Guest guest Posted November 7, 1999 Report Share Posted November 7, 1999 I can feel your frustration. It is easier to pigeon hole these children, in a classroom off and away from the normal children. My daughter was in an autistic program that was provided by the school district. She always had to travel at least an hour each way to school and back. I was lucky enough to get the best they had because I wouldn't except just any special Ed teacher. Because very few of them were familiar with autism. We would threaten to go to court and then they would find a teachers that was actually qualified. I believed that the special way of teaching is something she had to have. But then she was learning but her behavior was just like the rest of the class. To make a long story short. She is now in a regular school one that her brother goes to. and they have to have an aid for her and she is in the second grade. They have to adjust and modify her work. And make special arrangements with her schedule to make sure she can handle it. It was a real strain. Only one of the resource teachers knew any thing about autism. But they are willing to learn. It still is not perfect and there are still a lot of kinks to work out. But the point I am getting at is being around the other children in a normal play and work environment has help her immensely. She might not be academically up there but her social skills and behavior, and want to be with other kids has increased 100%. She has her own friends. The kids in her class help her specially the little girls. In the special classes she was always the only girl. I think the influence of the other children is very important. Keep trying. Because nothing will be done if there is no squeaky wheel. May the force be with you? J. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 1999 Report Share Posted November 7, 1999 My husband and I were fortunate enough to attend Ron Leaf lecture on autism and ABA Interventions. My Husband found out and insisted that My daughters teacher attended. It would have been more benificial or at least as benificial to have had her aid attend. But we didn't find out about it in time for them to arrange to get off school. But we do know he is coming back to speak again and we are hot and heavy about getting the aid to go and the resource teacher and her second grade teacher to all go, yes and the principal. They all need to be informed. The teacher that attended sat close with us. He even admitted that after listening to the lecture he had no clue about any other methods , and he is very eager to go to the next lecture. He said alot of what Ron Leaf said that worked for the autistic would even help his other students.The school district knew about him coming but they did not send any flyers or annoucements. My husband found out just in time. My advise to you is to try to do the ground work and try to find out any information on speakers or workshops in your area and find out if you can attend and insist that the teacher or aid attends. and be all over them all the time asking if they know of any speakers or workshops and tell the you want to know about anything that they find out. Trust me they will not throw you a bone if they think they can blow you off. Push for them to have to have someone come and train the people they have if they can't be qualified already. You have the right to ask, and then insist. squeaky wheel! May not happen over night but someone has to wear them down. good luck. MJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 1999 Report Share Posted November 7, 1999 Thanks for your support... I am so glad to hear someone say that keeping " these kids " with there typical peers is what is best for them. My frustration comes from not having qualified teachers to support her needs.. Jaylin and I live in a very rural part of Ohio where there isn't a lot of money in the school districts.Getting what I would consider a qualified teacher for her would cost more than they would want to spend....The district couldn't find someone willing to live in this area unless they paid very good money for them... the teachers she has had experiences with so far have no clue what they are doing, they all try to make her " normal " and she isn't now nor will she ever be.... They need to learn to give up their adult attitudes and watch how the other children treat her. Again THANKS, Shellie Re: Hello >From: DAK69@... > >I can feel your frustration. It is easier to pigeon hole these children, in a >classroom off and away from the normal children. My daughter was in an >autistic program that was provided by the school district. She always had to >travel at least an hour each way to school and back. I was lucky enough to >get the best they had because I wouldn't except just any special Ed teacher. >Because very few of them were familiar with autism. We would threaten to go >to court and then they would find a teachers that was actually qualified. I >believed that the special way of teaching is something she had to have. But >then she was learning but her behavior was just like the rest of the class. >To make a long story short. She is now in a regular school one that her >brother goes to. and they have to have an aid for her and she is in the >second grade. They have to adjust and modify her work. And make special >arrangements with her schedule to make sure she can handle it. It was a real >strain. Only one of the resource teachers knew any thing about autism. But >they are willing to learn. It still is not perfect and there are still a lot >of kinks to work out. But the point I am getting at is being around the other >children in a normal play and work environment has help her immensely. She >might not be academically up there but her social skills and behavior, and >want to be with other kids has increased 100%. She has her own friends. The >kids in her class help her specially the little girls. In the special classes >she was always the only girl. I think the influence of the other children is >very important. Keep trying. Because nothing will be done if there is no >squeaky wheel. >May the force be with you? > J. > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2000 Report Share Posted January 21, 2000 In a message dated 01/21/2000 4:01:41 PM Eastern Standard Time, neny@... writes: << I'm at work right now BORED, reading old posts and