Re: Check-in Day!, 2/5/2007, 12:00 am

February 4, 2007

Hello to all,

My name is , husband and 8 year old twins

Vinnie (DS) and Sloan. They will be 9 this May.

Vinnie's major medical problems are sinus problems and

alopecia, (baldness) Vinnie started losing his hair

after he was 2 years old. Doctors say that usually it

will grow back after a year, Vinnie's hair has never

grown back except for his eye brows and eye lashes

which they still fall out and grow back.

I had a child ask me if I did that to his hair, I said

no God did that to his hair.

I mostly lurk on the list, because I don't have alot

of free time to respond. I have been around since this

list was created.

I hope everyone is well with this nasty winter

weather.

--- Multiples-DS wrote:

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>

> Check-in Day!

> Monday February 5, 2007

> All Day

> (This event repeats every other month on the first

> Monday.)

>

> Notes:

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> at risk for being removed from Multiples-DS! Please

> check-in with the group by posting to the group --

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February 5, 2007

Hey so good to see you are still around.... Remember with Landon and Ashton.... We all had kiddos going to be 9yr this year...

Wow time slips away so fast! Love to see updated pictures of all our kiddo.

...

Re: Check-in Day!, 2/5/2007, 12:00 am

Hello to all,My name is , husband and 8 year old twinsVinnie (DS) and Sloan. They will be 9 this May.Vinnie's major medical problems are sinus problems andalopecia, (baldness) Vinnie started losing his hairafter he was 2 years old. Doctors say that usually itwill grow back after a year, Vinnie's hair has nevergrown back except for his eye brows and eye lasheswhich they still fall out and grow back.I had a child ask me if I did that to his hair, I saidno God did that to his hair.I mostly lurk on the list, because I don't have alotof free time to respond. I have been around since thislist was created.I hope everyone is well with this nasty winterweather.--- Multiples-DS wrote:> Reminder from: Multiples-DS Yahoo! Group> http://groups.yahoo.com/group/Multiples-DS/cal> > Check-in Day!> Monday February 5, 2007> All Day> (This event repeats every other month on the first> Monday.)> > Notes:> If you haven't posted in over 8 weeks - you are now> at risk for being removed from Multiples-DS! Please> check-in with the group by posting to the group --> even a small update! > > Lurking is NO longer allowed on this group!!> > Thanks!> > > > All Rights Reserved> Copyright © 2007 > Yahoo! Inc.> http://www.yahoo.com> > Privacy Policy:> http://privacy.yahoo.com/privacy/us> > Terms of Service:> http://docs.yahoo.com/info/terms/> __________________________________________________________Finding fabulous fares is fun. Let Yahoo! FareChase search your favorite travel sites to find flight and hotel bargains.http://farechase.yahoo.com/promo-generic-14795097

February 5, 2007

Any advice on keeping twins together for a 3 yr old pre-school program? My 3 yr old boy is starting to get a little parental with his twin sister (Ds) Not sure how much I want him to feel like he "needs" to take care of her? (Of course I want him to want to!) Thanks for any tips, I know many of you have been through this. , Mom to 5yr old girl and almost three yr old twins. Mainecmedrano@... wrote: Hey so good to see you are still around.... Remember with Landon and Ashton.... We all had kiddos going to be 9yr this year... Wow time slips away so fast! Love to see updated pictures of all our kiddo. ... Re: Check-in Day!, 2/5/2007, 12:00 am Hello to all,My name is , husband and 8 year old twinsVinnie (DS) and Sloan. They will be 9 this May.Vinnie's major medical problems are sinus problems andalopecia, (baldness) Vinnie started losing his hairafter he was 2 years old. Doctors say that usually itwill grow back after a year, Vinnie's hair has nevergrown back except for his eye brows and eye lasheswhich they still fall out and grow back.I had a child ask me if I did that to his hair, I saidno God did that to his hair.I mostly lurk on the list, because I don't have alotof free time to respond. I have been around since thislist was created.I hope everyone is well with this nasty winterweather.--- Multiples-DS wrote:> Reminder from: Multiples-DS Yahoo! Group> http://groups.yahoo.com/group/Multiples-DS/cal> > Check-in Day!> Monday February 5, 2007> All Day> (This event repeats every other month on the first> Monday.)> > Notes:> If you haven't posted in over 8 weeks - you are now> at risk for being removed from Multiples-DS! Please> check-in with the group by posting to the group --> even a small update! > > Lurking is NO longer allowed on this group!!> > Thanks!> > > > All Rights Reserved> Copyright © 2007 > Yahoo! Inc.> http://www.yahoo.com> > Privacy Policy:> http://privacy.yahoo.com/privacy/us> > Terms of Service:> http://docs.yahoo.com/info/terms/> __________________________________________________________Finding fabulous fares is fun. Let Yahoo! FareChase search your favorite travel sites to find flight and hotel bargains.http://farechase.yahoo.com/promo-generic-14795097

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February 5, 2007

With four kids going different directions, it is always crazy here. My oldest, Amy (19) moved out last summer to be closer to the university. She is working hard at school and also working as a respite worker 20-30 hours a week for our local agency. Kelsey is almost 17 and taking AP classes at school. She has a job at a spa as a receptionist on Saturdays. She is big into her horses and also rides horses for a couple of other people.

