Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 Honestly, this group doesen't even have a thousand members, millions upon millions of these perscriptions are being handed out. Apparently there is something different with how our brain react to these drugs, as opposed to the majority. Most psychiatrists probably have never heard of both this sexual and emotional numbing persisting after cessation. I know mine weren't and of course dubbed it on depression and raising the dose another 500 mg. There's no official reports I know of establishing any of this as a condition, or if it's even acknowledged. There's no research going on in this area, about why ssri's do this to some people, the pool is to small. Many doctors are probably suspicious about this. Everytime I go into the psychiatrists office they look at me like I'm crazy. I am so different now after ssri's, with memory problems, sexual problems, emotional problems, motivation problems, no desire. problems I have never had before ssri's, and no one even acknowledgs it. THere's no solution other then giving me more of the medicine that started it. I've been off these meds for hundreds of days, and I just can't say I feel anymore back to normal. At least if your depressed you can count on breakthroughs, no ones even paying attention to this problem How is it so hard to comprehend that A. Everyone reacts different to meds, and some people are going to have damming effects B. That manipulating a chemical that effects mood,sexual activity may cause mood problems, emotional problems, sexual problems. If you fiddle with something there's the potential for problems, and if our serotonin receptors our extra sensitve and were warn out or hindered in someway it's not surprising that some would face these problems. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 What do you mean there are no " official " reports? I suggest you find a new pychiatrist, especially considering all he/she wants to do is continue to give you psych meds. I've encountered a couple of ignorant doctors myself, and my response was to STOP seeing them. Giving up the fight is the worst thing we can do. Much progress has been made the last couple of years, and it all started with this group. It seems to me you're suggesting that we just give up, which is the worst thing we can do. I hope I don't come across as harsh, but you really need to change your approach in dealing with PSSD. Luther > > Honestly, this group doesen't even have a thousand members, millions > upon millions of these perscriptions are being handed out. Apparently > there is something different with how our brain react to these drugs, > as opposed to the majority. Most psychiatrists probably have never > heard of both this sexual and emotional numbing persisting after > cessation. I know mine weren't and of course dubbed it on depression > and raising the dose another 500 mg. > > There's no official reports I know of establishing any of this as a > condition, or if it's even acknowledged. There's no research going on > in this area, about why ssri's do this to some people, the pool is to > small. > > Many doctors are probably suspicious about this. Everytime I go into > the psychiatrists office they look at me like I'm crazy. > > I am so different now after ssri's, with memory problems, sexual > problems, emotional problems, motivation problems, no desire. problems > I have never had before ssri's, and no one even acknowledgs it. > THere's no solution other then giving me more of the medicine that > started it. I've been off these meds for hundreds of days, and I just > can't say I feel anymore back to normal. At least if your depressed > you can count on breakthroughs, no ones even paying attention to this > problem > > How is it so hard to comprehend that > > A. Everyone reacts different to meds, and some people are going to > have damming effects > > B. That manipulating a chemical that effects mood,sexual activity may > cause mood problems, emotional problems, sexual problems. If you > fiddle with something there's the potential for problems, and if our > serotonin receptors our extra sensitve and were warn out or hindered > in someway it's not surprising that some would face these problems. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 The reasons we are 'not noticed' have more to do with the fact that pharm companies sponsor the vast majority of studies of sexual and other side effects of SSRIs. The studies are more marketing than science-driven, many have subtle but significant design biases, and findings that are unfavorable to the sponsor often do not get published (although there is a strengthening movement to require pharm companies to register all of their trials). The belief among many health professionals that most side effects are well-known or well established by the time a medication is marketed, that if PSSD is valid they would have read about it in the literature is an uninformed position. It is not in the financial best interest of any pharm company to sponsor research that looks at long term side effects so no one has done it. And it is the sponsors who seem to be defining the research questions and methods these days. The FDA is impotent to force them to conduct the long term studies