behavior question?

My 8-year-old (typical) boys fight almost constantly... we've really been trying to work on it, but have had little success. I really think it's a multiples thing, but I know how frustrating it is (and my parents of course attribute it to bad parenting, since none of their other sibling grandchildren fight like that...). Any advice from older parents would be greatly appreciated! Verissimo <justelougmail> wrote:

OK Moms with older kids............ Help!

My husband and I are just about to pull our hair out over the behavior of both boys, especially Davey. Both boys are constantly fighting, even in stores, the car, home, you name it. Davey has started whining and crying for everything that he wants. He also has started "disappearing" on us, hiding when our backs are tuned. Today, we were showing the map on the wall at the county building and Davey just vanished in the 30 seconds we had our eyes off of him. I could give more examples, but I think you get the picture.

I am pretty sure it is getting worse because of our recent move, but this is getting ridiculous. My husband said he is at a point where we will be very selective on where we take them. I do not want to have to leave them with a sitter all of the time. We did yesterday just so we could get some business done in town.

Is it just because they are boys?

Any and all advice would be appreciated before I pull out all of my hair!

Mom to Amy 20, Kelsey 17, Davey (DS) 7 and Will 7

Sheryl Knapp Literacy Advocates www.LiteracyAdvocates.com

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I will check it out!

-- Problem behavior question?

OK Moms with older kids............ Help!

My husband and I are just about to pull our hair out over the behavior of both boys, especially Davey. Both boys are constantly fighting, even in stores, the car, home, you name it. Davey has started whining and crying for everything that he wants. He also has started "disappearing" on us, hiding when our backs are tuned. Today, we were showing the map on the wall at the county building and Davey just vanished in the 30 seconds we had our eyes off of him. I could give more examples, but I think you get the picture.

I am pretty sure it is getting worse because of our recent move, but this is getting ridiculous. My husband said he is at a point where we will be very selective on where we take them. I do not want to have to leave them with a sitter all of the time. We did yesterday just so we could get some business done in town.

Is it just because they are boys?

Any and all advice would be appreciated before I pull out all of my hair!

Mom to Amy 20, Kelsey 17, Davey (DS) 7 and Will 7

Windows Live Hotmail and Microsoft Office Outlook – together at last. Get it now!

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