Davey and Will will be 7 this month! I found this group when they were a couple of month old. Davey has been very healthy, except for a bout of strep this last week. I hope we all don't catch it! Davey loves school and is very musical. He got a guitar for Christmas and loves singing for us. Will is not so sure he likes school, but still made the Principal's last for his first semester in 1st grade. Both boys can't wait for T-ball to start. My husband bought the boys new bats yesterday, so baseball fever is gaining around here! Last year most of their games were snowed out!

Hope everyone is well. I love hearing about everyone's families.

-- Check-in Day!, 2/5/2007, 12:00 am

Reminder from:

Multiples-DS Yahoo! Group

Title:

Check-in Day!

Date:

Monday February 5, 2007

Time:

All Day

Repeats:

This event repeats every other month on the first Monday.

Notes:

If you haven't posted in over 8 weeks - you are now at risk for being removed from Multiples-DS! Please check-in with the group by posting to the group -- even a small update! Lurking is NO longer allowed on this group!!Thanks!

February 5, 2007

Good Morning!

Here in Northern NJ, we snow board & ski allot.

My older two are also just beginning Lacrosse practices for the spring season. plays Lacrosse as well, but in 2nd grade, they don't travel to other towns yet. Tara will continue taking swimming lessons, every Saturday morning. I have yet to get her on her skis this season, but I'll do it, since my husband doesn't ski, it's all on me to get all my kids to the mountain.

On the school front, I requested that a team be established and attend a workshop in April, given by the NJCIE ( New Jersey Coalition for Inclusion Education) it's a whole day workshop dedicated on our "focus child" (that would be Tara) to teach the "team" how to included Tara in the reg. ed. classroom. The team consists of, Tara's current spec. ed. teacher, me, the parent, Tara's new teacher for next year, 2nd. grade.

And now I found out that the Dir. of Special Services wants to go too (he's new) and the Principal of the building where Tara will be this Sept. also. WOW!!!

I have requested that we attend this workshop for two consecutive years, and I was always turned down by the "old" Director.

Now I feel better that this new Dir. seams to be taking me seriously, and wants to learn all he can, the district even paid for me to attend!!!

I also wanted to do this in April, BEFORE we sit for Tara's annual review sometime in May.

Gail, Mom to

Bobby 13, Jillian 10, & Tara(Ds) 7 1/2

February 5, 2007

Hello everyone! I haven't had as much luck in the healthy department. Once Molly recovered from her pneumonia, we landed back at the University of Minnesota for a PDA repair. It was essentially closed all these months and then they think because of all the pressure on her lungs, it opened her PDA wide open. So we fixed it in the cath lab so no puncture sites. She never acted sick, had NO pain-literally!, and were back home within 24 hours of the surgery so that was nice. She continues to need O2 at night to sleep--ummm? We don't see the pulmonologist until Feb 21st to find out what that is all about. The hospital I work at has had 1-3 DS babies being born each month. I think it's time that I start talking to the mommy's. Especially the undiagnosed moms that haven't had time to process the information. I think I will be good at it?? I felt that maybe since Molly is only 4

motnhs old, I wouldn't have much to offer but all these DS babies keep landing in my lap. So anyway, I am going to give it a shot. Do any of you talk to new moms and dads? Other than that, everything is same old same old around here.

Bored stiff? Loosen up...Download and play hundreds of games for free on Yahoo! Games.

February 5, 2007

We only had 2 preschool classes so my triplets had to double-up in one of the classes. The first year, I put my typical boys together (keeping my daughter(dS) alone), but the second year we decided to put her with one of her brothers. In retrospect, we chose the right brother -- he's much less "maternal" with her than my other son is, so he was able to do his own thing and not feel the need to keep checking on her. The following year, we had the same situation in K and the new school felt very strongly that the boys be split up so I put the other brother with her -- and we did have some problems with her doting on her too much (according to the teacher, anyway -- I don't think that the teacher understood that, although he was physically touching her often (he liked to put his hand on her back), he really could do his own thing much of the time); actually, I think it was more a problem for him (getting in trouble for touching her, and being

forced to respond to her behavior in a different way than he had been instructed to at home) than it was for her. I think the bottom line is the personalities/relationship of your twins: I know of some twins who could not be together (typically because they relied on each other too much socially and academically, which is more often the case when one twin is developmentally behind as ours are), and others who could not be apart (because one twin needed to be able to quickly "check in" on his twin, and would be perpetually stressed/distracted when he couldn't)... and that's a decision that only YOU (vs. the school) can make. Sheryl, mom to Caleb, Louisa(DS) and Ethan, 7 1/2 wrote: Any advice on keeping twins together for a 3 yr old pre-school program? My 3 yr old boy is starting to get a little parental with his twin sister (Ds) Not sure how much I want him to feel like he "needs" to take care of her? (Of course I want him to want to!) Thanks for any tips, I know many of you have been through this. , Mom to 5yr old girl and almost three yr old twins. Mainecmedranomchsi wrote: Hey so good to see you are

still around.... Remember with Landon and Ashton.... We all had kiddos going to be 9yr this year... Wow time slips away so fast! Love to see updated pictures of all our kiddo. ... Re: Check-in Day!, 2/5/2007, 12:00 am Hello to