we need. Many of those who prescribe will be distressed to learn they may actually unknowingly be harming patients. They want to and need to trust their literature. So they resist the idea of PSSD as there is a lot at stake. Can they go on prescribing any medications if they can no longer confidently rely on the literature? I think this is where we are. We really have no way of knowing how large our numbers are... but we are here in numbers and though it will take time I am confident we are on our way to being heard.. > > Honestly, this group doesen't even have a thousand members, millions > upon millions of these perscriptions are being handed out. Apparently > there is something different with how our brain react to these drugs, > as opposed to the majority. Most psychiatrists probably have never > heard of both this sexual and emotional numbing persisting after > cessation. I know mine weren't and of course dubbed it on depression > and raising the dose another 500 mg. > > There's no official reports I know of establishing any of this as a > condition, or if it's even acknowledged. There's no research going on > in this area, about why ssri's do this to some people, the pool is to > small. > > Many doctors are probably suspicious about this. Everytime I go into > the psychiatrists office they look at me like I'm crazy. > > I am so different now after ssri's, with memory problems, sexual > problems, emotional problems, motivation problems, no desire. problems > I have never had before ssri's, and no one even acknowledgs it. > THere's no solution other then giving me more of the medicine that > started it. I've been off these meds for hundreds of days, and I just > can't say I feel anymore back to normal. At least if your depressed > you can count on breakthroughs, no ones even paying attention to this > problem > > How is it so hard to comprehend that > > A. Everyone reacts different to meds, and some people are going to > have damming effects > > B. That manipulating a chemical that effects mood,sexual activity may > cause mood problems, emotional problems, sexual problems. If you > fiddle with something there's the potential for problems, and if our > serotonin receptors our extra sensitve and were warn out or hindered > in someway it's not surprising that some would face these problems. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 So what do you recommend we do? I'm all ears... Vornan > > Honestly, this group doesen't even have a thousand members, millions > upon millions of these perscriptions are being handed out. Apparently > there is something different with how our brain react to these drugs, > as opposed to the majority. Most psychiatrists probably have never > heard of both this sexual and emotional numbing persisting after > cessation. I know mine weren't and of course dubbed it on depression > and raising the dose another 500 mg. > > There's no official reports I know of establishing any of this as a > condition, or if it's even acknowledged. There's no research going on > in this area, about why ssri's do this to some people, the pool is to > small. > > Many doctors are probably suspicious about this. Everytime I go into > the psychiatrists office they look at me like I'm crazy. > > I am so different now after ssri's, with memory problems, sexual > problems, emotional problems, motivation problems, no desire. problems > I have never had before ssri's, and no one even acknowledgs it. > THere's no solution other then giving me more of the medicine that > started it. I've been off these meds for hundreds of days, and I just > can't say I feel anymore back to normal. At least if your depressed > you can count on breakthroughs, no ones even paying attention to this > problem > > How is it so hard to comprehend that > > A. Everyone reacts different to meds, and some people are going to > have damming effects > > B. That manipulating a chemical that effects mood,sexual activity may > cause mood problems, emotional problems, sexual problems. If you > fiddle with something there's the potential for problems, and if our > serotonin receptors our extra sensitve and were warn out or hindered > in someway it's not surprising that some would face these problems. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 > > > What do you mean there are no " official " reports? > > I suggest you find a new pychiatrist, especially considering all > he/she wants to do is continue to give you psych meds. I've > encountered a couple of ignorant doctors myself, and my response was > to STOP seeing them. > > Giving up the fight is the worst thing we can do. Much progress has > been made the last couple of years, and it all started with this > group. It seems to me you're suggesting that we just give up, which > is the worst thing we can do. > > I hope I don't come across as harsh, but you really need to change > your approach in dealing with PSSD. > > Luther > problems. > > > Ok firstly, I feel that I've been ruined by ssri's emotionally; Ihave no desire, no passion, sexual desire hindered. I have been like this for 4 years, banging my head against a desk in frustration as people thought I was insane about thinking I had these problems. My patience is running thin. And all I have faced is multiple