hoping...... I hope to become a regular with this email group - you guys are so MOTIVATING and ENCOURAGING to each other >> you already were a part once you subbed Barb who wishes those who are thinking like but even more quiet would intro themselves Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2000 Report Share Posted January 21, 2000 At 12:59 PM 01/21/00 -0800, wrote: >As I began to read the emails, I knew I had to get myself >together....After I finished reding, I had a power bar and did the >Basic tape...and I felt WONDERFUL afterwards.... This is only one of the many great things about this email list. I am *so* glad to be here. For something like Taebo, where we buy the item from tv and have no real one-on-one with the instructor, no opportunities to ask questions, get hands-on pointers, etc., it is so helpful for all of us to have each other to help with all of this stuff. -- Sandy (mild applause for getting up and DOING IT!) Sannicron Web Design http://www.sannicron.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2001 Report Share Posted April 8, 2001 , youi said what I just emailed the group! It never seems to end-- the day I left for hte meeting (first time I have ever left my children other than one weekend dad and I spent away) and ph got sick! THANK you for your kind words! -- ~Pattie~ " a person's a person, no matter how small " ~~ Dr. Seuss Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2001 Report Share Posted April 8, 2001 You're welcome Pattie. I just know how it's been for us trying to ever get any time away. In 9 years, we've spent two nights away from Chad that weren't absolutely necessary (husband or me being in the hospital). So I can only imagine that it's twice as bad when you have more than one child with PID.......or even one sick child and the others healthy. So many stories here really touch my heart because I think how it's been for us and I see families whose struggle has to be triple that and yet, everyone seems to stay sane somehow! My hopes for your children to be and stay well enough for you to make it to the conference are with you. I'll be sure to read your other post. Re: hello > , youi said what I just emailed the group! It never seems to end-- > the day I left for hte meeting (first time I have ever left my children > other than one weekend dad and I spent away) and ph got sick! > > THANK you for your kind words! > > -- > ~Pattie~ > " a person's a person, no matter how small " ~~ Dr. Seuss > > > > > This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2003 Report Share Posted November 11, 2003 welcome back, mike! We're glad to have you, and will appreciate comments from your point of view! maralee Hello > Most of you probably don't recognize my name. > > I joined this group back in March, and posted an > introduction/question, that I'm 16 with AS and if you guys wanted I > could answer questions from the kid's point of view, and got > positive responses. > > I then proceeded to lose my login information(hah!). > > I finally found this group again and joined with a different > nickname, searched through the member list and found this nickname, > then remembered the password.. so.. I'm back! :-) > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2003 Report Share Posted November 11, 2003 Hi Mike, Welcome back. It will be great to have your input again. in Ajax > >Reply-To: autism-aspergers >To: autism-aspergers >Subject: Hello >Date: Mon, 10 Nov 2003 20:27:13 -0000 > >Most of you probably don't recognize my name. > >I joined this group back in March, and posted an >introduction/question, that I'm 16 with AS and if you guys wanted I >could answer questions from the kid's point of view, and got >positive responses. > >I then proceeded to lose my login information(hah!). > >I finally found this group again and joined with a different >nickname, searched through the member list and found this nickname, >then remembered the password.. so.. I'm back! :-) > _________________________________________________________________ The new MSN 8: advanced junk mail protection and 2 months FREE* http://join.msn.com/?page=dept/bcomm & pgmarket=en-ca & RU=http%3a%2f%2fjoin.msn.com\ %2f%3fpage%3dmisc%2fspecialoffers%26pgmarket%3den-ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2003 Report Share Posted November 20, 2003 Hi, I just wanted to report that my son has a new OT at the school and she recommended headphones to block out unwanted and excess noise. I went and bought an old pair of stereo headphones at the thrift store and lined the earpieces with moleskin. He loves them. He has been able to tolerate regular ed classes almost 80% of the time now, as opposed to being self-contained since his diagnosis a year ago as having Aspergers. he is also a spelling be candidate! Marcia > >Reply-To: Texas-Autism-Advocacy >To: <Texas-Autism-Advocacy > >Subject: RE: Hello >Date: Thu, 20 Nov 2003 13:16:11 -0600 > >I'm so happy to hear she is doing well! How exciting for you. > >Pam > Hello > > > Hi all, > > It's been along time, but I have the best news. Angel is now > receiveing behavioral management for her autism and she is doing so >well. >Tonight > she has not eye poked or obsessed over her Barney Movies. Someone else >can > actually watch a movie. I am so happy. I hope all is going well for >the >rest of > you. > > Tammy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2005 Report Share Posted July 15, 2005 that is excellent advice. When I went to my hearing I could not take my meds that morning since it would cause me to keep running to the bathroom every 15 minutes I told this to the judge. I also told the judge that we only have a small window of time that we can take our medications and still keep them working that even one missed dose can cause problems with effectiveness of the cocktail. Also if you have wasting and are sitting on a hard chair let the judge know that its bothering you to sit for long times and that its hurting now as you sit there. Give honest answers but do not give anymore than what is asked. Do not volunteer information it can/will hurt your case. Keep on subject and give the briefest of answers. Make the judge ask questions don't open your mouth just to talk(I know it was hard for me too LOL) FRANK Quote Link to comment Share on other sites More sharing options...
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