all,My name is , husband and 8 year old twinsVinnie (DS) and Sloan. They will be 9 this May.Vinnie's major medical problems are sinus problems andalopecia, (baldness) Vinnie started losing his hairafter he was 2 years old. Doctors say that usually itwill grow back after a year, Vinnie's hair has nevergrown back except for his eye brows and eye lasheswhich they still fall out and grow back.I had a child ask me if I did that to his hair, I saidno God did that to his hair.I mostly lurk on the list, because I don't have alotof free time to respond. I have been around since thislist was created.I hope everyone is well with this nasty winterweather.--- Multiples-DS wrote:> Reminder from: Multiples-DS Yahoo! Group> http://groups.yahoo.com/group/Multiples-DS/cal> > Check-in Day!> Monday February 5, 2007> All Day> (This event repeats every other month on the first> Monday.)> > Notes:> If you haven't posted in over 8 weeks - you are now> at risk for being removed from Multiples-DS! Please> check-in with the group by posting to the group --> even a small update! > > Lurking is NO longer allowed on this group!!> > Thanks!> > > > All Rights Reserved> Copyright © 2007 > Yahoo! Inc.> http://www.yahoo.com> > Privacy Policy:> http://privacy.yahoo.com/privacy/us> > Terms of Service:> http://docs.yahoo.com/info/terms/> ___________________ _______________________________________Finding fabulous fares is fun. Let Yahoo! FareChase search your favorite travel sites to find flight and hotel bargains.http://farechase.yahoo.com/promo-generic-14795097 Have a burning question? Go to Yahoo! Answers and get answers from real people who know.

February 5, 2007

Hi All. I am Missy mother to 3 year old girls, and Sadie (ds). In January, Sadie started preschool with the public school system. does not qualify for services. It was a hard transition but is slowly understanding that Sadie goes to "class" and gets to go spend 1on 1 time with Mommy or Granny (who watches them for 4 days while I work). We supplement therapy by doing outside private therapy. Sadie goes to speech therapy 1 day a week and we are in the process of getting her signed up for OT/PT (we do alot of these therapies ourselves). We took a break from therapies after Sadie turned 3 in November which was a huge relief. Sadie had been in services every week since she was 6 weeks old and I felt that I really lost a lot of "mommy" time with both kids. I too am a lurker but I do participate every now and then. There is a bunch of

information that I have learned and I am so greatful for all the advice and expertise that I get to read about. Missy and Sadie (ds) age 3 wrote: Any advice on keeping twins together for a 3 yr old pre-school program? My 3 yr old boy is starting to get a little parental with his twin sister (Ds) Not sure how much I want him to feel like he "needs" to take care of her? (Of course I want

him to want to!) Thanks for any tips, I know many of you have been through this. , Mom to 5yr old girl and almost three yr old twins. Mainecmedranomchsi wrote: Hey so good to see you are still around.... Remember with Landon and Ashton.... We all had kiddos going to be 9yr this year... Wow time slips away so fast! Love to see updated pictures of all our kiddo. ... Re: Check-in Day!, 2/5/2007, 12:00 am Hello to all,My name is , husband and 8 year old twinsVinnie (DS) and Sloan. They will be 9 this May.Vinnie's major medical problems are sinus problems andalopecia, (baldness) Vinnie started losing his hairafter he was 2 years old. Doctors say that usually itwill grow back after a year, Vinnie's hair has nevergrown back except for his eye brows and eye lasheswhich they still fall out and grow back.I had a child ask me if I did that to his hair, I saidno God did

that to his hair.I mostly lurk on the list, because I don't have alotof free time to respond. I have been around since thislist was created.I hope everyone is well with this nasty winterweather.--- Multiples-DS wrote:> Reminder from: Multiples-DS Yahoo! Group> http://groups.yahoo.com/group/Multiples-DS/cal> > Check-in Day!> Monday February 5, 2007> All Day> (This event repeats every other month on the first> Monday.)> > Notes:> If you haven't posted in over 8 weeks - you are now> at risk for being removed from Multiples-DS! Please> check-in with the group by posting to the group --> even a small update! > > Lurking is NO longer allowed on this group!!> >

Thanks!> > > > All Rights Reserved> Copyright © 2007 > Yahoo! Inc.> http://www.yahoo.com> > Privacy Policy:> http://privacy.yahoo.com/privacy/us> > Terms of Service:> http://docs.yahoo.com/info/terms/> __________________________________________________________Finding fabulous fares is fun. Let Yahoo! FareChase search your favorite travel sites to find flight and hotel bargains.http://farechase.yahoo.com/promo-generic-14795097 Have a burning question? Go to Yahoo! Answers and get answers from real people who know.

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February 5, 2007

Just checking in. has had a cold but is better now. He has actually been pretty healthy otherwise except for a bad sinus infection awhile back. We took him to see Sesame Street Live (Elmo Sings) in Kansas City on Saturday and he really enjoys going to that each year. It was bitter cold but was a fun day. attends the day service program each day during the week at Achievement Services. The staff they have right now does a great job with everyone. They have had some staff in the past that has been not so good and I was glad when they either quit or was fired. We are fortunate that the Director of Achievement Services is also our State Representative in Topeka, KS, so when we have Legislative concerns about persons with disabilities we have an inside track. He has been in the House of Representatives for several years now and has really been a good advocate in all areas. Hope everyone is doing well and it isn't too cold where you are!! Judy & Bob Parents to 27yrs the joy of our lives who happens to have ds and multiple disabilities and 34yrs.

-- Check-in Day!, 2/5/2007, 12:00 am

Reminder from:

Multiples-DS Yahoo! Group

Title:

Check-in Day!

