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[Guest guest]

Hello from New Jersey!

will be finished the extended school year

program on Friday. I don't know where the 6 weeks has

gone!! My twins will be starting the same school in

the fall. My son will be in the regular 4 year

old preshcool class and will be in the

preschool disabled program. It will be good b/c they

will be arriving and leaving the school at the same

time. I'm going to have start a dance school

in the fall too. Now I have to find something for

!

Mom of and (DS)- age 4

__________________________________________________

[Guest guest]

Welcome to all the new members! I am ,wife to Rusty of 14yrs years(yesterday). We have 3 children, 13yr,Dayton 8yr and 4yr. They all have Down Syndrome. Quick version.. and Dayton have translocation and our birth children and I am a carrier and no it does not run in my family. has typical Trisomy 21 and we adopted him at 4weeks of age.

is going into 7th grade next year and doing well in school. Still have isues with swallowing and aspirating. We are waiting on a upper GI again. Almost certain her fundo for reflux has slipped for the 2nd time and a hernia is present once again. We do not want to do surgery trying hard to keep the reflux under control. She spent 5 days in the hospital first of March and finally getting better airway wise. Dayton is quiet a handful most days. He very aggressive and agaiated when not getting his way. We tried several behavior tricks but nothing doing the trick. I have took him off all meds and he much better in alot of ways. The only down fall is when he stops,drops and screams.Potty training is a no go. He still has alot of issues with transition no matter what the situation is. He will be changing schools again next year going to 3rd grade.

soon to be 5yr and still in air on going to kindergartner yet. He so tiny and still not walking. He still weighs 24-25lbs and finally 34inches. He bear walks every where and is very fast! He comes down the steps now head first like a DARE! He started having seizures back at Christmas time and think we are finally getting it somewhat under control. We went for a MRI but because our stridor has came back in full force(thank to the reflux and fundo fail also and hernia is present),they having us to come back for the MRI nder sedation fully antheised(sp).

Rusty and I spent this past weekend in Daytona Beach,FL. It was wonderful!! We met up with Irene and her 4 kids. It was great to finally met her! Zachery is quiet a ham and handsome! Of course all the children where beautiful. Deanna and her 4 kids are also there and still there at this moment! None of us had a camera with us.. just our cell phone camera.. Deanna said she would upload the pics. Deanna and her crew are coming to our hous Thursday till Sat and then heading back to Ohio. Well it is spring break and kids are starting to stir and ready to eat.. LOL. said HEY!

[Guest guest]

Happy Anniversary!

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Welcome to all the new members! I am ,wife to Rusty of 14yrs years(yesterday). We have 3 children, 13yr,Dayton 8yr and 4yr. They all have Down Syndrome. Quick version.. and Dayton have translocation and our birth children and I am a carrier and no it does not run in my family. has typical Trisomy 21 and we adopted him at 4weeks of age.

is going into 7th grade next year and doing well in school. Still have isues with swallowing and aspirating. We are waiting on a upper GI again. Almost certain her fundo for reflux has slipped for the 2nd time and a hernia is present once again. We do not want to do surgery trying hard to keep the reflux under control. She spent 5 days in the hospital first of March and finally getting better airway wise. Dayton is quiet a handful most days. He very aggressive and agaiated when not getting his way. We tried several behavior tricks but nothing doing the trick. I have took him off all meds and he much better in alot of ways. The only down fall is when he stops,drops and screams.Potty training is a no go. He still has alot of issues with transition no matter what the situation is. He will be changing schools again next year going to 3rd grade.

soon to be 5yr and still in air on going to kindergartner yet. He so tiny and still not walking. He still weighs 24-25lbs and finally 34inches. He bear walks every where and is very fast! He comes down the steps now head first like a DARE! He started having seizures back at Christmas time and think we are finally getting it somewhat under control. We went for a MRI but because our stridor has came back in full force(thank to the reflux and fundo fail also and hernia is present),they having us to come back for the MRI nder sedation fully antheised(sp).

Rusty and I spent this past weekend in Daytona Beach,FL. It was wonderful!! We met up with Irene and her 4 kids. It was great to finally met her! Zachery is quiet a ham and handsome! Of course all the children where beautiful. Deanna and her 4 kids are also there and still there at this moment! None of us had a camera with us.. just our cell phone camera.. Deanna said she would upload the pics. Deanna and her crew are coming to our hous Thursday till Sat and then heading back to Ohio. Well it is spring break and kids are starting to stir and ready to eat.. LOL. said HEY!

[Guest guest]

Hi ,

Who would believe your plate is so full, when I finally meet you you seemed so carefree

and fun loving! It was great to finally meet, who knows maybe 1 day we'll be in Georgia

so I can meet your gang. Tell Randy I appreciate how he kept an eye out for Zack, he is

so incredibly curious he has to see and touch everything! It was great to meet Deana

and her bunch too.