psychiatrists and therapists dismissing it as not the cause of ssri's. Is there anything in accepted medical literature that ssri's can cause these effects? Are there medications out in the market targeted towards solving pssd. Is this even listed as a potential side effect on the drug website? If I go in the doctors office and say i've been permanently fucked up by ssri's is he going to understand, or is he going to call bullshit? My point is that until this problem can be acknowledged by the fda and professionals, I just don't think will get anywhere. And it's not recognized, not by professionals i've talked toa t least It's sad that I have to self treat these symptoms. Have you come acrossed psychiatrists who have acknowledged this condition and worked with you to treat it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 I want to add that it's strange timing for you to say 'no one is paying attention to this problem'. Have you read the article that was posted? > > Honestly, this group doesen't even have a thousand members, millions > upon millions of these perscriptions are being handed out. Apparently > there is something different with how our brain react to these drugs, > as opposed to the majority. Most psychiatrists probably have never > heard of both this sexual and emotional numbing persisting after > cessation. I know mine weren't and of course dubbed it on depression > and raising the dose another 500 mg. > > There's no official reports I know of establishing any of this as a > condition, or if it's even acknowledged. There's no research going on > in this area, about why ssri's do this to some people, the pool is to > small. > > Many doctors are probably suspicious about this. Everytime I go into > the psychiatrists office they look at me like I'm crazy. > > I am so different now after ssri's, with memory problems, sexual > problems, emotional problems, motivation problems, no desire. problems > I have never had before ssri's, and no one even acknowledgs it. > THere's no solution other then giving me more of the medicine that > started it. I've been off these meds for hundreds of days, and I just > can't say I feel anymore back to normal. At least if your depressed > you can count on breakthroughs, no ones even paying attention to this > problem > > How is it so hard to comprehend that > > A. Everyone reacts different to meds, and some people are going to > have damming effects > > B. That manipulating a chemical that effects mood,sexual activity may > cause mood problems, emotional problems, sexual problems. If you > fiddle with something there's the potential for problems, and if our > serotonin receptors our extra sensitve and were warn out or hindered > in someway it's not surprising that some would face these problems. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 Here are my thoughts as to why we don't have over a thousand members yet among other things. It is definitely not because we are the only sufferers of PSSD in existence here. One reason is because this group is not easy to find. Out of the millions of people who receive prescriptions for psychiatric drugs, do you think that everyone has access to the Internet? Even if they do have access, do you think those people have the capabilities to find the PSSD group? Nobody knows what PSSD is. We are defining what is right now! I have suffered with this for nine years and have only found out about other sufferers this year. I studied computer science and was very fortunate to have access to a computer and the Internet for years and even I had difficulty finding this group. Trust me, its not like I didn't put effort into finding out about what was going on with my body and mind because of psychiatric drugs. I spent way too much time on the Internet trying to figure out what was wrong with me. As is stated time and time again, the doctors make you feel stupid and like you have no problem. So with doctors telling us this all the time, that would deter people from doing any further research on the Internet, thus making them unable to find us. I have been to inpatient psychatric care many times because of the bipolar disorder that was *CAUSED* by taking Prozac. Trust me, these people in the inpatient care are suffering with some form of sexual dysfunction. Many can barely feed themselves...do you really think they can have sex? Also, why would these people even care about sex at that point? For the few people that can manage to handle a conversation with me because they aren't SO DRUGGED UP YET, we do talk about side effects. People tell me that they don't care about the sexual side effects or any side effects sometimes because they are under the impression they are "feeling better" from the medications. So again, that's more people who will not find our group. How many of you were embarassed to talk to someone (even anonymously) about your sexual dysfunction? I was only 17 when my problem occurred. I had no idea what was going on for many months. I didn't want to admit that I had a problem. How many people out there are just in denial that they are having problems from medications? There are so many! Statistics show than up to 96% of people taking psychatric medications have sexual dysfunction. Only 1% of people report