Date:

Monday February 5, 2007

Time:

All Day

Repeats:

This event repeats every other month on the first Monday.

Notes:

If you haven't posted in over 8 weeks - you are now at risk for being removed from Multiples-DS! Please check-in with the group by posting to the group -- even a small update! Lurking is NO longer allowed on this group!!Thanks!

February 5, 2007

-

Gretchen started prek when she turned 3 (in November). Since the girls did not turn 3 until November, my other twin-a (typical, non-DS) was not eligible to be in the prek program with Gretchen. So, we put them together in the same prek class the following school year when they were 4. a was MY crutch. I depended on her to tell me what was going on in class and to help interpret for Gretchen since she was non-verbal. We quickly saw that a was becoming such the typical middle child and needed an identity of her own. So, for their 3rd year of preschool, I separated the girls. In fact, I sent a to a different preschool, which my son had attended years ago so we knew that program and it was the right program for a. I was VERY nervous about spliting them up, well let me tell you, I am SOOO glad that we did it. Both girls have flourished this year. Gretchen is holding her own and a has found herself and is happy. I actaul

ly have one on one time with each of them and lots of together time for all three of us.

So, if you want to talk more about separating them, feel free to email me offline.

Regards-

Inga

Mom to (9) and Gretchen -DS & a (5)

--------- Re: Check-in Day!, 2/5/2007, 12:00 am

Hello to all,My name is , husband and 8 year old twinsVinnie (DS) and Sloan. They will be 9 this May.Vinnie's major medical problems are sinus problems andalopecia, (baldness) Vinnie started losing his hairafter he was 2 years old. Doctors say that usually itwill grow back after a year, Vinnie's hair has nevergrown back except for his eye brows and eye lasheswhich they still fall out and grow back.I had a child ask me if I did that to his hair, I saidno God did that to his hair.I mostly lurk on the list, because I don't have alotof free time to respond. I have been around since thislist was created.I hope everyone is well with this nasty winterweather.--- Multiples-DS wrote:> Reminder from: Multiples-DS Yahoo! Group> http://groups

..yahoo.com/group/Multiples-DS/cal> > Check-in Day!> Monday February 5, 2007> All Day> (This event repeats every other month on the first> Monday.)> > Notes:> If you haven't posted in over 8 weeks - you are now> at risk for being removed from Multiples-DS! Please> check-in with the group by posting to the group --> even a small update! > > Lurking is NO longer allowed on this group!!> > Thanks!> > > > All Rights Reserved> Copyright © 2007 > Yahoo! Inc.> http://www.yahoo.com> > Privacy Policy:> http://privacy.yahoo.com/privacy/us> > Terms of Service:> http://docs.yahoo.com/info/terms/> _________

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February 5, 2007

We have had quite the weekend here in Roanoke, Virginia! After we made the

decision to go ahead with Will's T & A,I thought we could take a break from stress

for a little while. Not so in a house with 4 kids. Jake had a huge lump pop up

on the left side of his neck on Saturday. It wasn't there when I got him

dressed but when we got home from this mini carnival at the mall, it was there

and the size of a very large golf ball. We spent about 10 hours in the ER and

after every test they coud imagine, they decided that it was probably a swollen

lymph node and sent us home on antibiotics. Then on Sunday, we went to the

early church service so that we could go to the circus that afternoon. We came

and the girls went into their room to get it clean before we left.

slammed the door to keep Will out but managed to shut it with Will's middle and

ring finger inside the hinge side of the door. They looked like they were

clearly broken so I taped them together and gave him some motrin and made the

decision not to spend another 10 hours in the ER as long as he acted okay. He

cried for about 30 min and then took his nap. I took the girls to the circus

and Brad stayed with the boys. When we got home, they were all downstairs in

the playroom and Will was using his hand and fingers like there was nothing

wrong. I took them both to our pediatrician today and they switched Jake's

antibiotic since his neck was no better, did another blood count which was

better and tried to assure me that none of them there thought he had cancer. I

then took Will for an x ray of his hand and his fingers are not broken. All is

well that ends well, right???????

Thanks for listening,

mom to (7), (4)

Will(ds) and Jake(2)

---- Multiples-DS wrote:

> Reminder from: Multiples-DS Yahoo! Group

> http://groups.yahoo.com/group/Multiples-DS/cal

>

> Check-in Day!

> Monday February 5, 2007

> All Day

> (This event repeats every other month on the first Monday.)

>

> Notes:

> If you haven't posted in over 8 weeks - you are now at risk for being removed

from Multiples-DS! Please check-in with the group by posting to the group --

even a small update!

>

> Lurking is NO longer allowed on this group!!

>

> Thanks!

>

> Yahoo! Inc.

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February 5, 2007

Hi All,

Welcome to the new members. Thank goodness that Irene and her family

are doing well. That was too close for comfort!

To the new Mom's - I recommend the signingtime DVDs

(www.signingtime.com) and the Leap Frog ABCS, phonics, math, etc. DVDs

(from Target/Walmart) for your babies. Congratulations on your babies!

Haley & Nikki are starting to use spontaneous expressive language more;

Nikki used her first 3 words, " I want down " and then just pushed her way

out of my arms! My mouth just dropped. Did I hear what I thought I

heard? Since then, Haley & Nikki have spontaneously initiated, engaged,

and terminated conversation, even though the recent school evals suggest

otherwise. The latest was, " DaDa, JoJo, be back. " This is huge because

we didn't ask her to say it; she initiated it! It's the kind of moment

that we experience after waiting patiently for so long and wondering if

the therapies are really working, and then, when you least expect it...