I hope will start to feel better w/ her reflux, will she need to do something about the

hernia? Hopefully Dayton will start to respond to one of your behavior tricks, it's so hard to

be creative when you feel like nothing helps Good luck w/ your decision about

and starting Kindergarten, if he is as litle a peanut as you described another year before

he starts maybe a good thing. Zack repeated 2X and he is still one of the smallest in his

class, I can't imagine if he was in 3rd grade at his current size.

Lastly, I hope you and Deana have a great visit, please take some pictures of all the kids

and send them, I missed seeing your gang! Maybe some time when you go to Hope Haven

we'll be there too. We just diagnosed Jake w/ ADHD and he's now a patient of DR. PESEK

too.

Irene

Zachary DS/ADHD, , 8

Jake ADHD 10

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Welcome to all the new members! I am ,wife to Rusty of 14yrs years(yesterday). We have 3 children, 13yr,Dayton 8yr and 4yr. They all have Down Syndrome. Quick version.. and Dayton have translocation and our birth children and I am a carrier and no it does not run in my family. has typical Trisomy 21 and we adopted him at 4weeks of age.

is going into 7th grade next year and doing well in school. Still have isues with swallowing and aspirating. We are waiting on a upper GI again. Almost certain her fundo for reflux has slipped for the 2nd time and a hernia is present once again. We do not want to do surgery trying hard to keep the reflux under control. She spent 5 days in the hospital first of March and finally getting better airway wise. Dayton is quiet a handful most days. He very aggressive and agaiated when not getting his way. We tried several behavior tricks but nothing doing the trick. I have took him off all meds and he much better in alot of ways. The only down fall is when he stops,drops and screams.Potty training is a no go. He still has alot of issues with transition no matter what the situation is. He will be changing schools again next year going to 3rd grade.

soon to be 5yr and still in air on going to kindergartner yet. He so tiny and still not walking. He still weighs 24-25lbs and finally 34inches. He bear walks every where and is very fast! He comes down the steps now head first like a DARE! He started having seizures back at Christmas time and think we are finally getting it somewhat under control. We went for a MRI but because our stridor has came back in full force(thank to the reflux and fundo fail also and hernia is present),they having us to come back for the MRI nder sedation fully antheised(sp).

Rusty and I spent this past weekend in Daytona Beach,FL. It was wonderful!! We met up with Irene and her 4 kids. It was great to finally met her! Zachery is quiet a ham and handsome! Of course all the children where beautiful. Deanna and her 4 kids are also there and still there at this moment! None of us had a camera with us.. just our cell phone camera.. Deanna said she would upload the pics. Deanna and her crew are coming to our hous Thursday till Sat and then heading back to Ohio. Well it is spring break and kids are starting to stir and ready to eat.. LOL. said HEY!

[Guest guest]

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Well things have kind of gone a little haywire for us lately, We just found out that will need to have more Heart surgery. He needs a stent put in his pulmonary artery and he also needs his pulmonary valve replaced. The oncologist is also worried that he may have skin cancer as he has a bunch of moles that are making really weird changes and rather rapidly. So needless to say we are in for a lot of chaos. School is starting for all of us on Sept. 4 and I am sure that they will wait till after school starts to book his surgery so as to cause me more chaos than necessary. Jayk and Kate have stable health right now so at least that is a blessing.

Merry Low Single Parent to 15 DS, congenital heart defect, Hypothyroidism, Leukemia(in remission), chronic lung disease, asthma, Failure to thrive, and osteoperosis; Kate 13 ADHD, NAS, Long QT Syndrome; Jaykob 11 DS, ADHD, hypothyroidism, moderate hearing loss

[Guest guest]

Prayers coming your way.

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Well things have kind of gone a little haywire for us lately, We just found out that will need to have more Heart surgery. He needs a stent put in his pulmonary artery and he also needs his pulmonary valve replaced. The oncologist is also worried that he may have skin cancer as he has a bunch of moles that are making really weird changes and rather rapidly. So needless to say we are in for a lot of chaos. School is starting for all of us on Sept. 4 and I am sure that they will wait till after school starts to book his surgery so as to cause me more chaos than necessary. Jayk and Kate have stable health right now so at least that is a blessing.

Merry Low Single Parent to 15 DS, congenital heart defect, Hypothyroidism, Leukemia(in remission), chronic lung disease, asthma, Failure to thrive, and osteoperosis; Kate 13 ADHD, NAS, Long QT Syndrome; Jaykob 11 DS, ADHD, hypothyroidism, moderate hearing loss