their adverse effects to the FDA. Prozac has over 40,000 adverse effect reports and is the #1 drug when it comes to adverse effect reports. Realistically there should be 4,000,000 adverse effect reports submitted to the FDA about Prozac alone! Why aren't they reported? Is it because the Medwatch form online is the only way to report? Are people just lazy? If you're still reading this and haven't yet done so...please fill out your adverse effect report! Oh yes, and when you are on a urology / impotence / psychology / any damn site, please make sure to advertise for this group! Encourage your doctors to participate in this group as well. We will break the 1,000 member mark before the end of this year! I am going to help out Vornan / with the website. Everyone who can pitch in, please do so! We really need to switch from a Yahoo group to a searchable forum based website! mlynch1500 wrote: Honestly, this group doesen't even have a thousand members, millionsupon millions of these perscriptions are being handed out. Apparentlythere is something different with how our brain react to these drugs,as opposed to the majority. Most psychiatrists probably have neverheard of both this sexual and emotional numbing persisting aftercessation. I know mine weren't and of course dubbed it on depressionand raising the dose another 500 mg. There's no official reports I know of establishing any of this as acondition, or if it's even acknowledged. There's no research going onin this area, about why ssri's do this to some people, the pool is tosmall.Many doctors are probably suspicious about this. Everytime I go intothe psychiatrists office they look at me like I'm crazy. I am so different now after ssri's, with memory problems, sexualproblems, emotional problems, motivation problems, no desire. problemsI have never had before ssri's, and no one even acknowledgs it.THere's no solution other then giving me more of the medicine thatstarted it. I've been off these meds for hundreds of days, and I justcan't say I feel anymore back to normal. At least if your depressedyou can count on breakthroughs, no ones even paying attention to thisproblemHow is it so hard to comprehend that A. Everyone reacts different to meds, and some people are going tohave damming effectsB. That manipulating a chemical that effects mood,sexual activity maycause mood problems, emotional problems, sexual problems. If youfiddle with something there's the potential for problems, and if ourserotonin receptors our extra sensitve and were warn out or hinderedin someway it's not surprising that some would face these problems. Stay in the know. Pulse on the new Yahoo.com. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2006 Report Share Posted October 20, 2006 I haven't posted here in a long long time but I am ready to get back into the conversation happening on this site. Well said Rockyroc, I agree with your whole comment. I too suffer this PSSD as its been named on this site and I've been through the whole painful fiasco of going to unhelpful psychiatrists, loosing money to these creeps nd loosing time out of mylife as well as quality of life, from, as you pointed out thoughtfuly, dampening effects on emotions, motivation, creativity, and the whole gamut of human experience. I am trying to get on with life however, and I do have a kind of some libido in me and I try to focus on that and not let the problem be where all of my focus is investeed. HAS ANYONE CHECKED UP ON PT-141 L ATELY? It is in phase 3 and getting interesing results, you can accually buy it from europe now for a very steep price. Lets hope that in three years this drug will come out and at least help our situation. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2006 Report Share Posted October 20, 2006 It actually isn't quite in Phase 3 yet. It was supposed to begin in " late 2006 " , but that's the last I heard. It seems promising, but it is so far away I'm trying not to think about it. It would be cool if some folks here could be a part of Phase 3. I'm not sure if they've recruited yet. I probably won't do it, as the clinic in my area that is probably doing it doesn't believe PSSD exists (namely Dr. Guay). Luther > > I haven't posted here in a long long time but I am ready to get back into the conversation > happening on this site. Well said Rockyroc, I agree with your whole comment. I too suffer > this PSSD as its been named on this site and I've been through the whole painful fiasco of > going to unhelpful psychiatrists, loosing money to these creeps nd loosing time out of mylife > as well as quality of life, from, as you pointed out thoughtfuly, dampening effects on > emotions, motivation, creativity, and the whole gamut of human experience. I am trying to > get on with life however, and I do have a kind of some libido in me and I try to focus on that > and not let the problem be where all of my focus is investeed. > HAS ANYONE CHECKED UP ON PT-141 L ATELY? It is in phase 3 and getting > interesing results, you can accually buy it from europe now for a very steep price. Lets hope > that in three years this drug will come out and at least help our situation. > Quote Link to comment Share on other sites More sharing options...
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