The girls are in the middle of reeligibility and our county doesn't

recognize the DD label after age 5. My husband is not sitting easy with

the MR label that the school feels the girls " need. " They're premature,

still in 18-24 month size clothes at ages 4 1/2 yrs and had alot of

surgeries and procedures that caused alot of their delays since they

were always on their backs healing from post-ops. They have severe

dyspraxia and dysarthia. They learn in motion and with music; but the

school chooses to restrain them and stop any perservasive behaviors,

rather than give them sensory input they are craving in order to attend

to tasks. The school even said that all people with Trisomy 21 are MR,

unless they have mosaic ds. That doesn't sound right to me. They're

not doctors. Whatever... The evaluations even say since the girls

don't tell you if they are wet or dry, and they don't go away from

others when they are having a bowel movement, they aren't ready to potty

train. Such nonsense! Thank goodness Kennedy Krieger Institute thinks

its nonsense too. I probably could have trained them by now; just too

many babies and not enough mommies and time in a day!

I realize that two children with significant delays can overwhelm a

teacher and I was successful in adding an aide to the classroom to help

her because of this for the last two preschool years. But denying the

girls their rights is something I will not sit still for. Why should

they have to start kindergarten in a self-contained room because there's

no changing table in the inclusive kindergarten classroom? Placement

will be another uphill battle...

There are still medical concerns going on: allergy/feeding

clinic/dietary/nutritional/sleep studies/hearing/ENT. There are 4 appts

this week and several more throughout the month besides oral motor

therapy. Thank goodness they are pretty healthy otherwise; have been

doing well with hardly a cold this winter season. I think the isotonic

antioxidants they drink first thing each a.m. on an empty stomach is

really making a big difference. Even with all of the above, Haley &

Nikki are such happy little girls.

Little is doing great. He will start preschool in September at a

local Christian school. I'm so excited for him; wish he could start

now. He needs some buddies to hang out with. He was so kind to the

other children at registration. They were shy and wouldn't speak and he

was kind to them, even started signing words when he thought they didn't

understand or hear language. " Do you want to play? " It was so cute.

One boy was a little pushy and instead of pushing back, just

kept walking backwards and said, " Hands to self. " keeps saying,

" Santa Claus is watching me. " I keep thinking that he needs to learn

about Jesus because he needs to have a good base of religion and

spirituality so he can handle what lies ahead.

That's the scoop in a nutshell. Sorry for rambling... Thank God you

all are here to help me raise my babies! Time to retire. It's been a

rough few weeks... few months... several years.... but who's

counting! I'm so ready for a spa weekend!

Regards,

Granata

Mom to Haley & Nikki, 4 1/2 yr twin girls, both w/DS, and 2 1/2 yr son

Multiples-DS wrote:

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> Title: Check-in Day!

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> Date: Monday February 5, 2007

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> Repeats: This event repeats every other month on the first Monday.

> Notes: If you haven't posted in over 8 weeks - you are now at risk

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February 5, 2007

Sounds like our house! It is always a zoo here! Have a gentle evening.

-- Re: Check-in Day!, 2/5/2007, 12:00 am

We have had quite the weekend here in Roanoke, Virginia! After we made the decision to go ahead with Will's T & A,I thought we could take a break from stress for a little while. Not so in a house with 4 kids. Jake had a huge lump pop up on the left side of his neck on Saturday. It wasn't there when I got him dressed but when we got home from this mini carnival at the mall, it was there and the size of a very large golf ball. We spent about 10 hours in the ER and after every test they coud imagine, they decided that it was probably a swollen lymph node and sent us home on antibiotics. Then on Sunday, we went to the early church service so that we could go to the circus that afternoon. We came and the girls went into their room to get it clean before we left. slammed the door to keep Will out but managed to shut it with Will's middle and ring finger inside the hinge side of the door. They looked like they were clearly broken so I taped them together and gave him some motrin and made the decision not to spend another 10 hours in the ER as long as he acted okay. He cried for about 30 min and then took his nap. I took the girls to the circus and Brad stayed with the boys. When we got home, they were all downstairs in the playroom and Will was using his hand and fingers like there was nothing wrong. I took them both to our pediatrician today and they switched Jake's antibiotic since his neck was no better, did another blood count which was better and tried to assure me that none of them there thought he had cancer. I then took Will for an x ray of his hand and his fingers are not broken. All is well that ends well, right???????Thanks for listening,mom to (7), (4)Will(ds) and Jake(2)---- Multiples-DS wrote: > Reminder from: Multiples-DS Yahoo! Group> http://groups.yahoo.com/group/Multiples-DS/cal> > Check-in Day!> Monday February 5, 2007> All Day> (This event repeats every other month on the first Monday.)> > Notes:> If you haven't posted in over 8 weeks - you are now at risk for being removed from Multiples-DS! Please check-in with the group by posting to the group -- even a small update! > > Lurking is NO longer allowed on this group!!> > Thanks!> > > > All Rights Reserved> Copyright © 2007 > Yahoo! Inc.> http://www.yahoo.com> > Privacy Policy:> http://privacy.yahoo.com/privacy/us> > Terms of Service:> http://docs.yahoo.com/info/terms/

February 5, 2007

Hello everyone, Keeping my head above water with three girls! Taryn,4 is such an active, inquisitive girl and loves going to science museum pre-school. Due to this school, no fear of snakes, spiders, etc. Cate is back in pre-school at KinderFrogs at TCU (in Ft. Worth). I had pulled her out last fall, due to constant illness. She had a T & A in October and truly, is a different girl. We can't believe how her eating has advanced, I thought she would live on yogurt and baby food! And one upper respiratory infection since October. And three weeks ago, finally started walking. Ella has done great after her heart surgery in June, such the butterball. Just found out today she will need eye surgery to correct a weakened right eye muscle along with a blocked tear duct. Supposed to be outpt. surgery. Question for : what type of

antioxidants do you use? Very interested in getting them started on vitamin supplements. Comment for : In the last two months at work, I have encountered three babies with down syndrome in the nursery. All born to teenagers, one mom was 15! I couldn't say anything to two of the moms since their official genetic studies had not returned. I find it frustrating, but I understand the parents are probably not in any condition to even discuss the possibility of the diagnosis. The other mom had received the diagnosis, but seemed to be in shock. The grandmother was more open to info about ECI, local down syndrome groups, etc; Time to get some much needed sleep..........I appreciate all the advice and useful tips on this discussion group. Such a great help! Koz-Riddle Mom to Taryn,4, Cate,2 (ds) and Ella,11 months (ds) Hi All, Welcome to the new members. Thank goodness that Irene and her family are doing well. That was too close for comfort!To the new Mom's - I recommend the signingtime DVDs (www.signingtime.com) and the Leap Frog ABCS, phonics, math, etc. DVDs (from Target/Walmart) for your babies. Congratulations on your babies!Haley & Nikki are starting to use spontaneous expressive language more; Nikki used her first 3 words, "I want down" and then just pushed her way out of my arms! My mouth just dropped. Did I hear what I

thought I heard? Since then, Haley & Nikki have spontaneously initiated, engaged, and terminated conversation, even though the recent school evals suggest otherwise. The latest was, "DaDa, JoJo, be back." This is huge because we didn't ask her to say it; she initiated it! It's the kind of moment that we experience after waiting patiently for so long and wondering if the therapies are really working, and then, when you least expect it... :)The girls are in the middle of reeligibility and our county doesn't recognize the DD label after age 5. My husband is not sitting easy with the MR label that the school feels the girls "need." They're premature, still in 18-24 month size clothes at ages 4 1/2 yrs and had alot of surgeries and procedures that caused alot of their delays since they were always on their backs healing from post-ops. They have severe dyspraxia and dysarthia. They learn in motion and with music; but

the school chooses to restrain them and stop any perservasive behaviors, rather than give them sensory input they are craving in order to attend to tasks. The school even said that all people with Trisomy 21 are MR, unless they have mosaic ds. That doesn't sound right to me. They're not doctors. Whatever... The evaluations even say since the girls don't tell you if they are wet or dry, and they don't go away from others when they are having a bowel movement, they aren't ready to potty train. Such nonsense! Thank goodness Kennedy Krieger Institute thinks its nonsense too. I probably could have trained them by now; just too many babies and not enough mommies and time in a day! I realize that two children with significant delays can overwhelm a teacher and I was successful in adding an aide to the classroom to help her because of this for the last two preschool years. But denying the girls their rights is something I

will not sit still for. Why should they have to start kindergarten in a self-contained room because there's no changing table in the inclusive kindergarten classroom? Placement will be another uphill battle... There are still medical concerns going on: allergy/feeding clinic/dietary/nutritional/sleep studies/hearing/ENT. There are 4 appts this week and several more throughout the month besides oral motor therapy. Thank goodness they are pretty healthy otherwise; have been doing well with hardly a cold this winter season. I think the isotonic antioxidants they drink first thing each a.m. on an empty stomach is really making a big difference. Even with all of the above, Haley & Nikki are such happy little girls. Little is doing great. He will start preschool in September at a local Christian school. I'm so excited for him; wish he could start now. He needs some buddies to hang out with.

He was so kind to the other children at registration. They were shy and wouldn't speak and he was kind to them, even started signing words when he thought they didn't understand or hear language. "Do you want to play?" It was so cute. One boy was a little pushy and instead of pushing back, just kept walking backwards and said, "Hands to self." keeps saying, "Santa Claus is watching me." I keep thinking that he needs to learn about Jesus because he needs to have a good base of religion and spirituality so he can handle what lies ahead.That's the scoop in a nutshell. Sorry for rambling... Thank God you all are here to help me raise my babies! Time to retire. It's been a rough few weeks... few months... several years.... but who's counting! I'm so ready for a spa weekend! Regards, GranataMom to Haley & Nikki, 4 1/2 yr twin girls, both w/DS, and 2 1/2 yr sonMultiples-DS wrote:> Reminder from: *Multiples-DS Yahoo! Group > <http://groups.yahoo.com/group/Multiples-DS/cal>*> > Title: Check-in Day!> > Date: Monday February 5, 2007> Time: All Day> Repeats: This event repeats every other month on the first Monday.> Notes: If you haven't posted in over 8 weeks - you are now at risk > for being removed from Multiples-DS! Please check-in with the group by > posting to the group -- even a small update!>> Lurking is NO longer allowed on this group!!>> Thanks!> > Get reminders on your mobile, Yahoo! Messenger, and email.> Edit reminder options > <http://groups.yahoo.com/group/Multiples-DS/cal?v=75>>> Copyright © 2007 Yahoo! Inc. <http://www.yahoo.com> All Rights > Reserved | Terms of Service <http://docs.yahoo.com/info/terms/> | > Privacy Policy <http://privacy.yahoo.com/privacy/us>>>

February 5, 2007

I've posted news, but here is an update:

is still at her school, for now. I have agreed to extend the

" old " IEP another month, as we continue to gather information for this new

one. Our assistive tech meeting is next Friday (the 16th) and the new

behavior guy will be in to observe (a full day, I hope) sometime next week.

They continue to rigidly send her to the principals office for any minor

infraction. My lawyer has submitted a list of suggestions/requests to be

implemented immediately, until the new behavior study is completed. No

longer sending her to the principal is high on my list. They sent her 7

times in 4 days last week! It's ridiculous! They don't have any positive

supports in place, they just punish her afterward and document the hell out

of it to bolster their case.

The good news is that she is really getting the hang of simple addition and

her handwriting has improved tremendously! is having a good year

too. He is very eagerly awaiting permission to read the 4th Harry Potter

book and has recovered from his best friend moving 90 miles away. It's hard

to believe they are 7 already. commented that she'll be 8 on her

next birthday, and it blew me away! I just can't imagine they are that

" old " .

Anyway, it's nice to read everyone's updates. I look forward to reading

some more.

Casey, mom to (DS) and , 7

>

February 6, 2007

Keep the faith Casey!!!

Gail,

Mom to, Bobby 13, Jillian 10, & Tara(Ds) 7 1/2

Re: Check-in Day!, 2/5/2007, 12:00 am

I've posted news, but here is an update: is still at her school, for now. I have agreed to extend the "old" IEP another month, as we continue to gather information for this new one. Our assistive tech meeting is next Friday (the 16th) and the new behavior guy will be in to observe (a full day, I hope) sometime next week. They continue to rigidly send her to the principals office for any minor infraction. My lawyer has submitted a list of suggestions/requests to be implemented immediately, until the new behavior study is completed. No longer sending her to the principal is high on my list. They sent her 7 times in 4 days last week! It's ridiculous! They don't have any positive supports in place, they just punish her afterward and document the hell out of it to bolster their case.The good news is that she is really getting the hang of simple addition and her handwriting has improved tremendously! is having a good year too. He is very eagerly awaiting permission to read the 4th Harry Potter book and has recovered from his best friend moving 90 miles away. It's hard to believe they are 7 already. commented that she'll be 8 on her next birthday, and it blew me away! I just can't imagine they are that "old".Anyway, it's nice to read everyone's updates. I look forward to reading some more.Casey, mom to (DS) and , 7>

February 6, 2007

And relish the good (GREAT) stuff! Re: Check-in Day!, 2/5/2007, 12:00 am The good news is that she is really getting the hang of simple addition and her handwriting has improved tremendously! .

February 6, 2007

Hi all,

It is great to hear all of the updates from our families. We are enjoying record high 60+ degree temperatures here in Oregon. It's like spring, today!

Sara, now age 12, was in a dance recital Saturday night. We were very proud of her. She danced in three dances. My favorite was to the song, "Body Electric" from the soundtrack of "Fame". She loves the song, so put a lot of herself into it. I was very touched. She continues to love Middle School and is doing well.

Gail, I could relate to what you said about skiing. I have had Sara up only once, as it is a challenge--we are working on turning and stopping; until she gets those, I cannot let her be away from me, so she holds onto my poles turned side ways. Most of my skiing, this year, has been focused on our oldest son, Lucas, who is on the high school ski team. He will go to State, early in March in Slalom and if he does well, this weekend, will go in Giant Slalom, as well. Parents get to stand and watch the gates as the kids race, so that has been my job--freezing on the mountain on Saturdays. I have great faith that Sara will ski, one day. It is just a slow process. I need to put her in more lessons, especially designed for kids with special needs.

Gabe, Sara's twin brother, also loves to ski and plays tournament basketball.

Lacrosse begins for the boys in the spring, as well.

It's great to hear from everyone.

Take care,

Marcia

Mom to Sara (DS) and 12 and Lucas 16

February 6, 2007

Hello to all the great families in this list. Mabel Comas here mom to Carolina, Cristian and a-ds soon 8 years old. The kids are doing great specially a, I moved her from her school to our neighborhood school and she is fully included, she is doing excellent a huge change for her and for us too. Sorry I haven't been able to write been busy with the kids and too much going around in the family. But we are doing excellent. Welcome to all the new families, great place to be. Have a wonderful day each and one of you.

Mabel Comas, mom to Carolina, Cristian, a-ds here in Waldorf, land

From: Multiples-DS Reply-To: Multiples-DS To: Multiples-DS Subject: Check-in Day!, 2/5/2007, 12:00 amDate: 5 Feb 2007 03:55:18 -0000

Reminder from:

Multiples-DS Yahoo! Group

Title:

Check-in Day!

Date:

Monday February 5, 2007

Time:

All Day

Repeats:

This event repeats every other month on the first Monday.

Notes:

If you haven't posted in over 8 weeks - you are now at risk for being removed from Multiples-DS! Please check-in with the group by posting to the group -- even a small update! Lurking is NO longer allowed on this group!!Thanks!

Get reminders on your mobile, Yahoo! Messenger, and email.Edit reminder optionsCopyright © 2007 Yahoo! Inc. All Rights Reserved | Terms of Service | Privacy Policy Search for grocery stores. Find gratitude. Turn a simple search into something more.

February 6, 2007

This is Joyce , Vaughan's mother, checking in from Tyler, Texas. has caught you up on the doings of my grandchildren 8, 4, and Will (DS) and Jake 2, in Roanoke Virginia. I have noticed a couple of new Texas families. Anybody near Tyler? I have also noticed the nurses among you mentioning the arrival of several babies with Down syndrome in their hospitals. We have had a little run of other trisomies here, last week a baby with Trisomy 13 (Patau's syndrome) and this week a baby with Trisomy 18 ( syndrome). It's good to be in a position to help when you can.Multiples-DS wrote: Reminder from: Multiples-DS Yahoo! Group Title: Check-in Day! Date: Monday February 5, 2007 Time: All Day Repeats: This event repeats every other month on the first Monday. Notes: If you haven't posted in over 8 weeks - you are now at risk for being removed from Multiples-DS! Please check-in with the group by posting to the group -- even a small update! Lurking is NO longer allowed on this group!!Thanks! Get reminders on your mobile, Yahoo! Messenger, and email.Edit reminder optionsCopyright © 2007 Yahoo! Inc. All Rights Reserved | Terms of Service | Privacy Policy

Looking for earth-friendly autos? Browse Top Cars by "Green Rating" at Yahoo! Autos' Green Center.

February 6, 2007

We are all battling the arctic freeze here in Ohio. We have had two "snow" days....actually for sub zero weather. Today we are getting hit with a few inches of snow on top of that. So far, all the kids are doing well. is working on walking with a walker about 50 feet at a time. He just turned 4 on the 20th. Today happens to mark 4 years since Jordan was laid to rest, so it has been a rough week for me. I hope everyone else is doing well and staying warm.

Deanna mom to Alyssa, 13 , 11

Jarod, 6 , 4 (DS) ~i~Jordan (DS) 1/20/03-2/2/03

February 6, 2007

from Ontario Canada checking in. and (who play together) both have sinus infections at the moment and are on antibiotics. Otherwise are fine...fine little trouble makers anyhow. Found them both sitting side by side inside the fireplace last night...covered in soot. Nicala recently had a CT scan and we are awaiting the results. although younger then Nicala & is bigger....not much new with her....just growing like a weed. I cut a portion of my thumb off on Saturday (table saw) so I have been dealing with that since then....having to have the dressing constantly changed and see a plastic surgeon today (in regards to having skin graphing done...the left over skin got chopped up in the saw). , mom to Nicala & ,ds/adhd/autism (10), (8) and (1)

February 7, 2007

Hi Joyce, I am in Bedford, Texas (10 minutes away from DFW Airport). As a kid, we used to go to Lake Palestine every summer. Wonderful memories. Koz-Riddle Mom to Taryn,4, Cate,2 (ds) and Ella, 11 months (ds)-will be 1 on Valentine's Day!Joyce wrote: This is Joyce , Vaughan's mother, checking in from Tyler, Texas. has caught you up on the doings of my grandchildren 8, 4,

and Will (DS) and Jake 2, in Roanoke Virginia. I have noticed a couple of new Texas families. Anybody near Tyler? I have also noticed the nurses among you mentioning the arrival of several babies with Down syndrome in their hospitals. We have had a little run of other trisomies here, last week a baby with Trisomy 13 (Patau's syndrome) and this week a baby with Trisomy 18 ( syndrome). It's good to be in a position to help when you can.Multiples-DS wrote: Reminder from: Multiples-DS Yahoo! Group Title: Check-in Day! Date: Monday February 5, 2007 Time: All Day Repeats: This event repeats every other month on the first Monday. Notes: If you

haven't posted in over 8 weeks - you are now at risk for being removed from Multiples-DS! Please check-in with the group by posting to the group -- even a small update! Lurking is NO longer allowed on this group!!Thanks! Get reminders on your mobile, Yahoo! Messenger, and email.Edit reminder optionsCopyright © 2007 Yahoo! Inc. All Rights Reserved | Terms of Service | Privacy Policy Looking for earth-friendly autos? Browse Top Cars by "Green Rating" at Yahoo! Autos' Green Center.

February 7, 2007

Hello everyone, just checking in. I apologize for not

posting messages consistently.

is doing well, has been relatively healthy

besides minor cold symptoms. She's still taking dance

class once a week. It's getting alittle frustrating

sitting on the sidelines, she hasn't been focused the

last 2 weeks and she's doing her own dancing.

is going to start Tee Ball in the Spring. I

don't know how the parents with more than 2 kids

manage the activites. He'll have practise 2 nights a

week and games on Saturdays.

-Mom of (DS) and - age 4

________________________________________________________________________________\

____

Don't pick lemons.

See all the new 2007 cars at Yahoo! Autos.

http://autos.yahoo.com/new_cars.html

February 7, 2007

Hi Joyce,

We live in ville, Texas…so

we aren’t far from you at all. We

have 7-year-old twin girls…Zoe and Kyla (DS); they are in the 1st grade,

Kyla is fully included and both girls do well in school and their other

activities.

You are a long way from your

grandchildren…hope you get to see them often.

; mom to Zoe and Kyla (ds)

age 7

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